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Re: That sucks! new
      #170223 - 04/15/05 01:16 PM
HeidnOut

Reged: 02/15/05
Posts: 148
Loc: CA, USA

Linz:

I really appreciate your support as well as the support of others on this board.

A couple of hours after I got yesterday I called the Dr.'s office back. I spoke with the gal who has been working with me and had scheduled me for my follow up. I told her to cancel my appointment. She was extremely nice and asked what happened, so I told her. She apologized for his behavior. He's all by himself in his practice - not with a group of Dr.'s. She told me he's "very" ill - Cancer. He must have not been feeling well that day. He shouldn't be in practice anymore if he can't be a little more patient, kind, and understanding. I set up an appointment with another group and they are setting me up with a female. Not sure why. As long as she's kind and understanding.

I have told what I know about my family history but maybe he's so ill that he no longer cares, I don't know. My PCP said he knew him and that he was really good. That wasn't my experience.

I had a bad night last night with the bronchitis and coughing and it's starting up again today. I need to go. All I'm doing is sleeping anymore - no energy left.

Again, thank you for you support. Take care. Heidi

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HanSolo - forgot to address something new
      #170228 - 04/15/05 01:22 PM
HeidnOut

Reged: 02/15/05
Posts: 148
Loc: CA, USA

"All" of my Dr.'s know about this. My GYN has no idea why my stomach goes through shut down monthly. They all know the whole story but it gets me nowhere. Im more than discouraged.

Thank you anyway. Heidi

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Re: I had another horrible experience today with a new GI - Heather can you help? new
      #170235 - 04/15/05 01:39 PM
MissyB

Reged: 07/22/04
Posts: 67


You know that old saying?, "You gotta kiss a lot of toads before you find a prince?" I think it applies to GI Dr's as well I saw 2 on my own, 2 in the hospital and then finally found the good one with try #5. What you have to do is this, when you find SOME Dr you think is really really sharp, I mean ANY kind, ear Dr, Gyn, whatever, you ask them who they would go to for a GI problem..The smart Dr's have smart friends or relatives, and that is how I found the good one I have now. Don't give up!

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Re: HanSolo - forgot to address something new
      #170248 - 04/15/05 02:39 PM
Yoda (formerly Hans)

Reged: 01/22/03
Posts: 3682
Loc: Canada

I'm so sorry. It's so frustrating when you can't get an answer. Take heart - we're all here to help - anyway that we can. If you have any more questions, feel free to post them. Hugs, Han.

--------------------
Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.

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Re: I had another horrible experience today with a new GI - Heather can you help? new
      #170270 - 04/15/05 05:39 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Heidi,

I'm glad I could help confirm that you're not crazy. Sometimes I think that if these Boards didn't do anything else except reassure IBSers about that, they'd still be more than worth it.

I read your response to Linz about calling the doc back and finding out he was so ill. I agree that he shouldn't still be practicing if he can't do his job right, but at least now you know he's not just a common garden variety jerk AND you can stop wondering what on earth your PCP was thinking to refer you. Good luck with your new GI guy (gal, I guess). In general I prefer female physicians. I've hit a couple of bad ones, but overall I think they tend to listen more. I hope yours fits the mold.

If you have true bronchitis, I assume you're taking antibiotics for it. If so, you might want to search the Board for info on the use of probiotics while taking antibiotics. If what you have is what my aunt calls "bronchitis" - a chronic cough with no fever - talk to your new GI about it. Sometimes acid reflux can keep a cough hanging around. (I'm not sure if that's the same as Esophagitis or not.)

As for feeling like a burden to the people around you, when I've been very ill and felt like that, I try to imagine what I'd feel like if our positions were reversed. I always realize that I'd still love them, support them, and want them around.

Please take care. Let us know how your next GI appointment goes.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: I had another horrible experience today with a new GI - Heather can you help? new
      #170343 - 04/16/05 11:59 AM
HeidnOut

Reged: 02/15/05
Posts: 148
Loc: CA, USA

Thank you for your support. I need all I can get right now. When my phelgm turned from yellow to yellow/green with traces of blood I did go on an antibiotic which cleared it up. I never take antibiotics otherwise. It has to be really necessary for me to take them. I've been taking probiotics the entire time. Another good thing is that I take FiberChoice 3 times a day and it has both Probiotics and Prebiotics in it. I also take Acidophilus, etc. I'm doing everything I can to stay healthy.

