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Hi...I'm Matt and I suffer from IBS...and boy do I need help!
      #217764 - 10/06/05 08:28 AM
Matt_B

Reged: 10/06/05
Posts: 4


I was diagnosed a few weeks ago with IBS-C after several frustrating visits to two gastroenterologists. This is on top of excruciating GERD that I've been dealing with for years. Now I can't eat or drink hardly anything. Not only does my lower GI hurt because I can't go, but anything I try to put into my body to help just triggers the acid reflux because my stomach is already full (at least I assume it is, since nothing seems to be going out). I've been tested for Celiac's and have been scoped from both ends with no abnormalities found.

I've been taking fiber supplements for months.

Now things are getting worse. I've been losing weight over the last few months because I'm not able to eat what my body needs. I'm becoming a huge stress ball over this and other things in my life and my lower GI seems to have shut down. This morning I couldn't take it anymore and got an Extreme Sausage Sandwich from Jack-in-the-Box for breakfast. I've also decided to drink coffee again today. I'm sure I'll have several days of suffering from this, but I suffer anyway, so I might as well eat what I want.

I'm going to the doctor today to have my prostate checked and talk about the depression and anxiety my digestive tract is causing me. Maybe an enlarged prostate is blocking me up. Have any other men had problems with an elarged prostate causing constipation?

My gastroenterologist gave me a perscription for Zelnorm to try. I'm hoping this will work. Any suggestions for taking the med to get the most effect?

I've also signed up for a Tai-Chi class starting next week.

Of course, all these changes in my life are probably compounding the problem. But I'm desperate to fix this.

I'm sorry about the long winded post, I just needed to get some things off my chest. For those of you who stuck in, thanks for reading. And I again apologize for taking so much time on the boards.

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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #217769 - 10/06/05 08:53 AM
retrograde

Reged: 04/15/04
Posts: 1569


Hi and welcome to the boards! Thanks for introducing yourself.

Quote:

I was diagnosed a few weeks ago with IBS-C after several frustrating visits to two gastroenterologists. This is on top of excruciating GERD that I've been dealing with for years. You're definitely not alone on that one. Lots of people on the boards have both IBS and GERD. Heather recommends peppermint as a marvelous antispasmodic herb for IBS - and it truly is marvelous - but since you have GERD you should stay away from it and choose chammomile, fennel etc. instead as mint can aggravate GERD.

Now I can't eat or drink hardly anything. Not only does my lower GI hurt because I can't go, but anything I try to put into my body to help just triggers the acid reflux because my stomach is already full (at least I assume it is, since nothing seems to be going out). I've been tested for Celiac's and have been scoped from both ends with no abnormalities found.

I've been taking fiber supplements for months. What fiber supplement are you taking?

Now things are getting worse. I've been losing weight over the last few months because I'm not able to eat what my body needs. I'm becoming a huge stress ball over this and other things in my life and my lower GI seems to have shut down. This morning I couldn't take it anymore and got an Extreme Sausage Sandwich from Jack-in-the-Box for breakfast. I've also decided to drink coffee again today. I'm sure I'll have several days of suffering from this, but I suffer anyway, so I might as well eat what I want.

I'm sorry you're having such a rough time Have you had a good read-through of this site, especially about the DIET (web page)? It's so important. I'm guessing you haven't since red meat (your sausage) and coffee are big time triggers for most people! Definitely read through the whole website. Soooo much useful and helpful information - it was a god-send for me and many others.

I'm going to the doctor today to have my prostate checked and talk about the depression and anxiety my digestive tract is causing me. Maybe an enlarged prostate is blocking me up. Have any other men had problems with an elarged prostate causing constipation? You'll probably notice that on these boards the majority of us are women But there definitely ARE some men here - so hopefully some of them will chime in!

My gastroenterologist gave me a perscription for Zelnorm to try. I'm hoping this will work. Any suggestions for taking the med to get the most effect? WOAH... I was under the impression that Zelnorm was ONLY FOR C-PREDOMINANT WOMEN. This is what it says on this page. I would definitely check this out with your doctor and maybe do some research of your own too before you start taking it. Lots of people here DO take it and many have had success with it I think, but I'm pretty sure it should only be prescribed to women! You should also know about the FDA warnings on it, which are detailed on the link above.

I've also signed up for a Tai-Chi class starting next week. Fabulous! Great for stress relief and relaxation, which are so cruicial.

Of course, all these changes in my life are probably compounding the problem. But I'm desperate to fix this.

I'm sorry about the long winded post, I just needed to get some things off my chest. For those of you who stuck in, thanks for reading. And I again apologize for taking so much time on the boards. No need to apologize - that's what we're here for! Definitely have a good read through the site and get started on the diet asap. Best of luck to you, and once again, welcome to the boards!




