It's all about ME (just like a man!)
#191102 - 07/02/05 04:38 PM
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Anthem
Reged: 10/01/04
Posts: 76
Loc: Phoenix, AZ
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Although comparison is not a very good trait, I am wondering if there is even any relevance in trying to determine where I fall or stand (or kneel?) in the spectrum of IBS patients. When I go to my GP, he shouts "eat fiber" and I shout back "I am about to overdose on FIBERCON as it is, and I burp Metamucil!"
Anyway, if anyone feels any tendency to reply to this self-centered silly post, that's fine.
I have IBS-A and I go like a big grandfather clock pendulum. I can start off June with very firm well shaped stools, minor left abdomenal discomfort, and some gas after meals. If it would stay this way, I'd donate my hunky body to science and be a happy man. But about every 30 to 45 days, I seem to swing from this into "D", and I have yet to find a culprit food that puts its hands in the air and (like in old Perry Mason TV shows) confesses on the witness stand "I did it! I made Anthem sick! Boo,hoo, hoo..."
If I realize that it is a full fledged "D" flare-up, I hit it with Immodium (since I already take Bentyl every day as a safe guard). This seems to work pretty well, and I end up with "C" for a few days, then the system seems to slowly return to being in a state of firm stools again with small abdomenal discomfort and gas.
Sometimes the "D" flare-up is awful, and I feel like I have to go to the bathroom every few minutes. That makes me want to die, and I wish God would take me away from this life. But Immodium seems to help that, but I never know when to stop taking it.
Well, being a typical man, I am wondering where I might fall in the realm of IBS sufferers. I also have occasional TMJ problems, and (thank god) fall in the TMJ-lite crowd, even though I'd rather have a vampire bat bite me in the neck than suffer a TMJ flare-up.
Well, thanks for reading this far. Happy Holiday.
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Anthem, welcome to the wonderful world of IBS-A. We get the best of both worlds  I totally understand the being fine thing for weeks then bam out of nowhere major D attack for no reason. It sucks but hopefully once you are stable will become a thing of the past (I'm not there yet  ).
As for TMJ flare up's sorry but I don't know what they are?
You have my sympathy.
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Amy
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I don't really have an answer othet than your symptoms sound all too familiar. I can't figure out what makes what happen. I started out C and now am moving to A. The D attacks are the weirdest thing and I never know what actually caused them-but I am miserable too and the pain stinks. I know the bloat, gas, and left side discomfort well too.
You sound like an IBS'er to me. I envy the IBs-lites that can tweak one or two things and get stable. That's not me-I haven't figured it out yet. I have tried everything and what works for a while seems to stop working after while so I am always adjusting what I eat. It really isn't fun.
Sorry no answers, other than you are really not alone at all and very much like most of us.
Good luck and feel better. If you find something that works-please share!!!
Mary
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It only takes a few committed people to change the world!
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TMJ is an acronym referring to the jaw joint. The muscles and jaw joint can become damaged for various reasons. For me, it was most likely from teeth clenching, especially at night when people tend to grind their teeth (the old "knashing of teeth" mentioned in the Bible). I now wear a mouth guard at night, but the symptoms are:
1. popping when you open/close the mouth.
2. pain in the joint and muscles.
3. tension in the joint and muscles.
4. pain in the ear (since the joint is next to the ear, it gets referred pain in the ear although the ear is fine).
5. pain in the teeth on that side of the mouth.
My case is "lite" because the muscles are mostly impacted. If the joint is damaged, there isn't a lot that can be done. Some folks kill themselves because the pain can be unimaginable. Isn't the human body wonderful?
I read a book that said doctors are beginning to think there is an irritable BODY symdrome, and that IBS and TMJ are just 2 manifestations of it.
Note: Burt Reynolds suffered from TMJ. His cause was being hit in the face by a stunt man during a movie. It damaged his joint so bad that for years his career suffered and he was on heavy drugs. He lost about 70 pounds and people were gossiping that he was dieing of AIDS. Eventually, I believe he had some sort of major surgery to put in a fake jaw joint, and I guess that helped. Whenever I see an old Western movie, and the guys are having a fist fight, I think "Every time a guy gets hit in the jaw like that (for real), they will suffer from TMJ for the rest of their lives". Of course, in movies every macho guy gets hit 30 times in the jaw and still can have a thick tough steak for dinner!
