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Butting in here to say NOT THE EXERCISE ADVICE AGAIN?!  Tell him you know he's overwhelmed, but he needs to think about how overwhelmed and hard this is for you because it's happening to your body.
POOOOOOOP!!!!! Okay, I really wanted to use a few other words here, but this one will have to do in this forum.
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Ugh!
#249264 - 02/28/06 04:52 PM
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melitami
Reged: 02/23/04
Posts: 1213
Loc: Ewing, NJ, USA (IBS-D, Vegetarian)
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Really busy with work, but wanted to reply to you really quick and say to your BF "Because exercise cures chronic viruses and infections? Like your Lyme disease?"
*HUGS* Boys suck. (No offense meant to any members of the gender present, as the guys here on the Boards rock!)
I'm just an email or a phone call away if you need me, Nel!
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Melissa
Friendship is thicker than blood. ~Rent
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If a person isn't chronicall ill...they just don't understand. Have you read your bf the spoon theory? Can he join BYDLS.com and get support there...it sounds like he needs it! I know hubby loves me...but he has no idea what to say to me. He just leaves me alone to deal. Sometimes he literally goes away (bike trips) just to get away from it all. It's hard *hugs* I'm truly sorry that this is all happening to you Nelly....you deserve health and happiness and understanding people in your life...
I love you...sending you loads of tea, chicken soup, and whatever brings you comfort *more hugs*
Sarala
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Formerly known as Ruchie
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Nelly
#249358 - 03/01/06 08:30 AM
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It makes me mad that your BF isn't being supportive. He should know how super hard this all is and that you need comforting not more garbage about exercising. If you felt well enough then you would try it. Doesn't he get that you hurt and feel unwell???
I personally believe that one shouldn't exercise if they're sick or feeling pretty unwell. I believe that it negatively affects the immune system instead of helping it out. I say if ever you feel great, go for a walk with your doggie, but I don't think you shouldn be joining a gym anytime soon.
Tommy and I are with ya and you have our support.
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I just need to hear it from you guys because you KNOW. Ugh, it's so frustrating getting through to him. I told him, "Would you make a person with MS exercise? How about Parkinson's or Lupus? They prescribe Parkin's drugs to people with RLS, are you saying that instead of taking those I should go jogging?"
He doesn't believe that exercise can make people with auto-immune diseases feel WORSE.
And the way he appologized? "You know I'm not the world's most compassionate person." Yeah, and I'm socially detached, but I still manage not to stab him in his sleep, and I don't ask for a prize for that or anything.
So time for round 2, this time with my mom. I get to explain all my lab results to her now, so deeeep breeeeath.  Wish me strenght, I'll let you know how it goes.
~nelly~
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MEN! I understand where you're coming from though, Will isn't the greatest when it comes to chronic illness either! However, he can look at me and tell when I'm really not feeling well and he tells me to take it easy. Will is the technical kind of guy so I find it best to find technical medical articles on the crap I've got and email it to him to read. He seems to believe the computer more then me sometimes! Aw well, whatever you gotta do to get it through there heads, right??!
I hope it goes better with your mom. I at least get some sympathy there as my mom is chronically ill as well. Do know that many of us here, including myself, DO understand and no, exercise isn't going to cure us!  
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Taking it one day at a time.....
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WHAAAAT?!?!
#249394 - 03/01/06 10:41 AM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Quote:
. . . he told me all I needed was exercise.
HUH?!? How old is this guy? He's your BF?! Okay, I'll keep my mouth shut -- only 'cause he's your BF -- and you gotta know this ain't easy for me!
What's the next step, Nelly? (After throwing the BF out, of course.....)
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Nelly I am sorry that BF isn't being supportive. But know that we all are! Sometimes people just have a really hard time dealing with other people's health problems. We have all dealt with that with our IBS. **hugs** I hope that he comes around and if not give him a big boot in the a$$!! 
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The BF
#249405 - 03/01/06 10:50 AM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Please tell me he regrets what he said. Please. To explain himself away by saying, "not the most compassionate person" doesn't cut it.
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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It drives me insane when I have a migrane and a neck massage would help immensely, yet he gets mad if I ask for one, but he'd never give me one on his own accord - he'd never think of it. He NEVER does helpful things unless asked/begged. SO frustrating.
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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