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Are all GF people STRICTLY GF?
      #162805 - 03/21/05 07:15 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hi all GF people. I just posted a thread in response to Aneeta's post 'help me please', but I wanted to start a new one as I am really confused at the moment.

What I'm wanting to know is, how many of you have had negative test results for coeliac, but are still gluten sensitive (ie your body can't break down the gluten as opposed to the gluten attacking the lining of your intestines)? Do all you GF sensitive people (not coeliac people) eat STRICTLY GF? That means absolutely NOTHING with gluten in it? I'm really struggling to understand at the moment.

I know that going strictly GF for a couple of months or years will be necessary for my system to stabilise, but once I'm 100 % (yep determined to get there!) would I develop a tolerance to small amounts of gluten, the same way someone who has lactose intolerance has a tolerance to small amounts of lactose??

All the info I've been getting is conflicting, my doctor tells me that I won't be gluten sensitive forever, its only temporary while my immunity is so low. Yet the people from foodintol have told me that despite not being coeliac I still HAVE to go GF for life.

I know that if going strictly GF improves my health, then that is all that matters, but I don't want to have to be eliminating all forms of gluten from my diet if it isn't completely necessary.

Is anyone else in this bind???

Thanx for your support

T xx

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I too am in this bind new
      #162809 - 03/21/05 08:11 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I tested postitive to antibodies in the blood by two different medical doctors, yet biopsy came back negative. I eat TOTALLY GF. Not had any gluten in about 1 1/2 years. Nothing.

I am assuming I will need to eat this way forever. Once antibodies are present, I assume they would just return if I started to eat gluten again. I don't know the exact answer to that though. I doubt the doctors even know. This whole gluten intolerance seems pretty misunderstood.

I would love to eat a bagel again! But I don't think that is likely from what I have learned from Kandee and celiac.com.

What do you think, Chrissy? I am interested in what others have to say on this as well. Abby, any others?

Would like to add that even being strictly GF, I still have gas, bloat, constipation and feel no better. Except I traded D to C when going GF. Nice trade off, huh.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: I too am in this bind new
      #162814 - 03/21/05 08:22 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hey Beth! I've missed our chats, how are you doing lately?

Well I'm confused because all my blood tests came back negative (no gluten antibodies), as did the scope, but I know I'm gluten sensitive to large amounts of gluten (eg a couple of times a day for a couple of days) because it makes me bloated and C. So I'm wondering whether I can perhaps still have small amounts of gluten.... like my doctor says..... or whether I have to cut it out STRICTLY like my naturopath says...

I think once my system stabilises I'm going to test small amounts of gluten and see what the effects are. The only way I'll know is by testing it on myself. But I am worried that I may be doing myself damage if I continue to eat GF, even if I don't have symptoms.

But I don't have coeliac, so why am I so worried!!? Because there's a lot of scaremongers out there who have made me very confused.

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Re: Are all GF people STRICTLY GF? new
      #162817 - 03/21/05 08:31 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I wa tested negative on the blood tests, the endscopy, etc. I KNOW I have a problem with wheat...with gluten I am uncertain.

the tests are NOt the be-all-end-all deciding facvtor.

I spoke with my allergist last year--gret man! He told me he had a patient that was ALWAYS sick. Gluten tests came back normal. The man had a suspicion it was gluten...took it out...a new man!

I'm sorry if thi makes things more confusing I say go with your gut (no pun intended!)

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Formerly known as Ruchie

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Hi Ruchie!! new
      #162818 - 03/21/05 08:41 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Thanx Ruchie. I know the tests aren't the be all end all, and I never 100 % trust doctors. I know inside me that I'm gluten sensitive at the moment, but thats just in, perhaps its only at the moment. I've done so much reading about coeliac versus gluten intolerance and the literature suggests I could have a temporary gluten sensitivity because my immune system is so low at the moment. I'm wondering if once I go GF & DF for long enough, my system improves, stabilises, and then I can tolerate small amounts again?

There's probably a lot of you that think I should pull my head out of the sand and accept I should be GF for life, and to stop making excuses (I tell myself this) but GF is really expensive, really antisociable and really hard. I don't want to put myself through this for the rest of my life unless its absolutely necessary!

