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goals- update
      #77784 - 06/10/04 05:49 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

ok, not so good yesterday. well, not too terrible, either.

i had no Coke all day and no sugar after about 10:30. i'm going to go sugar-free today.

i didn't have time to sit out at lunch (i only have a 1/2 hour break and had to go get something to eat 'cause i forgot my lunch. again.), so no sun. nor did i walk after work. i was just too pooped. i did, however, get a little walk at lunch. after i went to the deli i walked the long way around the block and into a different entrance to my building. it's a big block, so that was pretty ok. today i brought lunch so i'll try to walk a bit in the sun and kill two birds with one stone!

i ate better yesterday- kept something on my stomach most of the time, but nice and light.

i was asleep by 9, so that was good. didn't sleep great, but at least i slept! and yes, Kandee, i took the sleepy-herb pills!

i did not call and make a doctor's appointment 'cause i'm kinda at a loss as to whom to call. i didn't have an opportunity to get online last night, though i'm not even sure where to look anymore.

that's all i have to report.

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Re: goals- update new
      #77798 - 06/10/04 06:22 AM
Cara4503

Reged: 03/20/04
Posts: 1844


Hey what are those sleepy-herb pills you're talking about?

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~Cara~


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Re: goals- update new
      #77801 - 06/10/04 06:25 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Why do you need a doc Jen? What's new girlfriend?

Good luck on the sugar! I haven't dared to try that yet. Walking round the block is a good plan - it's a walk, isn't it?

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Re: goals- update new
      #77804 - 06/10/04 06:32 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

hey, Cara. it's an herbal concoction created by a doctor who treats chronic fatigue syndrome and fibromyalgia, but anyone can take the herbs. i found it at my local HFS.

here's what his website says about it: "Revitalizing Sleep Formula helps you get eight hours of deep sleep naturally so you wake up energized. This unique natural sleep formula is the best product on the market for people with disordered sleep or insomnia." here's a link to one site that sells it online.

i think it's pretty decent stuff. i have terrible sleep issues and i already take Ambien but i've found that this stuff helps me have a longer sleep period. i don't feel groggy in the morning, either.



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Re: goals- update new
      #77806 - 06/10/04 06:40 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Hey, I think you did good yesterday!! Every little bit helps, sweetie!

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Laura
Keep it simple!

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Re: goals- update new
      #77817 - 06/10/04 07:03 AM
Cara4503

Reged: 03/20/04
Posts: 1844


Thanks!! I have terrible sleeping problems, I think I'll try that!


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~Cara~


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Re: goals- update new
      #77831 - 06/10/04 07:26 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

i hope it helps, Cara. let me know!



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new doctor / cutting out sugar / what's new new
      #77846 - 06/10/04 07:47 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

hi, Linzy!

let's see... i need a new doctor because my rhumatologist is due to have a baby any second. i didn't like her anyway, even on the first visit (she's not the friendliest, smiliest of people, but that could be being 9 mos. pregnant!). i gave her a second try just to make sure, but aside from prescribing the Ambien, i'm not so sure how it would work out. she seems sorta helpful and fairly knowledgable, but she told me she had spoken to a "fibro expert" who told her "once a patient goes out on disability there's no point in treating her anymore. she will never get well." well, needless to say i didn't like that! when i miss more than 7 days of work i have to go on "short-term disability." it's not official, long-term, never going to work again disability, but there's still a few pieces of paper to fill out (which she turned in late and made my paycheck TWO WEEKS LATE! i don't get paid for another week because of this!). well, she thinks i shouldn't be taking time off at all . it's the "just suck it up, grin and bear it" school of medicine, i guess. when i wasn't sleeping, especially, that wasn't always possible and there's no way i could have gone to work and i need a doctor who will work with me if i get really crashy again! besides, i have trouble trusting a doctor who believed what one "expert" told her. as much as i've read about pacing oneself with fibro i can't believe we're all meant to go to work at all costs even when we're collapsed with exhaustion or pain! what do you think??? i mean, i'm still new at this whole fibro thing.... i'd be curious to hear your opinion and LS's, too.

moving on...