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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #217823 - 10/06/05 12:09 PM
Matt_B

Reged: 10/06/05
Posts: 4


I've been drinking fennel tea AND taking Heather's peppermint caps for 3 days, neither of which relieve the pain/bloating/gas in my system.

I was taking Benefiber, but I started on acacia fiber 3 days ago. I'm up to 2 tablespoons a day.

I have been following the diet from the book for about a week. Started with nothing but SF and started adding some IF a few days ago. I also quit coffee (something I thought impossible!) Funny thing is, this morning my symptoms seemed to slightly let up AFTER I ate the greasy sausage sandwich and had that cup of Joe! Oh, if that were only the cure

My somewhat competant gastro told me they have recently seen benefits from Zelnorm for men with IBS-C. It doesn't really matter, I just found out my insurance won't cover it. And at $150 it'll just worsen my symptoms because the added financial stress.

I'm a bit cynical about all this right now. I've had a difficult time dealing with my gut, as I'm sure many of you have. All this new information is sooooo overwhelming. I had to go through this process of becoming a "patient-expert" a few years ago when my son was diagnosed with autism. The doctors don't know much about that one either. They leave it up to the patient to deal with it the best they can. Our family had to put life on hold to deal with that, and I'm not looking forward to putting my own life on hold to deal with my own problems.

Sorry about the rant. And thanks again for listening.



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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #217828 - 10/06/05 12:19 PM
melissamonica

Reged: 07/07/05
Posts: 40
Loc: Scranton Pennsylvania

Matt- You are definately in the right place on this board. Alot of people here can totally relate to what you are saying.

I was on the Zelnorm on two different occassions and didn't have very much luck with it. It didn't make me move my bowels anymore than before and it didn't take the "below the belly button" crampy feeling away.

I too lost a considerable amount of weight from not eating.

I became very very very depressed and ultimately ended up having to go to my primary care dr to get on something to help me "cope" with all that was going on in my gut. I didn't want to go anywhere, do anything. I didn't want to go to work, or eat. I was a mess! I currently take Zoloft and it has really helped me deal with the constant frustration. I also gained 23 pounds in the last 6 months. (which was a good thing)

I thought about counseling to gain some "coping" skills but haven't went down that path yet.

I don't know if this has helped but hang in there- Keep talking on this board. There is alot of knowledge here.





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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #217834 - 10/06/05 12:48 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Matt, I'm an IBS-C also, and I have an enlarged prostate
too. In fact I take double Flomax plus Avodart. The enlarged
prostate shouldn't cause constipation, it may be a bit more
difficult to pass stools. If it was causing constipation it
would be so ballooned you wouldn't be able to pee at all.
If you're having trouble passing stools, then do what I do,
squat, that straightens out the 'anorectal angle' to 180
degrees as opposed to 90 degrees when you sit upright on
the toilet, and makes it much easier to poop. It's a good
idea to bag the Zelnorm, my GI doc told me the same thing
as yours, and I had a severe allergic reaction to it. I
had D for two weeks after stopping it, it takes a long
time to get out of your system. I've had some success with
drinking coffee again. It seems half the time it works the
other half it aggravates. I'm not doing too bad right now.
I've been managing to go a couple of times in the morning
every day, it's not fun mind you, but at least it's coming
out. I think the 25mg of Paxil I take is the key factor in
having the BM's. If you can, get yourself an SSRI like
Paxil, it may really help. Also, you may be increasing
your acacia dose too fast which may contribute to your
being gassy. And yes, this board is totally dominated by
women, you just have to put up with their calling each
other sweetie and honey and giving {{hugs}} and stuff like
that. It's no too bad -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Sweet Bob... new
      #217836 - 10/06/05 12:49 PM
Cyndy

Reged: 03/05/05
Posts: 1301


....big (((((((((((HUGS)))))))))))) and kisses to you honey!

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Acacia, IF, Zelnorm new
      #217837 - 10/06/05 12:54 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Hi, Matt. I'm IBS-D but a couple things in your post sort of jumped out at me.

Quote:

I was taking Benefiber, but I started on acacia fiber 3 days ago. I'm up to 2 tablespoons a day. Acacia has lots more Soluble Fiber per dose than other Soluble Fiber Supplements, so you might be getting lots more Soluble Fiber from the acacia than you were from the Benefiber. Increasing the amount of Soluble Fiber you get from Soluble Fiber Supplements too quickly can cause gas, cramps, and bloating.

