Feeling SO alone....I know you will understand tho!
#163744 - 03/24/05 11:34 AM
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Tonigh is Purim, a Jewish holiday. And we eat a meal tonight and again tom. Since I'm not haveing a meal at my house...we got invited out.
But I am STRICTLY gluten free now. and people ALWAYS mess up my food. And hubby will have been fasting all day so I def don't wat to drag him home if there is no food for me. It's SO FRSUTRATING!
The worst part: When people ask me why I'm eating my own food. Why I brought my own food. WATCHING everyone eat pastries, bread, etc.
I don't want to go frankly. I do NOT feel happy about any of this. I feel depressed. Alone. And like an outcast.
Why did I ever agree to going? Right...I agreed when I wasn't thos strict about my diet....
We are about to move. I HOPE that the place we move to is more accomidating! here it has NOT been easy (why we're moving).
I stay home OFTEN because of my issues with food. I opt eating at home instead of going out to avoid these situations.
I am tired of being by myself...but I am anxious about dealing with these issues. When we 1st moved here...someone invited us for Fir. night dinner. And the man said no problem on my special diet. I got there and there was NOTHING I could eat. So I ate what was there and got sick from it.
It's SO Awkward as well! A part of the MEAL (a religious act), is to eat bread. And I don't wash and eat the bread. I feel bad enough not being able to do this act... PLUS everyone is like "Why didn't she wash?" I get stares, questions, etc. I just want to be left alone!
It hurts to be so different. To be left out.
To be accused of being anorexic.
To be asked "Well...can't you have bread SOME TIMES"
I just want to cry. I want hubby to go without me. I want to hide from the world sometimes.
Why can't people keep their mouths shut? Don't they know how embarassing it is?!?!
I know, I know...I need to learn to stick up for myself. Tell the lady that asks why I don't eat this and that, politely of course "I'd rather not discuss it". "I just don't eat that." But instead...I end up crying. I go home and stay up wanting to eat cause I'm so hurt by what happened. (Which I have NOT done lately, thank G-d!)
PLEASE send suggestions, hugs, anything positive my way! I need a lift! I WANT to back out...but I WON'T! I'm a fighter...and I will NOT back out now. (At least I hope I won't!)
The woman hosting tonight asked if she could make me a salad. With corn. From a can. I exaplined I can only things that are not from a jar/can and are fresh. in the last community I lived in...people were sooo muh better about it! They were FAMILIAR with celia, IBS, and who know what! Here....it's a CHORE to have me over since I require special food. It HURTS! (Part of why we're moving again).
Thank you for reading...sorry so long!
Love, Ruchie
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Formerly known as Ruchie
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sending my love and hugs!!
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Ruchie!
Reading your posts always cheers me up and inspires me. You have such great advice and support for the rest of us, we really appreciate it!
I'm sorry you're feeling so stressed about going out to a dinner. That's such a tricky situation. But I'm sure the hostest won't be insulted if you bring your own food. And no one else *should* care either, since it's not affecting them. I think this is a better solution then eating what's there and getting sick. It's also better then staying home.
My advice (and I don't want to sound preachy or higher than thou, cause I'm sure not! )  is to try to concentrate on the religious part of the gathering, because that's the real reason you're going anyway, right? And if the guy across the room is wondering why you're not eating the bread, that's his problem, not yours  !
Chin up! You are definitely NOT alone.
--Myra
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IBS-D
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Who cares what other people think. You do what is best for you. And just keep thinking happy thoughts. Like you won't have to endure this much longer b/c the new community will be more supportive. And if you have to take your own food so be it.
My mom gives me a hard time about what I eat and why I can't just eat what she cooked. And I tell her if I had cancer or some other horrible disease that they have a test for she would gladly accomadate my diet no questions asked. But b/c IBS and Fibro are things that she isn't familiar with she brushes them off. Perhaps trying explaining that politely to your host. It sort of put it into perspective for my mom.
HUGS and I hope you can work through this.
Christie
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Christie
~Hoping and Praying for Sleep!~
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I dont really have much advice because Im feeling almost exactly like you right now. I constantly am being asked why I dont eat this or why I cant eat that - and its usually by people that already know my situation so its even more frustrating. The questions about me being so skinny definitely hurt the worse. Whenever someone says ANYTHING about my weight it takes me days to get over it and in the long run I never really do get over it at all. I havent had any comments about my weight in a very long time and its still something that I think about EVERY SINGLE DAY and obsess about. I want to gain weight sooooo bad and nothing is working!
I definitely understand about eating over at people's houses or eating out being so hard because being on both an IBS diet AND a GF diet is hard enough to eat at your own home. I NEVER feel like I can trust restaurants or even other family members because they havent spent hours and hours on the internet and reading books on IBS and GF cooking and most the time they have NO IDEA what I can and can't eat. So anyways your not alone on that subject!
I've never been so depressed as I have been this last week, when I first went GF it was almost like I was completely cured for the first couple weeks or so and then it slowly started coming all back. Its so hard to get your hopes up so much and then have them wrecked again! However, I just started a new birth control about 2 weeks ago and Im really wondering if its the problem. Who knows! I feel like all my stomach problems are ruining my whole life! Ive really been considering seeing a therapist or asking about anti-depressants...have you tried either of these?
I hope you start feeling better VERY soon and just know that your not the only one whos feeling like this! I dont know what I'd do without these boards!
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Oh Honey, we all know how you are feeling, we have all been there to some extent and we know how it feels.
Casey suggested to me a long time ago that if people question you about not eating something to say that you have a lifethreatening allergy to it..I LOVED this idea, haven't used it yet but if people are REALLY getting to you its one to keep i your back pocket!(or purse if your skirt has no back pocket!)
You are doing the right thing for you, that is the important thing, just remember that. Also remember that while it may hurt when people ask and comment that they are only doing it because they are ignorant or curious, very few actually mean to hurt you.
HUGS and MORE HUGS
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S.
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Oh Ruchie, I know how frustrating it is. I went to MIL's for dinner a week ago and she KNEW what I couldn't eat and what I could and why. She'd made this wonderful fresh salad put the dressing on, told me what was in the dressing which was fine, then after I'd eaten an entire plate which was yummy, I asked for the recipie. She read it out to me and it had sugar in it! And soy sauce! And lime juice! So I said that I wasn't supposed to have those and she says "well, you wouldn't have got much of them and it's just this once, you'll be fine". Yep, came home with a big gurgly belly!
So now if we go over I make my own dinner, put it in to heat up when I get there and sit down to eat with them. I don't say anything and if anyone asks I just say that I'm intolerant to (and point at things on the table) and that they make me very ill if I eat even the tiniest bit. It seems to work. So far I've had some questions about it which I answer, but they've only been questions out of interest. If anyone was mean about it I'd just say "I don't want to make myself sick thank you." and leave it at that. I hope it works out for you Ruchie, try not to stress too much, you'll only make your tummy misbehave. Big hugs and I'll be thinking of you.
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Amy
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sweetheart - I soooo understand. you put it all into words sooo well. people just don't get it. esp the bit where you said you just go home and cry instead of saying 'I'd rather not discuss it' I am SO like that. i don't want to offend people with brushing them off like that...I don't know what to suggest except that maybe for now, till you're strong and can deal with the odd belly unfriendly meal, you should stay a bit away from socialising??
Lots of love and chag purim sameach!
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Feel the fear and do it anyway!
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Oh sweetie!
#163890 - 03/24/05 10:29 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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This sounds AWFUL!  {{{HUGS}}} What a shame we don't live near each other so at least we could get SOME safe socialising!
Now as we know, I'm both a wee bit more stroppy than you and less religious! So I don't often get in that exact situation...these days I either don't care (with people who don't really know me) or get cross (when my Mum forgets about stuff!  ).
What they think does NOT matter. Remember that...make it your mantra if you want!
Saying you're allergic is a good idea...you don't have to "lie" and say it's life-threatening...most people get that image anyway (even though not all allergies are life-threatening!). And if it's an issue, I always like to attack it head on and get my oar in first. Saying something like "I REALLY wish I could join in, but that bread would make me so ILL" would be good...and would probably get you sympathy too! And could you do the washing bit (can you tell I don't understand? ) without the bread? Just so you're not so left out?
{{{HUGS}}} sweetie! Remember we're always here for you...and my inbox is always open!
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Oh Ruchie. It is so hard. I feel badly for you.