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Do you get tension headaches from that as well? I have this thing with my jaw... I don't know whether I'm a bruxist (grinding one's teeth while asleep is called bruxism, my partner does this every night)... but I often wake up with my jaw locked and I can't open my mouth fully. This makes it quite difficult to brush my teeth! And it also seems to relate to the whopper tension headaches I get. It tends to go away after I wiggle my jaw round a bit and pop it back out to "open", but it sort of pops when I open and close my mouth for a while afterwards. I never really thought about it too much, what with my collection of other minor ailments.
As for my IBS, I'm pretty mild, fortunately. I'm A, I'll not go for three or four days in a C cycle, and I don't really get watery on my D cycles, rather just loose and urgent. My main problem is nausea, or it may be that I just notice that more because I'm emetophobic. I get some pain and bloating also, but they don't bother me as much.
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*Emma*
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I have TMJ in an evil way, too and wear one of those mouth guards. I grind, clench, etc. When it's really bad, I have to take time off chewable food and blenderize everything. If you saw the extent I have ground my teeth you'd be frightened!
It's obscenely painful and the sound of me doing it gives me headaches, too. I've gone through periods of virtual lockjaw. And the headaches!!! The neckaches!!! The earaches!!! Seriously, when I say, I have irrepairabley ground my teeth, I'm not joking. My teeth cannot grip food anymore because of TMJ. I hardly have any rear teeth left!
So, in a strange way, my TMJ has forced me to be an herbivore. I basically have no desire to eat chewable food and put it in the blender. Eating even a bowl of cereal is frustrating! I couldn't chew a crust of bread if I tried. I dream of an apple I could bite into! Even chewing a cracker hurts.
TMJ really bites. Thank goodness for food processors because if they didn't exist, I'd vanish.
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I'm a teeth gnasher. I don't do it to the point where I'm causing damage (well at least I think I don't) but I give myself headaches from it all the time and anyone I sleep near says I drive them nuts with my teeth grinding, he he.
I also have a "pop" jaw. I used to entertain my friends by being able to pop my jaw. I never made the connection though. Just thought it was something I was born with. Thanks for telling me what it is. You learn something new every day huh?
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Amy
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Ooooh yeah...
#191137 - 07/02/05 08:36 PM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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Another A here. I know all about how it goes. My pendulum might swing a little differently, but swing it still does. 
I was always pretty much a D-predominant, and I still am. I have bad D attacks, I take imodium. Most of the time, the imodium then makes me C. I'm better now than I used to be - pre-IBS-diet, my C spells would go for a week or longer, but now it's usually just a couple days. Then it's right back to D, just as bad as before.
And yes, I definitely had D days that had me wishing for the end... but gods, for the sheer pain factor, still, nothing beats my C spells. Ack.
At least your body's cycles are somewhat predictable - I know, small comfort. Mine isn't, though, and it's pretty darn annoying. I was actually "stable" for a couple months, after almost of a year of steady, continuous improvement. Now I'm right back to the C/D cycles, and I'm literally not doing anything different... so like you, I can't point to a single food, either, nor can I point to other life circumstances (stress, etc) that might be the culprit.
I just keep reminding myself that it could be worse. Much, MUCH worse.
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and what a pain in the butt! I was pretty C for weeks on end, but when it does swing it swings very fast!! And hard!!
Youy totally have the sympathies of at least 6 of us here. um, Atomic, me, Double trouble, Linz, and I know there are nore. a is the most complicated IBS to control. Diet helps a ton!! And sticking to it helps even more, LOL!!
Ps- if that's really you in the pic, you are one cutie! If not, I'm sure you still are! 
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Keep on keepin' on...