I have been following the diet from the book for about a week. Started with nothing but SF and started adding some IF a few days ago. I also quit coffee (something I thought impossible!) Funny thing is, this morning my symptoms seemed to slightly let up AFTER I ate the greasy sausage sandwich and had that cup of Joe! Oh, if that were only the cure From what I've read, IBS-C types really need quite a bit of IF. If you're still just getting a little IF, your symptoms may ease once you work your way up to more. I also think not getting enough fat can be a problem (my own opinion), so the grease in your sandwich may have helped, too. And coffee has always worked as a laxative for me. In the long run, though, I truly believe red meat, too much fat, and caffeine cause more problems than they're worth.

My somewhat competant gastro told me they have recently seen benefits from Zelnorm for men with IBS-C. It doesn't really matter, I just found out my insurance won't cover it. And at $150 it'll just worsen my symptoms because the added financial stress. The Zelnorm Website recommends Zelnorm for women with IBS and for men and women with chronic idiopathic constipation. That doesn't mean your doctor isn't right - physicians may be prescribing it "off-label" for men with IBS-C, but I'd be really, really cautious. I don't think there's any way to know if Zelnorm has never been tested on men with IBS-C or was tested and either didn't work or had unfortunate side-effects. If you have your heart set on trying it, there are programs that help people get medicine they can't afford. Personally, I'd give Heather's approach a solid try first.




HTH. Welcome to the Boards and good luck.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: Sweet Bob... new
      #217840 - 10/06/05 12:57 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Aw shucks Cyndy you're making me blush! Talk about a quick
reaction(LOL) -Bob

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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Just wanted you to realize... new
      #217844 - 10/06/05 01:03 PM
Cyndy

Reged: 03/05/05
Posts: 1301


...that even though you're a guy, you still get to be called honey and sweetie and get hugs too! If you can stand it! LOL...

I just couldn't resist after reading your last response to Mike! It cracked me up!

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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #217861 - 10/06/05 03:00 PM
Matt_B

Reged: 10/06/05
Posts: 4


Thank you all so much for replying. I just got back from my doctor (general prac) and found out that I have lost 20 pounds since July. This blew me away, I'm a food junkie and I haven't weighed this little since college...6'-0", 160 lbs., YIKES . So my doc is running full bloodwork and if nothing comes up we'll schedule a CT scan or MRI. In the meantime I've decided to:

-Continue increasing my IF intake
-I'll wait on the Zelnorm until I've tried a few more things
-Continue eating mostly non trigger foods, but I'm going to try adding a little more fat back into my diet.
-Join that Tai Chi class and see if I can find a better way to lower of some of this STRESS

I'm hoping that either the tests will show something and a treatment protocol can be defined from that, or that the diet will start making me feel better. I'm still confused as to what triggers affect me specifically. I guess that will just come from experience. But, I'm glad I found a place to at least get a good head start.

Thanks again for the help and support!

PS-I kinda like the mushy, girl stuff. I've been "toughing" this out too long...

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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #217920 - 10/06/05 06:38 PM
tcollins

Reged: 01/19/05
Posts: 62
Loc: Mississippi, USA

It is difficult when the Dr's say they don't have a cure or remedy. Worry only adds to the problem as you already know. I hope you feel better soon.

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Oh, thank you! :) new
      #217998 - 10/07/05 08:16 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Oh yeah, I don't mind . I was doing it partly to tease you
women<laugh>. Oh, by the way, I'm trying an experiment with
cutting out bananas and seeing if the C gets better. I'm
susbstituting eating pears instead of bananas. Yesterday was
my first banana-less day. Today it kinda worked too good. I
started feeling the urge to go in the middle of my 2nd morn-
ning class, I managed to last with about 10 minutes to go,
and used the excuse,"Well, It's friday, I'll let you guys
out early", and promptly ran to the bathroom across the
hall. I had two more BM's in quick succession and was done
in twenty minutes, which is good. I even feel relatively
evacuated. I hope this keeps up. If it does, no more
bananas for me. Hope you are doing better! -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Bob! new
      #218002 - 10/07/05 08:19 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

PLEASE tell me they were tinned pears in juice?!!! Otherwise exchanging a banana for a fresh pear is exchanging SF with a possible C effect for a nice dose of IF. BIG difference. Try substituting something like applesauce instead.

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Re: Bob! new
      #218008 - 10/07/05 08:25 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Um um..not exactly, but I didn't eat the skin, and that's
where all the IF is right? Well, like I said today has gone
pretty good so far. -Bob

--------------------
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Be careful... new
      #218009 - 10/07/05 08:27 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

...I'd only have something like that after SF or if I was feeling VERY stable. And were they ripe?

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Re: Be careful... new
      #218019 - 10/07/05 08:48 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Um yeah, I think so, they were a wee bit soft and easy to
chew. The skin was green, but they're Bartlett pears.

