Considering suicide as constipation IBS treatment...
#172421 - 04/21/05 11:51 PM
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Lynx
Reged: 04/21/05
Posts: 160
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19 yr old female losing hope, here. I have tried EVERYTHING for this God-forsaken illness. Zelnorm, Magnesium Citrate, Citracel, Nulev, Clidinium, Miralax, Docusate, Docusate Sodium, Metamucil, Peppermint Tea, etc... they all seem to work at first. But I build an immunity to them all. Then if I try to take any of these, the spasms worsen. I've tried changing my diet and I'm currently living on oatmeal and bagels, which also give me spasms. What do I do at this point? Killing myself will ease my suffering. I think that's what I'll do.
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I've had IBS my whole life but it got worse in my early teens. Turned from a C to a D now I'm an A but mostly get D. Nothing works for me either. I'm either sitting on the loo all day with horrible cramps or so clogged I can hardly move with horrible cramps. I know that it's tempting to feel like it would be easier to end it all but think about the days you have where you feel okay! Big hugs to you. I hope you find something that helps soon (I don't usually get C so not much help but I'm sure others have advice for you)
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Amy
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Whoa!
#172424 - 04/21/05 11:56 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Go and see your GP IMMEDIATELY and get treatment for depression. I know IBS sucks, but there's still no reason to feel that bad...get some help! Please?
Have you tried this diet properly? As a C, there's no way you should long-term be eating nothing but SF...you NEED safe IF in your diet.
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Re: Whoa!
#172425 - 04/21/05 11:59 PM
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Lynx
Reged: 04/21/05
Posts: 160
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I've seen my GI specialist 3 times. I'm due for 2 tests soon to find out just what in the frigging hell is going on. As for my diet, no matter how much I change it, EVERYTHING is a trigger food. Even not eating.
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First take a deep breath. Second, know you are NOT alone. Third...
read as much as you can on the boards. And do as much as you can at your own pace.
4th try adding magnesium malate to your diet (best absorbed form)
5ht, do a search for "Shanna and poo". There are some fabulous suggestions in that thread.
Next, consider the IBS 100 Audio. You can get info on the Hypno board.
Consider tomato juice. It helps me a LOT.
As this is your 1st post...I don't know you at all. BUT, if you are serious about killing yourself...please get help! We care....
P.S. I've had IBS so bad the pain made me throw up. Heather has PASSED OUT from the pain. We ca help you...I'm glad you posted. You came to the right place.
*hugs* Ruchie
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Formerly known as Ruchie
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Re: Whoa!
#172429 - 04/22/05 12:02 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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I meant see your regular doc (GP?) and get treatment for depression separate to your treatment for IBS. It would help enormously.
Also, everything that works for IBS takes time...it took me 6 months of following this diet strictly to start to become stable - and with major C it typically takes longer than with D. How long have you followed the diet for? And did you take in my comment about IF?
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Re: Whoa!
#172430 - 04/22/05 12:04 AM
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Lynx
Reged: 04/21/05
Posts: 160
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I tried taking Celexa for awhile to treat it. Made no difference.
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Re: Whoa!
#172433 - 04/22/05 12:06 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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To treat the IBS or the depression? Cos usually you get a pretty low dose for IBS that probably wouln't touch the depression. Also, there are alot of a-d's out there and everyone responds differently. I REALLY think you need to get a grip on the depression - it makes handling the IBS so much easier if you do.
Fyi, elavil is usually the first choice for treating IBS symptoms.
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Re: Whoa!
#172434 - 04/22/05 12:08 AM
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Lynx
Reged: 04/21/05
Posts: 160
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I tried using it to treat the IBS since it's a brain-gut disorder.
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Yeah, but....
#172436 - 04/22/05 12:10 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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...treating the depression sounds way more important atm! AND, speaking from experience, getting help for the depression makes the IBS so much easier to deal with even if the a-d's don't actually help the IBS symptoms.
Plus, most people have to try a few a-d's before they find one they like.
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Sorry to sound like a moron, but, what's an a-d?
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you don't! Anti depressant
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Formerly known as Ruchie
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Re: Whoa!
