Re: yes!
#165015 - 03/29/05 11:43 AM
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melissam
Reged: 12/13/04
Posts: 308
Loc: Scranton Pennsylvania
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I haven't taken it in I want to say 5 months- It wasn't really doing anything for me- It gave me "loose stool" for the first couple of days and then 3 months later I didn't feel any difference. So I went off it- Then about 9 months later my doctor wanted me to try it again to see if it helped with my pain. It didn't.
It definately sounds like you had all the necessary tests done- Wow-
I had the same ones done but also had a hidascan(gallbladder test) done which showed nothing.
Currently I take Zoloft (antidepressant) because I was having a hard time dealing with having painful cramps allll day long every single day of my life. It brought me down big time, because it changed so much in my life and not for the better.
I also take ambien to help me sleep at night. Other than that I don't take anything- I tried the antispasmoidics-
Levsin, Nulev, hyoscamine (they're all tha same) they made me reallly constipated, blurred my vision, and made me very sleepy- I have to get up at 5:15 to go to work every day- I couldn't function like that- so I had to accept that this is how it is going to be and that's it. I watch what I eat, fat content, dairy etc...
It is such an overwhelming thing to deal with sometimes.
I have more bad days than good and it's hard.
I hope you get some relief from the Zelnorm- ALot of people have had luck with it.
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Melissa
Pain predominant w/occasional C.
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Re: yes!
#165027 - 03/29/05 12:04 PM
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Kemi
Reged: 03/15/05
Posts: 163
Loc: MO,USA
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thank you,i hope that i get relief from it also!right now i never want to take it again because its making my gas wrose and making me bloated like crazy.i dont have a problem with the pain like i used to,its mostly the gas!gas gas..i would have no problem with it if it would just come out the right way!!!they wanted to put me on anti depressents so i can cope with ibs better,its depressing.i took it once and never wanted to touch it again.i hate the way they make you feel,it made me very tired and out of it.i hated the feeling.do you ever feel full all the time?for a few weeks i was using enemas and when i had a bowel movement i could eat but latley its going back to the same,i have no appetite.i hate this!i hope your pain gets better.oh im on the cant eat nothing diet for 3 days,what would you recommend me having till the 3 days pass,or do ibs with c have to go longer?
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Re: yes!
#165036 - 03/29/05 12:30 PM
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melissam
Reged: 12/13/04
Posts: 308
Loc: Scranton Pennsylvania
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I personally hated the antidepresants myself- I was dead against them- They prescribed me Paxil- I took it for 4 days and it was such a terrible feeling- groggy, disconected, tired, "out of it" as you said- so I stopped taking them- then a month later all I was doing was crying because I was tired of the cramps and pain- Eating wasn't enjoyable anymore. So my GI doctor stared me on a low dose SSRI- they say that it raises the pain tolerance. Well I started on 25mg of Zoloft for a week then went up to 50 mg- The side effects only lasted about 4 days- I didn't feel a big difference in my pain and I was still crying alot. My family and friends all said hang in there- everyone is different- it takes a while for the levels to build up- especially being on such a low dose. So I stayed on them- my family doctor bumped me up to 75 mg because I still felt very depressed and it has been about 7 weeks- and I can feel a difference emotionally- I wouldn't let a day go by without taking it now.
As for the full feeling- Yes I feel full all the time- I have abdominal distention (visible), not just a bloated feeling. But I am hungry to if that makes any sense...
I have alot of gas in the morning, and at night-
I twold say the normal amounts throughout the day though. The morning is the worst gas for me though.
Why are you on the can't eat anything for 3 days??? Because you haven't had a bm and you feel full?
You need to have something to eat- Oh beleive me when my pain gets bad I haven't eaten for 3 days either- and that only made it worse for me. Try to eat something... Even it's it just rice. And drink water.. Water even made my pain worse sometimes I thought. I had bad days still but no matter what I force myself to eat- I had a very bad 2 months in January and February for some reason- and I wasn't eating for days at a time- then I'd feel better and I'd eat for a couple days, then feel sick again- and stop eating again- I lost 11 pounds in 2 months- 11 pounds I didn't want to lose --- I am 35, 5'6" and now I weigh 110.
I look sickly...
Haas your doctor tried you on miralax? I see alot of good results here with that.
What did your doc tell you to do after he said you had IBS-C?
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Melissa
Pain predominant w/occasional C.
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i can recommend a good oatmeal you could try. its sold at whole foods, if theres one near you and its called Erewhon Organic Instant Oatmeal. it comes in apple-cinn, maple-spice, dates and something, and of course plain [i dont like dates hehe] i add some agave as a sweetner, maybe for you try honey?? its organic, so theres no preservatives or HFCS. i dont seem to have any trouble with it and i mix some acacia in it too. the maple one is my favorite and theres also no added sugar. so if your tummy is sensitive to sugars, this one could work  i hope that helps you! i hate reading about miracle food and having it not work for me  which seems to happen alot---good luck!!
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VEGAN ASHLEY~IBS/C
www.myspace.com/dutchflowers
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Re: yes!