I'm so sorry that your diet makes it hard for you to be "normal". We can all relate to that to a certain extent. Hey, some people think I'm a freak because I don't eat meat and very limited dairy products. They ask me if I only eat salads and other dumb stuff like that.
You are following a diet that is making you healthy. Remember that. You CAN'T eat certain things. Can you tell them that you have food restrictions (or food allergies) because of medical reasons? That if you eat certain things you will get very sick!
I find that often it's WAY easier to bring my own food to social events. I used to get invited to Thanksgiving and Christmas meals with my ex's family. While most of them understood what vegetarian food was all about they didn't know anything about ibs and dairy. I didn't want to give them a list of no-no's so I used to bring this organic millet or seitan pie from the health food store. It was a veggie version of meat pie.
Anyhow,can you bring your own food? is there something you can subsitute the bread with? A gluten-free bread, maybe?
You are doing what is best for your body. If anyone has a problem you just tell them to call me and I'll straighten them out. That's what a big sis is for.
Hang in there sweet Ruchie!
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How sad..big hug to make you feel better. I am just beginning to go through this and so far it has not been fun...you have to believe that this site and all the people that post on it are here to help you through anything they can. I just came on yesterday and already have found more strength than I thought possible. Hang in there, keep your head up, and remember you are not alone.
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Misery459: Life is a Highway, live it on a Harley.
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Formerly known as Ruchie
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Myra
#163961 - 03/25/05 07:51 AM
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Your post almost made me cry. Thanks you SO MUCH for your sweet words!
I DID focus on the religious aspect of things. An you know what? I had FUN! I'm not sure how safe the food was  as I am still learning about what is ok and what is not ok. The only thing that might hav had gluten was the soup. (I have to find out if spices are GF or not )
I would have made my own food had there been time. But hubby woke me up SUPER early and I was just exhausted and my fibro was acting up so that wasn't an option. In the future I plan to bring my on grub!
How are YOU doing? Is your IBS stable these days? I hope you feel excellent!
*big hugs* and happy Friday!
Love, Ruchie
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Formerly known as Ruchie
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So great to hear from you!
You're right Christie. But it's hard for me to not care what others think I'm working on it tho...any tips?
poeple do NOt understand food probs! Some pople think you're trying to lose weight...and who knows what else. I had a super talk with the hostess last night and I opened up to her and it was just AMAZING! In fact...she offered to make some things for hubby and I for Shabbos since I overdid it last night with my fibro.
I am beginning to wonder if I was just too anxious? I AM concenred ho that I may have had something with gluten it *sigh* I hope not! In the future I plan to bring my own food.
Christie...you have such courage and spirit. Thank you for sharing this with me! *huge hugs*
Happy Friday!
Love, Ruchie
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Formerly known as Ruchie
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Thanks Misery! And, welcome to the boards Yes, everyone here is QUITE SPECIAL! Seems like you fit right in 
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Formerly known as Ruchie
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Linz...you always know just what to say! Wish I'd read this before I went last night...would have helped with my anxiety!
Your ideas are fantastic! I like the idea of telling them how I wish I could join it but it would make me so sick. SO TRUE!
We wash and then do not say a word until we eat the bread. And folks would notice me not eating it. So no..I couldn't wash without eating. THIS is soooooo hard for me. It is a BIG Mitzva (positive commandment), to eat bread. It hurts me that I cannot do it. BUTTTTTTT G-d created me after all...and it is HIS commandment...so...I guess I'm not SUPPOSED to do it (still embarassing. But I believe in time it WILL get better!)
It's hard enough with IBS. Which I'm not sure I have? (I can eat fruits and veggies...but not a lot of fat, chicken usually makes me sick, NO dairy, not sure about red meat on rare ocdcasion...ot sure I want to find out, etc.), BUT I can't have sugar and so many other things....I was already seperate from everyone. Now with GF I'm even more apart.
GOOD NEWS tho.....if this will make me healthy....that is all that counts! And maybe I'll even be abl;e to get condier prganancy soon
Linz...I just loe ya to death! Thanks for always being here for me *hugs across the way*
Love, Ruchie
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Formerly known as Ruchie
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Amy, you're sooo sweet! *hugs*
I'm sorry about your MIL... I'm afraid of that when I visit my fam as well!
Thank you fro the recipes. With holiday this week..I haven't had much of a chance to read it I had to make baskets for people....lotsa work (but fun!)
Thank you for being so caring towards me....I hope that you are feeling GREAT and that your new diet makes y u all better SOON!
Sending you love, pray rs, and tons of gratitude
With love, Ruchie
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Formerly known as Ruchie
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I SO needed to hear your words! Of COURSE no one wants to hurt me! It just feels like that sometimes....
I feel like a burden. 
I'm soooo fortunate to have you for a friend...to tell me straight how things really ae!
No back pockets for me...but I kept it in my purse, so no worries 
I feel so much better just knowing I am not alone and that sooo many people understnad. And that you guys care so much
Sending love and smooth wedding planning your way!
Love, Ruchie
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Formerly known as Ruchie
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Big Sis
#163974 - 03/25/05 08:27 AM
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It IS hard. But I gues tha's life, right?
having you as a big sis def. makeslife wayyyy better!
ROTFL people think being a vegeterian means you just eat veggies? OH MY!
I'm soo jealous you can buy your food pre-made from the HFS. Between GF and kosher...I have to make everything myself. I hope I get used to it REALLY fast (I'm NOT the most organized person....I have my LD's to help me be disorganized after all it will be a challenge for me to ook everything on my own...but once I get enough practise hopefully it will all come together!)
You go big sis! You tell em! If anyone ever gives me any trouble...watch out! Big Sister is watching!
Thanks a million Tina *big hugs*
Happy Friday....and happy one moe day till MOVING TIME! HAPPY DANCE FOR TINA EVERYONE!!!!!
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Formerly known as Ruchie
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Dalia!
#163975 - 03/25/05 08:30 AM
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Thanks Dals! And I got your e-mail I'll respond Sun. Purim Sameach to you too! May allyour Tefillos be answered. And may we learn how to be assertive without hurting others! Have a wonderful Shabbos
With love, Ruchie
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Formerly known as Ruchie
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I am soooo sorry you have to go through this too
My e-mail is Ruchily@yahoo.com. It would be great to be in touch so we can help each other out
I HAVE been on AD's. But I got off them as I don't like to take medication. Have you tried valerian? Or anything natural? You might want to consider it. I'm still learning the ropes with GF as I was mostly wheat free before avoiding major things like spelt and stuff. Can we have any old tea or does it need to specify GF? Do medications need to be GF? Like if I buy valerian does the botte have to say GF on it? There is just soooo much to learn? how are you figuring out what is ok/not ok?
I definately would like to be in touch with you! I find having someone to go through things with makes a WORD of difference!
Thank you for your heartfelt reply. You WILL gain weight as things get better and you absorb your nutrients properly from what I've read. I am praying for you Abby *big hugs*
Thanks again....your post helped SO MUCH!
Sending you courage and prayers...with love, Ruchie
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Formerly known as Ruchie
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Re: Myra
#163994 - 03/25/05 09:33 AM
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Dia
Reged: 02/04/05
Posts: 175
Loc: Tucson, AZ
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Hi Ruchie,
I'm so glad you ended up going and having fun! You sound so much more cheery today then you did yesterday, so that's great. Let's keep our fingers crossed that what you ate was alright.
I'm doing better today, thanks for asking. I got really stressed/peeved on Monday, and that really sent me for a spin this whole week. I've been trying to stick to "breaking the cycle" foods these last few days and that's helping some.
It's going to be tough this weekend: I'm going skiing with some friends. Yippee! But I have a whole bag just full of food I can eat, and I'll have to think of reasons why I can't eat McD's, but I can eat chocolate-peperment fugde cake. I usually give people the "I'm on a diet" excuse for my odd eating habits, but they might see through that quickly.
We're going to Sunrise Resort in the White Mountains. You probably know where that is. 
Have a great weekend!
--Myra
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IBS-D
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Holidays that are based in tradition are very difficult - and I do not believe it has anything to do with a religous faith. I had a similar situation a couple of weeks ago with St. Patricks day - I did not go to the family gathering because I could not eat the meal (and I did not want to smell the meal and bring my own) and felt incredibly sad that I missed it. It also created a sense of confusion for my nieces as they believe that I am the only person who is Irish in my family (my sisters don't count!)... long story 
Though - much to my suprise - I got a call about Easter dinner which asked - "what can I eat?" so we worked a meal. I know I have to be patient with my family - and it is not always easy - but if they have questions - I will answer them.
