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somedays Michelle its very hard to just get out of bed. Trust me I know, but you need to push your self because your worth it!! Just keep telling your self that!! Keep your mind on those adorable puppies I saw in your other post. They too cute.. Love the blue bow
Just know your not alone going through this **hugs**
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IBS-C gas, bloating and acid reflux
Babies is the plan for 2008!!Hope this IBS cooperates.
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Oh my, very difficult some days. When I was at my worse, I had to have hubby help me as our bed is low to the ground and my body would be so stiff in the morning! I am improving though-I have had some terrible tummy pain from IBS the last week or so and when that alarm went off an hour earlier this morning so I could work out, I almost cried. But, I forced myself up and did my scheduled work-out anyways and at least felt better mentally for doing it! Now, if that darned scale would start moving, It would make the diet and exercise a little easier to bear!
Yes, aren't my fur babies cutie pies??????  I love'm to death and there have been days that they were about the only thing to keep me going. Animals can be such great therapy!
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Taking it one day at a time.....
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I'm glad to hear you finally have a firm diagnosis, Michele, although I wish it was for something easier to live with and much easier to cure. I hope the avenues you're pursuing lead you to an excellent outcome.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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I am just trying to read, read and read whatever I can on the disease. Reggie White, a football player recently died from it. I have several heart problems and I am beginning to understand they are probably caused from the sarcoidosis. I definitely have the chronic form which is very hard to control. Hopefully the upcoming dr appts will help me to find the right treatment course for me.
I really want to go back to a few doctors that I have seen that told me it was just depression or being overweight and scream in their faces "I TOLD YOU SO!!!!!" A bit childish I know but........... 
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Taking it one day at a time.....
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Re: Thanks Sand
#322149 - 01/10/08 04:25 PM
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Sand
Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)
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Quote:
I am just trying to read, read and read whatever I can on the disease. Reggie White, a football player recently died from it. I have several heart problems and I am beginning to understand they are probably caused from the sarcoidosis. I definitely have the chronic form which is very hard to control. Hopefully the upcoming dr appts will help me to find the right treatment course for me.
I had no idea that's what Reggie White died of - scary, I'm sure. (I'm actually wearing my Super Bowl XXXI sweatshirt with facsimile signatures of many of the Green Bay Packers including White.)
Quote:
I really want to go back to a few doctors that I have seen that told me it was just depression or being overweight and scream in their faces "I TOLD YOU SO!!!!!" A bit childish I know but...........
Childish it may be but I'd feel the same way. On the other hand, nothing says "I told you so" like cold hard cash, so I'd first talk to a good medical malpractice lawyer or two. Even leaving aside punitive damages (which I think are justified for their combination of idiocy and callousness) and pain and suffering damages (which you certainly seem to deserve), you have incurred and will continue to incur actual monetary losses due to being misdiagnosed and mistreated for so long. Costs you've already incurred include lost pay due to missing work; money you paid for medical tests and treatments that were at best unnecessary and at worst downright harmful; non-mainstream treatments not covered by medical insurance that you tried in desperation; costs of psychological counseling to get over your supposed depression; heck, even costs for marriage counseling.
Costs you may incur in the future could include more extensive treatment than might have been necessary if the disease had been caught and treated in a timely fashion; working with a physical therapist or medically-supervised exercise to get over the effects of being debilitated for so long; and long-term consequences of the scarring you may now have (which could include impacts on your ability to work).
I don't know if you have a case - the law is truly weird - but I think it would be worth looking into. On the other hand, if you're absolutely sure you don't want to go the malpractice route or a couple of lawyers tell you don't have a case, then I'd definitely let my old, bad doctors know what's going on. I'd probably forgo the personal visit to say "I told you so" - satisfying though that would be. I would, however, very, very definitely get a copy of my current tests results and diagnosis and mail them to every bad doctor you've ever seen with a note saying something like, "When I saw you for help with my illness, you told me I was just fat and depressed. It turns out you were about as wrong as it's possible to be." Then the doctors can at least sweat a little over whether you might be going after them in court. And who knows - maybe they'll even have the decency to apologize and resolve to treat any future patients better.
All that aside, though, I do hope you find a treatment that helps and you can get your life back on track.
Take care.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
Edited by Sand (01/12/08 04:54 PM)
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