i've come to the sad, sad realization that sugar makes me feel like crap. i have started getting really shaky and nauseous a few hours after eating sugar. i've also really been terribly painful which seems to subside a bit when i'm "sugar-free." i don't know that i'm going to go all-out right now- we'll see how it goes. but i had been snacking on sugary sweets and drinking Coke and it's quite obvious to me that it was making me much, much worse. so i'm trying to cut it back dramatically. besides, i promised to quit the sugar months ago with The Losers and felt so sorry for myself at being sick that i kept cheating! it's time to get over it and quit the sugar!

as for what's new... .hmmm... haven't heard a word about a single job i've applied for. but on the upside, i'm trying to go to Philadelphia with my friend to pick up her new car (she bought it on eBay!). i'm not driving either way and she's really understanding so we're going to pick up the car then play in Philly for as long as my energy allows. she says it's no biggie if i am too tired to do much, she is just glad for the company on the ride back! (we'll drive up with her father) i'll probably link up with my brother while we're up there- that's where he lives.

anyway, that's it with me! how's the garden? wedding plans? you know, i'm going to miss you when you're on that boat for 3 weeks!



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Re: new doctor / cutting out sugar / what's new new
      #77853 - 06/10/04 07:59 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

That doctor sounds like a pain! I've find with my Fibro that when I'm bad, I HAVE to rest. I've done the whole drag-yourself-into-work thing and it makes me WORSE. I end up needing a week off to recover. I'm still learning to pace myself.

I really need to get myself a rheumatologist and make this "official"! yet another thing on my list of things to do after the wedding.

Alcohol makes me worse sometimes, but so far I've refused to give up my occasional glass of wine! My IBS is fine with it and it relaxes me...can you tell I'm trying to convince myself? I don't THINK I'm sugar sensitive.

Poohey on the job front. Going to Philly sounds cool though- take a comfy cushion and you'll be laughing!

My garden is...progressing. I've killed loads of weeds, now I just need more lawn seed and feed to patch the holes! Maybe this w/e I can start digging flower beds. We've got some amazing roses though - I lurve them.

Wedding plans seem to be going backwards. Found out today that the singer who's supposed to be performing at the reception (friend of a friend) has pulled out as she's got a major gig lined up. Hmmph! But I finally invited a colleague I meant to ask two months ago! And I bought cards at lunchtime for invites to my hen-pyjama-party! Wanna come? I wish you guys could. I lead such a sad life nowadays that I have more online girlfriends than I know in the flesh!

Re. the honeymoon. I don't think I've convinced Simon that he can survive for 3 weeks without email, so I might not be away for very long!



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Re: new doctor / cutting out sugar / what's new (Butting In Again) new
      #77861 - 06/10/04 08:13 AM
Dimples

Reged: 04/01/04
Posts: 346


Hi Jen,

Know you didn't ask this buttinsky, but since I did always do insurance when I worked and disability was one of the things I did, wanted you to know that you WILL number one find a doctor who KNOWS what you're going through and number 2 will know you have to be out on disability with it sometimes.

Sounds to me as though she doesn't know enough about your condition to even treat you for it. You need someone who is more up to date on this. Believe me I am speaking from experience because if I had doctors who knew what they were doing when I had different problems I wouldn't have needed as many surgeries as I have had.

I wouldn't have almost lost my life about 3 years ago either if I had been diagnosed correctly when I first went to the ER so DON'T let anyone try to make you think it's all in you head.

There are soooo many new diseases out there now and doctors need to do their homework more. Even with the IBS I know there are people on the boards who know more than the doctors do. The same thing with your FIBRO. Because they don't know enough about it they just dismiss it. You're a SMART COOKIE so don't let anyone tell you anything you know isn't true. The problem today is doctor's think everything is in Women's minds, not their bodies.

When you don't feel well you have the doctor write your notes so you can go out on short term disability at work when you need to. I'm glad you have it at work. Not too many companies even offer it like they did years ago. (Now remember I don't go back to Abraham Lincoln's Day) LOL but more companies offered it more just a few years ago.

Take Care,
Hugs to YOU!!

Pat

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