This is a life long condition - and I know it was hard for me to know what I could and could not eat when I was first starting out - and I still make mistakes. I know as much as I want to be there - they want me there as well. Am sure your family and friends feel the same way. They will try to accomodate - and they will make mistakes - just like us. But we need to be sure we eat the correct things. Try to go to Purim (it is you they want to see) - and bring something you can eat (yes I know it is a pain)...don't be sad like I was on St. Patricks...
Hang in there..
Anne
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Thank you Ruchie! I feel like I found my place.
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Misery459: Life is a Highway, live it on a Harley.
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Just wanted to encourage you. We all know how tough these gatherings can be and it is just plain easier to say forget it and not go. Even though I certainly take this "out" often, I usually am glad when I go to the trouble to make my own food and partake in the fellowship of friends and family.
Where are you moving to that will be easier?
I hope you will have a wonderful time if you decide to go tonight.
Take care,
Leigh
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Yep, life can be hard. But it always gets better at some point. Don't ever lsoe hop little sis.
Don't get me wrong, I make a lot of my food from scratch. I have a zillion cookbooks and sometimes find a few to make in a week just for added variety.
Hang in there Ruchie!!!
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Sending you great big hugs, Ruchie. Do the best you can. That's all anyone can ask of you (or should ask). I will pray for you. XOXO
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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hey
im sorry to hear about your terrible pain and i wanted to send a *HUG* your way!! i work @ a food restaurant [panera bread] and none of the people i work with understand where and why i stand where i do with my food. im always bringing my little lunchbox with my prearranged "safe" meals. as im also a vegan, i try to explain THAT to them and add in about my digestion and jokingly they kind of make fun of me. i try to laugh it off but deeper it hurts. they dont understand so they make jokes. most times i feel im the odd one out. what do you most commonly eat? i see your gluten intolerant. well heres another *hug* and i hope you feel better ASAP! youre def. NOT alone
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VEGAN ASHLEY~IBS/C
www.myspace.com/dutchflowers
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Darlin'
#164120 - 03/25/05 04:59 PM
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e_mcmaster
Reged: 01/16/05
Posts: 520
Loc: Norman, Oklahoma
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I am so sorry you are feeling so down!
I understand what you are going through. I have the same fears of going out. Last weekend, after Matt and I had been on vacation for a week (and eating out almost every meal), we stopped by my parents house in Dallas on the way home for a few nights. My parents were so excited about our engagement that they insisted on taking us out to dinner, even though I told my Mom in no uncertain terms that I did not want to go out to eat and that Matt and I would cook for everyone. They insisted on taking us out to eat and now, almost a week later, my stomach is finally settling down. The price we pay for politeness...
The best I can suggest to you is to eat before you go and then pick at your food there. Unfortunately, we often come across as rude, but if you could explain that you have severe food allergies, that might help. One thing I've learned is that I would rather come across as picky, anorexic or rude than have a week of pain and bloating from one meal.
Something I think is interesting: As an anorexic, I was terrified of restaurants and anywhere that I would be forced to eat. Not even the fact that people would expect me to eat, but that I might lose control and actually eat. Now, I realize that I am just as terrified of food and restaurants. I wish that I could take a pill rather than eat each day. At home, on a normal basis, I am completely fine and stress-free, and even enjoy my new cooking creations most of the time. But I hate going out to eat because almost anything I eat (even if I special order it and it *should* be safe) is going to make me sick.
But, our lives cannot revolve around our tummies. We have to do everything we possibly can to stabilize them, and if we eat something not safe, we deal with it. I don't think there is anything wrong with bringing your own food. If the only thing you can think of to bring is something like a crustless pumpkin pie made with soymilk (just an example here), tell everyone you've brought a healthy dessert, but don't expect anyone else to eat it :P That way, you look like you're contributing to the meal, but if there isn't anything safe, you can pile some non safe food on your plate and just mix it around and only eat your safe dessert.
(((Hugs))) We're here for you!
Love, Elizabeth
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Elizabeth
all those years it wasn't IBS - it was celiac!
send me an email: liz@dopple.net
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I'm so sorry that you are going through this. That sounds like a terrible situation and I know how hard it is to be in the position where everyone else is eating something that you can't have. It's hard because it's not like I even WANT to eat whatever it is, I just don't want to feel weird because I'm not eating the same thing as everyone else. It's hard in college because everyone just eats all sorts of junk.
I do think the reactions you are describing seem insensitive. You don't need them prying into your private personal problems and their questions are unnecessarily painful. I agree that I always want to eat at home rather than go out since it is so difficult to go to other people's homes or even restaurants. And the consequences of eating something wrong are really not worth it...I hope that you can move somewhere with more supportive and understanding people in the community. Sending you hugs and support!
BTW yesterday I went to a fibromyalgia support group as part of my Psychology of Health and Medicine class and it was really interesting. I didn't know much about it, and now I understand how debilitating and encompassing it can be I feel for you having to suffer with that AND IBS AND this gluten thing. It's a LOT to deal with and I understand how difficult it must be; I think you are doing a great job even though right now you're going through a tough spot. Best wishes
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~Angela
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Hi Ruchie!!!
Just saw this today Don't think I'd have much to add to what everyone else has already said, so I'm sending you hugs, encouragement and good wishes. You KNOW we've all been there. Personally, this is the hardest part of IBS for me (plus you've got other dietary restrictions). Yes the pain and all that is horrible sometimes, but if I could just sit in my apartment all day and make all my own food and never go out and just deal with it, it wouldn't be so bad! OK that would be a terrible life... I actually just made up a phony excuse yesterday to turn down an invitation to dinner at the residence of the PRINCIPAL OF MY UNIVERSITY - because I didn't want to have to deal with the food issues. Sigh.
So yes, we ALL understand! Hang in there! And if you decide(d) to go hope you had a great time! Giant hugs
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Poor hun! Remember IBS is a disease (of sorts) and everyone should think of it that way. I mean no one would tell a diabetic to eat this caramel I made just this time! So don't be embarrassed. I know it is tough, but we all need to stay focused and be a little self-centered and snotty about OUR health problems!
Can't the bread be made with non-wheat flour? I heard last night that it could- technically.
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IBS-A for 20 years with terrible bloating and gas. On the diet since April 2004. Remember this from Heather's information pages:
"You absolutely must eat insoluble fiber foods, and as much as safely possible, but within the IBS dietary guidelines. Treat insoluble fiber foods with suitable caution, and you'll be able to enjoy a wide variety of them, in very healthy quantities, without problem." Please eat IF foods!
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Thanks LM! Actually...in order to wash on the bread it has to have wheat flour in it.
I made myself some GF bread tonight!!!!!! It is actually VERY GOOD! And when I spoke to one of the girls in the community we are looking into...I told her what I can/can't eat for when we visit! She DID ask how I survive this way...and I told her I'm still figuring it out. But she was SO SUPPORTIVE! Ok...so I was def. embarased....BUT this is what I have to do to be healthy. So be it. At least there' something I can do, right?!?!
Thanks again *big hugs*
P.S. I loe your line about being snobby about health. Can I borow it
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Formerly known as Ruchie
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We shouldn't have to cancel plans because of our dietary needs! *sigh* With gluen probs....it can actually cause damage to our bods even more so than just an attack (not fun either)!
Anyhow...thanks for this....you really helped
Love, Ruchie
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Formerly known as Ruchie
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Btw...in additoin to fibro it looks like I might have hypothyroidism AND hypoglycemia...a whole host of things. They are quite connected....but I'm sure you already knew that!
You also eat GF right? How is that going for you/ Have you been able to gain any weight? I hope that is working out GREAT for you!
Fibro is YUCK! But I see ery clearly that tkaing care of myself is CRUCIAL and I find that if I don't take care properly I suffer the consequences. Diet, sleep, movement, etc....my lifestyle I guess you would call it...are absolutely pertinent to my well being.
Sorry for rambling I forgot what I was saying???
Point is: Thanks for being here...and if I can ever return the favor I'm THERE! *hugs*
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Formerly known as Ruchie
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Elizabeth!
Thank you SO MUCH!
*hugs*
We went out this weekend Fri night and Sat lunch for Shabbos. I ate meat thinking it would be okay so I could be with people. I THREW UP THE MEAT last night Lesson LEARNED!
If being with people means getting sick....why do it?
Fri. night I brought my own food so it was ok.
in the future I will ALWAYS need to bring my own food.
