Scheduled another dr's appt next week.....
#243385 - 02/01/06 11:27 AM
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michele
Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan
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with an infectious disease specialist. I saw him about a year ago. I was diagnosed with Hepatitis C in 2001 but refused treatment because it was a year of chemotherapy and I had the most resistant strain to treatment. Well, after the first couple of miscarriages and I started working with the RE (reproductive Endocrinologist) she wanted me to be re-tested. Three different blood tests at that time came back NEGATIVE for the disease. This infectious disease specialist said it was very rare for someones body to kill that serious of an infection on its own. He said I was the only one in his practice he has seen it happen to and has read about that happening only a few times in his medical journals. Keep in mind, they not only testing me for the hep C, but they genotyped it and did a viral load as well from several different blood draws at different times, so we KNOW I did have it.
Anyways, after getting the RA diagnoses recently and reading up on it, I really think my immune system is too strong or something. RA happens because the body attacks its own joints, in a nut shell anyways. So, we have my body killing Hep C, which is very rare, attacking its own joints and apparently killing my babies as well. I've GOT to believe its all related somehow. I know the nurse that works for this infectious disease dr and she agreed. So, I made an appt for next Monday to see what his take is on all this. I just can't believe that 5 HEALTHY babies have died for no reason. Maybe this dr will tell me I'm nuts but I figure its at least worth a try!
As a side note, I'm also starting physical therapy for the RA on Monday. I seem to be adjusting to the plaquenil ok but it hasn't helped a lot yet. The rheumy dr said it may take many months before I notice an improvement. I am sleeping better with the Ambein/Zanaflex combination which helps some! I get to have a dialted eye exam from yet a different specialist next week also because the placquenil can cause eye damage so I'll be seeing the eye specialist every 6 months as well! Boy, its a darn good thing I have good insurance! 
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Taking it one day at a time.....
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Sounds good! 
Is there such a thing as an immunologist????
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Linz, I'm not sure about the immunologist, good question for me to ask the dr on Monday!
Do you girls find that your fibro gets worse before/during your period?? I don't know if I'm just pms'ing extra hard because I didn't really have a period last month because it was the first one after my surgery or what but I'm 10times more sore and fibro achey today and I expect AF to show up by the end of the week. I'm also very irratable, even more so than my usual pms, maybe because I hurt so much more today?! 
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Taking it one day at a time.....
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Chronic Hep C is a possible trigger/mimic of fibro, so that may explain your fibro as well, Michelle. I have a journal article at home with a blurb about it. I'll send it your way this evening once I get home.
*HUGS* Best of luck!
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Melissa
Friendship is thicker than blood. ~Rent
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Yup, Fibro and hormone swings do NOT mix. 
*huggles*
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Thanks! I'm not sure when I actually contracted the Hep C but it was diagnosed on 9-11-2001! I remember I was sitting talking with the dr when the news report came on about the trade center. The fibro problems and pain and all the other crap started around the same time also and has been progressively getting worse.
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Taking it one day at a time.....
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Well, at least I know I'm not going crazy!  I bet the hormone changes after I lost the twins brought this flare up on so bad. I've been taking the Malic supplement you suggested now for about a week, TMI warning, my poo has been a stange yellow color, the same color as the pills? I've also been on an anti-biotic though and having SERIOUS D, about 20 times a day but the anti-biotic pills are bright pink. Have you ever know anyone to be sensative to the malic supplements?
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Taking it one day at a time.....
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Weird!  Actually, thinking about, my poop is often yellowish. Never had any other GI side effects tho.
But then poop often gets yellower if you've got major D...I think it's the bile or something.
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Good luck, Michele! I hope you get some answers!
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Christine
Those who can do; those who want it done better teach.
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*HUG*
#243532 - 02/02/06 05:48 AM
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khyricat
Reged: 08/05/04
Posts: 3612
Loc: Michigan
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maybe there is something there.. good luck! sounds like something is going on in your body and maybe once its identified you'll be doing much better...
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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I definitely get more achey and iritable around my period. And they seem to be more painful and heavier each month lately. Don't know if that is the fibro or not?
Christie
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Christie
~Hoping and Praying for Sleep!~
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Michele, I really think you're on to something. Good for you for scheduling that appt. and investigating it further!
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I guess I'm just not ready to give up yet. I'm hoping if this dr doesn't know maybe he can at least recommend another dr that might! I'll keep you guys updated!
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Well, AF showed up this morning and the D is still going strong so who knows!! I'm having major menstrual cramps but other than explosive D, my IBS hasn't been awful , not great but not terrible either! I'm still taking the magnesium stuff, I'll give it another week or so and see whats happening then.
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Taking it one day at a time.....
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I was just daignosed with the fibro but suspect I've had it for a few years. My periods are typically pretty light and only about 3 days or so. I do sometimes get some nasty killer cramps but they usually only last 1-2 days. I'm not sure what affect the fibro has on menstration but I've been told that hormones can make the fibro flare up more!
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Quote:
Anyways, after getting the RA diagnoses recently and reading up on it, I really think my immune system is too strong or something. RA happens because the body attacks its own joints, in a nut shell anyways. So, we have my body killing Hep C, which is very rare, attacking its own joints and apparently killing my babies as well. I've GOT to believe its all related somehow.
Wow. This is intriguing and it seems like you're on to something. After reading your explanation, I feel like it's all related too. I agree it's worth a try asking your doc about this possible connection.
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I sometimes feel like I'm grasping at straws but I just really feel theres got to be something to all this! I know sometimes there just aren't answers but I've got too much going on for it all to be just coincidence!
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Taking it one day at a time.....
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WOW!! Hope you get answers! Hang in there!
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God is Faithful!
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Allergists are immunologists!
You are def on to something here Michele! Do you have an allergist? A GOOD one? If not...I would def recommend it.
As a maetter of fact, I almost went to Denver for a treatment center there to find out what was wrong me (it was either that or mayo clinic) when we moved to AZ and my doc from Florida (long story!) decided it was migraines. (We moved all the way for my doc in FL to tell us that ) Anyhow...if you want more info. on the treatment center in Denver let me know....but if you have a mayo clinic near you...find out if they have an immunologist there (they should) and possibly look into that if this is the route you decide to take.
Maybe I went through all of that so I could tell you about an immunologist. If so, it was worth it to me *hugs*  (I believe there are no accidents in life...just my belie...but now I'm getting too personal maybe? I'll be quite now!) 
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Formerly known as Ruchie
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I guess I never knew an allergist was considered an immunologist?!! I have discovered that there is such a thing as a reproductive immunologist! Haven't found any in my area but they do exist! I'll ask the dr I'm seeing Monday the 13th (I thought is was next Monday but its the following week, opps!) if he knows of any in the area!
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Taking it one day at a time.....
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