IBS-C and Celiac...starting all over again need help!
#224955 - 11/14/05 05:29 PM
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jamiep
Reged: 12/21/04
Posts: 92
Loc: Arroyo City Texas USA
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I was on the IBS diet for several months when I was diagnosed as having Celiac after a biopsy. So I thought being Gluten free would take care of everything. Boy was I wrong! I am so sick again. I'm going to start on the what to eat when can't eat anything part. Here's my delema...I've been taking citrucel and miralax twice a day to keep me going but, I have so many spasms now...Should I start back at the begining with that too? I mean with small doses and build back up or stay where I'm at since I'm already at a high dose. Any help would be great. Thanks.
Love,
Jamie
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I don't think I would lower your fiber intake if you have already built up your dose. Seems that would only make things worse. I'm sorry you are so sick. Perhaps it is your body responding to the removal of things that were hurting you. I don't really know. The hot teas seem to help me the most when I'm suffering spasms...that and a heating pad. I hope you are feeling better soon!
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God is Faithful!
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HI there! I was diagnosed with celiac a year ago--now it turns out my gallbladder was the problem and I don't have it, but I ate gluten free and IBS safe for a year... keep this in mind-- for celiac symptoms to goa way it can take anywhere from 6 months to a year...so just after you start glutenf ree you won't be better for a bit...how long have u been eating GF? Also, celiac is just so hard on your symptom before you get diagnosed that IBS can worsen for awhile until it works its way out and your intestines heal. Hang in there-- miralax was my savior during all of that time... I took half a dose once a day and boy did that work! Good luck to you...and there are a few people on this site that can really give good GF/IBS advice!
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IBS-A
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So you have to eat safely for both diets. You can't just start eating gluten free and abandon the IBS diet if you have IBS too.
Does the doc think you have both? Maybe it's too early to tell. For now, I'd just eat as if you have both. I also ate GF for a year. And eating GF and IBS safe is quite a challenge, especially if you are C. The doc told me a GF diet can be sort of constipating in itself. And if you have IBS on top of it, you can't just go and eat lots of millet and amaranth because it's all pure IF.  And most of the cereals and breads are low fiber and/or high in fat. It's so hard. It's the worst of both worlds, but I know Kandee has had luck finding a balance between the two diets. She still struggles with some symptoms, though.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Hi Beth,
Thanks for your support. Yes my doc thinks I have both but...thought I knew better. I guess I had to have it confirmed the hard way. Thanks again.
Love,
Jamie
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Alv,
Thanks for the support. I take miralax twice a day and I need it to go. You think that would have made me realize I need the diet too. I feel kind of stupid now.
Thanks again.
Love,
Jamie
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Bamagirl,
Thanks! I'm going to try the hot tea and a heating pad right away. I think I've just gone brain dead because I didn't even think of that on my own.
THanks
Love.
Jamie
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I am still so confused about whether or not my positive antibody test is telling me something is not right with eating gluten. The doctors all give me different advice on whether or not eating gluten will effect my GI system. I'm afraid if I eat it, I will never have a chance of feeling stablity.
How are you doing eating wheat products? Aren't you concerned that you did have positive antibodies....don't you wonder why we have those? Don't they mean something?
I know you can't tell me what to do...but I was wondering how you let go of the fear and came to the decision, for yourself, that it was okay to eat wheat and other gluten foods despite your positive antibodies. You're doctor truly believes that these antibodies mean nothing? I tested positive 3 times...so I know it wasn't a false positive....but I've also read on here that other GI problems can cause the positive antibodies.
How are you doing? And how do you come to peace without always questioning putting gluten into your body?
I feel like my whole life is spent in limbo and I just want to know for sure what I should be doing...but noone can tell me. I like definitive answers....and the doctors don't seem to be able to give me one. I am going nuts over this. I wish I never had the stupid test!
Thanks for any feedback
*Hugs*
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Oh Beth! I'm so sorry you're going through all of this. I think it was easier for me to eat wheat products because they NEVER triggered my IBS before the positive bloodwork, so I always had a feeling like celiac wasn't right for me. Still, I was paranoid about avoiding it. I wouldn't kiss my boyfriend if he had any wheat, I even traveled to Vienna, Athens, & London last yr...taking a bag of food with me...and losing 10 lbs. It was horrible.
After the surgery, I gave it ago...I had some bad days at the beginning (but I am SURE it was the stress). My body has reacted very well to wheat. I'm lucky... still, with your gallbladder issues, one doc said it can be positive bloodwork wise if something else in your is swollen. My gallbladder showed chronic inflamation, even though it looked fine on the CT scans... so I don't know.
Still, its a decision that has to come with time and ease...the stress of it could send you in another attack.
Ok...so as for how to make your VERY difficult decision. It's hard... the first time I ate some bread, I thought my heart was going to FALL out of my chest. All of us here just want to do/try ANYTHING if it'll make us feel better. I know if you were more stable, you'd jump right into this and hope for the best...but while feeling ill and worrying about the belly, it is so hard. I seriously suggest you write down pros and cons, weigh the options... if you can accept to try small amounts, give yourself a HUGE pat on the back. Don't think it's silly...be proud for making a decision. If you feel good by that little step, take a little bigger step the following week. I really want you to trust your body! I know it's hard...but feeling better is the most important part...don't push until you are good and ready! Hope this helps..hang in there!
btw--I looked up the bread I ate while on a celiac diet--and guess what? it wasn't safe..it had nonfat dried milk and whey in it! (big ooops!!)...I loved it--the GF Pantry favorite sandwich bread...so don't listen to me about that! Sorry!
Take care Beth!
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IBS-A
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In case I decide to stay GF, could you post your bread recipe. Sad to say, but I wouldn't mind staying GF for piece of mind if the bread didn't cost so much. I'm poor! Plus, it's hard to find an IBS-safe GF bread.  The one I eat now contains whole eggs as the second ingredient.  And the others either contain whey, high fat, or seeds and nuts....or taste like styrofoam! And all the white rice is sort of constipating.
My gallbladder was not inflamed...it just wasn't working. So, that theory is probably so correct for you, but I can't use it. Have you ever heard that IBS could cause positive antibodies? And if so, does it still need to be avoided? I would assume so. Stupid antibody test. I am really losing control over my obsession with this and I think I need to talk to a therapist about this or something.
I truly, honestly, don't know what to do. Am I sabotoging myself from ever feeling decent if I eat gluten? I will go to my grave wondering this. I must pray for peace with this one.
Do you think I should try to eat gluten again?
Ooh, yeah, that mix has dried milk in it! They do make a version now that is dairy free...but you usually have to order it because stores don't carry it as often.
Yep, if I felt better, I would feel more likely to experiment because I would notice I if I was feeling worse when eating gluten. But when you don't feel stable to start with, that's not possible to do...so I would always wonder.
Okay...sorry for the long vent. Thanks again for listening...and if you could share your bread recipe, that would be nice.
Thanks Aly!
Big Hugs!!!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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