#172439 - 04/22/05 12:16 AM
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Lynx
Reged: 04/21/05
Posts: 160
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Elavil? Never heard of it. The first thing I was put on was Zelnorm. It worked for about three weeks before I became immune.
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Re: Whoa!
#172441 - 04/22/05 12:23 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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See, you really need to get back to your doc and try some more meds! AND get that depression under control.
Elavil is a tryclyclic anti-depressant and is the first a-d usually prescribed for anyone suffering from IBS or a pain disorder. Zelnorm is for the treatment of IBS-C and isn't an a-d at all.
Fyi, www.medicinenet.com has a great database of medications.
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We were discussing constipation in another post yesterday, particularily mentioned was making sure you have gotten a comprehensive check up by your gyn to make sure that it isn't a problem with your ovaries or uterus causing your constipation.. Also, if you feel like you have tried everything suggested here and feel like fiber makes you worse, try only the miralax and a gluten free diet.. You can also do an enema to get yourself some relief and maybe get on a roll...hang in there and we're all in this together so don't give up and don't QUIT!
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That's what I'm currently doing. I'm taking only the Miralax because all the other medications worsen the condition. I'm beginning to have to overdose on the medication because I become immune to medications. I've asked about enemas and my doc says it won't do any good 'cause that only goes up so far. As far as diet goes, I'm pretty much eating only oatmeal and bagels which trigger attacks as well. The reproductive system issue is starting to be considered at this point. IBS runs in my mom's side of the family, but my sister has endometriosis. I might have it, too.
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I agree with Linz. Please make an appointment to see your family doctor immediately and tell her you are extremely depressed because of your health and ask her to prescribe anti-depressants to help you cope until you can get your health straightened out. Taking anti-depressants to treat your depression is a separate issue from taking anti-depressants to treat your IBS. And make a follow-up appointment. That way if the first anti-depressant your doctor tries doesn't work for you, you're already set up to tell her so and have her try something else.
Hang in there. This Board is a great resource and everyone here is willing to help. Once you get treatment for your depression, you'll have a little more energy for trying some of the suggestions people make.
Interesting hobby, by the way. I was thinking the other day that I needed a new one - maybe I'll try yours. Do I need any special equipment?
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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to be very constipating.  Tell your doctor your main symptom is constipation so that they can put you on an AD that does'nt aggravate the C even more.
I am on lexapro but considering asking for Prozac. I'm IBS-C, btw.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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What exactly should we ask our OBs to do or test for when we see them? I went and told my gynie about my symptoms, but all he did was a regular exam and told me that my symptoms were not due to anything gynocological. What exactly should he have done to rule out a gynie problem?
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Except that I must eat Gluten free as well as IBS safe. And I have delayed gastric emptying and a non functioning gallbladder and have recovered from a long long term eating disorder. I too have tried everything I can think of to alleviate my constipation and chronic debilitating pain. I do the same things that others have tried. Yet, they have found some degree of stability and improvement, while I only get worse and ultimately more depressed and hopeless as more and more treatment options get eliminated because they don't work. I fear I have run out of options and that this will just be my life from now on. Pain and constipation and misery.
Now, I surely hope that your last statement saying that "this is what you will do" came out of frustration and that you are not serious. You have not tried ADs yet and they could help you tremendously. You have not tried everything, so you still have some pretty good options left for yourself that could help you.
Hasn't anyone else felt this desparate though? Are Linx and I the only one who ever felt that going to Heaven where there will be freedom from pain would be a welcome event to the pain and misery? I'm not advocating suicide by any means. But honestly, hasn't anyone else even thought about it? I guess if you are helped by the diet or by meds or an SFS you wouldn't feel this hopeless because you have found some relief at least. But coming from someone who hasn't I must admit that Linx is not alone in her frustration and hopelessness, unfortunately. 
Again, not trying to scare anyone or turn this board into a suicide help line  Just want to know if anyone else has ever had this thought? Or am I worse off than I know and totally off base.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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You guys aren't alone Beth...I've had scary thoughts relating to health issues in the past too, but a-d's sorted me out...that's why I was pushing them so much to Lynx! Although they did nada to my IBS, getting on a good a-d made me feel that I could cope so much easier with everything I was dealing with...and they still do. With my Fibro I'll probably be on a-d's for the rest of my life and I'm happy with that! 