#165227 - 03/30/05 08:52 AM
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Kemi
Reged: 03/15/05
Posts: 163
Loc: MO,USA
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Hey!!thanks for your recomations on the oatmeal!i will defintly try it,I love oatmeal!but i hate having attacks from it!my doctor put me on paxil,zoloft,and two other forms of anti-aniexty pills i think one was lexapro.i cant remember the other one..i know it started with an M.but i hated the feeling i felt on it..it said wrose side effects then what i felt!why would i want to take something that made me feel wrose?!!hello morons!gezzz.lol..well after i was dignosed with IBS-C my doctor basically told me thats it thats all you have..and put me on prolsec otc for a year for my heart burn im still taking that by the way..and told me to go join yoga.he didnt inform me about anything whatsoever about ibs..he didnt tell me that stress can cause attacks or that your diet plays a role.he just told me it was bloating and constaption and thats its no big deal.well i know if i wouldve listened to him i would be in a lot wrose shape then i am now.i stoped taking zelnorm for today because it seemed like it made my gas wrose.my gas is my biggest problem right now,i would rather have diaherra and all the pain in the world over this freaking gas,it just comes up threw my thoart and i cant breath and thats what makes me afarid to eat.i went on the cant eat anything diet for 3 days to stablize my GI only souble fiber foods.all ive been eating is ceral and white rice with a little bit of salt,and plain bagels.this seems to be helping a little bit.my gas attacks used to be a hole lot wrose when i ate regular food.does zelnorm cause aniexty attacks?i think it said that somewhere on the list of side effects.thats my maine problem,i have a lot of panic and aniexty attacks since i formed IBS.but who wouldnt ya know?what kind of stuff do you eat?i want to try tuna or something but im so scared it will throw me back into an attack.
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Re: yes!
#165243 - 03/30/05 09:24 AM
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melissam
Reged: 12/13/04
Posts: 308
Loc: Scranton Pennsylvania
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I personally never had anxiety attacks/panic attacks from Zelnorm and again I went through 2 courses of the medicine. Gas is a very very common complaint- but in all reality you can't not eat because of gas- You have got to keep putting some kind of food in you okay... What about SFS- citrucel, fibercon, metamucil- are you taking any of them? I use citrucel. I used to use metamucil but found that produced alot of gas- but again- everyone is different.
I found that with alot of water and food keeps things moving nicely. Don't get me wrong I still get some nasty bouts of gas but most of the people with IBS do get that. As for what I eat- I eat oatmeal, honey nut cheerios, apple jacks cereals- with Lactaid because I am LI they say-
Tuna fish made with light reduced fat mayo- graham crackers, animal crackers, chicken, plainville turkey breast lunch meat, wegmans 97% fat free cookd ham, french bread, italian bread, white bread, english muffins with simply fruit jelly on them, soy crisps,rice, couscous, applesauce, pasta(easy on the sauce though- heartburn), very rarely I will have center cut pork chops with shake and bake on them- (rarely though)- watermelon, cantaloupe, blackberries- I watch with fruit though because sometimes that makes me go a little toooo much. I don't have a huge menu as I have a very hard time finding out what foods cause my pain to be worse on some days. I am still in the afraid phase of eating also- but I do eat. Did you see the list of IBS safe foods that they have on this website? Alot of good ideas there.
When I got diagnosed the doctor said I have IBS and told me to stay away from red meat- and use a SFS.
Well I stayed away from red meat and used the SFS for a year and the pain wasn't getting any better- I was having a BM very day but the pain was there- sometimes very bad.
January, and February of this year I ended up in the emergency room because the pain was so bad and I didn't want to eat- I was dehydrated also. My pain is much worse when I have my period though- And this was something new for me because in the last almost 2 years I have known I had IBS-C- it never seemed to be worse when I was menstruating. But January and February of this year when I got my period the pain just got tremendously worse. That is when the doctors said try the anticdepressants for pain tolerance leverl- then I was actually depressed so they upped the doses. Now I wouldn't miss a day of those pills for anything- I don't know how I would have gotten through the last 2 months without them- because I was very very close to rock bottom- I didn't want to live this way, it wasn't fair to me, my family, my friends. I was in a terrible place in my head. And that isn't me- I was always a very happy go lucky person- enjoyed life etc etc etc- but having pain every day kind of changed all that.
Yes- they say stress aggravates IBS greatly. That was something my doctors told me just recently- although I read it on the internet. I actually have a very non-stressful life- my biggest stress honestly is dealing with the IBS- but one day at a time helps.
Are you using phazyme or gas-x to help with your gas?
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Melissa
Pain predominant w/occasional C.
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Re: yes!
