IBS A
#194591 - 07/12/05 10:57 AM
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Kree
Reged: 10/08/03
Posts: 3748
Loc: Northern NY
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I know just how you feel, this is what happens to me on and off. I would call it more IBS A than D or C, because it's alternating between the two. Personally, I usually return to the what to eat when you can't eat anything else diet when I get D attacks, regardless of whether or not it worsens my C. When I'm in D mode any little thing seems to bother me so I don't have much choice. My advice would be to listen to your body. If something with more IF bothers you, don't eat it. Just do whatever you can to start feeling better again.
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"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield
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Beth...
#194594 - 07/12/05 11:02 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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...remember as well that they are finding more and more things that have always been misdiagnosed as IBS (esp. IBS-C) so if NOT following the diet works and the diet doesn't, maybe you don't have IBS at all but something they haven't named yet. Ever think of that?
PS. Did you ever have a Sitz marker test?
PPS. Last time we talked about this, you were eating less IF than me remember. Have you added loads more of (safe) IF in since then?
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Well, I shut up because I really don't have anything else to say. I'm a total Heather dieter because Heather's approach works for me, but I'm not such a fanatic as to insist it must therefore work for everyone else. I just think it's worth a shot for anyone with IBS.
As for your "missing something or doing something wrong", the only suggestion I can make is the one I've made before: post everything you are eating, drinking, and supplementing on this Board for a few days and see if the Board-ites spot something you don't.
I am sorry you're having such a terrible time and I hope you find a way to feel better soon.
Take care.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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Sand
#194708 - 07/12/05 01:49 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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Before I jump to any conclusions I need to check something out.
I'm not sure if you are really irritated with me or are telling me to go find something else if this isn't working? I hope you didn't take me the wrong way ...I was in no way trying to infer you were a fanatic! My goodness, you have always been such a wealth of information and help to others. I am so glad the diet has helped you and so many others.
I know I ask a lot of questions and, quite frankly, I'm sick of myself!  But I just keep trying.
Should'nt the diet work for all IBS people? 
Are you saying you have nothing else to say to me, personally, ever? 
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Linz
#194731 - 07/12/05 02:09 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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Good points, Linz
I haven't had the sitz marker test because my GI won't give me any tests. I asked and he flat out refused to do any testing.
I found a new GI doc, but can't see him until I get a referal from a GP, so I need to find one of those docs first. By the time I see a GI, it will be like 4 months!
As far as IF, I try to eat more, but must admit, I'm not doing so well with them. The gastroparesis does not like IF. I will try harder, and hope my pain goes away from the IF...maybe it might get used to it over time?
But don't you have to be pain free or stable before introducing more IF?
Thanks for sticking with me, Linz...I know it's been a long road...and it continues...
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Re: Beth (Augie)
#194733 - 07/12/05 02:13 PM
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Sand
Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)
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I'm sorry if it sounded that way. No, I was just saying I don't have anything else to suggest to try to help. I do like to fix things (a characteristic both positive and negative), so perhaps "need to fix" frustration was what was coming across. (Even more frustrating for you, I'm quite sure.)
And I certainly wasn't telling you to go find something else. I'd have long since given up on Heather's diet (patience is not my thing), but if you still think it can help, then hang in there. And even if Heather's diet isn't right for you, I know there are a number of people on the Board who give and get support without being on the diet so even if you end up finding something else, you certainly don't need to "go".
My first post really was just a statement about me: I could never restrict my diet as much as you do without getting far more return from it and would long since have gone back to just eating what I wanted. As I said, it just popped out of my mouth (well, my fingers). Perhaps spontaneity is not my thing either.
As for asking questions, well, that's what the Boards are for. Plus you should know from a previous unmentionable experience that if I was really annoyed with you, you'd definitely know it. 
HTH. Sorry for the confusion.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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Beth
#194748 - 07/12/05 02:29 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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You should reintroduce IF after completing BTC NOT after waiting to become stable...and for a C that should be after a few days tops - you'd never become stable as a C w/out IF IMHO. I mean *I* get C if I don't get enough IF and I'm more towards the D side of the A spectrum.
Do you know what about the gastropareisis doesn't like IF? Could eating it ultra safely help do you think? I don't eat much IF that isn't very safe, but I do eat alot of it now.
And your docs suck!  I wish you could go see my GI.
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Augie, I am GF too. Can't touch the stuff. My guts get puffed and I fart constantly. I've been really struggling with consistency as a C too. I am contemplating re-introducing more whole grains, such as 1/2 brown/white rice mix when I eat and also make bread that's got a little of both in it....say, do you know if millet, buckwheat, amaranth would be IF? I would think so...gotta look into that. I know fats and sugar are a huge trigger for me. And now uncooked veggies but I am recently became suspicious of my IF content and how I'm doing it....sorry if this isn't helpful or too rambly....just thought we could work together to try different things.
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IBS-C with major bloat!
Gluten Free Vegan
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I eat IF too
#195331 - 07/13/05 04:49 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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I eat cream of rice cereal with baked apple (peeled) or pureed cooked blueberries and 1 T of flaxmeal. For lunch I either have some cooked millet, or a piece of bread that has millet and flax in it and 3/4 oz of unpeeled cooked zucchini. For a snack I have an unpeeled nectarine. And for dinner I have either spinach, zucchini, green beans.
Then a snack of 1/2 piece of brown rice bread with maybe one prune. 
I think that seems like a lot of IF, don't you think? Especially considering the Gastroparesis. Aren't we suppose to go low fiber for that? Or at least low IF...I thought i was pushing it with this amount.
This may be changing as I try to incorporate more non-GF foods into my diet. But those would most likely be SF and actually take away some of the IF. Like having french bread instead of the one piece of millet/flax. Or having rice krispies as a snack instead of corn meal cereal..but corn meal is SF anyhow, but has more fiber (2grms vs 0 grms).
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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uwponine
#195373 - 07/13/05 06:26 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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Can I ask if you tested postive on any gluten antibody tests? Is that why you decided to go GF? I have not found relief on it...still get the "farts" and bloated.
I know DoubleTrouble has recently gone on a GF diet and has gone from D to C, which is the same thing that happened to me. It just seems weird that all of us GFers are also Constipated. I wonder if it is the essence of the diet??
Now to your questions! Millet, buckwheat, and amaranth are all IF!!! Especially the amaranth---that one has the highest percentage of IF. They make an amaranth cereal that has 10 grams of fiber!  Millet is probably the most tolerated. I also eat buckwheat noodles and brown rice noodles. Buckwheat noodles have more fiber.
When you say you will make the bread, are you going to use 1/2 white rice and 1/2 brown rice flours? Or do you have recipes using buckwheat, millet, and amaranth flours? That would be a good way to get more IF. Please share the recipe if you have one.
I don't understand your statement about your vegetables. Are you saying you eat a lot of cooked veggies, or lots of uncooked veggies, or very little of them? Or theat you think they are causing you problems and you want to reduce them and replace them with more IF grain sources?
It sounds like you are trying to increase you IF so you think you are eating too little?
I have been told that it is probably easier for us to incorporate IF in the form of fruits and veggies than in the form of alternative whole grains. But maybe you can't just generalize?
I need to decide if I eating GF or convential! I keep flipping back and forth with what is best. So far I am just eating oatmeal and a few pretzels to test the waters.
Keep me posted on your situation. It would be great to have more assistance in figuring all this out! 
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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