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You are the first I have heard who has TMJ.people look at me like I,m crazy when I say I have TMJ. mine is because I'm old an my teeth are old,an my jaw Joint are out of linement,but the pain is very bad,the only way they can help me is get new teeth,I would like to hear more from you.
my e-mail is gerrydick@aol.com please write,one dentist won't even look at me till I go see another special dentist
who only treat TMJ,an I know that will cost so much,
Gerry.
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Neta G.Yale
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Honey you would know if you have TMJ the pain is very bad,an yes like he said your ear hurts,jaw,an your head hurts very bad,please Don't entertain your friends by popping your jaw,it may not hurt now but as you get older it will.Gerry,
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Neta G.Yale
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I don't do it anymore! He he. At 26 I think I'm a little beyond entertaining my friends by popping my jaw I did it when I was a kid/young teen. Just so you don't think I'm hurting myself Sorry to hear you have it though. It sounds terrible
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Amy
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You really sound like me,no matter what I eat I will get one or the other,I,m afraid to leave the house.Honey you are not a self-centered person,a person told me one time on this board that I complain to much so I stop writeing even when I thought this was what this board was for,to till it like it is,now I'm sorry I stop writeing I really need to talk to someone ,on May 23,I had to call 911 for my husband,
they think he has had 2-3 stroke he was under for 5 weeks with a tub in his throat I think they call it a trax,he can't talk,he is being feed by a tub in his tummy,after 5 weeks I finally get to see his beautiful blue eyes,but I really don't know if he even knows who I'm,so I guess we are lucky with are TMJ an IBS,we may be in pain but we know we will live,I'm not sure about him,sorry to be crying on you,but I,m alone an have no one to talk to.every day I go to the hospital an sat by his side an pray 4 hours a day.
an yes I know what it is like to have TMJ pain,I have not have time to get my new teeth an they cost so much I,m afraid to use the money,so pleas write an tell me more about TMJ,what did you do for the pain.
Gerry 
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Neta G.Yale
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One idea...
#191155 - 07/03/05 01:30 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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...I've found I swing (IBS-wise, not in my marriage! ) far less with Acacia. Maybe it's time to try a gentler SFS than Metamucil? I've been a bit unstable lately (too, too naughty  ) but even now the swings aren't as bad as they used to be.
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Gerry!
#191175 - 07/03/05 06:07 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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It's a good thing I don't know who had the gall to tell you that you complain too much... what they deserve is a good swift (virtual) smack upside the head! Support and commiseration is indeed what this board is for. I see you've been posting a little more again, and I hope you'll stick around!
I'm so sorry to hear about your husband. My thoughts and prayers are with your family.
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Re: Gerry!
#191205 - 07/03/05 09:12 AM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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I agree with Casey 100%!!! I personally would love to see more of your posts on this board, Gerry! You would be an asset to the board, and you already have two people in your corner!
I'm sorry about your husband. I hope you had post about this in the living room so that we could can help you out with moral support and lots of hugs!
I have gotten my feelings hurt a few times myself...and have temporarily left the boards because I felt hurt. But then I realized how much I was missing out on, and I know I tend to be overly sensitive. There are loads of very helpful, lovely, empathetic people on the boards. Maybe whomever replied to you that you were complaining too much or whatever they said, was just having a bad IBS day themselves. I know when I don't feel good, I tend to get a bit snappy...on those days I try not to reply to anyone for fear of saying something I regret!  But it would have been the IBS talking, not Beth!
I hope you stick around and post much more. I've been around since Oct. and I think this is the first time I've seen one of your posts! That's too long!
Welcome back, I hope!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Gerry,
I am so sorry you are facing such physical, emotional and even spiritually challenging times. Being alone during such events is very hard. I am not a big evangelist, but in times of great challenge, a church (and its support system) can be helpful. I know it is a bit late for that now, if you have not developed that support so far. But as events improve for you, you might check that out, simply from the point-of-view of having a support system of caring people close by (if not for any spiritual support - people go to churches for various reasons).
About TMJ: The only thing beyond drugs that helps me is a heating pad. I use it every morning when I get up until the heat turns cold (about 10-15 minutes). Then I immediately do exercises for the neck, since my specialist had me go to a physical therapist who said that the muscles in the jaw can't be manipulated directly but can be stretched by neck exercises. However, if you are in great pain, this might not be a good idea.
