I'm back!
#253401 - 03/21/06 09:13 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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BF got a loan from the office and we got the cable turned back on!! I've been a wreak without the support!
I'm freaked out because I have my appointment at the free clinic at 2:30, and talking to strangers about getting reduced medical care takes so much out of me.
In addition to the stress, I had my first complete evac since January last night. Man, it was awful. So I'm trying to treat myself gently today, but all this stress is killing me on the inside!
Gotta go find all the medical documentation I can to show the free clinic people how I've been spending my money. Sigh. Send hugs, pls!!!
~nelly~
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Loads of hugs and love your way Nel *hugs*
I'm really proud of you for getting the help you need! It's scary out there...but you're jumping right in! 
Let us know how it goes today, ok? *hugs* I love you!
Sarala
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Formerly known as Ruchie
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Nelly! HUGS!!! 
I'm glad you're back, but sorry to hear things are stressful for you right now.  Well, good thing you got your cable turned back on. I'll be thinking of you while you're at your appointment.
Hugs!
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Think of you!
#253416 - 03/21/06 09:24 AM
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melitami
Reged: 02/23/04
Posts: 1213
Loc: Ewing, NJ, USA (IBS-D, Vegetarian)
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I sent you an email yesterday, let me know if you don't get it. Best of luck at the appointment today!
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Melissa
Friendship is thicker than blood. ~Rent
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Re: I'm back!
#253437 - 03/21/06 10:12 AM
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michele
Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan
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Hey Nelly! Good to see you back! Sorry about all the crap going on, stress makes everything just that much harder to deal with.  Take a deep breath, grab your papers and get the meeting over and then go home and CHILL! Take a pill, have a drink, whatever but try to chill and let your tummy calm down! I know its easier said then done those are direct orders, from one girlfriend to another!  Hugs!
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Taking it one day at a time.....
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Nelly, definitely chill out this afternoon. You totally need to "unthink." That's rough.
Hugs,
Kate.
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nt
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Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)
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Re: I'm back!
#253468 - 03/21/06 11:32 AM
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Tissy
Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD
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I hope everything goes well with the free clinic. If the stress gets to be to much and you need to talk you got my number. 
Hugs,
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Christie
~Hoping and Praying for Sleep!~
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I hope all goes well for you with the Mayo clinic. Hope your feeling well.
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Kiwi
IBS-C
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Hey Nelly,
Nice to see you back around here. I actually have a question for you about Anne Arundel county, seeing as you are a maryland resident. I had a really promising phone interview with them and they sounded as though they were going to offer me a job in the near future. Any info about the area would be appreciated? Also, I am single and will be moving there alone, is it the kinda place where a girl can make friends easily? I'm kinda excited about it. cross your fingers for me and let me know if its even a nice area for people in their mid 20's.
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From what you told me about your consulting service with gov-
verment contracts and all, I thought you were raking in the
bucks! Really sorry to hear about this! Best of Luck! {{hugs}}
-Bob
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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Hey Bob! Yep, I'm a private contractor for the gov't, but I work sporadically and all my cash is wrapped up in my fibro & IBS treatment. My many doctors' bills for Jan thru March have been about $4800, and my meds and supplements alone are in the $700 a month range.
I went to the free clinic today to see if they'd give my weekly B12 shots, but no go. Even tho I brought my own B12 + needles!! Instead they sucked out some blood and other body fluids and told me to come back in 2 weeks!! But I did get some free samples of some meds, like my donnatal, soma, some amyltriptaline and a new inhaler.
~nelly~
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Hey Ashley!
#253538 - 03/21/06 02:42 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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AA county is pretty undeveloped. You'll def need a car to get around! But there's nearby Annapolis which has a bunch of stuff to do, and the Bay is great if you're into wildlife, fishing or sailing. Lots of cute hunks at the naval academy too. Don't expect anything cosmopolitan, though!! There's a big pub culture there, but not to many discotheques or anything.
~nelly~
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Why won't they give you the shots? Is it because it was prescribed by another doctor?
Ooh, free meds! I didn't know you were taking amitriptyline. I just started this about a month ago, a low dose (10mg), and it's really helping me sleep! I've gained a few pounds in the last month, so maybe it's helping in that department as well. It's either that or the apple crisp I can't stop eating!
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OK, it wasn't too bad. It was interesting though. I thought the social security administration with the used band aid on the floor was bizarre, but there was an actual HUMAN TOOTH on the floor of the waiting room of this place. I cannot make this stuff up!