Time will tell, I have to stabilise first before I can even think about testing my theory. I suppose I just wanted to vent, and to find out how strict everyone else is (for example a pkt of plain potato chips is GF but a pack of flavoured potato chips has gluten in it, the majority of rice crackers still have gluten in them, almost ALL processed sauces have gluten). I don't want to live on a plain vege and rice diet for the rest of my life!

Thanx for listening

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I added wheat back in yesterday.... new
      #162819 - 03/21/05 08:45 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Actually, a few days a go I added a tiny amount back in. When I did that I got sick to my tummy. Then yestrday I had a wrap. OWEEEEEEEE! I had spelt bread today and I'm majorly bloated. I KNOW wheat is def a prob and I'm fairly certain gluten is too....

My guess is that I can't have any of it for a LONG time to feel better. Maybe in a year or so (after Passover is over), I will try to add it bac in again. I had eliminated it for 3 mnths this past time (I've been on and off with gluten for like 2.5 years now), and I KNOW right away if it effects me (it DOES).

I wish I had better news....I think for me gluten free/wheat free is best.

I hope you figure all of this out soon *hugs*

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Formerly known as Ruchie

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I added wheat back in yesterday.... new
      #162820 - 03/21/05 08:46 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Actually, a few days a go I added a tiny amount back in. When I did that I got sick to my tummy. Then yestrday I had a wrap. OWEEEEEEEE! I had spelt bread today and I'm majorly bloated. I KNOW wheat is def a prob and I'm fairly certain gluten is too....

My guess is that I can't have any of it for a LONG time to feel better. Maybe in a year or so (after Passover is over), I will try to add it bac in again. I had eliminated it for 3 mnths this past time (I've been on and off with gluten for like 2.5 years now), and I KNOW right away if it effects me (it DOES).

I wish I had better news....I think for me gluten free/wheat free is best.

I hope you figure all of this out soon *hugs*

P.S. I blive naturopaths know more about this then allopathic docs. But again...PLEASE trust your gut (noy your emotion...at least my emotions tell me to eat it it's fine!)

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Formerly known as Ruchie

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I agree! new
      #162824 - 03/21/05 08:50 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Very expensive, very difficult socially, very restrictive. I am dying for a bagel or some pita bread!!

I too am sick of this plain stuff. EVERYTHING has gluten and I want to be part of the gluten eating world again too. It is very expensive, and seems impossible to go to restaurant or to grandma's or family barbecue and eat GF and IBS safe!

I totally agree with you, Chrissy. I am still fighting this diagnosis as well. With me, I think it will be for life! Because I had tested positive with the blood work. I have higher hopes for you, though.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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I like your thinking new
      #162825 - 03/21/05 08:51 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hi again Ruchie! My thoughts are that we are probably highly sensitive to gluten at the moment because our digestive systems are in such turmoil. But once we stabilise (not if, once!! LOL) we should be able to tolerate small, controlled amounts of it, and our bodies will be able to tell us just how much? A long drawnout process of elimination, yikes, sounds like fun, not!

I know I can't handle obvious forms of gluten, eg bread, muffins, cake etc etc, but I don't get the same symptoms from when I eat products that contain small amounts, eg potato chips, sauce, gravy.

--------------------
~ Live life, don't let life live you ~

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I miss our chats too, sweetie new
      #162826 - 03/21/05 08:53 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I'm usually in bed by now! I am way past bed time!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Taly.... new
      #162827 - 03/21/05 08:54 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

We should totaly hare recipes!

I am learning to LOVE to cook! Hubby won't touch what I eat...and it is antisocial in many ways. BUT it's worth it if we feel better!

Maybe instead of going to other's houses we should have people to our place?!

I will say...I eat more IF tha I used to. And it is ok for my bod (I wonder if my prob is wheat/Gluten or IBS....). When I have no sugar, red meat, dairy, or wheat/gluten in my life...things are better for me! I can digest IF with much ease.

Ever tried olive oil on a potato with some fresh herbs (basil, pessed garlic...whatever strikes your fancy?) Or brown rice pasta with pureed soup? After a while you come to enjoy things you never would have tried...