TMJ is a terrible thing to have because so much of the treatment is NOT covered by standard medical plans because it is considered "unproven". I live in Phoenix (also a desert person). I went to the Pain Management Center here, where they prescribed a $1000 mouth guard to wear at night. I also have a mouth guard to wear in the day time when I do hikes or work out in the gym. It reduces the load on the jaw. They also gave me bio-feedback (not very helpful) and physical therapy. Of course, all of this was very expensive though. Some of the positive effects came only months after the fact. For a long time, I cursed the doctor's name at the clinic because he was very uncaring and saw each patient for about 5 minutes and then billed for another $150. But in the long run, the mouth guard has helped, and doing the exercises each day seems to help. I must NOT do any physical hard work (like lifting heavy burdens - at the gym I only use fitness machines like the little old ladies use). I also do not ever eat on that side of my mouth.
I wrote down your email address and will write later.
God bless you, and be sure to stay here and share with us. I do think there are people here who care.
Anthem
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Re: Gerry...
#191283 - 07/03/05 03:45 PM
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Anthem
Reged: 10/01/04
Posts: 76
Loc: Phoenix, AZ
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If anyone knows they grind or clench their mouth at night, it is URGENT (take it from someone who went through so much pain I was often crying into my pillow - not a normal guy thing - and wanting to die) that you see a dentist and have them evaluate the wear and tear on your teeth, and discuss the possibility of TMJ damage with them.
Grinding and clenching is the number one way you get TMJ. It builds up year after year without you realizing the damage you are doing. Then suddenly, (like me) you will be eating one night and your jaw begins to pop, and you have great pain and find to your horror that you cannot open or close your jaw.
Don't be glib about your teeth and jaw. It's like pouring a steaming pot of black coffee into your gut as an IBS person.
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Honey, that's NOT a good sign. Waking up with headaches is a sign you are grinding/clenching a lot at night. Talk to your dentist about the damage you've done to your teeth. Hopefully, being young, it is minor. But I would urge you to get a nocturnal night guard so you don't escalate this into something horrible for which there is no easy cure, just like IBS.
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Actually, the original intent of this thread by me was to get some viewpoints about how serious my IBS is. I realize no one can diagnose me via a forum, but I have no one else to compare it to. I realize comparison might just be a bad idea. But one person mentioned that they have mild IBS, and I just wondered how that was defined.
Some folks lament being "C", but doesn't that have to be better than "D"? With "D", you can have the urge to go every 5 minutes! Try to work or go to college that way!
I tend to have firm stools most of the time because I use Metamucil and 8 tabs of FIBERCON per day - maximum! Then for no reason, it can switch and I have "D", which (without Immodium) can last a few weeks. I now fight back mercilessly with Immodium.
Then I think I am becoming a truly bizarre person. I wonder what is normal (for a normal person) in terms of stools! Anyone have that bizarre question in mind? What do other people's stools look like? No, I don't want to see them, but I wonder if at times I/we think we are more abnormal than we are. I sat my friend down (who does not have IBS) and got down and dirty with him. I queried him as if he was a man from Mars, e.g., "What are your stools like?"
Turns out he can have major "evacuations" that are watery at times (which would send me into a tizzy of concern but he just shrugs), he has firm ones, he has shards, he has McNuggets, he occasionally has a bit of mucus...I suppose he could be an undiagnosed IBS man, but I am pretty sure he isn't. I tend to be such an absurd perfectionist, that I get mildly upset when my stool isn't a perfect burrito! Needless to say, I create a lot of stress for myself that way.
I also began taking 20 mg of Paxil 30 days ago but have yet to see any effect. One person told me to wait much longer before giving up.