I think I had more to sya but I can't remember right now...having bad hiccups
Anyhow...thank you again *big hugs*
With love, Ruchie
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Formerly known as Ruchie
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Im not so sure what I can/can't eat yet. Ae you GF? Is that why you're wondering what I eat? If so...I'l ty to compile a list for you.
oy...i have horrib;e huccups...I think I'd better just go to bed Please forgive me!
With love, Ruchie
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Formerly known as Ruchie
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I can definitely sympathise.. I have this issue on a regular basis.. my havurah's potlucks are dairy.... so I can eat what I bring and SOMETIMES something else if I know for certain.. no matter how many people know of my food issues... I know I will be able to eat the meat at seder and that may be it (they are serving a turkey) and whatever dish I bring!.....
normally I'd switch to me hosting, but with the house on the market that isn't reasonable either.. I had originally planned on hosting this year, but since the house hasn't sold I have to say yes to Sally and Joel!
Although I just say I have food allergies and let the hostess know I will bring something... and work it into her meal. that way there is at least one item I can eat no matter what!
Amie in MI
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Ruchie, I wish I wasn't a world away so I could give you big *hugs* in person.
I often wish our lives weren't so centered around food, as food is the heart of so many evils - eating disorders, food allergies, food intolerances, food triggered diseases, anorexia, obesity.... stress, anxiety, depression, IBS!.... the list goes on.
I wish you weren't finding your dinners so hard. I like kyrchiats (?) suggestion about telling people we have food allergies, even though its not technically true, allergies are so much better understood and accepted then food intolerances.
So if I had one wish, it would be that our bodies and our minds could heal, so that we may enjoy all the foods we love most, and enjoy the company of good friends and family.
I hate to see such special people so sad.
I'm here for you if ever you need to chat
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~ Live life, don't let life live you ~
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Aw, you poor thing! Throwing up sucks!
I brought my own food for Easter brunch yesterday and felt bad about it, but at least it was safe, ya know?
Just keep a bunch of portable coolers around the house and you can always pack safe food to take anywhere, anytime!
Love, Elizabeth
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Elizabeth
all those years it wasn't IBS - it was celiac!
send me an email: liz@dopple.net
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That's so great! What did you bring?
i love the cooler idea! I also put things in sandwhich baggies and bring them along. This morning we went to the car place so I brought half a banana, half a pear, a rice cake, and 2 small pieces GF bread!
I hope you have a terrific tummy day *hugs*
Love, Ruchie
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Formerly known as Ruchie
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How about Charoset? I would think you could have those...but I don't know what you can/can't tolerate?
I hope you have a wonderful Pesach Sameach! *hugs*
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Formerly known as Ruchie
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(((((((((((Chrissy)))))))))))))
Thank you SO MUCH!
It's getting better every day.
As long as we have our health, I am learning, the rest is unimportant. I am jut praying going GF with make me TRULY healthy for the 1st time in my life...and I have a feeling it will
Have you read danna Korn's book Wheat Free, Worry Free? It is helping me TREMENDOUSLY! I have such a better outlook from her book....
Anyway...I hope YOU are doing well. We will get through this TOGETHER! Power in #'s
Sending you love and strength to be GF!
Love, Ruchie
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Formerly known as Ruchie
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Thanks Ruchie!
#164853 - 03/28/05 11:38 PM
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Angie113
Reged: 12/31/04
Posts: 297
Loc: Alternate b/w Northern and Southern California
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I'm happy to be there for you! I hope things are looking better for you. I don't eat totally gluten free, but I don't eat wheat. I have made quite a few gluten free breads, though, because my dad and I like to experiment with them (he eats GF to stay thin and have low cholesterol basically), so if you have questions about it, just ask and maybe I can help. It's great that you made GF bread for the first time!! This weekend, I was home and we made Heather's Cinnamon Zucchini bread with Bob's Red Mill All Purpose GF Flour and it was SO yummy!!
I don't think I've gained weight yet I have been trying to eat lots of carbs frequently in little portions and I do think I have been able to get in more calories. I'm seeing a dietician next week, so hopefully that will help. Thanks for the hugs!! Talk to you soon.
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~Angela
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I can have matzah (and btw- there is oat matza that is gluten free apparently- mom and her friends who are celiac use it).. and I hope I can have haroset- haven't tried it yet but I am planning on making a ton!
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Yippee!
#164906 - 03/29/05 07:37 AM
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I'm so jealous I actually love Matzoh LOL
You just gave me an idea: make my own Charoset! Any idea how to do it without a processor?!?!
i hope you have a WONDERFUL Pesach! Btw, how are you feeling *hugs*
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Formerly known as Ruchie
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Wow...that's so neat! i am going to HAVE to make GF muffins this weekend if at al possible. Esp. since hubby and I go away next Tues for a whole wek job hunting/apartment hunting where we hope to move in a month and a half So send any recipes that I can take on the trip my way please! I need stuff for the plane, stuff for eating at mom and dad's, and in the community!!!
I am soooo gladyou're going to see a dietician! Please let us know how it goes. It takes time to gain/lose weight! But you're a fightwer and I know you're doing great! *hugs* Have you/your dad been tested for celiac? how did you decide to go GF (mostly)?
I hope you find your path to wellness SOON (looks like you're already there!) *big hugs*
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Formerly known as Ruchie
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Ruchie!!
#165000 - 03/29/05 11:17 AM
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Computr821
Reged: 12/02/04
Posts: 445
Loc: University of Pennsylvania, Philadelphia, PA/ Baltimore, MD
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I saw this before Purim, but I just goot the opportunity now to sit down and write a response. I hope by now you're feeling somewhat better. I would give hugs, but there are a few problems there so we'll have to have someone else do it.
The way I see it, the move should help a lot. You're going to a place where hopefully, poeple will be better attuned to your problems. Not knowing exactly WHERE you're going, I can't offer any specific advice as to the community, but I'm confident that you know what you are doing.
A good idea, as a general practice, is to tell people that invite you over what you can and cannot eat as early as you can following the invitation; heck, even when they GIVE the invitation. When people invite me for stuff here, I tell them that I am more than willing to accept, but "I can't eat red meat." And I personally try just to leave it at that instead of running through everything because I'm at meals of 20+ college students, and to make the whole meal IBS safe isn't practical.
But for you, where 1) You're a LOT more mature than college kids (I hope) and 2) It's a smaller group, it's probably not too hard to work out with the hosts what you can and can't eat. In general, people won't inquire too much if you say it's a medical issue, and even if they do, I rely on the good ol' "intestinal disorder." It's usually enough for people to realize that it's serious but...er..."gross" enough that they stop asking questions And if you then don't wash or drink wine, they usually can figure out on their own that you have a heter.
And you already identified your other issue, which is that you need to be more assertive. But you already know that.
Good luck preparing for Pesach.
Avidan
PS: My father finally gave me a heter to eat gebruchts!
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Why'd you have to go and make me so constipated?
--'Weird' Al Yankovic, "A Complicated Song"
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Ruchie, glad to hear you're feeling a bit better today. Thanx for your post in the recipe board, I thought I'd better reply in here or I'd get in trouble for misposting!
Well I had a pretty traumatic childhood, and I've always had self image problems, so its not surprising that I have some sort of eating disorder. I've never been anorexic as I love my food too much! But I have had binge eating problems the past few years, and did also when I was younger - I'd starve myself for a few days, then eat and eat and eat cos I'd be so hungry, and feel so crook because of it that I'd starve myself again, etc etc etc. Such a vicious circle.
I didn't mention ADs because I used to take them for depression, and I found they were useless. I only became more depressed because I was focussing on my problem 24/7. But I am worried that I am depressed at the moment, I have no energy and I used to have such determination for improving my health that I would stick strictly to my GF/ IBS diet. These days I don't have the willpower so I'm constantly cheating and feeling even more depressed because of it. I have yet another docs appointment on monday because I feel so sick today, I've had headaches, blurry vision/ poor concentration, fatigue, nausea, back aches and chronic bloat for months now. I've decided to bite the bullet and order a complete examination, I can't go on feeling like this anymore, there's got to be more to it then just IBS and gluten intolerance.
Sigh, sorry for whinging, but I feel so sick today
Anyway, Beth, welcome to our GF IBS club!! Its great to have such warm support from other GFers. Somedays I wish there was no such thing as food!! Ruch, I haven't read Danna Korn's book, but I do have one from the coelaic society that is very interesting.
