Question for Kandee - Celiac/Gluten Intolerance
#166183 - 04/01/05 12:28 PM
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I haven't posted in a long time  My question is about the article Kandee wrote in the latest newsletter about gluten intolerance/celiac. Kandee, in it you say not to stop after the EDG for flattened villi and to ask for blood tests for celiac. I have had both the blood tests and the EDG - my blood tests came back positive for gliadin antibodies but since my EDG didn't show anything, my GI doc told me there was nothing wrong with me. (I have actually been to two GI docs who told me my positive blood test "didn't mean anything"!!) You say celiac is an autoimmune disease, and my rheumatologist has diagnosed me with Undifferentiated Connective Tissue Disease, because I don't fit neatly into any of the autoimmune disease categories (blood tests come back normal sometimes, off sometimes). When I was in last week, he did make mention of the celiac blood test that was positive, but when I told him what the GI doc said, he moved on. I guess I am just wondering what your take on this is  Do you think I should try going to yet another GI doc? I have been following Heather's IBS diet guidelines since 2001 and have not had any great improvement, although her tips have helped. But it seems like my stomach hurts no matter what I eat 
Thanks!
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I'm not Kandee...but I beg of you to go gf! PLEASE! The docs are NOT very informed on celiac yet in this country....
Esp. since you are not feeling better from Heather's diet. Try going GF and see how you feel.
That's my best advcie
Your friend who is trying to eat gf who had ALL negative tests (my GI didn't even do the whole battery of tests!  ) Ruchie
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Formerly known as Ruchie
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I also had a normal Endoscopy, but postive antibodies on two tests. He told me people get this all the time and that I should continue to eat wheat products freely without worrying. Then I went to a "specialist" in celiac disease, and she told me the same thing.
Another GI doc told me I could try eating GF to see if it helped. I have not eaten gluten now for 17 months. Now I must say, I still have all my symptoms: severe pain, gas, bloating, cramps, and constipation. Before I was GF I had all of these except I had diarrhea instead of constipation!
I will continue to eat GF though, because of people like Kandee who believes that my positive antibodies are probably telling me something. I guess all the symptoms are due to IBS. But it is very depressing that none of my symptoms have became less painful or less severe while on this restrictive and expensive GF diet. I was really disappointed.
But I think you should try the GF diet. Others have been helped by it. My positive antibodies scare me into eating GF even though I am still very symptomatic. I know this is what Kandee would suggest you do, because that is the advice she gave to me. As well as Ruchie! 
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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my Gi's didn't even want to test me for celiac! Grrr!
docs do NOT know everything!
Miss Pepper go to celiac.com. Take a look at the info. there. It might help...
*hugs*
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Formerly known as Ruchie
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Thanks for the quick responses  Do you guys follow gluten free cookbooks? How do you know what's safe to eat?
Thanks!
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The ceiac.com website gives you safe and unsafe foods. Gluten is hidden in so many foods-it is good to become familiar with the lists of unsafe foods.
GF is a little tough at first and expensive, but much healthier in the long run. I have been GF for several years and still have my good days and bad days. I think IBS has a bigger part in my symptoms. But following Heather's guidelines-but GF- has made my life much better. the flare ups are less frequent and I don't have C or D. Bloating seems to be the only issue and occasional pain. But i have a very stressful job and am a single parent-so that probably contributes no matter how hard I try to mitigate it. Hope this helps.
Mary
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It only takes a few committed people to change the world!
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Quote:
I haven't posted in a long time My question is about the article Kandee wrote in the latest newsletter about gluten intolerance/Celiac. Kandee, in it you say not to stop after the EDG for flattened villi and to ask for blood tests for Celiac. I have had both the blood tests and the EDG - my blood tests came back positive for gliadin antibodies but since my EDG didn't show anything, my GI doc told me there was nothing wrong with me. (I have actually been to two GI docs who told me my positive blood test "didn't mean anything"!!)
Hi Miss Pepper, Good to see you back.
Well, first off I'm certainly no expert, or doctor but have been concerned with Celiac disease since I first heard about it, and I have been allergic to wheat for many years. Thus, like many on the boards here, I read everything I can get my hands on, talk to doctors, and form my own opinions. You will need to form your own as well.