Expensive it IS. And because we were not diagnosed medically we cannot prove we need GF food and thus iinsurance won't pay for the food.

On the up side...we learn to be creative cooks! We learn to tkae care of and respect our bodies in new ways!

I tell myself ALL THE TIME that I am healthy because I don't eat many processed foods.

I wish I had somethig better to say....

Let me know if you want recipes....

sending hugs and love your way, Ruchie

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Formerly known as Ruchie

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GF is no fun :( new
      #162828 - 03/21/05 08:54 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hey Beth,

As if its not enough that we have to eat IBS safe, GF is the nail in the coffin I can handle it at home, cooking GF is fine (but yes it can be bloody expensive!!) but it can be so embarrassing when you have to constantly question restaurants, have to sit and watch b/f devour some pizza and garlic bread, or get this one: try and politely tell your friend thanx but no thanx because while she painstakingly made a GF cake she forgot that icing sugar contains gluten. Sigh, I hate feeling like such an alien amongst of world of such normal people

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Re: I miss our chats too, sweetie new
      #162829 - 03/21/05 08:56 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Whoops, better get yourself to bed and get some good night zzzzzzzzzzzzzzzzz's Hope you feel better tomorrow!

--------------------
~ Live life, don't let life live you ~

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Every Fri night Sat. day we used to eat out for Shabbos new
      #162832 - 03/21/05 09:00 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

a Jewish holiday (like the Sabbath) that occurs every week. And almost every time we wnet to friend's they would put something in the food I couldn't eat. I ate it anyway and uffered...never truly allowing my bod have a break form these offender foods. And then I just decided to stay home...

This coming Shabbos I plan to bring my own food to our friend' house for Shabbos. Fun? Not so much. SAFE ypu betchya!

So what do you bring to a friend' house? Depending on the occasion...I plan to bring roasted veggies and some soup or something...I'll let you know when I have it figured out.

We can do this...i'm so glad I'm not alone *hugs*

--------------------
Formerly known as Ruchie

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Ruch... new
      #162837 - 03/21/05 09:17 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Sorry, I'm just having one of those whingy days! I LOVE to cook as well, b/f tells me that going GF couldn't have happened to a better person because I love to whip up a storm in the kitchen. Its just sometimes the cost gets to me, so I've considered giving up on gluten substitutes, but then I'll really miss my muffins, cakes and bread.

We often have friends over, or we go to their place and everyone brings a dish. So I'll usually cook one of the dinner dishes and a dessert as well (which means we then end up with food overkill!) but at least I can join in and not feel uncomfortable.

I too went red meat, shellfish, sugar, dairy, gluten, caffeine, cocoa, alcohol and soy free, as well as low fructose, and within 6 weeks I felt marvellous. So if I can find the willpower to do that diet again, stabilise, and then gradually add small amounts of foods back in, I should be able to control my IBS and still eat some of the foods I love. SHOULD being the operative word!!

And its so true about enjoying foods you never would normally have. I love veges and rice pasta with just GF chicken stock, or veges and lentils, buckwheat pancakes, chicken and vege soup, yumm yummm, healthy food really is so yummy, its just sometimes you want to indulge in something decedent, as nothing beats a slice of chocolate pie, yuummmmmm! If I could do it on the odd occassion my life would be complete. I don't want unhealthy food all the time, just every now and again

So anyway, I'm a very creative cook (made some GF hot cross buns on the weekend, yummmm they were good!) so a recipe share sounds great. I can substitute any recipe that contains gluten, but its the cost of doing it thats becoming draining. So I'm up for GF foods that don't require expensive substitutes.

Like GF cakes that contain almond meal instead of GF flour, yumm.

I'll have a think about some recipes and get back to you

Thanx for the *hugs* somedays we really need them to stay sane!

