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Laura
Keep it simple!
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WOW!
#70695 - 05/15/04 02:43 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Well, what can I say to you, Jen, except I'm so sorry you're going through this. I feel terrible that ANYONE has to go through this, and it amazes me that you and LS -- and anyone else with this horrible disease -- can get through your day as well as you do. (LS has one day in bed, the other working out! WOW! Sure makes ME feel lazy! Don't tell her I said that though.)
Any kind of suffering that others go through affects me something terrible. One time, about 10 years ago, I was clothes shopping with a girlfriend at a little boutique in San Francisco, and we were being waited on by a little old lady, immaculately dressed, with a pretty smile and a kind look on her face. I happened to glance down at her arm and saw a number tattooed on it. I tried not to stare, but I feared the worst. She caught me. She looked at me, smiled, and said, "Yes, I survived Auschwitz." I couldn't help myself. The tears just ran down my face. She hugged me. Can you believe it? SHE was consoling ME!
I'm such a baby.
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Thank you Gerry. I hope your "next" day is better too.
You are an "A" since you fluctuate from "C" to "D". I've never had the "D" problem except when I did the foolish route of Milk of Magnesia..................OMG............then it was "D" for a couple days. I'll never do that again. 
Kandee
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This was fantastic JenX. Thanks so much for posting. It gives all of us more of a first hand idea of what you and others go thru...not the textbook version.
Quote:
(note: it appears that "messing with" seratonin levels can impact both IBS and fibro, though it doesn't really cure it or even make it 80% better in most cases. seratonin is....you guessed it! a neurotransmitter! i think once we find the right neurotransmitter or combo of them, we'll be on our way to better pain management in these illnesses.
Oh boy, I think you hit the nail on the head. I think we are in the infant stages when it comes to neurology and what affects what. Of course there has to be some money in it for it to get the research it deserves, and I don't see that happening right away...........it's sad. 
Kandee
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Laura Sue
#70753 - 05/15/04 08:11 PM
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Kandee
Reged: 05/22/03
Posts: 3206
Loc: USA, Southern California
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LS, Queen for a Day????? LOL.........yes, I remember well the show........you see I'm older than you but a tad younger than bevrs.
And yes I remember the "pity party hat" that JenX had as the doggy with the LS-Santa hat.............cute!!!
Have to admit, what I have it NOT a migraine. I've had those about 12 years back. I was, at the time, using the "pink stuff" in my ice tea, long before the IBS days. I started to get unexplained migraines.................ewwwww, that kind where you lay in a dark bedroom, curled up in the fetal position, and keep thinking you must have a brain tumor? Well, being wheat allergic I thought that it had to be something I was consuming, and consuming a lot of. I gave up the pink stuff and it took 2 weeks for it to get out of my system, but eventually it did, and the migraines went away. About a year and a half later I was watching a medical show on women's health issues...........sure enuf the topic was "pink stuff" causing migraines.........bingo..........I had my medical explination.
Anyway, these blasted headaches that just never go away are very strange, tension type for sure, like the top of your head wants to make it's own space exploration, but then the pains go down into the jaw, both sides. Weird feeling. I finally ran across yet another article on this subacute thyroiditis that said there can be jaw pain too. Anyway, you are soooooooooo right, "This too will pass". I'm just a type "A" behavior and for me to wait it out for up to 6 months, (it's been 2 already) just makes me mad, sad, worn out, and a whole lot of other emotions.
And now I can relate to you and JenX with the fatique.......guess the elevated white blood cells and antibodies roaming around do that. Seem like where I could go like a steam engine normally, I've turned into the "little engine that could". Remember that story?
Anway, thanks again for your kind words...........you're always there for someone who's having a bad time of it......I love your compassion!!!!
Kandee
(hoping to be sassy once again.......hehe)
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Ok, I'm lost, what's a head ache band? Where do I get one? Sounds like something I need!!! You keep it in the freezer you say? I have a ton of those crystals, (somewhere, since I made lots of those neck thingies for friends years ago) that used to go in a neck band that when soaked in water and kept in the refrigerator it supposedly stayed cool. You don't mean those do you? As far as I know those only get hard as a rock when frozen.
I've been taking JenX's advise and putting cold gel packs on the back of my neck. If I lay down with them it helps a bit. I read where you need to CONSTRICT the blood flow, not increase it....it THAT true?
Have you noticed that when you have one ailment that flares up, the other follows suit? My IBS was under such great control, but with this other junk it too is flaring up.........
Oh, your poor dad...........I can imagine what it is like for him. Men are "fix it" people.....as in "state the problem lady and I'll fix it and we can all get on with our lives". They feel absolutely helpless when they can't fix something we have.
And the heat/cold thing. I can so relate. Last summer when I was just getting better from the IBS, with Heather's help, I was still THIN.........I could endure the heat like nothing.......got out and did yard work in 90-100 temps. Not this year. I'm both cold sensitive (and catch a cold just like that) or am to hot. Hmmm, maybe we should go to Hawaii where the temp is the same all the time...wanna go? LOL
You're idea for a smoothie is a good one........it's a comfort food for me. In fact I think I hear a date smoothie calling my name!!!!
Again, thank you for all the kind, sympathetic words.......it really helps........wish I could be more like you all are............ALL the time!!!
Kandee
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JenX....
#70758 - 05/15/04 08:43 PM
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Kandee
Reged: 05/22/03
Posts: 3206
Loc: USA, Southern California
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Jen, I was on the hypothyroid site at About.com and that's where I found the article. Unfortunately I don't think I saved it, but will look. That site is like the Celiac.com one....you can start digging and get into article after article.....and then when you go back it is a bear to find. Nonetheless, I'll try and retrace my footsteps......or rather key strokes and see if I can find it for you. It said something to the affect that there are schools of thought that believe that hypothyroidism and fibro are cases of long term undiagnosed celiac disease. Since there seems to be a connection with gluten avoidance and fibro and hypothyroidsim it makes one wonder, doesn't it? It too, seems that Celiac disease is increasing at an alarming rate in this country. Are we just now getting serious about diagnosing it? I dunno. I FIRMLY believe that there are A LOT of people that are wheat sensitive that don't even know it, and feel lousy because of it. There are a lot more questions out there than answers, unfortunately.
Kandee
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Kandee,
I didn't know you had this. My mom had a nasty viurs in her thyriod about 4 years ago, and it either caused or was caused by subacute thyroiditis. I'm not really sure of which came first. It was so inflamed that when my parents were out for dinner with another couple, their doctor friend noticed it from across a dining table. Poor thing -- she had a fever for 32 days, her hair was falling out, she was losing muscle mass. I was so scared for her! It's all gone now, but I think she still needs to take beta blockers sometimes for her heart, but I don't really understand the details. Anyway I hope you don't feel nearly as sick as my mom did, and I hope you get batter like she did.
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Amanda
I live in the Big Apple, but I don't eat the skin
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