Let's see if I can help by making an analogy to something you might understand better. Diabetes is one of the fastest growing autoimmune diseases of today. If you get a fasting blood test and your glucose levels are under (I think it is) 99 you are considered to be without diabetes. OK, let's say your fasting blood levels were 98 but you have risk factors; a sedentary lifestyle, overweight, a parent has diabetes, etc. . You go about your business with the peace of mind that you don't have diabetes. But then it is recommended that maybe you might want to consider having an IR (Insulin Resistance) test since you have many of the risk factors for diabetes. You have the IR test and it comes back positive. What are you going to do? Are you going to change your lifestyle and eating habits to reflect more that of a person who already has diabetes in hopes that you can thwart the disease before you do get it, or are you going to say..."Well, I don't have diabetes yet, so I'll continue my lifestyle the way it is and BET that I won't ever get it"?
I look at the Celiac blood tests in much the same way....You took the EMA, tTg, IgA and IgG gliadin tests plus had the endoscope biopsy for flattened villi. You test negative on the gold standard one for most GI's..the EDG. You also test negative on a tTg or EMA or both, but you test positive on the antibodies tests, plus you have other risk factors...IBS or other associated autoimmune diseases, your are of northern or eastern European decent, you may have unexplained rashes, etc. . (That would be much like testing positive on the IR test I was talking about.)
What are you going to do, bet that you will never have CD and continue eating gluten laced foods, or take precautionary methods to assure that if you are a candidate for CD in the future insure NOW that you will never have damage done to your small intestine, and begin a gluten free diet?
You say Celiac is an autoimmune disease, and my rheumatologist has diagnosed me with Undifferentiated Connective Tissue Disease, because I don't fit neatly into any of the autoimmune disease categories (blood tests come back normal sometimes, off sometimes). That's interesting. What do you think? When I was in last week, he did make mention of the celiac blood test that was positive, but when I told him what the GI doc said, he moved on. I guess I am just wondering what your take on this is Do you really want to know? Do you think I should try going to yet another GI doc? I can't tell you what to do..that's totally up to you. If you feel you are being listened to by your GI and taken seriously, then stick with him/her, if not, move on. My own personal feeling on this is that GI's are not trained enough in treating CD, nor are allergy specialists..in fact no one really is. I had the privilege of meeting and talking with a GP that does treat CD, in part because he did his internship in pediatric CD and treats both adult and children with CD....and he's not a specialist but knows how to treat it better than any specialist I know. I have been following Heather's IBS diet guidelines since 2001 and have not had any great improvement, although her tips have helped. But it seems like my stomach hurts no matter what I eat
Oh, I'm sorry. Are you following the IBS diet to the letter and not cheating? If so then you may want to give the GF diet a try. But I warn you, it is neither easy nor as healthy as the IBS diet that includes wheat. Do your research first....and read other posts here from Ruchie, Beth, Chrissy, and Stacey..and others. Some, like Stacey noticed a world of difference in only about a week's time when she went GF, others haven't noticed any change.
My biggest concern for those of you reading this is that we've created a gluten paranoia and a lot of people who have been properly diagnosed with IBS and are not feeling better will take it upon themselves to think they are gluten intolerant. Please everyone, get tested first....and keep copies of your blood work. If you test negative on all of it, don't even consider going GF, stick with Heather's diet and recommendations.
Thanks! You're welcome.
Kandee
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Quote:
My biggest concern for those of you reading this is that we've created a gluten paranoia and a lot of people who have been properly diagnosed with IBS and are not feeling better will take it upon themselves to think they are gluten intolerant. Please everyone, get tested first....and keep copies of your blood work. If you test negative on all of it, don't even consider going GF, stick with Heather's diet and recommendations.
I too would be concerned about gluten paranoia, but regardless of tests done there can still be false negatives specifically those with Microscopic Colitis. For me blood tests do not show gluten intolerance, but once having gluten removed from my diet I no longer have painful and persistent diarrhea. For those with MC by the time blood tests would show gluten intolerance there would be significant damage to the GI.