It went ok, I guess. The person who checked me in was rude and abrupt, and I started crying right away. A lot of the "I don't know how I'm going to pay for all my treatment" stress kept bubbling up, and finally I just bawled as I read off all me meds to her. She left VERY hastily. 
The doc and nurse were great tho. My blood pressure was 200 over 95 and they were freaked out so they took it 5 times and grilled me about high blood pressure in my family history. I told them I was just worked up, and they left it at that.
I did get some free samples of donnatal, soma, amyltriptaline, and even a new inhaler, though. I donated $20 because that is what was suggested. That was hard because it was my last money for a little while, but I'd feel bad if I didn't offer up anything.
OK, time to destress! Thank you to EVERYONE for your kind words!!!! I really felt the love.
~nelly~
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Maria Maria!
#253543 - 03/21/06 02:56 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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I was taking nortryptaline, but they didn't have that so I just took what they had. I asked for the 10mg dose, but all they had was 25s so they gave me a pill splitter.
I agree they do help!! Instead of getting morning attacks, I get this weird flushing in my face instead, where i'd normally get stomach pangs. It really does "re-wire" me.
They said because the shots weren't "traditional" medicine (it's a B12 plus glutathione plus AMP shot) and that accoring to the fibro clinic blood tests my B12 was "fine" he didn't want to give me them. Go figure.
There is nothing better than free meds, I'm convinced.
~nelly~
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Nice to have ya back, schweetheart!
Good luck with the free clinic. jeepers. Come to Canada, they're all free.
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Keep on keepin' on...
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haha no no thats fine with me! i'm more of a pub kinda gal, and don't mind suburban areas at all (however, is it too suburban for me to actually meet friends and have a life?)! plus.. the place that I would be working would be in annapolis.. so I hear that that is a more fun area?!?
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OMG Nelly!!!!!
I had no idea you were spending so much on your meds and doctor visits, that's horrible.
Try to think of your upcoming trip and destress.
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Annapolis
#253804 - 03/22/06 04:05 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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Annapolis is great, and it's really easy to make friends in the area, because everybody's NICE. Plus you can actually park and walk around the old city. You'll love the pub culture for sure! It's very Irish. And there are no shortage of guys so your odds are great!
You're so close to the Chesapeake Bay, you're sure to meet a wealthy young guy with his own yacht! The seafood's great too, just thinking about it makes me hungry for crabs and scallops and oysters... *drool*
(My stomach actually made a "i'm very angry with you nelly" noise at me just now!  )
~nelly~
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Yeah, I have to tell myself it's worth it. I really feel for Melissa though, because she's charging all her care at the fibro clinic. It's not cheap being sick with this stuff!!
Thanks for the OMG! I thought it was just me!! 
~nelly~
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oooh great.. a rich boy with a yacht that will feed me yummy yummy crab cakes is just what i'm looking for!
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Re: Annapolis
#253920 - 03/23/06 08:03 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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See? Perfect! Are you making a trip down this weekend to check it out?
~nelly~
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A TOOTH??!!! Crazy!!  
Rude people just suck! Especially when they can see that you are already upset, how about a little human compassion??!! Aw well, that rude receptionist will get whats coming to her, its all about Carma! And I think you've got some good Carma coming to you, donating your last $20 bucks and trying to get better. Hang in there girlfriend, must be something in the air because I'm having a "day" as well! Too bad we didn't live closer, I'd take you out for a drink! If we are going to be miserable, we might as well be drunk and miserable! LOL, just kidding, kind of! Hugs!!
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Taking it one day at a time.....
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Hi Michele!
#253928 - 03/23/06 08:20 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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I agree miserable with a chaser is better than just plain miserable. What's midway between Michigan and DC? We need to find a third person right there to knock some back with!
Ever drank knowing you were going to be IBS sick anyway? When I have bad week-long attacks, I would just eat whatever I wanted because I was going to get ill anyway and I wanted to indulge just to keep sane! Is that baaad?
~nelly~
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Hi Shannon!
#253930 - 03/23/06 08:23 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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Free health care is just what I need right now! I was totally thinking about all you guys waiting with me in the waiting room!! It really helped me calm down and keep focused!!
~nelly~
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Thanks, Tissy
#253931 - 03/23/06 08:24 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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{{{{{HUGS}}}}} I feel much better now. Thanks for the support!!
~nelly~
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Well, it might be baad but whats a girl to do??!! Yep, I do it too! If I'm going to cheat, I cheat BIG and make it worth it!