Talk to you all soon xxxxxxx
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~ Live life, don't let life live you ~
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GF breads etc
#165132 - 03/29/05 09:10 PM
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Angie113
Reged: 12/31/04
Posts: 297
Loc: Alternate b/w Northern and Southern California
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I think you can make almost any recipe GF if you can get a GF All-Purpose Flour and xanthan gum (or guar gum i think?) use like 1 tsp for each cup of flour (I think that's right someone else, like the GF goddess Kandee , correct me if i'm wrong). Do you have the Eating for IBS book? I have made the Cinnamon Zucchini and Brown Sugar Banana Bread and they came out great! We also have Bette Hagman's GF Gourmet book, but her recipes are rather complex and you need to use lots of subs for dairy and stuff...Actually, I think Heather's recipes worked better since they are already adapted for dairy free. We also made this yummy GF cornbread from the IBS recipe index: GF cornbread
I have been tested for celiac, and, although I have a minor reaction to wheat, I don't have any of the big antibodies so I'm not celiac. I eat a fair amount of gluten, and mainly just bake the breads GF since my dad wanted to eliminate it. Plus, I have found more GF baking books and info than just wheat free, although wheat free would be easier. I can also buy wheat free breads at Whole Foods. My dad has never been tested or anything, he's not sick at all. He is just health obsessed (lucky for me!!) and eats no dairy or gluten to keep his cholesterol low.
I had my appointment yesterday, but the woman I went to at my school is actually not a nutritionist, so she referred me to the one who works there. So now I have to wait til next week Oh well. I think it will help too, thanks a lot for asking!! I will keep you posted! Let me know if you do any GF baking!!
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~Angela
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Taylahmai
#165138 - 03/29/05 09:48 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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I know this has come up before, but I can't remember/find your answer...have you considered Fibro? All those symptoms you describe are typical of Fibro (well bloating's typical of IBS which is typical of fibro) - as are sensitivities to all kinds of stimuli!
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Linz
#165152 - 03/29/05 10:18 PM
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Taylahmai
Reged: 11/03/04
Posts: 257
Loc: Western Australia
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Hi Linz, yep I have considered fibro thanx to your info last week, and am going to discuss that as well as the possibility of hypothyroid when I see my doctor on Monday. I can just feel it in my bones that my problems are more then just IBS related. Actually, could you please clarify something for me? Is fibro the same as chronic fatigue, or is chronic fatigue just a symptom of fibro? So many conditions to understand, I think I'll need to quit work and become a full time researcher!
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~ Live life, don't let life live you ~
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Re: Linz
#165153 - 03/29/05 10:21 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Chronic fatigue syndrome is a different illness to fibromyaglia syndrome, but how they tell the differene I do NOT know! I guess maybe CFS has different "extras"?
And yes, chronic fatigue is a symptom of fibro...but everyone varies. Atm I'm not doing great, but sometimes I just need to get 9 hours in bed a night to feel ok.
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Hey Ruchie, I havent been online much this week so I never got to reply to your post. Im not exactly sure on all your questions but I'll try! For the tea, I would guess that most of them are gluten free because usually they are just 100% leaves =) Medicine definitely needs to be gluten free, Celiac.com has a list of both prescription and store bought medicine that I have found pretty helpful. If its not on that list then I call whoever makes the med. I tried to use the pharmacy for help (several of them) yesterday and they were sooooo clueless about the whole celiac/gluten thing. They had no clue what it was and thought as long as it didnt say "gluten" in the ingredients that it was fine! But anyways the bottle almost never says gluten free on it so either check the list or call the maker.
There is so much to learn about all this stuff and I definitely am not even close to knowing it all but Ive gotten most of my help off the internet. Its the first thing I do when I wake up - get online and search for sites on celiac and gluten free food or check the message boards for any new questions about it. I also have bought a few books but I mostly use them for cooking. Well I hope you and the rest of us start feeling better VERY soon!
- Stacey
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Re: Abby 82
#165217 - 03/30/05 08:25 AM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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Which meds are you on? I went to celiac.com and could not find the link to check for meds that are GF. The only thing I saw related to meds costs money to download the site!
Did you find another link on that sight to look up meds?
Thanks.
PS, Did you get my email?
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Thanks Avidan My husband gave me the hugs on your behalf
It's tough! Having IBS AND being gluten free...I am learning I will just have to eat before I go somewhere (except on Shabbos I can't do that because of Kiddush....hmm...any ideas there?)
Unfortunately...some "adults" are not very mature and do not know how to deal with people being different. They don't understand why I can't have this or that.
BUT apparently this is my Nisayon from Hashem! And I can see clearly He wants me to learn to be assertive AND to be Dan Lechafzchus (sp) and if someone doesn't know how to repsond to me I should recognize their pain and have mpassion for THEM! They are NOT trying to hurt me...they just don't know how to deal with the situation and so they say/do things that they "shouldn't". So...I need to have a LOT o Emunah and Bitachon (pray for me, ok? Shaina Ricklah Bas Ita Chana). It's not easy...BUT I know it's for the good (Gam Zu L'Tova!!!!!)
How are YOU doing? I'm sooo glad your dad gaveyou a Heter for Gebruchts! that 's wonderful news! Now I need a heter from my Rav to eat Oat matzah on Pesach WITHOUT the official celiac diagnois. Any suggestions?
How was your Purim? I hope that all your Tefillos are answered SOON! How's school, etc....
I hope you begin feeling better very soon...refuah shleimah!
Take care!
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Formerly known as Ruchie
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I didn't know your name was Stacey...and I love the way you spell it. VERY pretty!
At least my vitamins (well, some of thm) say GF. So that's a start.
I'm about to go away for a week and I need to bring my own food. Any recipes you have to share are more than welcome! I'm quite nervous about the whole thing...and I'm trying to use my nervous energy to be prepared instead of useless worrying
How are you handling all of this? Are you feeling any better about things? How is your weight (if you don't mind my asking...if you do...ignore me or tell me to hush!)
I hope you are seeing results and feeling WAY better! You deserve to be happy AND healthy (don't we all!)
Thanks for the repsonse....
*hugs* Ruchie
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Formerly known as Ruchie
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Chrissy
#165224 - 03/30/05 08:46 AM
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How I wish I could talk to you on the phone!
((((((((((((((Chrissy))))))))))))ou do?
You have reason to feel down. To be listless and depressed. Food is your comfort and you can't use it anymore. Now what do you do?
You may find OA helpful.
OR you may try somethings...like...
Writing down what you eat. don't monitor it. The 1st week eat whatever you like whenver. This will give you a picture of what you're consuming and it may help you put a stop to it.
Btw...I also had a traumatic time as a kid--early adult. Feel free to e-mail me....
You are NOT alone!
Can you go outside? Get yourself a treat?
hv you ever tried nything natural for the depressive symptoms? have you ever had your adrenals tested? Is it possible your seratonin levls are off?
PLEASE know you are not alone...I have been where you are. Ifyou CAN move around. Put on some favortie music and dance. I know if I don't exercise I get VERY depressed. Something in the endorphins....
I just want you to know you are NOT alone...and you CAN beat this (I kno...I'm on my way to beating it as I type).
*big hugs* Chrissy....don't give up...we all love you!
With love and hope, Ruchie
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Formerly known as Ruchie
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chronic fatigue means your #1 symptom is fatigue with the secondary symptom being pain...fibro is pain being 1st fatigu 2nd (read this in a fibro book).
Chrissy...if you think it's something more than IBS...you're prob right. But please consider this: Gluten intolerance CAN cause these symptoms as well. If you take the gluten out FOR GOOD you might find yourself feeling better from that alone.
Trust yourself! We know our bodies/experiences better than ANYONE! Do NOT settle for anything less than having every test and topic covered with the doc!
*big hugs*
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Formerly known as Ruchie
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How do you get diagnosed with Fibro? Can a regular general practioner do this or does it need to be a rhumatologist? (sp?) I know they have pressure points to touch, right? Is that the only way to get diagnosed? Can a regular doc do this? How did you others get diagnosed?
I have so many of the classic symptoms. I swear everytime I read the symptoms, I can identify with so many of them! I don't have the sensitivity to touch, though, or the migraines, so those two factors keep me from confirming this diagnosis. But the other ones are mo What is the treatment? Drugs? I hate drugs! Would an endocrinologist be able to diagnose this? I can't keep my docs straight! How about a GI doc or an OB/Gynie? I just ask that because currently that's all the docs I have! I would probably need to get referal from a GP in order to get in to see a rhumitologist.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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I had a pretty bad childhood myself. And I suffered from anorexia for years and a bit of bulimia. I have pretty bad self esteem now as well. I know there have been studies linking abuse and development of both IBS and eating disorders.