--------------------
~ Live life, don't let life live you ~

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Chrissy, I'm hearing you! new
      #162838 - 03/21/05 09:24 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

Despite having a bit of a falling out with my naturopath I'm still embarking on a healthy wheat free diet. I've tried making GF muffins and stuff (yep, sugar free too) and YUCK! They're just so not the same! Even just the normal bread (GF) I'm struggling with liking. It tastes kinda sweet and while I have a sweet tooth I don't like it in my bread (which no offence to all you GF eaters) always tastes crumbly and stale to boot! I bought some allergy free recipie books the other day but to be perfectly honest I'm not finding food at all inspiring atm and despite all my efforts I think I'm in MORE pain now than I was before! Now I just get this dull pain all through my upper and lower belly that gets worse if I sit down for more than a couple of minutes! Hmm, what's a seeminly helpless IBS'er to do. I hope this diet works for you though. Good luck and keep me updated!

--------------------
Amy


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Re: Every Fri night Sat. day we used to eat out for Shabbos new
      #162839 - 03/21/05 09:24 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Well when we have dinner parties I usually take a casserole (apricot chicken, yummmmm, my favourite) or some fish/ chicken for a bbq and a salad. I LOVE roast veggie salads, my recipe is sweet potato, pumpkin, zucchinni, capsicum, red onion (I can tolerate roast onion fine) and eggplant roasted in the oven with a little olive oil, and then tossed in balsamic vinegar. DELICIOUS!

For dessert, last time I made a GF banana maple pudding, yummm, or I've made a GF chocolate pudding using dark chocolate so its DF. But you're sugar free aren't you? I'm just starting a sugar free/ fructose free diet to see if it helps, so desserts will be a thing of the past. Sigh.... nevermind, I'm more of a savourie person anyhow.

So do you have soy? I've got recipes for soy cream cheese and soy sour cream to add to dips and casseroles. I bought a recipe book from the Australian coeliac society recently and it also is for people with IBS, fructose malabsorption and lactose intolerance. It has some great recipes, I think restricted eaters just need inspiration

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Right back at ya Amy! new
      #162841 - 03/21/05 09:34 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hey Amy, I'm so sorry your new diet isn't helping. I'll have to admit, when I first started cooking GF I thought the bread was foul because it was so crumbly and stale so I stopped eating anything that would traditionally contain gluten. I've now found a company that makes really nice GF rolls (they're called The Gluten Free Baker) and they're not the least bit crumbly and taste really fresh. Very filling though, I find rice flour is very dense so you can't eat as much of it.

On the other hand I've made some really yummy GF muffins, problem is you need to add quite a bit of nuttlex (DF butter) or oil to stop them from being crumbly. They taste delicious!!! But after all the expense of cooking GF you also end up eating foods with more fat then someone with IBS can handle (I do fine, but others may not).

Sigh, so what is a helpless IBSer to do?? I found when I first did the vega diet I lived off fresh foods quite happily: brown rice, cooked veges, chicken, fish, bananas, mangos and snacked on rice crackers. I was happy enough with that diet at the time because I was feeling SOOOOOOO good. But you get sick of behaving so well after a while.

I hope you start to feel better soon!! Geez that must suck, behaving so well food wise, and still feeling crappy You poor thing.

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Re: Right back at ya Amy! new
      #162842 - 03/21/05 09:41 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

Yep, fat's a big problem for me. And after doing some internet research on the vega test I have to be honest I just don't trust it. I think I might talk to my GP about going on the RPA elimination diet to see what really does cause me bother cause obviously even though I'm avoiding sugar, wheat, yeast,dairy, fats and fruit I'm still eating something that's bugging me! It's awful, I feel like I'm not eating much (although Ruchie's lemon and dill fish with brown rice and vege's was delicious last night-thanks Ruchie!) I'm still suffering as though I'm eating all this stuff wrong. And now I've found my naturopath who I handed over $220 to (which I didn't have really and am still struggling to get back on track) really has no interest at all any more now that she has my money Should of known I'd find someone like that! If you come up with any yummy recipies I'd love to hear them! I haven't been posting much the last few days (am in a bit of a bad place atm) but I'm around and reading still!

--------------------
Amy


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Re: Right back at ya Amy! new
      #162843 - 03/21/05 10:11 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hey Amy, I'm pretty skeptical when it comes to these things as well. And while the vega diet did do wonders for me (BTW, my first consult was $450!!! geez I was duped by all the pills and potions he prescribed!!), my naturopath has never been able to fully explain how the test works and why certain foods were eliminated. Which is pretty dodgy, and why I'm currently doing a detection diet (like an elimination diet) instead. The people who are supporting me with the detection diet (its web based) believe that one can solve almost all digestive problems through diet alone, and there is no need for supplements, pills and potions, as these are only a quick fix, they can irritate the bowel even more, and aren't addressing the root causes for digestive disorders.

