what's out there for people with D....
#209816 - 08/30/05 02:01 PM
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Hey guys,
I'm going back for my colonoscopy soon, and I'm trying to think about what to do if the colonoscopy shows that its just IBS.
What perscriptions have you had success with?
i've gotten to the point that even taking four immodium at once isn't a preventative, and that it takes at least three to stop diarrhea (only to go a few hours later).
I'm thinking that maybe immodium just isn't strong enough to stop it! (I started out with pepto bismol about five years ago.. got to the point where I needed five pepto to stop anything... switched to immodium.. worked for a year.. then got way to gassy when I do it.. switched to immodium advanced and now i'm taking four at a time!)
at this rate i'm gonna run outta stuff to try. Any suggestions?
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i take donnatol as needed, and preventatively once in a while. it seems to work (hard to tell, since my attacks sometimes just evaporate), but as lots of people here say, the side-effects of spaciness and dry mouth can be intense. it just makes me quiet and a little out-of-it, and *very* thirsty.
i have a feeling donnatol is just my gp's standard prescription for gut tranquilizers. it was the first thing out of his mouth. i'd go talk to your dr. and see what he or she thinks.
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jaime
ibs-a (mostly d) // vegetarian
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I'm not sure what else you've already tried, but what about Lomotil or a tricyclic AD? Donnatol's a good suggestion too. (FYI, you're probably aware of this, but the Imodium Advanced chewables contain sorbitol. The caplets are fine.)
Are you getting any relief from following the EFI diet? Or taking an SFS?
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is donnatal an antispasmodic..
I did take levsin and it didnt' work for me AT ALL!
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Hey..
I've found some relief from the diet, but def not 100%
Also, i've tried acacia and fibercon for about a year each and neither were successful.
whats tricyclic AD?
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I take Levsin as needed. It's an anti-spasmatic.
For OTC, I will take Pepto-Bismal sometimes if things feel iffy in the morning.
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Levsin didn't work for me either! But Donnatol's a lot stronger and you might have better luck with it. I took it the same time I was taking Lomotil (about nine years ago), but, honestly, I was so bad back then with my diet and stress nothing helped.  Although, I did end up C for a while from the combination of the two.
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i believe it is an anti-spasmodic - it's belladonna alkaloids & phenobarbitol. (and i just got where the name comes from. i'm real quick on the uptake.)
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jaime
ibs-a (mostly d) // vegetarian
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Yeah, if you're still having to take four Imodium and that doesn't always help, it's probably time to get something stronger (if your colonoscopy turns up nothing except IBS--good luck with that by the way  ).
I mean an anti-depressant; one of the side effect of the tricyclic ones is supposed to be constipation. Heather talks about them here and here. I've tried them before, for about a year, but I didn't like the other side effects. There are different kinds too (various tricyclics and SSRIs), and I'm sure your doctor would have suggestions or recommendations.
HTH. Take care. 
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thanks... I'm hoping my doctor will be helpful when it comes down to the final diagnosis.
I've never tried lotomil.. does it work? is it worth it?
Maybe I'll also ask him about trying another antispasmodic. I was on levsin (2 pills 3x daily for about three years) but it really wasn't worth it!
as for the anti depressants, i'd rather not taking anything that changes my mood. My mood is pretty fabulous so I hate to take chances and change something like my personality without needing to.
Does anyone know anything about that new drug Cilansetron
(sp??) or something like that, that is being tested and released soon for IBS-D?
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jen
"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC
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Spicey - have you tried anti-depressants? I've had great success with them - only to find failure after I went off them so I know they were helpful..... I know you're doing your master's so you're under a lot of pressure school wise.... just something to think about.
Hugs, Alicia.
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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Soz if this has been said, but there are too many replies to get through!
Have you been taking Immodium everyday at the same time? That's what you need to do to get the best preventative effect.
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Thank God for Lomotil...does it work?...for me for many years, it has been my saving grace...lately the Hypnotherapy tapes have calmed me down from a bad series of bouts along w/ the Lomotil or generic when needed both as preventative and stopping an attack...takes longer after the intestines have been agitated...
Good luck w/ the colonoscopy...be patient w/ yourself..
Energy work (Healing Touch and Reiki) help relax the body's systems as well.
Blessings,
Elaine
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I haven't been doing that..
i've just been taking them before I go out/work etc.
should I try them daily? how many?
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i feel like once you're at the point of needing multiple immodiums, unless it's a problem of health insurance/pharmacy costs, you should talk to your dr about prescriptions.
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jaime
ibs-a (mostly d) // vegetarian
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Have a blessed day!...Rachel
stable and sooooooo thankful!
I have IBS but it doesn't have me!
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i've actually tried equalaction, probiotics, digestive enzymes, fiber, peppermint caps and calcium awhile ago.. but I think I might go back and give them all another shot considering I have leftovers from the other attempts.
as for equalactin though.. the new boxes now state that they relieve bloating and constipation and no longer claim to help diarrhea. 
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when I first found the boards, so many people with "D" were using it. Hmmm....
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Have a blessed day!...Rachel
stable and sooooooo thankful!
I have IBS but it doesn't have me!
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I'm an A. I tried Equalactin. It seemed to work the same as FiberCon caps for me. I just stuck with FiberCon because it is less expensive.
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Start on one a morning and increase the dose if you need it. You can then take more if you have an attack.
Immodium seems to work best if you take it everyday.
Good luck! 
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