Thank you again, Heidi

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Me again with new information after receiving my copy of medical records I requested. new
      #170482 - 04/16/05 10:19 PM
HeidnOut

Reged: 02/15/05
Posts: 148
Loc: CA, USA

I won't go through the whole letter but much of what the arrogant GI said was completely false. Here goes:

He states, and I quote: "At the onset (first visit) that the history was difficult to obtain. He said I was extremely tangential." All he did was ask me a bunch of questions in which I was only to answer either yes or no which I did except for one. Only one because it wasn't a clear cut and dry yes or no. He was angry when I explained that part. Then he states that "I inidicate that beginning 1991 I began to have episodes of retrosternal discomfort at times radiating into my back." Never had that happen. I was having esophageal pain and food felt like it was sticking in my throat. First of all the letter I gave him from the GI I saw has since retired and saw for the first time on 10/1/1992, not 1991. Then he goes on to say that in April I started having IBS episodes of lft lower quadrant pain. I never said this. My first episode happneded in May 2004 and I told him all of that. Then he says my normal intake of fluids are 4-5 glasses of water a day. I drink 4-6, and sometimes up to 8 glasses. He knows this. He then goes on to say that "I drink 2 sodas per day week." At that time I told him I hadn't had a soda in 10 days but once in a blue moon I might have a soda or too but rarely. He also states "I drink 3 glasses of wine per day." This outraged me!!!! I do "not" drink wine at all and never told him that. I told him I do not drink alcohol at all. I don't even like it. He goes on saying that "I have been drinking Soy Milk for the past 3 weeks back then averaging 1 glass per week." I don't drink Soy Milk, I gave it up fat free milk July 2004 and only use it in a bowl of cereal. Then he says "My current stress factors are the fact that I was relieve of my job 13 months ago." I voluntarily quit my job with Health Net November 2002, and mentioned the demise of my Grandmother." He also said that " I have a negative history for family member with any form of Gastrointestinal disease." Lie!!! I specifically told him that my Grandmother had died of Iscemic Colitis and had IBS. He goes on to say that "I don't smoke cigarrettes or use aspirin." True. But.......he goes to Social History and mentions Alcohol, tobacco, caffeine, and a list of meds." First of all I do not drink and I have never smoked. He later states: "Patient once again counseled in the treatment of her irritable bowel syndrome in the presence of my husband." It was at that point my husband got to see for himself how this GI had been treating me. He also states that "I've been drinking citrus fruit juices" which I don't because of the Interstitial Cystitis.

If anyone would like to email me directly: my email address is: time2heid@cs.com I would love feedback.

There are some contradictions as well as flat out lies in these records. I plan to have both my Mom and Husband present for a confernce in May when my Mom gets back from out of state.

My first thought was to go to the Medical Association but my husband and Mom feel I should first go to my primary. What avenue's can I take legally?

Im extremely upset! The rest of the records are pretty much accurate. Someone help direct me. I will not speak to him anymore and I know he will not speak to me. Trust me on that one. Thanks! Heidi

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Re: Me again with new information after receiving my copy of medical records I requested. new
      #170550 - 04/17/05 07:15 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

I don't know what you can do legally. You can try calling the AMA - or maybe they have a Website - and see if they have anyone who can advise you on what to do about an incorrect doctor's report. At a bare minimum, I think you should write the doctor a letter correcting his mistakes and insisting it become part of your file. And what a good idea to get your own records! Who knows what's in those things?

I was talking to a friend of mine yesterday about a wonderful doctor of hers (yes, they are out there!). She said one of the things she really liked about him was that he would dictate his patient notes on you as soon as he finished examining/talking to you, while you were sitting right there with him, so you knew he wasn't trying to reconstruct who you were at the end of the day after seeing 50 other patients. Thinking about that makes me think this guy has gotten you confused with another patient. I am NOT saying it's okay that he did this - it's horrible, and terrifying when you think about the potential for life-threatening mistakes - but it's a possible explanation for how he could get so many things so terribly wrong. Sounds like you're well rid of him - shudder.

To refer to your earlier reply to me about your bronchitis: I'm so sorry you've got the real thing. I've had true bronchitis twice in my life and that's two times too many. It sounds like you're way ahead of me in terms of taking care of yourself - I just did some serious Board reading on taking probiotics while on antibiotics and wish I'd known about it years ago. What kind of probiotic do you take?

Take care of yourself. I hope your bronchitis clears up and your new GI can help you with everything else.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: Me again with new information after receiving my copy of medical records I requested. new
      #170558 - 04/17/05 08:45 AM
HeidnOut

Reged: 02/15/05
Posts: 148
Loc: CA, USA

This Dr. was taking notes as we spoke. I know I'm not "that" poor in the way I describe any symptoms. Could he be ad libbing???

I think Linz told me the Lactobacillus Cultures/L Lysine in the Digestive Advantage-IBS were probiotics. Also, in the FiberChoice it's got both Probiotics and Prebiotics in it. I take other things too.

I've had a history of bronchitis since I was 16 yrs. old. It gets bad.

Thank you for your reply. Heidi

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Thanks for the probiotics info. (More) new
      #170564 - 04/17/05 09:10 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

I don't know what to say if he was taking notes (unless he couldn't - or didn't - read them, but I certainly do NOT think his complete misinformation could be a result of how you described things. A few minor details here and there might be the result of a misunderstanding, but this goes way beyond that. I sure hope your new GI is better than your last two - although it sounds like she'd almost have to be.

Take care. Keep us posted (so to speak).

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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