Sooooo I'm eliminating gluten and dairy as my first test, and I'm also watching my sugar and yeast intake (I'm going to test them properly in a couple of weeks time).

I'm already so much more knowledgeable about food intolerances and the symptoms they cause in my body. I felt I needed to take control of my diet, instead of relying on my allergist to test me each month and say 'yay' or 'nay' to certain foods. The only test you can truly trust is the one you do yourself, on yourself, as your symptoms are the key.

Good luck! Let me know how you go! And I'll dig up some yummy recipes to keep us food challenged people inspired

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~ Live life, don't let life live you ~

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Re: Are all GF people STRICTLY GF? new
      #162896 - 03/22/05 05:42 AM
Neeta

Reged: 04/02/04
Posts: 62
Loc: Ontario, Canada

Hi there, catching up with you again. I have gone gf now for about 8 months and there is now way I will every injest the stuff again (knowingly). Infact, reading your thread solved a mystery for me. I mentioned how my bladder was killing me after my weekend. Well on Fri. night I hosted a birthday party. I cooked the cake (gf of course) but forgot about the icing! That's why I got so sick!!! Thanks to the person who mentioned icing sugar had gluten. Now that really does tell me something. . . to answer your question, yep I feel that once you go gf you become more sensitive to it OR you feel more sensitive to the stuff because now you have times that you feel so well that when you accidentally injest it you feel awful, a state you are not now used to feeling. I gather you are quite young still. I am 45 and don't really care about eating or the lack of eating out business. I have been so sick for so long I just want to feel well. I can totally understand though, if you are young, what a pain this regime would be. All I can say is this is not something to mess with. Celiac can kill you. The worst is when you get d. with it. I had bloating not d. The d. can get so bad for people they just can't continue. There are all sorts of other diseases that stem from celiac. Even though I am gluten sensitive, I am not going to take any risks! I would not forgive myself years down the road if I developed cancer or something because I ignored by gluten sensitivity. Think about it. Much empathy, Neeta

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JenX was like that... new
      #162898 - 03/22/05 05:49 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

...when her Fibro was really bad she was convinced she was gluten intolerant...when she finally got some good meds to control her sleep, she could eat gluten all the time! Weird, huh?

{{{HUGS}}}

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Good for Jen new
      #162905 - 03/22/05 06:17 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Good that she can now eat all the gluten she wants!! Yummy gluten! Gluten is so good! I miss my bagels!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: I too am in this bind new
      #162934 - 03/22/05 07:21 AM
abby82

Reged: 03/08/04
Posts: 335
Loc: Nevada

Well I just started a GF diet exactly one month ago, I have had a TON of improvement but I too still get bloated and uncomfortable every night starting at about 5pm or so. Its driving me crazy! I was sooo excited when I went GF and my symptoms started to disappear one by one, but this one just wont go away!
Im not sure about the question about slowly adding gluten back into your diet if you DONT have Celiac. I find the whole gluten sensitivity/celiac thing quite confusing! I do know that I will NEVER go back to gluten though after reading what it can do to you if you do have celiac and because of how much better I feel. Also, Ive read that it can take up to a year to feel better after going GF depending on how much damage you had, so who knows - maybe a couple more months and the bloating/gas will be gone too. Its weird - for me foods with gluten dont even sound good to me anymore because of what they used to do to me so I guess Im lucky when it comes to that! I have had a lot of success so far with GF baking and actually like most of it better than the stuff with gluten.
Do any of you know much about the blood test and test results? I had the blood tests done and both my IgA and IgG levels came back positive (my IgG level was like 102 with anything greater than 20 being positive!) and my IgA level was like a 22 but still positive. But I also had the TTG test (I think thats what its called) thats supposed to be the most specific for celiac and it came back negative so my doctor just looked at that and didnt even recommend a GF diet! So I guess my question is - is why didnt he even consider it? Isnt having two positive results enough to even try a GF diet? Well anyways I ordered a allergy test through York labs that tests you for 113 food allergies and Im considering another that tests for antibodies and also tests if you carry the gene for Celiac so I will let you know how those go too!