The only way to find out if one has Microscopic Colitis is via a biopsy during a colonoscopy. Luckily my Dr took a biopsy as this isn't a normal procedure especially if the GI looks ok during the procedure.
I was originally diagnosed with IBS and if I had continued to eat gluten or other problematic things for those with MC significant damage would have occured.
A lot of Doctors even GI doctors may not have even heard of MC as it is very rare, or at least has been rare in diagnosis as I imagine that there are some people who may be diagnosed with IBS who may actually have MC.
So if you have found that the IBS diet doesn't work for you, especially if you find gluten to be problematic make sure that your Dr has found you to not have Celiac or other gluten intolerant diseases including Microscopic Colitis.
Thanks,
Mike
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Quote:
Quote:
My biggest concern for those of you reading this is that we've created a gluten paranoia and a lot of people who have been properly diagnosed with IBS and are not feeling better will take it upon themselves to think they are gluten intolerant. Please everyone, get tested first....and keep copies of your blood work. If you test negative on all of it, don't even consider going GF, stick with Heather's diet and recommendations.
I too would be concerned about gluten paranoia, but regardless of tests done there can still be false negatives specifically those with Microscopic Colitis. For me blood tests do not show gluten intolerance, but once having gluten removed from my diet I no longer have painful and persistent diarrhea. For those with MC by the time blood tests would show gluten intolerance there would be significant damage to the GI.
The only way to find out if one has Microscopic Colitis is via a biopsy during a colonoscopy. Luckily my Dr took a biopsy as this isn't a normal procedure especially if the GI looks ok during the procedure.
I was originally diagnosed with IBS and if I had continued to eat gluten or other problematic things for those with MC significant damage would have occured.
A lot of Doctors even GI doctors may not have even heard of MC as it is very rare, or at least has been rare in diagnosis as I imagine that there are some people who may be diagnosed with IBS who may actually have MC.
So if you have found that the IBS diet doesn't work for you, especially if you find gluten to be problematic make sure that your Dr has found you to not have Celiac or other gluten intolerant diseases including Microscopic Colitis.
Thanks,
Mike
Thank you so much for adding this. There is an awful lot more that can be learned, by all of us, about the affects gluten can have on the intestinal tract.
You were very fortunate to have a doctor that checked for MC. I suspect you are so right about it being so rare that it isn't even checked for on a routine basis..
I'd never heard of it until now.
Thanks again Mike..
Kandee
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Is it to follow a GF and IBS diet?
Very interesting Mike. Thanks for sharing this info!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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...if it's not helping you? You're probably cutting out alot of foods that can be very helpful with IBS! I did an exclusion diet to check for gluten intolerance and all it did was make me very bored with the complex diet and more gassy b/c I was struggling to eat enough SF! So I don't eat GF and do alot better.
I agree with what Mike said...there are others things possible, but if you've had the biopsies done (I have) and they were all negative, then why put yoursef through the difficulties of GF? Sorry I just don't get that reasoning at all.
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Celiac is an IBD where gluten triggers inflammation, gluten intolerance can be just a food intolerance.
The best way to check for gluten intolerance when you've all the tests for celiac (and the microscopic thingy Mike mentioned) is to do an exclusion diet. Cut it out COMPLETELY (that is very important) for at least a month, monitor your symptoms and then eat it again and monitor your symptoms. If you ARE gluten intolerant, cutting it out will make you feel better (even if it's just persistent bloating or headaches that goes away, not all your symptoms) and if you're not it won't help your symptoms. Remember that you have to keep everything else that affects your IBS the same as much as possible to not complicate the results. An exclusion diet is pretty foolproof and any alternative doctor worth his fees will always do one as well as a skin/blood test for intolerances as the tests aren't always reliable.
Do NOT eat GF if you don't need to. If you DO need to, then that's cool and it's definitely possible but it does make your life harder and more expensive, as well as cutting out alot of foods that are very helpful in controlling IBS.
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Unfortunatly there isn't any "real" known treatment yet they don't even really know what causes it yet. For me the majority of the symptoms were cleared up by eating gluten free, but for others diet alone doesn't seem to help. There are a couple of medications, but I found one didn't work for me and has actually made some sicker and the other I haven't tried since I read the symptoms and they sound worse than what I have already.