#165289 - 03/30/05 11:36 AM
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Kemi
Reged: 03/15/05
Posts: 163
Loc: MO,USA
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Hey GIRLIE!yeah im still in the phase of being afarid to eat..you sound so much like me before this IBS hit my life.before i got IBS i was the most hyper,happy,outgoing,loveable,spontinous person you could find!then this ibs hit me bad and it totally changed my life..i dont even know who i am anymore.i let the ibs control me for the last 5-6 months or so,i would starve myslef at night and wouldnt allow myslef to eat anything past 10:30 am to avoid the gas..i would wake myslef up at 4 am just to eat i would eat a bowl of ceral and maybe a side of something else,and would wait until i felt hungry which wasant for hours and hours and if i didnt get hungry before 10 am i wouldnt eat,sometimes i would eat 2 bites of white rice just to survive for that night.anywayz i let ibs make me anerioxca,i would wake up in the morning with my mouth bleeding like someone knocked me out and my eyes blood shot and start coughing up blood from being so dyhydrated i was even afarid to drink water.over the last 6 months ive lost over 40 pounds i am 5'7 and weigh 100 pounds.my family excuses me of having an eating disorder but i am to afarid to eat.i know i need to eat something im on here every single day trying to figure out what can i eat that wont send me into pain?i saw the listing of souble fiber foods but i still dont get it,i dont get how the hole thing works.if i ate breakfast souble fiber and then wanted to eat,lets say a gharm cracker with peanut butter i would be ok?if i ate it 2 hours later?it says never eat insouble fiber alone!did you say zelnorm causes gas?or gas is in people with ibs in general?sorry i didnt understand your reply.i have a very very stressful life..i live with a prevert who comes to me about every single one of his problems and complains endlessly i am constantly being accused of things i didnt say or do.he watches every move i make,he is what formed my ibs by all the stress he put in my life.i want to move out of here but im so afarid of being indepdent again,and alone.because this ibs.ive tired every single gas x thing out there and nothing helps it just blocks the gas from coming out and then i have serious problems..alot of people with ibs have probelms with gas?wow!i thought i was the only one,are you talking about like bleching and stuff?yeah thats the reason i cant go anywhere,because i have those gas attacks.fiber supplements would help with the gas?i dont know if your supposed to eat diary at all in your diet if you have ibs are you?i know how you feel about the hole period thing thats when my problems go off the wall!i havent had my period since the beginning of January,from not eating i guess,i know im not pregnet because i was checked a month ago.well im not getting anything in my diet,havent been eating any meat of any kind no diary..basically only rice and ceral.thats good that youve never had a problem with aniexty its very scary..
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...is the other (shorter  ) name for the what to eat when you can't eat anything diet! And C's need to be even more careful than other IBSers to add the IF back in after only a few days...safely of course. So you need to be doing this now.
Have you been checked out for GERDs? Do you get heartburn? I'm asking b/c alot of my burps and the not-being-able-to-eat feeling came from my GERDs not the actual IBS.
What actual questions do you have about the diet? SF can act as a kind of cushion for your gut...allowing you to "sneak" more IF in with less bad effects. So if you want to have IF veggies with your diet, eat the rice/potato/whatever FIRST and then eat the veggies. Get it? 
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melissam
#165297 - 03/30/05 11:50 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Are you eating proper milk? Cos that's a trigger...even with the lactaid! Lactaid only works to break down lactose...whey and casein (other components of milk) are also IBS triggers.
Are you still using a SFS? They are very helpful in combination with diet, etc. And stress-relief techniques like yoga, hot baths, meditation can also help with the stress of IBS...even tho it's the IBS that causes the stress, it can still make the IBS worse.
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Re: yes!
#165304 - 03/30/05 11:57 AM
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melissam
Reged: 12/13/04
Posts: 308
Loc: Scranton Pennsylvania
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Well lets see- Gas is a common symptom for people with IBS As for the Zelnorm- it did give me some more gas- Nothing crazy though. The only reason I stopped taking it was because it wasn't doing anything for my pain, and bloating, and gas- I don't think it made me have bm's anymore than eating some fruit did.
The diet on this board seems to have helped alot of people. I personally do not follow it 100%- I do take the advice of peeling and de-seeding fruits though because peelings seem to cause a problem for me-
I do try to stay away from the gas causing foods stated on the website.
You are very thin also (me-5'6 35 yrs old 110 lbs) You need to start eating some more foods- What is your primary complaint- the pain, gas, bloating?
You have stopped menstruating which isn't a good thing..
Stress really makes this whole thing worse. I can not sit here and tell you to eliminate the biggest stressor in your life- you need to make those decisions on your own. But I am sure that would help. You said yourself you know what you think caused your IBS- you need to find a way to lessen that stress. Stress makes "normal" peoples GI tracts go haywire let alone ours. I personally don't do the peanut butter thing- Afraid of that still. But graham crackers, like I said, are okay for me-
I get the Keebler Cinnamon Crisp graham crackers, and the original ones also.
They say dairy isn't the greatest for IBS- I stay away from it as much as possible.
When I was having terrible terrible pais I wouldn't eat for 3 days and that was actually making it worse because my stomach was empty- I would eat a 4oz cup of applesauce and some rice- that wasn't cuting it though- putting just rice into it isn't enough- you need to get more food into your tummy-
Are you having BM's? What is your primary complaint?
--------------------
Melissa
Pain predominant w/occasional C.
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