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Pages: 1 | 2 | 3 | 4 | (show all) Saw the RE this am!       #256153 - 04/04/06 09:53 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan She was very nice. She listened and looked over all my files I had brought. Basically, she agrees that its my immune system killing my babies. She said the being on the immune-suppressant drugs for the RA and getting the RA under control should help. Once I'm feeling better, she suggests that I taper off the placquenil but stay on the drug he added yesterday, the alzulfidine (sp?). I will also have to taper off several other drugs, like the Ambien and Previcid. She ordered a cycle day three FSH level (to check ovarian reserve)and another thyroid test. I'll have these done next month, just had my period last week! Since my mom and grandma both have thyroid issues and pregnancy puts a strain on thyroid, she will also check it every month when I'm pregnant! Then, when I'm ready, she will put me on prednisone daily and heparin injections through out the pregnancy. Reproductive Immunology is very new but the leader is a Dr. Behrs and she agrees with his theories. The prednisone will help protect the baby from my immune system and the heparin injections are a type of blood thinner to be sure that I'm not passing any clots and that my body isn't interfering with the blood flow between me and baby. The lab report from my twins showed that the placenta was under developed which leads her to think that there may be some sort of clotting issue even though all the current tests they have can't detect anything. These treatments are relatively experimental for the use of repeated miscarriages but it seems to be the right course of action from everything I've read and other women I have talked to. So, the plan is to give the RA medications a few months to work and when I'm feeling better, I'll start to reduce the medications I'm on. Then, I'll go see her again and start the prednisone and heparin injections. She doesn't feel that the fertility drugs will make any difference, which is great because I had pretty much already decided I wasn't going that route again. So, now I just need to feel better so we can move forward. I'm hoping to taper off some of the medications this summer and start trying this fall. Also, my tummy seems to be doing a bit better today! SO, overall, I'm feeling a little better about the future! I'm still having some issues breathing but the new medications he gave me seem to be helping that also! Thanks for everyones continued support!! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256157 - 04/04/06 10:00 AM Edit Reply Quote Janey Reged: 10/25/03 Posts: 1716 Loc: Maryland Michele, This all sounds like positive news and I am happy for you. You seem to be in a much better place emotionally and that is a positive. Sounds like you are very lucky to have found your new dr. and that she has some great ideas and ways to help you have a baby without all the fertility drugs and stress. It also seems that you are on the right road to getting your RA under control and to be able to live pain free. -------------------- Janey Print     Remind Me     Notify Moderator     More good news!       #256169 - 04/04/06 10:21 AM Edit Reply Quote bamagirl Reged: 04/02/04 Posts: 1407 Loc: Alabama This is great, Michelle! It sounds like the right doctor for you all around! I hope you continue to improve on the meds you received yesterday and that you will soon be feeling much, much better! Thanks for keeping us updated .... I love to get good news! -------------------- God is Faithful! Print     Remind Me     Notify Moderator     Re: More good news!       #256170 - 04/04/06 10:24 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Bamagirl! I feel much better about things, she was really nice and I liked her approach to things! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256171 - 04/04/06 10:25 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Janey! This approach will be much less stressful then all the fertility drugs however I've heard the heparin injections hurt but at least they won't make me hormonal like the hormone treatments did! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Wow, great!       #256200 - 04/04/06 12:05 PM Edit Reply Quote epa_ginger Reged: 02/23/05 Posts: 1158 Loc: Chicago, IL What your RE says makes a lot of sense. And who knows, maybe through your trials, other women will benefit from your results. I'm sure you're not the only woman with this problem, maybe other women have just given up. I think it's great that you're taking your doctors advice and going forward. -------------------- Print     Remind Me     Notify Moderator     Re: Wow, great!       #256202 - 04/04/06 12:14 PM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Epa Ginger! I know I'm not the only one as I also frequent a repeated miscarriage support board. I think its all about finding the right dr for your specific problem. This is all new stuff and still considered experimental but isn't that how all medical treatments start off?!! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256208 - 04/04/06 12:30 PM Edit Reply Quote Dr. Spice Yamin Reged: 04/15/04 Posts: 3286 Loc: Maryland sounds like good news michele! congrats! I hope this works for you! -------------------- Print     Remind Me     Notify Moderator     Re: Thanks Dr. Spice! nt       #256210 - 04/04/06 12:36 PM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Some answers       #256229 - 04/04/06 01:48 PM Edit Reply Quote Augie Reged: 10/27/04 Posts: 5807 Loc: Illinois I hope this doctor can help you and Will, Michele. And, I'm glad you're feeling better! -------------------- ~ Beth Constipation, pain prodominent,cramps, spasms and bloat! Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256237 - 04/04/06 01:56 PM Edit Reply Quote lalala Reged: 02/14/05 Posts: 2634 The information you received from your RE sounds very encouraging! It was interesting to read that an underdeveloped placenta may be due to some sort of clotting issue. Aren't autoimmune disorders and clotting disorders sometimes related or overlapping? I'm glad you're feeling better and I hope you continue to feel and get better. It's so good to hear that you're getting answers and help from your doctors. Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256271 - 04/04/06 02:24 PM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Maira, its unknown if clotting and auto-immune disorders are related but I'd have to think they are. The area of reproductive immunology is very knew so they don't have too many answers yet! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Some answers       #256272 - 04/04/06 02:26 PM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Augie! I'm sorry you are still struggling so much. I've been reading your posts in the diet section but I don't have any answers. I don't know much about osteoporosis but hope you find a solution soon! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256273 - 04/04/06 02:27 PM Edit Reply Quote JLL24 Reged: 09/23/04 Posts: 312 Michele, That's great that this RE had some answers for you, it sounds promising Jenn Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256277 - 04/04/06 02:30 PM Edit Reply Quote Yoda (formerly Hans) Reged: 01/22/03 Posts: 3682 Loc: Canada I've said this a billion times, but your strength and courage never ceases to amaze me. Were you wonder woman in a different life????? Sending lots of good thoughts and hugs your way. Know that I'm thinking of you lots, and hoping for good things in your future! XOXO, A. -------------------- Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3. Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256278 - 04/04/06 02:33 PM Edit Reply Quote Vicam Reged: 02/24/04 Posts: 1955 Loc: Ontario, Canada Hi Michele, I'm glad that it sounds like you're on the right track and should be getting some answers soon That's really great news. I hope the drugs get the RA feeling better really soon so that you can try again. Print     Remind Me     Notify Moderator     Wow... I learning a lot       #256331 - 04/04/06 05:50 PM Edit Reply Quote Sailing Away Reged: 03/31/05 Posts: 304 since I had no idea about reproductive immunology. I am glad that you a great doctor who is out there researching options for you and putting effort into making you healthy. I wish you the best with getting everything under control. RA is a miserable condition to deal with...I have had it in my back for the last 20 years (I am only 30) but the medications that are coming out are doing much more to help making getting up everyday. Now if they could only make them not have such a nasty after taste. I wish you the best! *hugs* Michelle Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256338 - 04/04/06 06:14 PM Edit Reply Quote Angela E. Reged: 10/14/04 Posts: 2518 Loc: Michigan Wow! At least you got some positive answers. I read alot about these kinds of things when I was waiting for answers. I looked at alot of what Dr. Beehr had written. It's pretty amazing all the things that are out there. You know I am always thinking of you and hope that when you try again that you will have success! Love and hugs!! Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256468 - 04/05/06 10:51 AM Edit Reply Quote jen1013 Reged: 05/06/05 Posts: 1322 Loc: the wabe Sounds like you're making progress! I hope the meds help SOON so you can get the RA under control and start TTC again. It would be great if you didn't have to do the fertility drugs -- they sounded pretty miserable when you posted before about them. It seems like life is always a little easier when you've got a plan, even if the stuff that happens along the way isn't so great. -------------------- jen "It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256471 - 04/05/06 10:55 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Yesm Jen, your absolutely right, life is easier when I've got a plan! The new drugs, especially the prescription nsaid medication I just started really seems to be helping the RA! I've felt bad for so long, I still need a little time before jumping into fertility again but maybe late summer/early fall! I definitely don't want to go through the fertility treatments again, it may take a little longer to get pregnant but those meds were just brutal! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256472 - 04/05/06 10:57 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Angela! It really is amazing at all the different things that have to be just right to have a baby, its a wonder the world is so over populated! LOL!! I think I remember you saying that you would have to do the heparin injections also? -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Wow... I learning a lot       #256473 - 04/05/06 10:59 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Michelle! Yes, RA is nasty. The two new drugs the rheumy doc gave me do seem to be helping more than just the placquenil so hopefully I can get it under control before too long! My meds don't really have an "aftertaste" but they do give me awful cotton mouth and make my eyes even more dry the usual! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256475 - 04/05/06 11:00 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Kelly! I feel good about the new plan! Hopefully we can get the Ra under control and can procede! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256477 - 04/05/06 11:02 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Alicia! I'm thinking my wonder women belt may need a recharge here before too long?!! I have good days and bad, I guess just like everyone else. I do feel better knowing the options and having a plan, it gives me focus I guess! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256478 - 04/05/06 11:03 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Jenn! Its a very new field but lets hope they are on to something!! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Hmmm....       #256618 - 04/05/06 07:42 PM Edit Reply Quote Sailing Away Reged: 03/31/05 Posts: 304 I will have to go with the nasty aftertaste than have the cotton mouth and dry eyes. I know that once they found the right combination for my RA that it took about a month til I felt like a new woman! Now I really only feel it when there is severe weather changes (this past week with the storms), which is much better than every day. I will keep you in my thoughts! Michelle Print     Remind Me     Notify Moderator     Well, I must say       #256621 - 04/05/06 07:49 PM Edit Reply Quote _Willow Reged: 04/06/05 Posts: 2090 Loc: Canada. that sounds excellent! Finally you're coming upon some answers, sweetie! I still very vividly see mommyhood in your future. -------------------- Keep on keepin' on... Print     Remind Me     Notify Moderator     how did I miss this.. thats wonderful news!       #256639 - 04/06/06 04:37 AM Edit Reply Quote khyricat Reged: 08/05/04 Posts: 3612 Loc: Michigan I hope it all works out for you.. -------------------- Dietetics Student (anticipating RD exam in Aug 2010) IBS - A Dairy Allergic Fructose and MSG intollerant Print     Remind Me     Notify Moderator     Re: how did I miss this.. thats wonderful news!       #256665 - 04/06/06 07:08 AM Edit Reply Quote cailin Reged: 08/12/04 Posts: 3563 Loc: Dublin, Ireland Michele, I'm only seeing this now too, it's great that you are going to be getting proper treatment and that you have new hope. I'm delighted for you. Best of luck, -------------------- S. Print     Remind Me     Notify Moderator     Re: Thanks Amie! nt       #256682 - 04/06/06 08:05 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: how did I miss this.. thats wonderful news!       #256683 - 04/06/06 08:06 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Cailin! I'm feeling better about things, lets hope this new stuff will work!! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Well, I must say       #256684 - 04/06/06 08:06 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Shannon, I sure hope you are right!! -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Hmmm....       #256685 - 04/06/06 08:09 AM Edit Reply Quote michele Reged: 06/02/03 Posts: 6886 Loc: southeastern michigan Thanks Michelle! The dry mouth is really awful but I try to drink lots of water and suck on a lot of mints! I go through a lot of eye drops as well! I'm not sure if those are from the medications or the RA itself?? -------------------- Taking it one day at a time..... Print     Remind Me     Notify Moderator     Re: Saw the RE this am!       #256927 - 04/07/06 10:59 AM Edit Reply Quote ChristineM Reged: 05/31/04 Posts: 1662 Loc: soCal Hey, Michele: I've been away for a week or two, but I'm happy to hear you had such a good appointment with the RE. It's great, also, that you're planning but also allowing some time for your body to adjust. Keep us posted! Hugs! -------------------- Christine Those who can do; those who want it done better teach. Print     Remind Me     Notify Moderator     Pages: 1 | 2 | 3 | 4 | (show all)

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