Since it is rare and relatively new not a lot of research has been done. There was a post that I wrote on Lymphocytic/Microscopic Colitis that has a link to a site that has some more people who know more or who have been dealing with this disease a lot longer than myself.
In fact according to the statistics it's normally associated with 50+ year old women, I'm a 36 year old male. So I'm guessing there a lot more out there who don't know anything about this as well.
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You're very welcome. I'm learning something new every day about it. And at times I feel I know more about it than the Drs do, and unfortunatly it seems to be that way. My regular Dr hasn't even heard of it.
I hope that this info helps someone else out there who may be suffering from this disease.
Thanks,
Mike
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I eat GF...
#166689 - 04/03/05 08:01 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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...because I tested highly positive for gluten antibodies on the blood tests twice. So obviously the blood work is telling me my body doesn't like gluten.
Gluten intolerance is not black and white. Even if the biopsy comes back negative, I was told that that isn't a green light to go and eat gluten. I'm afraid I may be doing harm to my body in the long run, if I eat gluten now.
Also, in addition to the gluten intolerance test being positive, I do have IBS. So I am figuring that my current problems are due to my IBS, as are Mary's and Ruchie's.
I honestly hate having to eat gluten free, and often wonder why I go through the expense, restrictions, and difficulties of trying to maintain both a GF and IBS diet. It is extremely difficult and usually makes social events impossible. And I still have major pain, cramps, gas, bloat, constipation while going through all the difficulties. It doesn't seem fair. I often, often feel like giving up and eating gluten again. But I have talked this over with people whom I trust, admire and respect and the advice given to me is to stay GF. So, for now, that's what I will do.
Who knows, one day I may say the heck with it, I'm not feeling better, so gluten must not be the problem. I would be interested in what others who are GF on this board think about all this. Any comments would be welcomed and appreciated!
That's were I'm at now Linz. I'm really up in the air, but at as of today, I'm still in the mind set that I need to be GF probably forever. If I'm wrong, it will be a lot of extra stress, restrictions, and cost for nothing though. UGH!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Could you all give me your opinions on whether you think I should remain eating GF since I am still struggling with all these horrid symptoms. My story is in the post above this one. How I had the blood work come back highly postive on two of the test IGG and IGA, that I had done twice. But I had a negative biopsy and negative scores on the one blood test that is most specific for celiac disease.
But my symptoms have not improved since being on this GF diet for almost 1 1/2 years now. Except now I have chronic C instead of chronic D.
Linz asked why I continue to eat GF if I don't feel better. Which is something I ask myself. What do you guys think?
Do you guys feel better eating GF or do you still have pain, cramps, gas, constipation, bloat. I know Mary must eat GF because she is definately celiac. But do you guys I need to? I am in a quandry.
The expense, restrictions, stress, and inconvience of eating GF is so life altering, so why do I do it if it doesn't seem to be making me feel any better?? I would love to be able to eat gluten again if it were safe and if it didn't make me feel worse. But the postive antibodies are telling me something, are'nt they???
You can read more in my post to Linz below on why I still eat GF. Any advice would be greatly appreciated.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Beth, I think the concensus here is that if you've tested positive for gluten antibodies, you have celiac disease. You don't need flattened villi to prove this, as often the flattened villi are a sign of disease progression. So my advice is if you have celiac disease you MUST be GF for life.
Now onto the difficult one. Going GF for 1 1/2 years hasn't brought you any relief. Are you ABSOLUTELY STRICTLY 100% GF and DF? If so, there are other food intolerances and allergens that could be causing your symtoms. Have you thought about fructose malabsorption? Its produces all those symptoms you listed. And there's yeast intolerance. And how about a soy or nut allergy? They can all cause GI symptoms, and only the smallest amounts can keep you with gripping painful symptoms, despite being vigilent with your GF.
Perhaps you should try going fructose free for 2 weeks and see whether this provides any respite. I can send you some info if you like.
I can sympathise soooooooooo much with you Beth. I desperately want to know whats causing my symptoms too, and nothing I do seems to provide me with any respite at the moment. But can I please ask that you don't start eating gluten again, your test results show that you have celiac. Keep up with the GF and see if you can find the other food intolerances that are keeping your symptoms so severe.