--------------------
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Bob, instead of substituting a whole pear for a whole banana... new
      #218051 - 10/07/05 10:18 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

how about eating a half banana and half pear instead of a whole one of either? That way you'd get your SF base from your banana and your IF from your pear. And you could eat the other halves tomorrow.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: Bob, instead of substituting a whole pear for a whole banana... new
      #218054 - 10/07/05 10:42 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Sand, That's because I'm doing an experiment for Cyndy and
myself to see if bananas contribute to C. Also, according to
that fiber chart from Northwestern Univ. Med. School, of the
2.8 g's of fiber in a banana, 2.1 are IF, and of the 4.0 g's
of fiber in a pear, 2.2 are SF, which would make pears safer
than bananas. I would tend to trust technical info from NU.
-Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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DELETED - I was getting silly. (Didn't there used to be a "Delete" button?) -nt- new
      #218122 - 10/07/05 01:48 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Putting text in here because the post engine is complaining if I leave this blank. It seems to do this somewhat randomly.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

Edited by Sand (10/07/05 02:23 PM)

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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #218133 - 10/07/05 02:16 PM
belinda

Reged: 10/09/03
Posts: 474
Loc: Toronto, Ontario, Canada

Matt:

I haven't read all the replies to your post, but I find it interesting that on the one hand you are trying to help yourself (Tai-Chi, medication, etc.) but on the other hand you are sabotaging your efforts (Extreme Sausage Sandwich, etc.).

I can appreciate how frustrated you are with your situation. I believe IBS-C is much more difficult to manage than IBS-D. I've suffered from both during my life and right now I am IBS-D predominant. I much prefer IBS-D because whenever I am in danger of slipping back into IBS-C, I know of quite a few foods I can eat that will provoke D without pain. (In a strange sort of way I consider myself to be blessed!)

In your case, it sounds as though the jury is still out as to whether your C is totally caused by IBS or whether there may be other medical conditions involved.

If your problem is totally caused by IBS, then I would strongly encourage you to stick to Heather's diet, drink lots of room temperature bottled water, participate in rigorous exercise on a daily basis and, yes, take up something like Tai Chi or yoga for relaxation. These are unfortunately probably your only options because medications like Zelnorm are not very effective when it comes to IBS. Basically, at this point in history, diet and lifestyle are the only things available to control IBS although some IBS people also seek out holistic-type remedies as well.

I hope you find a way to get back on track because your present situation sounds very dire. I've experienced something similar myself after a bad IBS attack and I've had a great deal of difficulty eating because it was like my intestines had a blockage or something. On those occasions I've switched to a very soft diet consisting of pureed foods (babyfood is good if you haven't got the patience to puree it yourself) and lots of warm liquids like soup. Of course, I continued to follow Heather's diet rules when eating those foods.

I hope you find the source of your discomfort and feel better VERY SOON.

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Re: Hi...I'm Matt and I suffer from IBS...and boy do I need help! new
      #218664 - 10/10/05 12:01 PM
dollyjen

Reged: 09/28/05
Posts: 5


Hi Matt,

Sounds like my story. I was diagnosed about two months ago with IBS-C and given Zelnorm. Supposedly, Zelnorm was not clinically tested in men but aside from that, I find it to work for me (female though). Taken as directed, along with following Heather's diet religiously and taking Acacia Fiber. I also take her Peppermint tablets religiously when pain and bloating comes on. They work very well for me. I know the frustration of giving up everything, but for me it has been worth it, without pain. Once I started Acacia fiber, peppermint pills, and following the diet, to a tee, my pain went away. I don't have a prob with all trigger foods. I can drink nonfat milk in small quantities and bake with one or two eggs, but the best thing to do is cut out all bad for a month and then slowly add one thing in moderation, to see how your body reacts. Workout hard and relax. Stress is a huge contributor. Hope this helps. Buy Heather's book "Cooking for IBS", it is great, lots of flavors.
Take care
Good Luck
Jen

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Bob.....I just bet you don't mind hugs and honey too much!!! new
      #218671 - 10/10/05 12:17 PM
bamagirl

Reged: 04/02/04
Posts: 1407
Loc: Alabama

This was a funny comment! I'm glad you are here because your posts are always informative and helpful!

--------------------
God is Faithful!

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Nah, not too much<laugh> new
      #218686 - 10/10/05 12:52 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Thanks very much Bamagirl, Cyndy got a kick out of it too.
-Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Yeah, admit you like it! new
      #218687 - 10/10/05 12:55 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

You guy-guys are you rare that you all get thoroughly spoiled!

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Ok Ok, I like it, I like it. LOL -nt- new
      #218830 - 10/11/05 05:41 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C



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