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Re: Are all GF people STRICTLY GF? new
      #162939 - 03/22/05 07:35 AM
Neeta

Reged: 04/02/04
Posts: 62
Loc: Ontario, Canada

Hi me again, the site that I get alot of info. re celiac is USA Silly Yaks (celiac). They have a message board just like this one. Try it out. Any problems, let me know.

Neeta

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Abby... new
      #162944 - 03/22/05 07:42 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Hi there!

My GPs didn't even want to test me for celiac. I had to BEG for an upper endoscopy. Most conventional docs seem to fee that celiac is SO RARE...why bother? Most patients won't have it anyway

Docs do NOT know everything! I went to an endocronologist. I had written down my list of symptoms and handed it to him to read it. On it included things like fatigue, general achiness, etc. When I asked him if it might be fibromyalgia he just laughed....it couldn't be cause I didn't have the symptoms (I have been diagnosed with fibro by 3 docs since!) he didn't even READ my list of symptoms.

If a doc doesn't know about something...it takes a LOT for them to admit to this. Maybe they are afraid u won't come back if they don't know everthig...or their pride gets in the way ?

In any case....good for you for sticking to the diet! It's hard to when you don't know for sure....but your resu lts are MUCH clearer than mine as I came back completely negative on all accounts!

Keep feeling better....I bet the bloating WILL get better in time! *big hugs* You're doing GREAT!!!!!

--------------------
Formerly known as Ruchie

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Abby... new
      #162945 - 03/22/05 07:43 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Hi there!

My GPs didn't even want to test me for celiac. I had to BEG for an upper endoscopy. Most conventional docs seem to fee that celiac is SO RARE...why bother? Most patients won't have it anyway

Docs do NOT know everything! I went to an endocronologist. I had written down my list of symptoms and handed it to him to read it. On it included things like fatigue, general achiness, etc. When I asked him if it might be fibromyalgia he just laughed....it couldn't be cause I didn't have the symptoms (I have been diagnosed with fibro by 3 docs since!) he didn't even READ my list of symptoms.

If a doc doesn't know about something...it takes a LOT for them to admit to this. Maybe they are afraid u won't come back if they don't know everthig...or their pride gets in the way ?

In any case....good for you for sticking to the diet! It's hard to when you don't know for sure....but your results are MUCH clearer than mine as I came back completely negative on all accounts!

Keep feeling better....I bet the bloating WILL get better in time! *big hugs* You're doing GREAT!!!!!

--------------------
Formerly known as Ruchie

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Hey again Neeta new
      #163120 - 03/22/05 06:04 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hey Neeta, I'm glad you sorted out the C mystery! Yep icing sugar and cornflour contain gluten.... is there anything that doesn't!!

Well being GF as well as needing to eat IBS friendly at my age (27) is pretty tough because I used to have a really social life, but now I sometimes avoid social occasions because I don't feel I have the energy to explain why I can't drink, can't eat pizza.... can't eat chips and dip. There are a myriad of other activities that I do with friends and family, that don't involve food and alcohol, but we are a big 'foody' family, we love cooking and (used to) love eating and enjoying a few wines.

I am feeling a bit despondent at the moment because despite eating within the IBS guidelines AND being GF I'm still really bloated, the worst I've ever been. I guess I just need to give my body time to recover. But I can't help but wonder whether maybe there's something I'm missing.....

Waiting waiting waiting....

--------------------
~ Live life, don't let life live you ~

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Abby new
      #163130 - 03/22/05 07:12 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Are you still eating the kinikinnic bread with the whole egg? The white type? How are you handling the egg?

Let me know how you're York test comes back. I am very close to ordering from that company too as they seem to have the best track record as far as reliability. But the test is close to 400 bucks!

Glad you are finding some relief from the GF diet. I have had none! Except now C instead of D. But cramps, bloat and pain and gas are same or worse!

What other supplements are you taking? Acacia? Digestive Enzyme? Probiotic?