I remember back to the days when I was 90 % better in health. It was only because I was GF, DF, yeast free, sugar free, preservative free, IBS safe and I had all my supplements worked out perfectly. It was a miserably boring life, but what I wouldn't give to be back there again. It's make me cry to realise I truly didn't know what I had till it was gone. And now I can't seem to get it back, despite being on the same diet.
So keep up the GF, and try cutting out fructose, thats my thoughts. I'm going GF, DF, soy & nut free (possible allergens for me I've found out) and yeast free at the moment. One day at a time. If all this combination doesn't make me better I'm going to try going fructose free as well. Its a bugger of a life, but I need to do it to find my answers.
Take care sweety. Chin up and keep up your journey. The day you give up is the day you'll never ever get better.
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~ Live life, don't let life live you ~
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Beth--stress can DEF cause these probs along with
IBS. Did ANYTHING in your life get better going GF? Are you sure you were 100% GF (I mean evn applesauce has to be GF)
I'll write more soon...feeling pretty down right now, sorry *hugs*
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Formerly known as Ruchie
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Chrissy
#166714 - 04/03/05 09:30 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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A quick response tonight and more tomorrow, as it is late and I need to get to bed. 
Thanks you for taking the time to read my post. I did some editting to it probably after you posted. I do not think I have celiac disease. I had a blood test done to test for the celiac gene, and it came back negative. Also, the third blood test (ttg or em...someting) came back negative twice and that is the test most specific for celiac. So, I am pretty sure I am not celiac. Thus, my quandry. Am I really gluten intolerant, or did I have some false postitives. I don't know if you read my first post about what my first GI said, and the "specialist" but they both said I should eat gluten and not worry about it. My current doc is the one who feels that I am Latent Celiac and suggested the GF diet. He also believes the gene test is not fully reliable.
I just feel so ripped off because you know how difficult all these diets are, and if I truly don't have any relief, then why do I bother? I do believe I am STRICTLY GF and I know I am strictly DF. The relief I have had is going from D like 7 times a day to chronic C, if you can call that relief! But at least I am able to work now.
I don't do soy, except for some Braggs GF soy sauce now and then. I have considered fructose intolerance, but my state has no facility that tests for this. I never tried yeast free, but I usually only eat 1/2 piece of bread a day anyhow.
Are you fructose free now? I do eat fruit 2 times a day. I do love my fruit. And I have some carrots everyday too. Yes, I would like some info if you have it! I don't know how I can give up more food though. This is too much for me, Chrissy. There seems to be nothing left to eat. And I relied on the fruit for help with fiber since I cannot tolerate SFS and if I give my yeast up, there goes any gram of fiber! 
Okay, enough for now. Maybe I will email you. Thanks again for all your support, Chrissy. You are a true friend. I liked the last line of your post. Thank you for that. Oh, it is such a gift not to be in this all alone. Knowing that others are giving all this up in order to find relief makes it a tad easier to watch everyone in my life much down on pizza, ice cream, chocolate candy bars...oh, the list goes on!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Hi! I went totally wheat free along with many other things from 1980 to about 1990. I learned to make rice breads, actually anything flour (safe) and NO eggs even. I used applesauce which acts a lot like eggs.
There is something I learned about a year ago. I thought I was having problems with lactose. I got some cheese as one old doctor who has done great work on this subject said cheese had no lactose. I got upset on cheese so I cut it out not understanding why it bothered me. One day I bought some soy cheddar cheese thinking I'd made a GREAT find. It got me! So I got into the label, and it was CASEIN!!! I cannot handle casein. So if any of you ever come across this check those labels and look at casein and whey hard. I can do whey, not casein. But I rarely even do the whey. I did find a true non-dairy sliced cheese made of soy some months back. It's "okay" and melts onto san in microwave or whatever!
My former internist actually told me in the 70s to go see a shrink! Well, I was already having counseling so that was not the right answer. This went on and on until someone in his family began having food sensitivities. Must have been earth-shattering as the entire family changed course and ate differently. Then all he could talk about were food sensitivities! These doctors just don't know until they or a loved one falls ill to IBS via food sensitivites. Most of my problems have to do with food sensitivities (like allergy I think).
