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If not IBS, then what else could it be?
      #100570 - 08/23/04 11:59 AM
Bobbi

Reged: 05/19/03
Posts: 11
Loc: London, England

I suffer from severe bloat, pain and gas after eating and assumed it was IBS. But after doing some research I see that I don't have constipation or diarrhea which usually need to be present for diagnosis.

I tried going on Heather's IBS diet anyway for a month....literally to the 't' except for one piece of gum, and have not noticed a difference. It seems the only thing I can tolerate is Saltine Crackers.

Does anyone have any suggestions as to what else could be wrong? I was tested for parasites and it came back negative. I'm even so desperate that I'm getting a colonic tomorrow. My doctor agrees that something isn't right and is ordering some tests but I'm not sure what other diseases cause bloat.

Any advice, help or suggestions are appreciated.

Thanks!

-Bobbi

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Re: If not IBS, then what else could it be? new
      #100594 - 08/23/04 12:22 PM
LittleFox

Reged: 04/15/04
Posts: 503
Loc: California

Hi Bobbi - I am sorry you are having such a hard time right now, but the only advice I can give you is to see your doctor. when there is no diagnosis, it's hard to give advise.

Keep your chin up and try not to get negative. This board will be here when your doctor gives you a diagnosis full of support, love and compassion.

Lene

--------------------
God never promised life would be easy, but he did promise to provide a way out!

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Re: If not IBS, then what else could it be? new
      #100595 - 08/23/04 12:24 PM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

all I can say is good luck- have they ruled out IBD (Crohns/COlitis, etc??) and have they ruled out Celiacs disease or a severe allergy to something else? Celiacs can't have gluten, but compared to this diet that isn't so bad...

It could be a food allergy, but it could be something else too, and I'm sure your doctor will help figure it out.

Good luck.

--------------------
Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Re: If not IBS, then what else could it be? new
      #100629 - 08/23/04 01:30 PM
Yoda (formerly Hans)

Reged: 01/22/03
Posts: 3682
Loc: Canada

Have you been tested for celiac? Try celiac.com
Also there are other food allergies that could be causing this.
There was a woman on this board a year or so ago that had only bloatin and gas and no C or D.


--------------------
Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.

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Re: If not IBS, then what else could it be? new
      #100655 - 08/23/04 02:34 PM
Bobbi

Reged: 05/19/03
Posts: 11
Loc: London, England

Thanks so much for the replies! I don't have Celiac, Crohns or Ulcerative Colitis. I am not intolerant to wheat or gluten....basically the only foods I can eat are: crackers, pretzels, and white bread. I can't digest vegetables at all (even if peeled, cooked and diced).

I don't have diarrhea (unless I have a stomach virus)...I'm regular. The doctor thought it might be parasites but the test proved negative. I'm seeing him again to determine what other tests can be done. My mom thinks it could be a gallbladder problem and my husband thinks it's an intestinal obstruction. Honestly, it's a myster because my bowel movements are regular.

Does anyone else suffer from just bloat & gas without C or D? I have a page long list of foods I'm intolerant to. I tend to buy a lot of baby food and basically if I eat like a toddler then I'm OK.

Thanks again for everyone's support and responses, and if anyone has similar symptoms...please write me at bobbileder@yahoo.co.uk.

Cheers!

Bobbi

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Re: If not IBS, then what else could it be? new
      #100761 - 08/23/04 09:13 PM
dagenj1

Reged: 07/19/04
Posts: 35
Loc: Minneapolis, MN

I pretty much only have D anymore when I have social anxiety (at big events), so it's pretty rare. BUT, I have gas and bloating EVERYDAY no matter what I eat. My parents were always yelling at me to stop letting out gas when I was growing up, but I couldn't help it!! It hurt so bad that I had to just keep letting it out to not feel sick. I started long distance running and I would just let gas out the whole time I was running (I honestly couldn't help it). Then, I started having severe cases of D when I was running. So, I had to always run on an empty stomach. I went on a diet which consisted of only eating dinner at the end of the day - no breakfast or lunch. I think this might be what messed up my system because I was always constipated since I wasn't eating much. I could either eat, run, and have D. Or, not eat, and have C. Regardless of what weird C or D thing was going on throughout my life.....the gas and bloating have always been there. No matter what I did. :-(

Not sure that helps, but just know that there are others out there that know what you mean about the gas and bloating. I can go without C and D for months (and years), but bloating and gas are my facts of daily life!