Ruchie, what natural products do you take for depression and/or anxiety? Just the valerian? I take lexapro and klonopin and valerian. I'm not sure if the drugs help me or not. But I do know I'm afraid to go off of them for fear of things getting even worse. I know that AD are recommended for people with severe IBS even when not depressed. Since I have both, I think I am best to probably stay on them for a while. Just wish they would help with the pain, which I thought they were suppose to do, as people with only IBS and not with depression are prescribed AD's for help with the IBS alone.
Chrissy, is this a new doctor you are seeing? Is he/she a GI specialist or a general practitioner? Are you giving up on your naturopath/allergist whom you have trusted and relied on? Isn't his diet working for you?
Take care!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Ruchie
#165256 - 03/30/05 10:18 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Although I've read that definition before, I've also learnt that it's not that clear cut. A fibro patient can have the major symptom of fatigue and a cfs patient can have lots of pain!
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Talk to your GP first...some are knowledgeable enough to diagnose on their own, some feel that another doc could do it better....rheumatologist, physologist, pain management consultant, whatever.
The sensitivities can be to anything...I didn't develop the one to touch for a while and even now it's only sometimes. Migraines aren't neccessary either.
Treatment is mainly symptomatic...as they don't know what causes it they can't treat the cause! A-d's are the nearest thing to a treatment for the cause there is. Painkillers are used for pain, supplements are useful and seadtives and stimulants can be used. Alternative therapies like acupuncture, TENS and massage can help.
At the end of the day, all the treatment is just geared towards sufficiently managing your symptoms so you can live a life. The most useful thing I've found is getting the diagnosis and then learning LOTS.
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I did NOT mean to say that a fibro patient will not have TONS of fatigue...that was one of my telling symptoms! I was giving the defintion I had read in a medical book. I hope I didn't confuse anyone And if you have fibro you can be EXHAUSTED and if you have CF you can have LOTs of PAIN....
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Formerly known as Ruchie
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Beth...I do not take anything for mood except 5HTP. You can't take St. John's Wort if you want to get pregnant and since I hope to one day in the not too distant future I do not want to start something I will have to go off in the next year or two.
Plus my naturopath and I are on a mision to find out WHY I am depressed. For me...there is something chemical there, most likely hypothyroidism, celiac, and possibly hypoglycemia and adrenal issues. We don't want to treat the dperession until we know the casue. Plus I gotta say...going GF seems to be helping (little by little...day by day)...so that might be the answer right there!
You're doing GREAT Beth! Coming to the boards and posting...I know that one day you will know what ails you and you will find relief. keep learning about things and asking questions...you're doing all the right things!
with love, Ruchie
P.S. Please make sure you can take valerian WITH klonopin. It sounds like a bit much. Did a doc ok this? For pain...feverfew is good. But again...please make sure it will not interact poorly with the other things you take.
Another thing that's grat for pain in peppermint oil. Put some on a cold wash cloth (follow the directions on the bottle) and place it where you feel pain.
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Formerly known as Ruchie
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Hey Beth! Since I have been struggling so much with the anxiety, my doc recommended Rescue Remedy (made w/ flowers and alcohol, but u only take a few drops) and Calms Forte. The Calms Forte is homeopathic, but it actually has a small amount of lactose so I am scared to try it!! The Rescue Remedy doesn't seem to help THAT much, but I am still testing it. I cannot tolerate valerian at all. it makes me feel dizzy and weird. In my Prescriptions for Natural Healing book, it recommends lemon balm, willow bark, and Liquid Kyolic (I think this is a garlic supplement, which may not be good for IBS), but I haven't tried these. I think what I really need is more intense therapy, but this can certainly help in the short term.
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~Angela
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Hi Beth,
I am still seeing my allergist, however despite the diet he has me on, I've been noticing lots of new symptoms - back and shoulder aches, fatigue, depression, poor concentration and blurred/ hazy vision (hard to explain.. its not like I need glasses, its like I'm reading something or looking at someone and I just can't seem to be able to focus and process information... I don't know, strange).
So based on these new symptoms I've decided I need to get checked out for non IBS problems (all my testing to date has been digestion related). It may well be just gluten as Ruchie suggested, but I don't want to make assumptions with my health. So I'm not seeing a GI, I'm seeing my regular doctor, who was very good last time I saw her, and hopefully will take me seriously again this time. I'm worried she'll 'pooh pooh' me when I ask whether I can be tested for fibro and hypothyroid........ so I'm thinking I'll give her my symptoms first and see what she thinks. I hate going to doctors sounding like a know it all, they never take me seriously.
Anyway, appointment is on Monday. Will let you know what happens. Plus did you see Kandee's wonderful article in Heathers newsletter? She's such a gem. After reading her article I've decided to get my gliadin levels retested as I had them tested after being strictly GF for 6 weeks so the tests may have been inaccurate. I still can't understand how someone can be gluten intolerant without being coeliac I'm so confused
Take care xxxx
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~ Live life, don't let life live you ~
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Ruchie! Thanx for your post. How wonderful it would be if we weren't worlds apart! Nevermind, the beauty of the internet means we can still be close yet so far. I can feel your big hugs
Well the overeating seems to only happen in stressful food situations, so I've decided to avoid those until I'm on top of things. Lucky for me I go walking every morning along the beach with my two gorgeous puppie dogs. And I get out and about quite a lot, so I'm not cooped up and depressed, I've just got a constant depressive feeling that lurks behind me every step of the way. I'm not chronically depressed by any means, I'm just not very happy. I've always suffered depression, albeit usually very mild, but I have my stages where it affects me quite badly, like now. I've never had my seratonin levels tested. Perhaps another test for Monday!
I would like to email you, just to chat and share stories, and some GF recipes! That would be nice
Hope you're well. I feel much better today (felt so sick yesterday, it was horrible) but the bloat is still striking with a vengence, and now to join the party is the dreaded C. Sigh......... nevermind, I'm dressed in my fushia pink sweater today, so that's enough to brighten anyones mood
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~ Live life, don't let life live you ~
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Thanks Angie! But if the Rescue Remedy has alcohol in it, I don't think it would be considered GF. Since alcohol is usually a grain.
I think there may be some controversy on this issue though. I thought I read that it may be okay???
I wonder if Kandee knows.
I wouldn't try the other one because of the dairy. I don't want any extra anxiety over worrying if the dairy was going to be a trigger! 
I would rather take something natural besides the klonopin though.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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I just don't see an end to this pain, or any answers for me. I keep trying and researching, but all I get is confused and the unbarably pain continues.
My doctor does not know I take valerian with the klonopin. I just figured it would be safe.
Also, where do you get peppermint oil from? I will ask my psych about the feverfew and the valerian at my next appointment. Thanks for mentioning this!
PS. Do you know if a supplement contains alcohol if that is GF safe for me. The one Angie posted about further up in the thread?
Love to you, sweetie!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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She's a very wise and special lady. We are lucky to have her on the boards. Wish she wasn't so busy so we could have her all to ourselves, but I guess she must work and have a life too! Unlike me, who has no life! I would love some more of her recipes!!
I think that is a good way to approach your doc. They do get offended when you tell them what to do, even though I think we usually know more than them about what should be tested for! I know I am the one who insisted I get a celiac test, and low and behold the antibodies came back postive! Otherwise, the doc never would have done this test on his own.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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...is in a grape alcohol solution...ie. some kind of fortified wine, so no grains! My DH's been trying it as has our puppy and my Mum loves it...tho she sometimes says she feels she needs to glug the whole bottle back!
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Beth
#165580 - 03/31/05 01:29 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Tell your doc about the VAlerian asap...herbs can interfere with all kinds of meds!
I just replied about the Rescue Remedy.
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As you can see here most alcohol is considered GF and ok no matter what the sourse. It's beer that you should avoid because of the barley..that is unless you want to spend a huge $ on specialized GF beer. Kandee
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that was so sweet of you to say.
Beth, I couldn't agree with you MORE...
I'm so glad you insisted on the Celiac blood test from your doc. The truth of the matter is that many docs don't know as much as we do..they don't have the time. If ANY doc regects a request of yours for a simple blood test, I say fire them!! (I have!)