I don't think I'm allergic to wheat (I love French bread, but I overdo so maybe it's time to stop or straighten up). Maybe I should do all the tests again as in "Elimination Diet" as I did in 1980! I truly got along well, but I was not having much problem with IBS. My other doctor found allergies in my blood tests.
Right now I just want whatever is wrong to be gone! Real gone! I'm just miserable. I'm all over the message boards on it so I won't repeat, but when someone says they are discouraged I understand. I am just about ready to join the chorus of "give up" except I have no way to go. If I'm just dealing with an infection perhaps this will grind down. I can only hope.
Anybody else have problems with all antibiotics? I get so ill now that it's awful! I can be IV'd with most, but the other morning two, or at least one, about ruined me! I got SO ill. It surprised me! I was then asked to take Cipro and Clindomycin (think I'm allergic to it). Yikes! On Flagyl and got really bad reaction!
What do you do when you need antibiotics? I'm really getting concerned as this is first time I've needed anything since I had intestinal surgery Dec. 2003 (not for IBS so don't even go there!).
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..... if you truly believe you are not celiac, and you've got no relief from being GF, then test small amounts of gluten and see what happens. I've heard the best way to test a food you've eliminated for so long is by eating a large serve of it once, and then waiting 2 weeks to see what your reaction is. Don't go gung-ho into gluten products (like I did when I started eating it again ) or you're guaranteed to suffer. Perhaps try 2 slices of IBS safe white bread, and watch what happens over the 2 weeks following.
I can soooo understand your dilemma Beth. GF eating is expensive, anti-social & stressful. So if we're not celiac, then why should we go GF!!? I'm off gluten for the time being, because I saw enormous relief from it last time I did it (this time is taking so much longer tho..... sigh). But I don't honestly belief I'll be GF for life. I'm certain that seems as I'm not celiac, there must be a gluten threshold for me (ie 1 slice of bread every couple of days maybe..... or a few serves a week of food that contains small amounts of gluten).
As for fructose malabsorption, don't worry, going fructose free (FF) is only temporary until your symptoms improve (assuming you have fructose malabsorption that is). Then you can gradually add fructose products back into your diet until you find your threshold. I'll dig out the info and email it to you. I'm not testing fructose at the moment as I'm only GF, DF and yeast free at the moment. And a temporary fructose free diet doesn't mean you can't have any fruit, you just have to stick to low fructose fruits like berries. If you rely on fruit to keep you stable, then you can do a modified fructose free diet where you cut out all other forms of sugar, except for your 2 pieces of fruit a day. The results will be slower, but if you suffer from fructose malabsorption you'll still see results from lowering your fructose/ sugar intake.
As for yeast, well I was bamboozled by how many products contain yeast, or the food that feeds yeast. I posted a thread in the living room called 'the candida diet' if you want to have a read.
Keep plugging away at it sweety, keep your food journal up when you change your diet, and one day, pray, your symptoms will improve! I'm still optomistic (thank goodness) but I've only been in this IBS game for a couple of years. I'm determined I won't suffer this beast for life.
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~ Live life, don't let life live you ~
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I'd be interested in the info on fructose malabsorbtion you have. I've always thought I had a problem with fructose and as a result have eaten virtually no fruit for years (about 10) other than applesauce and sometimes pureed pear. Is fructose malabsorbtion different to a fructose intolerance, do you know?
It is almost impossible to find yeast free products! I'm on a yeast extract free part of my diet and that's almost impossible too. Spent 3 hours cooking my own vegetable stock today (not easy with the kids trying to "help"). Good luck with finding your intolerances and like I said I'd love to hear about the fructose malabsorbtion. Thanks in advance.
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Amy
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Hmm. The biopsy is when testing for Celiac...and there is a pretty good antibody test for that! Which ones did you have done?
I know if you need to go GF then you need to stick with it, but most people who do get relief from going GF and you haven't! Ruchie can tell if she's slipped up and had a tiny bit of gluten b/c of her extra symptoms and I was under the impression that this wasn't you.