Good luck on finding out a diagnosis!

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Re: If not IBS, then what else could it be? new
      #105105 - 09/11/04 04:23 AM
Bobbi

Reged: 05/19/03
Posts: 11
Loc: London, England

After getting blood tests and seeing with the doctor several times, he seems to think I have the lesser known and 3rd type of IBS: Midgut Motility Disorder. Everyone keeps talking about having either diarrhea or constipation, but there is actually a variant of IBS that doesn't cause either but rather causes pain, abdominal distention, and trapped wind.

The doctor recommended taking Buscopan, an anti-spasmatic tablet to see if that helps. But he's also referring me to a specialist to rule out anything more serious. The doctor suggested accupuncture to stimulate the nerves in the small intestine, where midgut motility disorder stems from.

I found the following information on the ibs research update web site and thought it might be helpful for those who aren't sure what they have, like I was:

"The Primary Motility Disorder of the Mid Gut (Pain, Gas, Bloat and Trapped Wind Syndrome). Although common, this variant of IBS is in our experience the most difficult to treat. It is particularly distressing for women and in this variant, abdominal pain - often right sided - and profound abdominal bloating are typical symptoms.

Sufferers often feel very full after meals. Alternatively, they feel hungry but get full and bloated after not much more than a mouthful. Consequently, they often lose their appetites and some lose weight. They do not have any real disturbances of bowel action and none of their symptoms are relieved by opening their bowels or passing wind, which distinguishes them from the other two groups.

Symptoms are thought to arise as a consequence of abnormal motility and sensation in the small or middle intestine. There is evidence that contents in the small intestine move slower than normal from the small intestine through the valve mechanism between the small intestine and the colon (ileocaecal valve) into the colon. This results in pooling of contents in the lower regions of the small intestine, an effect that leads to distension and pain at the site.

Symptoms include:
diffuse non-localised abdominal pain or discomfort not relieved by opening bowels and not associated with disturbed bowel function.
- diffuse abdominal bloating, not restricted to the upper abdomen
- uncomfortable fullness after meals/feeling full up after eating very little
- trapped gas or wind
- nausea
- loss of appetite

Unquestionably the mainstays of future treatment of this variant of IBS will be based on the use of new receptor active drugs that are being developed by the pharmaceutical industry.

These will be targeted specially at the action of the nerve fibres of the specialised enteric nervous system of the gut that are responsible for initiating intestinal contractility or motility and pain.

One important clinical observation we have made in patients with this variant of IBS is that eating makes symptoms worse. Accordingly we advise patients to eat small frequent meals, and some patients are able to keep the quantity of food they eat below a threshold that promotes the onset of food related symptoms.

Patients with this variant of IBS often consider that they are "allergic" or "sensitive" to various different food stuffs. In our opinion though, the intestines of these patients are likely to be "sensitive" to the effects of eating."


-Bobbi

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Re: Bobbi - pl;ease respond new
      #303428 - 03/28/07 05:48 PM
feelinggood

Reged: 09/11/06
Posts: 745


Hi Bobbi - I too do not have C or D - I can have one or two BM a day but when my attack starts - I have neither C or D but just pain, spasm, bloat, - my GI said that I have a redundant colon and that when it acts up my motility goes off and it chugs along - does not completely evacuate and the the spasms start - she advises me that it is only to do SF for the one day and then back into introducing IF and water, ground flax etc. and push through it to get it back on track and running smoothly. Much much much much easier said than done - it does calm after a while - I actually had about two years of feeling I could eat anything on earth and then an attack started this summer and it has been toucha nd go- How are you doing? Debbie IBS-C?

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