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Okay I've read about Mr Whippy's and water and explosive and volcanic D but Mc Nuggets and burrito's!?!?! You are SO descriptive. Actually I've done the same thing with DH and with a friend and picked their brains about their loo habits DH seems to have as much problem as me minus the crippling pain that goes along with my IBS and my friend wasn't much better but again said that she experiences no pain with her D. I on the other hand have cramping pain 24 hours a day, which can near hospitalise me during an attack and I think I "swing" a little more than DH or my friend. I can be C one morning and 2 hours later am a running tap My friend and DH said they don't have that quite so much and their idea of D and mine differ a lot. I think "normal" is sometimes D while they consider it "normal". I think a major separating factor between having it and not though is the amount of pain and discomfort it causes the particular person. And coming from an A who suffers mostly D I disagree that it's easier to get D under control. Mine's permanently out of control no matter what I do
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Amy
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I've questioned IBS and non IBS friends and family about poop too-and was stunned to know they can't feel it traveling through their guts at all times. I know when my D hits, it's agony, and so is the C. I can literally go from marbles of freaking GLASS to "eau de fesse" in a few hours. And then not go at ALL the next day.
Things change so swiftly and completely in the matter of a week...For example, this week I was C for 3 days, got soft and then water within day, and the next morning was compacted and had to force it out. Today,we have garter snakes AND marbles. It's soooo weird. Tomorrow I'm expecting water again. Yuch.
Yes, we study poop, but we have odd ones. We A's never know what the heck to expect!! 
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Keep on keepin' on...
Edited by Not-Sore-Anymore (07/04/05 12:47 PM)
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Quote:
I've questioned IBS and non IBS friends and family about poop too-and was stunned to know they can't feel it traveling through their guts at all times. I know when my D hits, it's agony, and so is the C. I can literally go from marbles of freaking GLASS to "eau de fesse" in a few hours. And then not go at ALL the next day.
Things change so swiftly and completely in the matter of a week...For example, this week I was C for 3 days, got soft and then water within day, and the next morning was compacted and had to force it out. Today,we have garter snakes AND marbles. It's soooo weird. Tomorrow I'm expecting water again. Yuch.
Yes, we study poop, but we have odd ones. We A's never know what the heck to expect!!
What's your treatment strategy? Just curious.
My scenario is different, if you go through this C to D and back every few days. My pendulum swing is longer. I can be normal (with very firm stools and few symptoms besides some gas and a mild discomfort) for a couple weeks or more, then suddenly for no known reason (LIKE TODAY!) I wake up with the urge to go, and it is repeated over and over. The first is firm, then it gets looser and looser since that poo is not yet ready to go, but the contractions bring it forward.
I am so scared and upset when this happens because I feel no control. I do everything by the book.
1. I eat the soluble fiber diet. No coffee, caffeine, alcohol, read meat. I am very disciplined, except for a lapse when I ate store-made oatmeal cookies!
2. I take plenty of fiber supplements every day.
3. I take Bentyl every day.
4. I take Paxil every day.
5. I am on a spiritual path and I do my best to stay calm and forgive others.
6. I am in a solid relationship with someone who loves me a lot.
7. I've done the 100 Day Audio Hypnotherapy series once, and am doing it again.
8. I ride an exercise bike 45 minutes per day to work off any body tension. I also go to a fitness club every second day.
I do thank God I have periods of relative normal functioning, but then it just changes and I cannot figure out why.
I think I have done what most of traditional medicine says to do. Now I am going to research some other things, although this leaves a person open to con artists. I would never buy some pill advertized on the internet to CURE IBS. Oh, sure....if that was true, it would be in every drug store and on the evening news!
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if anything metamucil made things worse!!! acacia has caused me to be mostly stable except when I'm on antibiotics or really screw around with my diet!
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Gerry!!!
#191506 - 07/04/05 01:22 PM
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khyricat
Reged: 08/05/04
Posts: 3612
Loc: Michigan
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I haven't been around much but I am so sorry to hear about your husband and I dont' know who told you you complain too much- never feel like you can't post- that is the purpose of this board.. I have been too busy to be online much and since my IBS is basically under control finally thanks to things I learned here.. checking in every so often for a few minutes works for me for now... when I have time I'll go back to reading every post and trying to help others like people here helped me when I was dealing with much worse things then I am now...