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My IBS pain has been so bad I threw up. i didn't want to DIE...just for the pain to STOP. NOW.
Beth...have you done the audio tapes?
Have you tried adding IF fiber slowly back into your diet? It IS possible you don't get enough!
Keep in mind...the more you stress...the worse IBS gets
Do you have a hobby? Something that is relaxing?
I have NO IDEA if this might help you or not...but I am a disorganized gal (who wouldn't be with an organizational learning disorder?  ), and I find FlyLady.net to be a big help. Takes some of the stres away.
I don't know what areas in your life are stressful in addition to IBS? I also don't know why you had an eating disorder? Whatever the case may be...please do not give up hope. You WILL get better...... *big hugs*
Praying for you,
Ruch
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Formerly known as Ruchie
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Ad's
#172605 - 04/22/05 08:37 AM
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I believe lexapro gave me the sregth I needed to go off meds.
That being said...I am now on 5HTP, Co Enzyme Q10, a multi, feverfew (migraines), cal/mag and mag malate. It took me YEARSSSSSS to figure out what I needed. I did a TON of research, praying, and doctor hunting before I found what worked for me. I also did many different healthful diets before I realized what I could/could not stomach!
Every body is sooo different and everyone has different needs. Heather's guidelines are WONDERFUL. But they are not all inclusive...nothing is! (hence the word guideline...)
I have a pain specialist...she's simply wonderful! She works with TONS of fibro patients. One thing she told me that I will never forget is: A lot of fibro patients get stuck in a flare. And they need something to help them out. That's what the meds are for..." She did NOT believe I would need meds for life. she felt I needed them to get back on my feet.
Sorry if I'm rambling 
Hope this helps someone in some way?
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Formerly known as Ruchie
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Have you visited a naturopath btw? Who suggested magnesium citrate? It is one of the least well absorbed forms of magensium. AND if you take it without malate it doesn't do the trick as well.
How much of it and how often do you take it?
How much fiber do you get in a day? Have you tried pureed veggies?
Thinking about you...hope today is better *hugs*
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Formerly known as Ruchie
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DO NOT LET IBS STEAL YOUR LIFE. Please, see your M.D. and try some anti-depressants. I still have dark daze, but an AD can really assist you in thinking more creatively, and encouraging an attitude which facilitates IBS management. Try some counselling, the hypnosis tapes, yoga, some gentle exercise,the diet, et cetera. There is wisdom and humour and humanity to be found in the boards. Reach out and ask for the help you need re: your mental status. I send you COURAGE MY LOVE.
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Hi Lynx, I am so sorry that you are feeling so much pain right now. I am sure at some point all of us have considered "ending it all", but that is not the answer.
I have gone through the same agony but I did not give up. I hung in there and fought for my right to live as well as non-IBSers.
I have been symptom free for eight months and believe me it took a long time to get here. I would be in meetings and have uncontrollable gas. Not only was it painful and embarrassing, but the odor would clear the room. I felt I had no life anymore, no control. My collagues were very unkind; they always said "something stinks, must be one of Lene's farts". I cried many days and nights because of IBS. I had a boss from "HELL" who kept me constantly stressed which did not help the situation any. I called in sick 76 days out of the year and got written up because of it, I was told by co-workers that it was "all in my mind" and maybe I shoud see a psychiatrist. I can go on and on with tales of woe but what it comes down to is whether you will rule your life or let IBS rule your life.
I am on Lexapro (10mg) per day, I eat IBS safe foods, take my peppermint caps and acacia, drink lots of water everyday and pray.
You have my deepest sympathy and I will be praying for you.
Hang in there, fight the good fight. Let all thoughts of suicide be gone from you. You will find what works for you I promise.
BIG BIG HUGS!!!!!
Lene 
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God never promised life would be easy, but he did promise to provide a way out!