The thing is...it's so stressful and cuts out so many great SF foods that you could be hindering stabilising your IBS if you stick with GF and you don't need to!
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Exclusion diets as a test only work if you introduce it back in (slowly of course or your IBS tum will have a fit whatever).
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Kandee -
Thanks for taking the time to respond to all of my questions/concerns. I'm going to have to give all of this some thought and do some research on celiac disease and the gluten free diet (which, honestly, sounds like a pain in the neck!!)
Thanks also to everyone for all of the responses/feedback
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The IBS got a little better. I had a rash-flaky dry skin patch for years on my forehead that dispperared completely when I went gf. But It is hard, I read very ingredient, make my own broths, cook every weekend for the week and pack lunch every day. I never eat processed stuff. Gluten is in ce cream, tuna in water unless it is sodium free, soy sauce,broths, cool whip, rice and vegie cheeses etc.... Anything with filler or barley malt has gluten.
I now had to take out dairy and I stay away from soy. Then when I cut the coffee-my one and only vice for years and years-I thought I would definitely go over the edge. But so far I take one day at a time. I still have bad days, so I guess I am not stable yet.
YOu can email if you need help with the GF thing.
Hugs,
Mary
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It only takes a few committed people to change the world!
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Well, I didn't put 1 and 1 together and realize that you are the one who wrote the article that made me decide to check out this website again.
I had parts of the diet and found that they made me worse so I figured this wasn't the place for me. Especially since I couldn't find anything about Lymphocytic or Microscopic Colitis on this board.
So I had to say, great job on the article! It might just get those people who have IBS like symptoms to ask their Dr about CD or Gluten Intolerance. Or even bump into my few posts and ask about Microscopic Colitis.
Thanks again,
Mike
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Would someone give me the ratio to figuring the fat to calorie on food that does and doesn't have the calories from from on it and give me an example. I've forgotten how to do it and can't find it on the board. Thanks a zillion 
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IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13
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I'm emailing you the info on frutose malabsorption as we speak. I can't post it on the boards as I had to pay for it, so could get in strife.
Amy, fructose malabsorption is apparently a very common trigger for people with IBS, and is a result of enterocytes (cells in the intestines) not functioning properly so fructose cannot be absorbed properly. And it differs to fructose intolerance, which is a pretty rare hereditary condition whereby the body doesn't produce the enzymes necessary for fructose digestion. So malabsorption is poor digestion of fructose, intolerance is when it can't be digested at all.
But in both cases the fructose ferments in our intestines and causes horrible bloating, gas and diarrhea. Yet with all conditions, constipation can be a sign as well.
Have a read of the info, its mainly a guide on how to go fructose free. The idea is to follow a strict fructose free diet for two weeks to see whether there's any improvements. And the main thing to note is fructose malabsorption is 'treatable' by going fructose free for a couple of months (I think to let the intestine cells recover?) and then to limit your frutose intake once you've 'recovered'.
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~ Live life, don't let life live you ~
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Don't know what happened to your email. It hasn't arrived yet. Thanks for clarifying that though. They suspect I'm intolerant (and for a second there I was looking forward to fruit) but I'll know for sure in a couple of weeks when I get my biopsy results back (also testing for lactose intolerance). I've always had problems with fruit, so I guess I'll see soon whether I can start enjoying it again. Thanks
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Amy
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Thanks for this info. I couldn't touch fruit, period, unless it was some applesauce in baked goods for a good year upon getting IBS. Try as I may it always brought on an attack. Little by little I started to add them, and even today my tummy would rather have them cooked to death, in with a SF food or in a smoothie. It's just one of those things that is personally hard for me to handle. I never knew why so this makes sense. Thanks, Kandee
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Oh well fingers crossed it isn't intolerance!
As for the email...... I sent it over an hour ago..... to wildtigercubs@yahoo.com. Is that right?
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~ Live life, don't let life live you ~
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Just found it. Was checking my hotmail account. Thanks, downloading and reading now
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Amy
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Fat
#167088 - 04/04/05 11:16 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Well you want to aim for 20-25% overall and fat is 9 calories per gram. Is that what you wanted?
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