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Re: Yeast and todays update new
      #303157 - 03/26/07 11:07 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Kim, the doc warned me I am probably in for a couple of bad months trying to get everything straightened out.

I have taken a diflucan pill and used the cream when it manifests in my crotch but apparently, once we get my blood work done, she will give me a script for an older medication, I forgot the name of it now though! LOL!! Two more sticks today and still bo blood sample. Trying the hospital tomorrow morning!

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Re: Yeast and todays update new
      #303158 - 03/26/07 11:09 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Gracie, I think its the steroids. I am in the process of weaning off them but it takes a long time, down to 5 mg at the moment. I started to modify my diet over the weekend!

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Re: Yeast diet and meds new
      #303160 - 03/26/07 11:12 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Isn't it just crazy the difference is prices. I found that when shopping for the lowest price on my bc pills!! I have taken a bunch of the generic diflucan and it clears up the crotch rot but it is still showing way high in my stool and blood.

Once my veins get stable enough, I will be getting the vitamin infusions like you were getting. They can't even get blood out though right now, let alone a bag full of stuff in!

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Re: Yeast and todays update new
      #303162 - 03/26/07 11:14 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I doubt I will every make a complete sugar free diet but I am working on reducing the amount. I won't be left with much to eat as I am not a veggie fan, fruits bother tummy, can't do dairy. I guess I will be eating a lot of boiled chicken and whole wheat pasta??!!

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Re: Saw the pain specialist new
      #303163 - 03/26/07 11:17 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Lumiere! Be sure to let me know how the accupuncture goes!! I have also heard it doesn't hurt. Yes, I was on bc pills for 15 years, than stopped for a few but was on hormones for fertility and I am now back on bc pills because the medications I have to take would cause extreme birth defects if I were to get pregnant. Personally, I think its the steroids causing most of the problems but I am slowly getting off those but it will probably be another couple of months to wean off them fully.

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YES vein sticks suck! new
      #303199 - 03/26/07 04:48 PM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

LOL! Reminds me of a story-- the girl next to me at the fibro clinic got the same IV bag I did. She was rejoicing when the nurse found a vein on the third stick, and said so. I was flabbergasted, not by what she'd said, but the mere fact I'd said the EXACT same thing earlier.

I turned to my mom and said softly, "I'm in the right place." Now I can't afford the treatments, but last year when I was getting them, it was nice to talk to the people around me, hear their stories, and get rehydrated all at the same time.

Sometimes, if the bag's going too quickly, you might get a little nauseous. Just lean over and adjust the dial on the line to slow it down. The bad feeling'll go right away.

~nelly~

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Re: Another visit to the vamphires new
      #303282 - 03/27/07 10:43 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

OMG, I am just so done. I spent another 2.5 hours at the lab. Heating blankets, another 4 sticks, I am literally black and blue from shoulders to fingers. I have a swelled up lump on the back of my hand the size of an egg, can't bend either arm for the bruising and swelling. Every time they hit a vein, it would blow.

They wanted 17 vials of blood, that would have beaten my old record of 13 vials. They ended up with 9. I am so tired, so weak, have had D, can't keep anything down and in pain. I am too weak to even cry.

There is no way they will even be able to do an iv transfusion on me anytime soon unless they put in a central line and with me being immune compromised, the risks are great. I so need to be home in bed. Can't even type anymore.

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Re: Another visit to the vamphires new
      #303286 - 03/27/07 10:52 AM
Lisa Marie

Reged: 07/17/06
Posts: 1566
Loc: Lakewood, CO

That sounds awful, Michele!! I'm so sorry. Can I ask what all this is for??

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Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)

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Re: Another visit to the vamphires new
      #303290 - 03/27/07 11:52 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

The list of blood tests was huge, I remember some sort of lymphoma and a few other cancer markers, all the vitamins-they think i am very vitamin deficient-anemia, some advanced thyroid tests since all other thyroid tests come back ok, inflammtion markers, something to do with the level of yeast in my system, diabetes-since I have neuropathy so bad, IGA, IGM-some sort of infectious thing, clotting disorders, full hormone level, fsh, on and on. A lot of this stuff has been tested at one point or another over the past few years but apparently these things don't always show up at first. The lab girl called me and said they should be able to make due with what blood they did get but if the treatments are going to be iv infusions, how the heck do they think they are going to do that????? I am just soooo tired and weak and hurting. I feel the fight is leaving me, I just want to sleep but can't sleep because I can't get comfortable enough because everything hurts.



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Re: Another visit to the vamphires new
      #303294 - 03/27/07 12:54 PM
Lisa Marie

Reged: 07/17/06
Posts: 1566
Loc: Lakewood, CO

Wow... I didn't know what neuropathy was until I just now looked it up. That sounds awful! How long have you been suffering from this? Any idea how it started? What are the IV fusion treatments and what are they supposed to help with?

Sorry for all the questions... Just tell me if I'm being too nosy.

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~~~~~~~~~~~~~~~~~~~~~~~~
Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)

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