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Re: Anything in equals everything out?! new
      #268712 - 06/10/06 07:21 PM
Janey

Reged: 10/25/03
Posts: 1716
Loc: Maryland

Michele,

I hope that you are feeling better and that you make it through your social commitments without incident.

Something has to kick in soon and start making you feel better.

Love and hugs,

--------------------
Janey

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Re: Thanks Girls-Update new
      #268896 - 06/12/06 11:55 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I got a nap in Saturday and took a couple of Vicodin and did go. I only picked at the food though. I strategically sat at the corner of the table, closest to the potty and had wipes in my purse. I only had to make two mad dashes and luckily there wasn't a line. We didn't get home until about 11:30 though and I was exhausted! I slept until 10 on Sunday and went to the shower, same thing, loaded up on Vicodins and just nibbled on some bread at lunch. I got the low down on the private bathroom but it was upstairs and my knees just aren't that well but luckily, I only had one blow out while there, tummy waited until I got home but then kept me on the potty for over an hour!

It seems to be settling a little. I had a few runs to the potty again this am but I've managed to keep half a turkey sandwich in. Saw the rheumy today and was pretty disappointed. First, they forgot to mark my appt in their book, I showed them my receipt with today appt printed on it and a separate appt card a girl had written out and the crabby receptionist said "well, I suppose we can try to work you in." They screwed it up, not me!! Then the doc walks in the room and says "didn't I just see you last week, what do you want?" Ok, [censored], I'm miserable and you made me wait until you did a bunch of blood work before you'd let me try the new medication so I'm here for the script. He was like, "oh, so you still want to try the Imuran?" I said, well, unless they have come out with a miracle cure in the last week, yeah...something has to be done! We agreed that I'd stay on the 10mg of prednisone (steroid) along with everything else for now. Steroids are bad to be one for very long and cause moon face (where your face blows up and looks like a full moon) not to mention weight gain, acne, bone loss, glaucoma-the list goes on but its the only thing thats giving me any relief right now. The Imuran can take 6 weeks to 3 months to work, how come none of these drugs can work any faster??!! He suggested a see a gastro guy for the gastritis and get another scope done but I just don't have the energy. All they will do is say "yep, its gastritis, take your Previcid and Nexium" So, unless I start spewing blood or the pain gets worse, I'm just going to wait a bit. I've had about all the doctors I can take for now!

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Taking it one day at a time.....

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Re: Thanks Girls-Update new
      #268932 - 06/12/06 01:28 PM
jen1013

Reged: 05/06/05
Posts: 1322
Loc: the wabe

Oh, Michele! I'm so sorry you're feeling so awful right now. Your doctor sounds like a real jerk! He doesn't seem like he cares about how much you're suffering, either. Any chance of switching doctors? I know how exhausting it is, but it seems like you've done nothing but get worse and worse under this guy's "care".

By the way, I tried both Prevacid and Nexium (for reflux) and they gave me horrible horrible D. I ended up on Aciphex and I loved it -- no side effects whatsoever and it worked great with my reflux. I don't know how well it works for gastritis, but I believe that Michelle (ecmmbm) took it for gastritis and had good luck with it. Or maybe I'm just imagining that. Anyway, maybe that would be something to try to help w/ the gastritis/diarrhea.

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jen

"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC

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Re: Thanks Girls-Update new
      #268946 - 06/12/06 02:43 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I never thought about it but you are right both Prevacid and Nexium list D as a side effect. Ive taken prevacid before without any issues but maybe the two drugs together are just too much for my system!

I actually have an appt scheduled at the end of the month with a different rheumy for a 2nd opinion. She is a woman dr and I'm hoping she will be more compassionate! I guess I could put up with a crappy bed side manner if I felt that I was getting better.....

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Taking it one day at a time.....

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Re: Thanks Girls-Update new
      #268964 - 06/12/06 03:30 PM
hohoyumyum

Reged: 05/28/03
Posts: 2263
Loc: SacTown, CA

I'm glad you getting to see a new doc. The one you have now does sound like a jerk. As always, I hope you feel better soon. I hate feeling so helpless when people are feeling so badly.

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***********************
If you're not dead, you've still got time.



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Re: Thanks Girls-Update new
      #268996 - 06/12/06 05:24 PM
Angela E.

Reged: 10/14/04
Posts: 2518
Loc: Michigan

I am sorry I am late with this response but as you know I was sick this weekend with the flu. Honey I wish that I knew what to say. I hate reading about how much pain you are in. Just keep pushing on like you are and remember to be your advocate. As far as the nurses in the office there always seems to be one in every office. You did good giving it right back to her. I hate the way that can act so snotty sometimes. I really hope you get your D under control. Did your friend like her gift you made her?? Hugs and love!!

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Re: Thanks Girls-Update new
      #269113 - 06/13/06 08:07 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Angela! Yes, my friend loved the stuff I made for her! I should have taken a picture! I made her a hair comb with fresh water ivory colored pearls and swarovski crystal. Then, I took 8 bobby pins and added the same pearls and crystal to them so when she puts her hair up, she can have little dangley's hanging down like she wanted! I made her a memory wire necklace, bracelet and earrings with the same pearls and crystals. I felt a little funny because I didn't realize the bridal shower was a couples thing and the gift was just for her but I think it was fine anyways! I told her soon to be hubby that I'd make him a matching necklace and hairpiece if he wanted!

The D is still out of control, its 11:05 and I've counted 12 potty trips so far this morning! I'm down another 2 pounds though! The rheumy wants me to see a gastro guy but I just don't think I can handle any more appts right now, let alone all the tests that they would want to do that I had done a few years ago. I'm tired of being poked, picked and proded and still feeling like crap (pun intended! )

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Taking it one day at a time.....

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