Kandee
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sound so thyroid related (having been there...and yes with thyroid induced depression as well). If it runs in your family, you have a good chance of having it as well, just like gluten intolerance. Although I certainly embrace alt medicine wholeheartedly there are somethings better left to Western medicine testing devises. The Barne's Basal Metabolism test if fine for indicating you have a problem but it won't give you the numbers you need to treat thyroid disease appropriately once you have it. Kandee
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I'm a tee-totaller but love the taste of rescue remedy!! And it calms you right down if you're having panic attacks!
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We ate at the Synagogue and I had fasted so I was starving, and while everyone feasted on burgers and hamantashen I was stuck with my pot of apple sauce and ADB. (And silly me I had only bought one cup of apple sauce and one ADB thinking that would be enough for the evening.
I hosted the Purim meal on Friday so I made chicken for myself but even still it was HARD to watche everyone else gorging on my DH's gourmet meatballs. Plus, because I have small kids we got ALOT of Shalach Manot with ALOT of junk food. eventually I could not resist the Hamentashen and... yes I was quite nauceous as a result.
My bigger fear is Pesach. I have NO idea what to do about that since bread has always been my backup food.
Chany 
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It's made with nuts apples and wine. I guess if you peel the apples and use safe nuts and well the wine... I guess a little charoset couldn't hurt. I mean if you spread it on Matzo it should be OK. I'm more worried about the romain lettuce, which we use for Karpas and The Marror - which can't be a good thing? Can it?
Of course I can't remember ever getting sick at or after the Seder, so maybe Hashem has been watching over me.
Anyway I totaly Love charoset and I also plan on making a ton of it.
Happy Preperations!
Chany
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Hi Chani,
Thanks! *hugs*
I'm sorr Purim was such a disaster My Rav told me never to fast except Tisha B'aav and Yom Kippur. (I stay home and sleep as much as possible...and say Tehillim).
Pesach. Find out if you can eat rice. Tell your Rav what is going on.
Can you have Matzah? Believe it or not...it's GREAT for IBS! So if you can have it...you should be ok.
I'll keep thinking for you...
Btw, how many kids o you have/hold old? PRECIOUS!
Pesach Sameach t you and your mishpacha
Love, Ruchie
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Formerly known as Ruchie
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PLEASE be careful with mixing supplements with meds. Do NOT figure it is safe because it is herbal! PLEASE call right away and do NOT wait! This could make things worse for you...I say this only because I care...
Peppermint oil...any HFS.
I think someone else already answered the alcohol question?
You CAN have my optimim...and you WILL. TRUST yourself....you have a good head on your shoulders. You're doing great!
Keep well, *hugs*
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Formerly known as Ruchie
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I sympathize too. I got a decent amount of shalach manot from my friends but I can hardly eat it
As for food, I started a Passover thread in the Recipes section. Check it out for some stuff. And yeah, matzah is great; it's just flour and water!
Good luck with everything
Avidan
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Why'd you have to go and make me so constipated?
--'Weird' Al Yankovic, "A Complicated Song"
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If you use romaine, it's just lettuce, right? So it goes under IF. I think it would be OK. But my family uses freshly ground horseradish, and I have NO idea if that's good or not. Anyone?
Avidan
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Why'd you have to go and make me so constipated?
--'Weird' Al Yankovic, "A Complicated Song"
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Oh no! I spelled your name wrong in my last post. Sorry ChanY
I LOVE that name! What does Chany mean?
I FORGOT Charoses has nuts For me it is the sugar that will be a problem.....
I encourage you to speak to a Rav! I spoke to mine. He told me I can drink AND eat between the cups of wine! I plan to.Still figuring it all out (gluten free IBS, etc...tough stuf!) but I'm going to work with him until we figure it out!
I have t find out about rice. If I could eat rice it would help me tremendously...however...I'm not sure about eatin at someone's Seder?!?!?!
Hatzlacha Rabba to us all...we should all be Matzliach in having a pain-free Seder where we are close to Hashem...next year in Yerushalayim...ok, THIS YEAR!
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Formerly known as Ruchie
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and what your triggers are! Only you know what you can/can't tolerate. I would think it would be unsafe in general for IBS tho.....
Can you have rice on Pesach? Did your dad the Rav give yo a heter for that or just Gebruchts?
I just keep telling myself it will be okay....deep breaths!
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Formerly known as Ruchie
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Easy for you to say...you can EAT IT!
I didn't touch our Shaloch Manos. NOT A THING I could eat! Can you imagine?
No sugar or wheat or gluten... (in addition to no dairy, no red meat, no chicken....no cucumbers even)
*sigh*
BUT i am enjoying the GF life! Yummy breads...lots of fruit and veggies B"H I can eat many of them ok, and fish on occasion.
what can I say...it no easy Nisayon...but I'm trying!
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Formerly known as Ruchie
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No, I didn't ask about rice, because I already know he won't allow it. Matzah will be my new best friend. In Israel last year, as I was schlepping around the country for Pesach, I was carrying a rapidly dwindling box of matzah that started at 1 kilo.
Oh, and I'm working on a more detailed response to YOUR response up above.
Avidan
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Why'd you have to go and make me so constipated?
--'Weird' Al Yankovic, "A Complicated Song"
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It totally slipped my mind that GFs can't do wheat flour. Argh. And considering I'm writing a paper (the one I interviewed you for) about sensitivity to medical conditions, I am coming THIS close to being hypocritical. Sorry!
Avidan
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Why'd you have to go and make me so constipated?
--'Weird' Al Yankovic, "A Complicated Song"
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I had a bit of a panick attack about Pesach before but Amie clamed me down. I can eat Matzah so I think I'll be OK. I can't eat rice anyway because it makes me C.
BTW - I saw that you put your Hebrew name on that post. Should I add you to my tehilim list? I feel so bad that you're having such a hard time. Are you OK? I am worried about you? How are you feeling?
If you can't have Matzah what will you eat? Have you spoken to your Rav about it? I don't know too much about GF diets can you eat chicken? Cooked Veggies? Are potatoes OK?
What do you usually eat?
I hope you feel better soon.
B'H I'm not so bad off. My IBS is pretty much under control and I try to stick to Heather's diet as much as I can. I bring my own little goodie bag to Shul on Shabbat so I can have something to eat at kiddush and all my friends know about my IBS and they are VERY helpful.
B'H I have a great support group between my friends and family. I have three adorable children. Kenaineharah. My oldest is about to celebrate her Bas Mitzvah. I have a 7 year old son and a 5 year old daughter. They also are constantly monitering what goes into my mouth.
Purim wasn't THAT bad. I know I sounded like I was kvetching (and I was)but for the most part it was fun. The food related parts were VERY hard but Megillah reading was amazing, We had a Bar Mitzvah boy in the Shul and he read the entire Megillah. My DH has a great sense of humor. He made sure our Seudah was alot of fun. Our Rabbi tried to control the Haman noise with this sign that said "noise". The plan was that when he held it up we could boo, pound shake or whatever with all our might but when he put the sign face down we had to stop... well after Megillah reading my DH stole the sign and bought it to our house... when the Rabbi came to the Seudah he held it up and all the guests... well... I guess it doesn't sound as funny written down but trust me it was hysterical.
I'm OK fasting as long as I prepare myself well the day before with carbo loading and (OK I know this sounds bad) drinking power aid. So I didn't get sick on Taanis Esther, just VERY hungry, tired a cranky ... but that isn't IBS that's just the way everyone is after a fast. (Yom Kippor and Tisha Ba'av are hard because I can't wake up early and eat before the fast begins.)
Here's a good night hug. Refuah Shelaima.
Love,
Chany
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Hi Avidan,
Thanks for the post. I'm not as panicky about Pesach now as I was an hour ago. I was just having my usual pre pesach panick attack that I always have when I begin my Peasch cleaning.
How's college life? Have you been able to turn your kitchen over to meat yet?
Most of my Shalach manot was devoured by my kids but a few things found thier way into my digestive system (the temptation was just too great.)
I have some good Pesach recipes too. When I open my Pesach closet I'll try to add a few to your post.
Have a good night.
Chany
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I understand why you don't make kiddush, but why don't you wash? I totaly live on Challah... especaily if I'm at someone else's table and there is really nothing I can eat.
If regular Challah is too hard for you to digest water Challah should be OK. (My husband is a Yecky - (german descent) and I bake his grandother's water challah almost every week. Do you want the recipe?
Chany
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Thanx Kandee,
Could you please tell me what test I should ask for for hypothyroid?