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Taking it one day at a time.....
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not this weekend bc my parents are in California on a spa trip. I think I may just say yes, and then go and look at the area around easter when I go home. I think i'll be able to find somewhere in the annapolis/baltimore area that I like.
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Hi Nelly
#253939 - 03/23/06 08:38 AM
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cailin
Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland
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..welcome back, sorry to hear that you have been having a bad time of it at the moment, hope your tummy feels better soon.
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S.
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Thanks, Sinead
#253943 - 03/23/06 08:41 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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It seems like ages since I last talked with you! I'm getting better now, but I did have a rough week. Can't wait for this weekend when I have some time to relax!
This time last year I was in Liverpool meeting up with Natalie! My friends are trying to lure me back at the mo!
~nelly~
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also.. a one of the interns lives in Federal Hill baltimore and also recommends that area.. the other lives in annapolis and has even recommended a complex in the area that she lives in and loves. They assign us to schools depending on where we live later in the summer. I am pretty flexible, so I think even if I say yes now.. i'll be able to find somewhere great somewhere in the area.
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Re: Annapolis
#253955 - 03/23/06 09:00 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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I think you can make it work!!! I had a friend in Federal Hill and he loved it there! Given the preference though, I'd live in Annapolis to avoid the dreaded Bmore traffic.
How exciting!
~nelly~
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I've not been around a huge amount myself recently and hadn't been since about September but have been back lately as I try to get in shape and watch what I eat before my "big" birthday in May.
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S.
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Hi Nelly, $4800 Ouch! I guess you have no insurance. Your BF's
won't cover you either I suppose? Too bad you weren't working
directly for the gov, then you'd have all the insurance you'd
ever need. Isn't there any way you can get some insurance? I
see all these ad's on TV that say, Yes, for just 35 bucks a
month, regardless of your past medical history you can get
Such and Such insurance, that covers doctor visits,hospital
ization and prescription meds. Yes,Yes, call now, etc, etc.
Can you do your own injections, or have BF do it? It's not
hard,I've done it. Well, not to myself, but to my dogs and
cats when they needed them.
Donnatol and Amyltrip are good meds to have. Amyltrip is
a *particularly good* AD for D's, and it really stomps out
anxiety. I hope everything works out for you. Hang in there
! -Bob
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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Thanks for the comforting words, B. I was turned down for insurance last month-- originally they wanted $450/mo, but when they found out I was sick they denied me. They said if I was healthy I could have gotten it, but as I'm not all the other's people's premiums would have gone up when I use it. So frustrating.
My BF has Lyme, plus $20,000 in dental bills he's trying to pay off so there's no real cash left over. I wouldn't want him to cover me anyway because I'm just not that kind of person to take $$$ from somebody I'm not related to.
So far, I've been paying for everything myself with a little help from my mom, and I'm not going into any debt over my treatment. I paid off all my credit a few years ago and cancelled and cut up all my cards, and I'm NOT going back!
I know there are people in much worse sits than mine, and I'm just happy I've found doctors who can treat me. I don't feel better yet, but when I do it will have been worth it.
~nelly~ Broadcasting live from Optimistic Thursday
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Is it the big 3-0? Aren't you, like, a size 10?? You look great!!!
~nelly~
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Glad your cables back up and running....keep meaning to reply back and havent so just thought Id let you know Im thinking of you....hope everythings ok!
HUGS xxxxxxxxxx
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Natalie
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Oh my god how time flies!! I remember that day really really well actually...cos it had been the first time Id been on that train I got to meet you in ages!! Id had a nearly/almost attack whilst on one once and was terrified of them and hadnt been on one for ages....and so it was a bit of a milestone to go back on one again without panicking about my previous experience!! It was a fun night though...and that luna bar was amazing...I savoured every moment!! hehe
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Natalie
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Yes, sorry about the measly stash that trip!! Ireland was the real bounty!!!
My friend from London called me up and we talked for an hour last weekend! She was the one who'd told me it was a year already. Un-believable.
I miss Liverpool.
~nelly~
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I'm so glad that we could be there with you. I just want your owwies to go away.
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Keep on keepin' on...
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Injections
#254073 - 03/23/06 05:34 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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I really tried hard to do the injections myself. They're inter-muscular injections, which means I have to stab myself in the thigh (can't reach my glut, lol!) But the pain from the stuff going in me is like fire in my leg, and I can't physically push in the plunger myself. The first time, BF actually found me half naked, on the floor, my syringe thrown halfway across the room, dripping stuff everywhere. Not my finest moment!!