How is your weight on the GF diet? Are you gaining? Hope so!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Wheat free, not gluten free new
      #163164 - 03/22/05 09:44 PM
Angie113

Reged: 12/31/04
Posts: 297
Loc: Alternate b/w Northern and Southern California

I don't eat anything with wheat or yeast, so that limits me somewhat, but I do eat breads with gluten from Whole Foods or SFS. When I bake breads, I usually use a gluten free flour mix, and I eat a lot of rice and stuff. I am thinking of adding wheat back in, because my intolerance is only mild, but am scared

--------------------
~Angela

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Re: Wheat free, not gluten free new
      #163165 - 03/22/05 09:48 PM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Hi Angie. What are your symptoms to gluten? I used to be able to eat as much bread, cakes, muffins etc as I liked up until a couple of years ago. I'm confused as to why my food intolerances have suddenly started.....

Which makes me wonder whether perhaps I'm more wheat not gluten intolerant. But regardless, at the mo I'm strictly GF and determined to feel better because of it!

--------------------
~ Live life, don't let life live you ~

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Response to Taylahmai new
      #163168 - 03/22/05 09:56 PM
Angie113

Reged: 12/31/04
Posts: 297
Loc: Alternate b/w Northern and Southern California

To be honest, I cut wheat out so long ago that I'm not even sure what my reactions to it were specifically, since I stopped eating a bunch of things all at once (dairy, yeast, fatty things, raw veggies, etc). I have eaten it a few times since, and I think I noticed more bloating and pain. I want to try and re-introduce it, and maybe I will be able to tell you what happens!!

--------------------
~Angela

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What's the York test? Thanks for explaining! n-t new
      #163170 - 03/22/05 10:01 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA



--------------------
Formerly known as Ruchie

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Re: Ruchie new
      #163288 - 03/23/05 08:45 AM
abby82

Reged: 03/08/04
Posts: 335
Loc: Nevada

Its a food allergy test that tests for 113 different foods. I think the website is yorkallergyusa.com but Im not sure at the moment. They send you the kit to your house and its a finger prick test that you do yourself and then mail it back to them. The bad part is the price though - I just ordered it last week and I think it was $379.00 but Im desperate to get better right now! Ill let you know how it goes!

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Re: Hey again Neeta new
      #163354 - 03/23/05 11:21 AM
Neeta

Reged: 04/02/04
Posts: 62
Loc: Ontario, Canada

Oh you poor thing. I can't imagine being 27 and going through all this. Whenever I go out I know I can have a baked potato and of course my low carb beer (strange that). I used to enjoy wine but can't do that anymore (bummer) so live quite a pure life now. Try that silly yaks web site you might get some help there. All I can say for the bloating is easy does it for a long time. If I introduce anything new I bloat. I've just had rice puffs with rice milk and hemp ice cream for lunch! i couldn't hold down a job either, there is just no way. Try swimming, I have found that helps me no end. Something to do with being held by the water gives my innards a nice rest. Good luck, my heart breaks for you. Chin up chook! Neeta

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Hey, Abby, you there?-nt new
      #163363 - 03/23/05 11:50 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Thanx so much Neeta..... new
      #163586 - 03/24/05 03:05 AM
Taylahmai

Reged: 11/03/04
Posts: 257
Loc: Western Australia

Sometimes I think I feel too sorry for myself, and should learn to deal with what I've been handed.

But when I get such kind words from people on the boards, I realise its okay to feel a little bit blue, cos we're dealing with something really tough!

I get there, life isn't so bad, and I really enjoy cooking GF. All I need is for this damn bloat to go away and I'd be a pretty content little girl

There's alot about life to enjoy, I remind myself that every day.

Thanx again, take care xxxxx

--------------------
~ Live life, don't let life live you ~

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Re: Thanx so much Neeta..... new
      #163807 - 03/24/05 02:29 PM
Neeta

Reged: 04/02/04
Posts: 62
Loc: Ontario, Canada

hey there, your welcome, again, I can't imagine what you are going through. I am bloated this afternoon. I think it's because I've been doing some house painting and the fumes react with me. I went swimming and that felt great, then the bloating came back. I am about to take one of my bio k's that will probably sort it. Have you tried them? Might just help you. To hell with the cost, you are worth it. Neeta

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