Edited by LittleFox (04/22/05 09:10 AM)
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Wind, you are a wonderful soul. I'm so glad we have you here! *hugs*
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Formerly known as Ruchie
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I was given magnesium citrate at the emergency room after my first attack which happened to be an, "uber spasm" as I call it. It cleared me out to an extent. But the 5 or more times that I've tried it hasn't done anything. As for fiber, I olny eat oatmeal and begels since they have soluble fiber. But these foods trigger attacks as well whenever I eat them. I can't eat veggetables because the fiber worsens the condition.
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An ultrasound would be the first thing to rule out other female problems like cycts. Most dr's won't do much more than that unless they suspect something.
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Taking it one day at a time.....
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I know IF can be scary (I didn't touch it for MONTHS ) but as a C you NEED it. If you do it safely enough, it should be okay.
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What am I allowed to eat that has IF in it? So far I've found that no matter what I eat, I get attacks. My dad won't allow me to touch anything with IF in it because of my worsening condition.
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I stopped taking my Celexa back in June last year. I tried taking them for a couple of weeks for the IBS. It made no difference, though.
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Yes, you NEED insoluble fiber in your diet or the C will never get better. I've been on miralax for about 4 years and have never built up an immunity to it like I did the Zelnorm. A few tricks for the miralax is to be sure to take it on an empty tummy and than eat something shortly after to help stimulate your colon. You must also drinks lots of water through out the day as the miralax is an osmotic laxative and works by pulling water into the colon.
Hang in there, I too have had times im my life that I would have rather died than endure the pain but you must find the streagnth to go on. I agree with everyone else that you need to see your regular dr and get some anti-depressants. I've been on about 4 different ones throughout my life and like Lexapro the best. You have to STAY on the AD's for at least 4-6 weeks to really see the full benefit!
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Taking it one day at a time.....
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You MUST get insoluble fiber sood or your C will never get better. Its a very tough balancing act between regular soluble fiber (rice, potatoes, bagels, etc) and insoluble fiber (hummus, pickles, veggies, fruits) See the whole list in this web site, sorry I can't provide you the link straight to it, I'm not real good with the technical computer stuff! The trick is to eat the soluble fiber stuff first for a good base but you must eat insoluble stuff as well!! Try putting fruit in the blender for a smoothie, thats a good place to start! Or try adding some flax seed oil to your oatmeal, I know several of the girls here do this for there C and it helps!
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Taking it one day at a time.....
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is also more prone to constipate you. But like you said in a previous post, you weren't on a high enough dose to help with depression. ADs for IBS are a lot lower dose than for depression.
We are suggesting ADs for your depression, not the IBS.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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You have to give ANY ad 4-6 weeks before seeing the benefits!! Three weeks on a low dose is not enough or long enough!
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Taking it one day at a time.....
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I"m sorry if you already answered this in another post, but I'm trying to catch up.
Have you started taking an SFS, like Heather's Tummy Fiber or Benefiber? Are you drinking hot peppermint or chamomile tea to relax you, ease the spasms and pain? Also you may want to check the ingredients in your oatmeal (if it's instant check to see if it has any dairy in it) and check your bread for HFCS and dairy. It will take a while for your digestive system to get used to ANY food, especially since you've been eating so little for a while. You'll probably need to incorporate new foods into your diet slowly and a little at a time, after a good base of SF. I don't know if you've managed to get to all the info on this site and the boards, but here are a few links that may be useful:
Prevous post about A-Ds and constipation
SSRIs post
Common Abbreviations used on the boards
What to eat when you can't eat anything
Soluble Fiber
Insoluble Fiber
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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to buy the audio tapes.
As far as IF, I also have delayed gastric emptying, and the treatment for that is low fiber diet and no SFS. So, I'm really confused about how to get enough fiber for C, yet do low fiber for my Delayed emptying.
I do agree that the more I stress the worse the IBS is, and most of my stress is due to not knowing what I actually have, and trying to coordinate treatments for all my various medical problems that I listed above. Two different doctors tell me opposite diagnosis and opposite treatments. No one can agree on what's wrong and how treat me.
My only hobby is researching medical conditions and possible treatments. I have an existence of pain and symptoms and researching and confusion. This is my existence.
The harder I try, the more I try to learn, the worse the stress, frustration, confusion, and symptoms become. But I continue on this vicious cycle.
What is flylady.net?
