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I take pepto everyday too.....nt new
      #216761 - 09/30/05 09:12 AM
anlikerm

Reged: 09/16/05
Posts: 1320
Loc: NC



--------------------
IBS-D. Hiatal Hernia, GERD
Unstable

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Re: Can't take it anymore new
      #216765 - 09/30/05 09:19 AM
whoopiecushion

Reged: 11/17/04
Posts: 52
Loc: South Carolina

Yes I have used Immodium in the past. I used to drink it right out of the bottle and go aaaah. Like it was a shot of whiskey going down. Even though I have never had a shot of whiskey, but that's what I imagine it to be like. I always would think burn that stomach up as I swallowed it, I wanted my insides to suffer like they make me suffer. Silly I know. I have kept food journals before and went on extreme elimination diets throughout the years even eliminating any possible causes like tooth paste. They always end the same though, somewhat lesser symptoms, but not enough to make my life so much better that I wanted to give up everything. My triggers seem to be mostly everything, I think breathing makes me sick. Can't give that up though. I think I will start over with the diet though and give the acacia one more try, it is hard though to do all this and still work. It would be nice if you could take time off from work for a couple months and make a plan with no worries, but that can't happen in the world I live in. Thanks for you support

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Re: Can't take it anymore new
      #216773 - 09/30/05 09:30 AM
whoopiecushion

Reged: 11/17/04
Posts: 52
Loc: South Carolina

Thank you for your suggestions. I have been considering going to the doctor and getting a test for Celiacs disease.
They never tested me for that, believe it or not. I have had some bad experiences with GI doctors. Only 1 did I truly like but then I moved. I have also never had any food allery tests either. All the doctors ever wanted to do was stick things up my butt. Many sigmoids, barium enemas, upper gi's and one test where they stuck a balloon up my butt and measured frequency to sensation. That was humiliating. So I have issues about going to a new doctor, because you know they will want to do all the other test over again and I will not subject myself to that again. I will consider the allergy testing and celiacs testing. Anti depress medications do not help me unfortunately. Effexor helped me for a short while, but then the side effects got very bad and I stopped, nothing has helped since. I haven't had any trauma down in that area except the one I inflict on myself everyday of my life, which is to use a roll of toilet paper on my left lower side and push on my lower intestines with all my might to get the trapped gas and other things out of my body to try to eliminate the paid so I can go to work. Other than that no traumas except living with this nightmare.Thanks for your help.

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Re: Can't take it anymore new
      #216774 - 09/30/05 09:30 AM
lalala

Reged: 02/14/05
Posts: 2634


I started writing earlier, but the post ended up too long and really I don't know how much you'd want to hear me go off about my early treatments with IBS (about 10 years ago). I had uncontrollable IBS for about two or three years, from age 17 to 20. At that time, my doctors had me on a tricyclic AD, Lomotil, Donnatal, Pepto, Tagamet, and ibuprofen for pain. The interactions, the side effects, suddenly becoming C for a couple of week which led to a horrible D attack left me feeling even more miserable and alone--I swear it was so traumatic I have flashbacks!

Another result of unmanaged IBS and the side effects of all those meds: I began to suffer from anxiety and then panic attacks. Today, I'm still dealing with that as well although now I feel more in control of the IBS and the anxiety.

A few things that worked for me, was stopping most of the medications (tagamet, pepto, ibuprofen, and the ad, donnatal, eventually Lomotil) and following a safer eating plan (Heather's diet pretty much) and eating at the same time everyday and having peppermint tea with meals. Something else that helped was going on the BC pill--I had really bad and long periods, but now they're shorter and I know when they're coming so I can take Imodium as a preventive and eat as safely as possible during that time. This has really cut down on those nasty period attacks.

I'm currently taking Buspar for anxiety; however, it has been mentioned in IBS literature that it is believed to reduce the responsiveness (sensitivity) of the sensory nerves to what's happening in the intestine. NO studies on its effect on pain-predominant IBS have been done yet, but I did notice a tremendous decrease in my IBS symptoms when I started taking it. Less pain, less rumbling, less urgency.

Hang in there. Please know that we take your pain seriously and it's alright to have days where you feel fed up. I have friends and family members who say it's all my head and like you I've kindly invited them to join me in the bathroom. Our pain and suffering is very real and anyone close to us who can't see that--well, that's their problem. I'm glad I have a few good friends and understanding family members who respect me and want to help me.

Ack! This still turned out to be a long reply. Sorry.

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Re: Can't take it anymore new
      #216816 - 09/30/05 12:49 PM
whoopiecushion

Reged: 11/17/04
Posts: 52
Loc: South Carolina

The reply at least was much less than mine. Thank you for your advice. I do appreciate it. Have a nice weekend.
I will keep trying.


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Re: Can't take it anymore new
      #216843 - 09/30/05 08:55 PM
StephanieF

Reged: 09/29/05
Posts: 26


I had to answer your post. I'm sure most of us have felt that way at one time or another. Have you tried antidepressants? They calm the spasms and are used for pain control..I'm talking about the old timey ones that have been around for many many years. Just ask your doctor and start at a low, low dose. DON'T get the new kinds that have just come out in recent years..the SSRIs because they won't help as well. I'm talking about Ludiomil, amitriptyline, etc.

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Re: Can't take it anymore new
      #216844 - 09/30/05 08:58 PM
StephanieF

Reged: 09/29/05
Posts: 26


Also be tested for parasites, yeast, & bateria

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Re: Can't take it anymore new
      #216965 - 10/02/05 08:21 AM
HAC

Reged: 01/31/05
Posts: 5


My only thought is to try Vipassana Meditation. Check on line for their website. The man who brought this to the states from India had migraines so bad he was on morphine and then he discovered this type of meditation. It's free, wonderful vegetarian food, and it's 10 days. You have clear access to bathrooms anytime needed also. I've done 3 of these meditations. It's amazing. They have centers all of the country and people go their for all different reasons. The one I like the best is in Shelburne Falls, Massachusetts. Good luck. Hope this helps.

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You get to go for 10 days and it doesn't cost anything? new
      #216966 - 10/02/05 08:28 AM
Cyndy

Reged: 03/05/05
Posts: 1301


I wonder if this would help for my chronic constipation and pain. Do you know where the other centers are located? Please tell more!

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would like to know more about this! new
      #216979 - 10/02/05 10:26 AM
meep

Reged: 06/06/05
Posts: 163
Loc: Texas

There is a center near where I live! I read the info. but I'm curious about what it is like to go there. I am very interested in this. Of course, my biggest concern would be the dietary constraints as raw veggies are pretty iffy for me. How does it work when you have problems such as IBS? They state not to take intoxicants (not a problem for me), but what about prescription meds? No writing materials...no journaling allowed? Just wondering about the specifics.

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