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Re: lauren new
      #321664 - 01/04/08 01:49 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Glad to know I am not the only research freak! LOL! When I get onto something, I can not let it go until I feel that I have learned as much as my brain can absorb!!!

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Taking it one day at a time.....

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Re: diagnosis of the day new
      #321668 - 01/04/08 02:28 PM
Susie2

Reged: 08/07/06
Posts: 158
Loc: Pomona California

Next week I start the doctor rounds again, knocking out 3 in one week. I had been cancelling them all because I didn't get my labs done and was just too depressed to deal with it. I did call and go to the pdoc. Am trying the Emsam patch.

I had been doing well with the diabetes getting the numbers down, lost 5 pounds, my primary doc was pleased, but the darn endocrinologist said that wasn't good enough and I would have to go on medication. And with this stupid IBS I would have a hard time tolerating the oral meds so she wanted to put me right on insulin. I said no and she said was writing a report to my primary. I think that is when I got depressed and figured the heck with it. Put the 5 pounds back on and watched the fasting bg creep up. My primary won't put me on meds until my A1C goes to 7. Last reading was 6.3. I think the endo must get kickbacks from the drug companies. I don't know if I'll go back to her or let my primary handle it. My primary ran ANA and a few other things when my sed was up to 98. They were fine. She saw no need for a rheumy. But the gastro thought I should go as he, of course, couldn't find anything wrong with the digestive system other than the usual stuff I have, so he is writing my primary. The neurologist thinks I should see every specialist in the world (or our area), but she doesn't write letters.

So, yesterday when I went out to Target to buy my heating pad, I also bought a grill pan/panini press. Perfect size for two people. Then to the store for healthy veggies, yogurt, fruit, some meat and chicken to throw on the grill pan. No candy bars, cookies, cakes (although I have a bunch of mixes from the 79 cents a box sale at the supermarket). Always can donate them to the food bank.

This Emsam patch (it's an MAOI) has picked me up but I am more anxious and hyper. pdoc says that will go away. So maybe I'll take the dog on walks more, eat healthier, and get those numbers down. Thanks for asking.

Susie

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Re: Just an update new
      #321669 - 01/04/08 02:59 PM
emmasmom

Reged: 09/22/06
Posts: 1710
Loc: ILL

my heart goes out to you! I have done the same thing since I had my miscarrigae the more info I have the more I know what to do with it you know? I am doing ok I still have my days but don't we all I hope you fine all the answers you need. Take care and keep us updated and god bless! Big Hugs xxxxxx
emmasmom
ibs-c

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Re: Just an update new
      #321672 - 01/04/08 03:44 PM
Lisa Marie

Reged: 07/17/06
Posts: 1566
Loc: Lakewood, CO

Hey there, I'm also a migraine sufferer. Have you thought about seeing a chiropractor? Mine have decreased quite a bit since I started getting adjustments. Just a thought!

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~~~~~~~~~~~~~~~~~~~~~~~~
Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)

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Patient Advocate! new
      #321680 - 01/04/08 07:47 PM
hawkeye

Reged: 06/16/03
Posts: 705
Loc: NYC

Michele,
I love Susie2's response to you. Its true that you could be a patient advocate, and probably an MD, RN or whatever else you'd like to be, and help a lot of people. You have a strength in the face of illness, no matter what your "cake eating moments" may be like, that all of us really admire. As someone who crumbled this evening with a regular old ibs attack, I'm certainly in awe of your fortitude. Maybe along with your medical research, you should consider a helping profession of some kind for the future when you've licked this thing.

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Ladies & gentlemen take my advice, pull down your pants and slide on the ice.

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Re: Just an update new
      #321688 - 01/05/08 04:24 AM
Mary_V

Reged: 05/09/06
Posts: 544
Loc: Grandville, MI

Glad to hear you're making some progress, Michele. Every little bit helps. I'm totally like you...I want to know everything possible when it comes to illnesses. I know there is plenty of bad info out there, but there is also plenty of good stuff. I hope you continue to make little steps towards a normal, pain free life. You are a very strong woman. Keep up the good work.

How are things with Will? Has he been more supportive lately?

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~Mary
Had surgery for rectal prolapse in Sept. '06 and feeling good now! Loving life with our IVF miracle #1.



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Re: Just an update new
      #321697 - 01/05/08 06:32 AM
auntdebs318

Reged: 10/18/07
Posts: 367
Loc: Yardley, Pa

Michelle,

I admire you, you a very brave woman with a lot of strength. Just know you are not alone and I hope you will be on a journey of better health soon. Keep us posted.

Lots of hugs,

Deb






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IBS-C gas, bloating and acid reflux

Babies is the plan for 2008!!Hope this IBS cooperates.

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Re: Michele - migraines new
      #321714 - 01/05/08 09:22 AM
Toady

Reged: 04/06/06
Posts: 1299
Loc: A small city, Northwestern Ontario, Canada

Unfortunately I have super low blood pressure - last week was 91/51. I have to drink 3 litres or more per day to keep my bp up. That and my shoulder injury years ago - I've had 2 major shoulder surgeries and my right side is still very weak. My neck and shoulder get so tight from typing all day that it causes migraines. I go to massage therapy every few weeks to help. Plus I have Maxalt to take. But I too need a dark room and quiet for it to go away. Unfortunately with my new job, it is quiet, but very bright and all florescent lighting which is KILLER on the eyes. I've asked them to put a darker screen over the lights above me or to take out a bulb but they haven't yet.

Hang in there sweetie - there's a cure out there with your name on it!!

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Cassandra

Live like there's no tomorrow. Love like you've never loved before.

IBS A 20+ years, Chronic Migraines, Chiari Malformation (decompressed June 22, 2010), Brachial Neuritis, and ??? the list just keeps growing, but I'm still shiny side up!

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Re: Lisa Marie new
      #321715 - 01/05/08 09:26 AM
Toady

Reged: 04/06/06
Posts: 1299
Loc: A small city, Northwestern Ontario, Canada

I haven't seen the chiro himself, only his rmt. I was told my neck isn't out of alignment by my rmt and my physio (had a slipped disk last May). But if my new job's health plan covers it, I'll go. Right now I'm still doing rmt which my hubby's plan covers. I'm strapped for cash right now as I took a big pay cut to take this job and bought a new truck a month before I was offered the job. Poor budgeting, but I can't see into the future (despite how hard I try!! )

I've done aromatherapy and different stuff too, it helps for a while but not enough. My chronic illness dr. suggested acupunture and detoxifying. Those are still on my list too.

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Cassandra

Live like there's no tomorrow. Love like you've never loved before.

IBS A 20+ years, Chronic Migraines, Chiari Malformation (decompressed June 22, 2010), Brachial Neuritis, and ??? the list just keeps growing, but I'm still shiny side up!

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Re: Mary new
      #321844 - 01/07/08 02:30 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Yes, Will has been better. We are in counseling and have had several BIG talks. I guess only time will tell at this point!

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Taking it one day at a time.....

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