My stresses are too many to name in this long thread. As well as the reason for my Eating Disorder.
Thanks for caring Ruchie. I will miss seeing you on the boards until Tuesday. Please keep praying for me. I appreciate prayers.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Ruchie
#172673 - 04/22/05 10:26 AM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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Did you find that Lexapro made you more C? How long and how much were you on?
Also, how long did you have your anorexia for? I had mine for 18 years! With bouts of bulimia. Just wondering how you can be having managable IBS pain if your Eating Disorder may have caused this? I think that is why I have all my problems. Maybe I just had mine for too long.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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...is recommended a day? To help with constipation.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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My Gi Specialist hasn't given me any specific diet recommendations. He just keeps experimenting with medications. I'm due for a colonoscopy next Wednesday.
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Yep, actually I think they call it an abdominal ultrasound. The make you drink water before you go so your bladder is full, quirt some cold jelly on your belly and push a little wand across it to look at the insides of your girly parts. If they need a better look, they will do whats called a transvaginal ultrasound. Its a "probe" they insert into your vagina, its uncomfortable but no worse than a pap.
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Taking it one day at a time.....
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get checked out for celiac. If bread hurts you you're a definite candidate!
Feel better *hugs*
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Formerly known as Ruchie
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everyone is different and our bods are not the same. So if I do what you do I might not feel the same.
I had my eating disorder at around age 10-21. Then I became COE. So I'm not finished healing!
I just listen to my bod. And give it what it needs. I wrote poetry. I let my emotions OUT instead of holding them in.
I wish I could tell you my "secret"...I think the biggest thing for m is to be stress free. Then after that is diet. If I don't eat MY safe foods and I stray...I pay.
Feel free to e-mail me. I rpob won't be able to respond today as I am planning still for Passover. But I'd love to know why you had an eating disorder. That might just help...
Sending you lots of love, Ruch
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Formerly known as Ruchie
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FlyLady.net is an organization (get organized) website.
Dwelling on our medical condition and ONLY researching it can make us worse (I know from experience).
Chill out! Do something fun!
When I was REALLY sick with a fibro flare and hubby and I would hang out and I would cheat and have an ice cream...the world seemed brighter to me. Go out and have FUN!!!! 
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Formerly known as Ruchie
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I have been in your spot. IT's awful when things feel hopeless. I have a few suggestions if you have IBS-d.
Try Questran in powder form. I did this for two years and had minimal symptoms. I took two scoops two times a day.
2. Try lomotil
These first two need a script from the doc.
3. Try Caltrate plus 500 or 600 with Vit. D and minerals. Start at a half tab 3 times a day and work up. Please note it must be Caltrate or its exact equivalent. To figure this out you would have to look at the active ingredients. THere are many similar ones which won't do the trick. Hope this helps! Please let me know.
Have you tried a very high fiber diet? That would really help the constipation. Also increase your fluid intake.... soda with caffiene is an irritant to the colon and might help move you along better.
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ALso.....forget the GP for an anti-depressant. Go to a psychiatrist. They are not afraid to use meds a little differently and are also able to assess for other difficulties.
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IBS-D isn't the case. I have just the reverse. It's extremely severe and I've had it since December last year. I havent felt fully cleared out since then.
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Breads sometimes give me problems. But then again, it seems that everything does! My body is finally beginning to respond to all the over-dosing on Miralax that I've taken today. I go through 3 or more containers of that a month.
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My way of having fun is by running miles and lifting weights. But it's rather impossible to accomplish that when you're in severe pain or distended.
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I came very close to having an eating disorder is due to all the child-hood trauma of being picked on by school-brats and the media. Before my IBS, I was biking 20 miles a day on a machine, eating less than 500 calories a day and was 93 lbs - 19 yrs old and 5'0 tall.
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I'm going to have a colonoscopy done soon, actually.
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I agree!
#172872 - 04/23/05 12:36 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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That means you haven't even tried a-d's for your IBS, let alone your depression!
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lynx you must think positive things now about your ibs. try different foods to eat. i know its not easy with ibs. we are all here to help you. jasper
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ive had ibs for 8 years now. im learning alot on this web board. thanks again everyone
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