I asked mum what sort of thyroid disease she was diagnosed with, and she didn't realise she had a problem with her thyroid until she had it and a handful of lumps removed (goiters?). But she's always suffered fatigue and metabolism problems. I'm hypersensitive to cold, while she's hypersensitive to heat, so I think we're at 2 ends of the thyroid scale.
I'm really hoping the doc can give me some answers on Mon. I'm at my whits end!!
Thanx for your kind words and support over the past couple of months And for your fantastic advice!!
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~ Live life, don't let life live you ~
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You're most welcome Kandee! I can't wait to try out your muffin recipe this weekend
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~ Live life, don't let life live you ~
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Chany is actualy a nick name for Chanah. The translation for Chanah is grace but that's a joke because althoguh B'H I do have alot of talents, being graceful is not one of them.
It's a common name, but it doesn't usually have a Y at the end. When I was in grade school (at Bais Yaakov) there were four other Chanies in my class and I wanted to be different so I began spelling it with a Y.
B"H I have never gotten sick at a Seder or after so I hope that Hashem will give me the same extra stomach protection this year.
Happy preperations!
Love,
Chany
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make sure you drink ALOT to counter act the negative effects.
Happy Preperations!
Chany
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I'm trying so hard! I will call my doctor tomorrow and not wait until my appointment at the end of the month.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Avidan...do NOT apologize! I was just complaining (and givng you a hard time)
You can't be expected to remember EVERYONE'S diets!
Please don't feel bad....and please be Mochel me for making you feel bad????
You are a VERY sensative guy...B"H...and I am thankful you are hear...
Tizchu L'Mitzvos on your paper...and Yosher Koach on being so humble!
Take care, Ruchie
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Formerly known as Ruchie
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Chany...you can daven for me if I can daven for you.
Shaina Rickla Bas Ita Chana (even though my english name is Rachel! LOL i so desperately want to be called by a hebrew name. This is a BIG point of contention in my fam. no one wants me to go ny my Hebrew name...or by Ra-chel or Rochel. I feel SUCH a connection with Ra-chel/Rochel as it has been what I have been called since childhood. I have asked Rabbeim and I can't seem to get a clear cut answer. *sigh* Being a Balass T'Shuva ain't easy! AVIDAN, if you're reading this, PLEASE ask your dad what he recommends!)
Hmmm...what do I eat? Potatoes, rice cakes, corn thins, fruit, veggies, fish, peanut butter, olive oil, flaxseed oil, tomatoes a LOT (hope I'm not becoming allergic ), gluten free bread (alot of rice), brown rice pasta, rice, greens, I WAS eating gf ookies but they have BUTTER in them and they gave me heartburn tonight and a gurgly tummy, I'm not sure what else I can eat yet I HAVE GOT to find more things I can eat.
My Rav knows I can't have Matzah. It will be helpful to get a proper celiac diagnosis. But as that seems unlikley before Pesach...I will need to tell the Rav (again) everything from start to finih and figure out where to go from there. I figure I will eat a lot of oat Matzah, potatoes, Pesach safe grains (I think quinoa is allowed), and lots of salad. Thank G-d I can eat most veggies without problems!
Your kids sound ADORABLE! Making sure yiou eat properly..soo yummy! i can't wait to have a famliy...B'Shaah Tova! It is my lifelong dream! I am happy that you have children, kanine a hara! (sp) LOL Did you grow up in a large family?
That is TOO CUTE! The sign thing. I actually found that VERY funny! (I didn' have to be there fot that one)! Your husband sounds wonderful....are you Chasidish? (Btw...is that a Sheitel in the pic? And what are you doing in Tenessee if I may ask? Kiruv?)
Kvetch to me any time...Im here! And feel free to e-mail me as well Ruchily@yahoo.com
Refuah Shleimah to you and to Klal Yisroel! (I hope you don't mind I am VERY into giving Brachos...I have some Chassidisha part to me as my ancestors were Chassidish). I hope that you have a Gut night and a Gutta Shabbos!
With love, your friend, Ruchie
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Formerly known as Ruchie
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Actually, I DO make Kiddush (well, hubby makes it) I can have white wine in small sips and I'm fine (even a glass is ok).
I am eating gluten free so I don' eat bread. I MISS the Mitzvah of washing...I always beg hubby to say bentching out loud so I can say Amen. *sigh* But this is what Hashem wants for me...I have other Mitvos to fulfill.
NO WAY! Do you know Rabbi Naftoli Bier in Boston (or does your husband?) He helped makariv me...and he was our Mesader Kedushin!!!!!!!! He is TOTALY A Yecky! Hubby wanted to take on Yecky minhagim in honor of Rabbi Bier...but he nsisted we go with the minhag hamaakom. WONDERFUL Tzaddik (I could o and on....) and his wife! SUCH A tzaddakis...and his daughter helped Makaariv me... (ok, I'll stop now) LOL
This is o much fun!
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Formerly known as Ruchie
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Good for you Beth! PLEASE keep us updated (if I don't respod it's cause it is Shabbos and I didn't see the response yet)
Take care...keep it up!
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Formerly known as Ruchie
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Is Chany connected to Chain? Is that why it means grace? I wish my name were that precious and beautiful (Well, Shaina isn't so bad either I guess ) I have always had a liking for the name Chany....now I know why!
Wow...hashem is truly amazing! and you are very special...such emunah and bitachon. May your Pesahc be filled with emunah, bitachon, closness to Hashem, and a refuah shleimah! Enjoy the matzah for me
With love, Ruchie
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Formerly known as Ruchie
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I think it's GREAT for the nostrils...but for the tummy? I'm sure it actually has something medicinal in it...but I'm not sure of anything other than reeasing mucous?
Sorry I'm not much help here. I guess you'll find out (or maybe someone else can help here?)
Maror story: I was set up with a guy to stay at his house for Pesach (my friend wanted me to go back to being frum...lon story). They had RAW maror! I almost spit it out...very embarassing Don't bring a Shidduch over and serve them raw maror unless you won't hold it against them!
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Formerly known as Ruchie
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What? I should ask him if you should go by a Hebrew-ized version of your English name or your Hebrew name?
Avidan
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Why'd you have to go and make me so constipated?
--'Weird' Al Yankovic, "A Complicated Song"
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Huh?
#166256 - 04/01/05 03:31 PM
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Casper
Reged: 10/16/04
Posts: 407
Loc: Memphis, TN
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I'm sorry. I didn't quite understand the question?
Chany
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... but he sounds amazing. I was a mix breed myself (I think my great great great grandfather on my father's side was yecky) so I always waited three hours between meat and milk, but I love the other Yecky minhagim I got to adopt when we got married. My favorite one is that We wash Al nitilat yadayim before kiddush and then proceede with Motzi right after kidush.
Woah... It's almost Shabbat. Gota go!
Have a good Shabbas.
Love
Chany
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That's what I have for pesach. It's tiny and cute and can only grind a small amount at a time but it's what I could afford for Pesach. Maybe some day down the line I'll get a grown up sized one.
I wonder if there's any way to make a GF matzah. Isn't there GF bread? My friend knows a Kosher Bakery in NY that makes GF cookies. I'm sure something can be done.
Chany
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I happen to love the name Shaina. It means beauty. And from your photo and posts I can see it's an acurate description of your face and your neshama. I realy admire your emunah and your posetive outlook on life.
Chany
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ROTFL
Can I go by Ra-chel even tho my Hebrew name is Shaina Ricklah (which is really Yiddush not Hebrew)?
I was names shaina Ricklah after my great maternal grandmother. She was NEVER called Shaina Ricklah....she was called Ruth (her English name).
My fam wants me to go by Rachel. By I want to go by a Hebrew name. In the Jewish Day School they called me Ra-chel (even wrte it in my year book).
I onnect with Rachel. But I do NOT want to go by an English name. So cn I go by Ra-chel/Rochel/Racheli however people want to pronounce it?
I will not make my fam happy unless I go by my english name. Do I HAVE to go by an english name for Kibud Av? (I was already told by a Rav I don't...but they couldn't advise me so much on name to go by....).
Am I better off going by Shaina Ricklah? Would the Hebrew of that be Yaffa Rivka?
See my dilemma? My children, IY"H will have a hebrew name ONLY! It is sooooo confusing for me! All these names. What is the essence of my Neshama?
If this is till unclear let me know.......
Thanks Gut Shabbos
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Formerly known as Ruchie
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