SUPER SAD......
#62260 - 04/17/04 09:01 PM
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LEILAGIRL
Reged: 04/17/04
Posts: 9
Loc: HOLLYWOOD FLORIDA
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HI...IM NEW TO THIS WEBSITE.....WELL I HAVE IBS ...I WAS DIAGNOSED 4 YEARS AGO....I ACTUALLY THOUGHT I WAS DYING AND WENT FOR MAJOR TESTS ONE OF THE TESTS RESULTED IN A DOCTOR REMOVING MY GALLBLADDER AND ANOTHER TEST CALLED A ERCP RESULTED IN ME GETTING PANCREATITIS.........I HAVE NOT HAD A BOUGHT OF IBS THIS BAD IN 4 YEARS.....JUST RECENTLY ABOUT A MONTH AGO...MY STOMACH STARTED ACTING UP AND TODAY I AM HAVING EXCRUTIATING SPASMS IN MY STOMACH AND COLON ,I WAS SEARCHING THE WEB AND CAME UPON THIS WEB SITE.....THANK YOU SO MUCH FOR ALLOWING THOSE OF US THAT ARE UNFORTUNATE THAT HAVE IBS TO KNOW THAT THIS IS NOT AN INVISIBLE SICKNESS OR JUST A ILLNESS THAT IS JUST IN OUR HEAD....WHEN I WAS FIRST DIAGNOSED THEY TOLD MY FAMILY IT WAS ALL IN MY HEAD AND THEY MADE ME SOUND LIKE A HYPERCONDRIACT...WE WHO HAVE THIS NO THE DIBILITATING RESULTS THAT WE LIVE WITH.....IM JUST REALLY SCARED...AND I DONT KNOW HOW TO GET IT UNDER CONTROL IM IN ALOT OF PAIN AND WILL NOT GO SEE A DOCTOR.....PLEASE HELP...I COULD USE ALL THE ADVISE U ALL HAVE.....SAD GIRL.
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Hi Leilagirl, First of all, welcome to the boards, I'm sure you'll find a lot of helpful information here. I'm sorry that you're feeling sad and lonely, I'm sure a lot of us have been there at some point in time (I know I have) but I'm sure you'll be feeling better in no time  As for some suggestions, have you read through the information on this site? Do you have Heather's books? There's a lot of excellent information here on dietary changes and other things that you can do to help your IBS.
If you're feeling really sick right now, consider trying the "What to Eat When You Can't Eat Anything" diet. Basically it's just about helping settle your tummy down so that you can feel better and slowly start incorporating back other foods. You can read about it here: http://www.helpforibs.com/diet/what_to_eat.asp
Do you have any of the herbal teas? Fennel is great for gas and bloating, and peppermint really helps the cramps, and I would highly recommend trying them to help you feel better.
Also, do you take a fiber supplement? It's really helpful to take a fiber supplement everyday, not just when you're having attacks. I used to take Metamucil all the time but foudn it caused me a lot of gas and bloating, but now I take Heather's Acacia and I absolutely love it! You can read about soluble fiber here: http://www.helpforibs.com/supplements/sol_fiber1.asp
The best advice I think I can give you personally is that if you do try Heather's diet, really give it an honest shot, cutting out all triggers and not cheating. It's hard to cut out some things (I'm really struggling with caffeine and chocolate) but it really makes a difference. And give it time, because it does take time. I almost gave up awhile back but am still plugging away, and I'm finally starting to feel a bit better.
Good luck and I hope that you feel better soon! Kelly
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Nice Post, Kelly
#62284 - 04/18/04 07:30 AM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Girlfriend, you've come a long way. I remember when you first came on board. You seemed so lost, struggling -- but open to suggestions -- and look at you now! Very helpful post, all good stuff in here. You should feel very proud of yourself. Who needs chocolate and coffee, eh?
Bev
-------------------- <img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Welcome
#62285 - 04/18/04 07:34 AM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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I really can't add any more to what Kelly has already told you, but I wanted to welcome you to the Boards. You'll get a lot better here -- just keep asking questions. Lots of helpful, knowledgeable people who have been there.
By the way, you might take off the caps lock key for future posts. It sounds like your yelling at us.
Again, welcome!
Bev
-------------------- <img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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You'll be glad that you found this "community". The information, friendships, suggestions, and support are priceless here. Let me assure you that we all know what you are going through....the frustration, the pain, the wanting to feel good and normal. And let me assure you, too that things do get better by utilizing the tips and information found on this site. Sure...we all still have our bad days, but we also have many more good days. We support each other when no one else will listen because we have all gone through the same things and know what it's all about. So sit back....take in all the information you can and put it to work...because it really does help. And once you get your system back on track....you'll feel like a whole new person. And for those bad days or good days we are all here for you. {{{{hugs}}}}}
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Welcome!
#62292 - 04/18/04 08:50 AM
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jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
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Welcome to the boards! Glad to have you here. Kelly said just about all that needed to be said, dietwise. I just want to let you know you're not alone... we've all been there (or are there now!) and we're here to help and commiserate!
Here's a little info to help you navigate the site:, though Kelly already covered much of it! Welcome Info.
Welcome Aboard!
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Thanks Bev!
#62320 - 04/18/04 10:56 AM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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I'm learning...now if I could just start to figure out how to navigate the kitchen so I could stop eating just rice and tuna...I'd be all set!
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THANK-YOU SO MUCH ALL OF YOU..IM GLAD I HAVE SOMEONE TO TALK TO ABOUT THIS....THIS IS A VERY LONELY ILLNESS....IM TRYING TO GET MY BOWELS TO ACTUALLY MOVE THEY ARE MOVING EITHER TO SLOW OR TO FAST...I SOMETIMES DONT KNOW WHICH IS WORSE....I WENT TODAY AND BOUGHT FUNNEL TEA ...I WAS WONDERING? WHAT DO U ALL THINK ABOUT ALOE VERA TABLETS CAUSE IM SO UNSURE ABOUT EVERYTHING AND ANOTHER question...sorry i forgot to take the cap lock off...if i start to follow this regamin how long before my system starts to work i mean i feel terrible...very weak and bloated and in pain from my colon spasms......it hurts the most in the lower right corner of my tummy..i guess were the large and small intestines meet...oh and by the way....i want u to know that im so glad i found u guys....thanks for welcoming me the way u all have ...let this be my godsend.
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Thank you so much....i feel a little better knowing you guys are here for me to talk to....i asked for a an answer and i found u guys,i hope that all the suggestions in here will bring my body to a level where i can function .im going to try to order the acacia...hopefully that will get things moving a bit....but once they move i start to spasm there is no happy medium...but agai thank you all.
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Hi....thank-you so much for all the information....you are so sweet....i went to the store and bought some funnel tea and i also want to buy the acaia but what can i use in the meantime i was trying rasin bran and i dont know...im so confused....i will do anything to feel better a least functional....im glad i have u guys...maybe u all can help get my body on tract.
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