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Heather/Shawn Eric/more on Dr. Drossman
      #17830 - 08/20/03 07:29 AM
BL

Reged: 06/01/03
Posts: 3522


I forgot to mention that the woman I talked to at UNC-CH said there are several medications for IBS-C that will be on the market in the next year or two. She also told me that the woman doctor at UNC-CH is undergoing a research study and that I could possibly be included in that group if I saw her and was interested in that. I don't know if I want to be their guinea pig, especially when it comes to trying new medications, yikes, but it sounds promising. Some hope for those of us with IBS-C!!!!

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Re: Heather/Shawn Eric/more on Dr. Drossman new
      #17844 - 08/20/03 10:08 AM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

well, that is basically true, you are a test subject when you do the drug trials and there is also the issue of a placebo you might get instead of a real drug.

Some of the studies are on the bottom of the page for them.

http://www.med.unc.edu/wrkunits/2depts/medicine/fgidc/welcome.htm



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Re: Heather/Shawn Eric/more on Dr. Drossman-guinea pig new
      #18104 - 08/21/03 10:33 PM
queenie

Reged: 04/04/03
Posts: 88
Loc: Texas, USA

hi there

i've been a guinea pig and found it to eb a rewarding experience. when they took lotronex on the market i enrolled in the cilanseteron trial. i don't know if i got the placebo, but after a little bit they put me into the open label trial so i got the real thing. i did benefit from it and when the study ended lotronex was backon the market.

as a person who had tried everything in the book i felt i had nothing to lose since lotronex was the only thing that had helped me and the study drug is like a cousin. so be open to clinical trials. free health care, some cash (though little), and most importantly, the opportunity to find relief is something to consider. i was hesitant at first, too, but once i weighed the benefits and the few cons i knew it was a good decision. plus if it gets approved i know it will help other people. also know if you get into a study and don't feel comfortable you can leave at any time!

good luck,
amy

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