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Hi Anthem,
First, I have to say you look like my younger brother! GREAT guy (2nd only to hubby) 
IBS A. most of the time I am a C. But then a few times a year...I get D. And then RIGHT AWAY (usually within an hour or two after the D is over)I become C again. It is AWFUL! I have had IBS since I was FIVE. The pain used to get so bad the only things that would make the cramps/gas stop was to vomit...which I did unvoluntarily!
Nowadays I am doing better but not perfect. I have been to oodles of docs...I have a GREAT naturopath (in the desert actually as well!) and he is SO helpful. The most helpful thing for me though has been to remove offensive foods. Gluten, dairy, sugar, animal protein are the WORST!
Have yo done an elimination diet?
It is VERY interesting to me that you have a pattern happening where you get D around the same time eahc month. I would journal! i know guys don't get PMS...but they do get something (read this somewhere) and I wonder if ti effects your bowels? Just a thought...
Great that you're posting...hope you feel well soon!
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Formerly known as Ruchie
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He he. It's just my friends who think I'm odd when I say "hey can we talk about poo for a bit" DH doesn't mind so much answering my questions. He's kinda used to my life being all about food and poop (what a combo!). Actually I had a major D attack this morning. NOT happy. I thought by going GF I finally had a major answer but now I'm not so sure It's not something I ate but I've drunk loads of Benadryl for my cold and stress and coughing and swallowing all that gunk for the last 3 days probably hasn't helped. Sadly I think sometimes we are doomed to have attacks no matter what we do
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Amy
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I have tmj, I get REALLY bad headaches from it and my jaw muscles get very sore. It has to be diagnosed by a dentist and you can get a night guard appliance to wear to help you from grinding or clenching. A heating pad works wonders too.
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I wore the nightguard for about 2 years and then I got lazy and haven't worn it in over a year...but I haven't had any problems lately. I catch myself clenching my jaw for no reason all the time!
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I am an IBS-A and have read so many posts on this board even though I don't post that often. From what I have read here, in books, and other websites, it seems that there are many people who can't function b/c they have such severe pain or diarrhea and then there are those who are able to control their IBS quite easily. I would consider you a 5 on a scale of 1 to 10, much like myself. For people like us, IBS doesn't stop our lives but it does hinder it on a regular basis. We have a daily fight but we're still able to fight back. It's frustrating but the one thing I have learned is that there are no concrete answers for IBS sufferers.
I do agree with the others. My diarrhea has been much more manageable with the acacia. Now I only fear what my life would be like without it. Hope this helps some!
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***********************
IBS-A, with bloating and gas as my predominant symptoms
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IBS cdonnect with fibro which connects with TMJ which also connects with gluten/sugar probs which also connects with sinus probs....is this just all one thing? Sometimes I wonder?!?! Sometimes I think these symptoms are all just links to an underlying disorder and doctors just haven;t figured it out yet! Anyone else feel this way or am I just babbling? 
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Formerly known as Ruchie
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I wear a nightguard too. My headaches are significantly decreased. I'll file the info./tip re: heating pads. Some days are just too plain tight. I clench/grind during the day and sometimes the stiffness is evil. I have weeks where I cannot smile.
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Me too!
#191893 - 07/05/05 01:12 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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But pretty mild and on-off. My dentist diagnosed me years ago but it's only an issue with my fibro.
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Linz
#191899 - 07/05/05 01:22 PM
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I was going to ask you if yo have TMJ...I need to get my mouth looked at when we can afford a dentist as well! Crazy how these things go together!
How is work going (are you able to go?) Thinking of you,
Ruchie
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Formerly known as Ruchie
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TMJ...
#191922 - 07/05/05 02:21 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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...is one of the many Fibro secondary issues!
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I just bought a new mouthguard for $500.
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IBS-A for 20 years with terrible bloating and gas. On the diet since April 2004. Remember this from Heather's information pages:
"You absolutely must eat insoluble fiber foods, and as much as safely possible, but within the IBS dietary guidelines. Treat insoluble fiber foods with suitable caution, and you'll be able to enjoy a wide variety of them, in very healthy quantities, without problem." Please eat IF foods!
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