He's scared of needles too, so he's no help. I did find a friend who said she'd try to give me one, but I think she's just being nice. Maybe if I get desperate! I will count nothing out!
The IVs I get in PA take about 2 hours to drip into my arm. They're bright yellow (think corn-colored jello, scary!) and contain the cocktail they're using to make my muscles feel better and to boost my immune response. I do feel better once I've had one, and I've been going up every 2 weeks to get pumped full of the stuff, so hopefully it's doing some good. Those treatments are $125, plus I pay $35 for the IM shot to get that over with. (...and if we're adding cost, it's $15 in tolls, plus $35 in gas to get there and back.)
~nelly~
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***********************
If you're not dead, you've still got time.
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Quote:
Is it the big 3-0? Aren't you, like, a size 10?? You look great!!!
Thanks Nelly, I've just piled on about 8 or 9 pounds since the wedding, (about 6/7 since Christmas) and have been really lazy, and my clothes are straining under my thighs so I need to either tone up or buy new clothes and toning up has more health benefits. I completely lost the run of myself overy Christmas and was usually to be found with my head in the tin of "Celebrations"! Anyway, am back on track now and feeling better, just don't want to "let myself go" now that I am a married lady! Don't worry I won't be fading away!
And yes, my birthday this year is the big 3-0
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S.
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No way!
#254148 - 03/24/06 07:07 AM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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That's a lot of money! I thought mine was bad....well, it is, but not this much! Oh my, how do you do it? I guess your can't anymore...hence, the free clinic.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Being 30 isn't that bad!!!! 
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I know, it's huge, isn't it? All the money I've been making almost is going to these bills. It's almost $7000 since Jan 31st.
My treatments are going to get cheaper now that I'm a regular. The big one was $2500 for blood tests (they tested for A LOT), and now that that's over with it'll be $500/mo for meds and about $350/mo for treatments. (!!)
Lucky I don't have any dependants and BF is covering rent for a while. We've just been eating out of the freezer lately, and there are no new clothes for me for a little bit longer!
~nelly~
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I agree!!
#254192 - 03/24/06 10:21 AM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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30 is great!! Once you get past the actual birthday, of course! Sinead, you look GREAT, and I know you're not going to turn into some cat lady now that you're married!! You and Tina are both sexy married ladies now!!
~nelly~
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Re: I agree!!
#254228 - 03/24/06 01:01 PM
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cailin
Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland
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Thanks Nelly and Tina. I'm not so much dreading thirty as seeing it as a goal date to do things, to get me some motivation from somewhere! I don't expect it to be bad, but see it as entering another phase in my life, like I did when I got married for example...positive thoughts, just sounds a bit scary...like ticking the "Married" box for the first time on a form!
BTW I'm more a fox than a cat (Fox is my yet to be adopted married name!!)
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S.
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Re: I agree!!
#254232 - 03/24/06 01:05 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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Fox!! Excellent!
~nelly~
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We had great fun with my married name over Christmas. It's not very common in the part of the country that I am from.
My brothers, although younger, are very protective. Their friends know this and try to tease them, so they came up to them in the pub on Christmas Eve when we were all there including P and said "your sister's a Fox" (they knew the married name) My brother said "yeah, I know" and the guys had had a few drinks too many and were like "no, did you hear me, I said your SISTER is a FOX", to which my brother again calmly replied "I KNOW!!" It went on for ages, them trying to wind my brother up, him ignoring them.
Then, when I was on the way to the ladies' later I passed on of my brother's friends with a guy that I didn't know. My brother's friend said to the other guy "Get out of the way and let this Fox pass", the guy I didn't know looked at the guy I did know as if to say, "you can't say that, we are going to be in so much trouble", but I obviously didn't react. The guy looked really worried. When I came out three or four minutes later my brother's friend was still explaining very slowly to the other guy that it was OK to call me a Fox because it was my name...doh!
Some of my friends call me "vixen" now too! It is a pretty cool surname, I just can't get used to not being me, if you know what I mean, so I answer to it, but haven't changed my name officially. Yet(?)
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S.
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I'd feel so weird about changing my name. It's part of my identity. I think if I told a guy he'd have to change HIS name every time he got married, he'd look at me like, Why would anybody do THAT?
Fox is a GREAT surname!! You ARE a Fox!! Tee heee
~nelly~
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..and so is my husband!!!!!
and my mother-in-law
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S.
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