I'm finally going to do it!
#242799 - 01/30/06 01:48 PM
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lalala
Reged: 02/14/05
Posts: 2634
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And by "it" I mean talk to my doctor about a possible fibromyalgia diagnosis. A few people here know that I've been dealing with muscle pain, fatigue, insomnia, common fibro symptoms. But I don't have a fibro diagnosis because it's not something I've been wanting to bring up to my doctor. Well, I don't know why I've been so stubborn, except that I was feeling like I needed permission to admit to how bad I've been feeling. Ridiculous, I know! Especially when I'm the one holding me back from getting help.
A month ago I made an appointment for my physical, but today I called in to see if I could get in this week. I'm just waiting to hear if there are any cancellations.
I've been in a lot of pain the last few days, nothing new except that I'm tired of not knowing WHY. This has been happening off and on for the last eight years, maybe longer, and I've been periodically checked for RA and arthritis, thyroid problems, anemia, inflammation and infection, blood calcium levels, etc. Nothing is wrong with me except I feel bad and my doctors look at me and say, "You're perfectly healthy." I know a lot of you understand.
My current doctor has mentioned how sensitive I am to touch and a few years ago I was having swelling in my thumbs and the bottoms of my feet, but extensive testing showed up nothing. At my last visit, she suggested the next time I come in that she would search for something more systemic.
Because I had open heart surgery as a child, a few doctors have freaked when they see my nine inch scar and think they hear a murmur. I have to explain that my murmur corrected itself years ago and that sound they hear is blood rushing through my arteries which they can hear because I'm so thin. Last year, one doctor decided I should have an echocardiogram, which not only proved what I said but also showed that there was no sign I had even had heart surgery! No scar tissue, no murmur. So, I'm very thankful for that! (But that's why I had the surgery, so I could be "normal.")
I don't know what I need right now or what I should do. I'm afraid I'll have to quit my job if I continue on this path and I'm already feeling like a failure. Sorry to be such a drag. I'll make sure to post on the "What I'm Thankful For" thread to balance this out. 
Edited by SPASMTASTICAL! (01/30/06 02:27 PM)
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Good for you! Sweetie - I understand. No one really wants to admit that there's a possiblity of something as nasty as fibro. I'm really impressed that you took the step to get tested. At least you'll know. Don't worry about the future and all that. Take it one day at a time. We all know lots of people here who deal with fibro every day. I'm sure they can relate.
For us that don't have fibro like me -
I'm sending you TONS of gentle hugs!
A.
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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Thank you for taking the time to read this and respond.  I think I just needed to hear that I'm doing the right thing from someone who understands how hard that first step is. I'll try not to dwell too much on the future - or the past!  Thanks again - your kindness is very much appreciated!
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Good luck, Maria. It's brave of you to pursue this aggressively and I sincerely hope you get the answers you need - preferably good ones. As for not bringing up fibromyalgia with your doctors sooner, I believe people deal with what they can when they can.
I hope you can get in to see your doctor soon. Let us know how it goes.
Take care.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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You rock you know that? *gentle hugs*
If you have any questions there are more than a handful of us here who can help you and who can relate...
I'm sorry you have to feel pain. I'm sorry no one knows why (yet). But we're gonna help you figure it out 
You're gonna get through this one way or another. If you have fibro...you'll get help from us, your doc, and all your loved ones. Nothing will change and everything will change...but the most important thing is that you will still be you  *hugs*
Check out butyoudon'tlooksick.com There are tons of ppl there who get it! And loads of new friends to make
Sending you loads of love, gentle hugs, and more love,
Ruchie
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Formerly known as Ruchie
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Ruchie - Thank you for all your support and suggestions! Your sweet response made me tear up! 
I've been doing searches here on fibro (Wow! Lots of info!)and then went to check out BYDLS (very cool site that I'm also recommending to my friend with PCOS).
Love,
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Re: Sand
#242919 - 01/30/06 06:46 PM
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lalala
Reged: 02/14/05
Posts: 2634
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Quote:
As for not bringing up fibromyalgia with your doctors sooner, I believe people deal with what they can when they can.
Sand, I'm glad you said this - it's very true. I think this time last year I was just trying to get stable w/ my IBS and couldn't focus on anything else. Thanks for the well-wishes!
How have you been doing? Have you had a chance to find that Edward Gorey book?
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Re: Sand
#242935 - 01/30/06 09:11 PM
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Sand
Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)
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Quote:
How have you been doing? Have you had a chance to find that Edward Gorey book?
IBS-wise I'm doing well - my tummy is settling back into stability, thank goodness. Unfortunately, I've done "something" to my leg, so I've been somewhat house-bound. Finally saw a specialist about it today - he thinks it's just a pulled/strained/generally cranky muscle, so it's going to be mega-Motrin and physical therapy for a while. Anyhow, long explanation for why I haven't been out book-shopping. Although it's funny - I found myself thinking about the Gorey book this afternoon. Perhaps there's something about X-rays that makes me think of Gorey. 
Thanks for asking.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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Hi Maria!
I'm glad I made you smile
Keep posting and updating us...we all care about you!
With love,
Ruch
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Formerly known as Ruchie
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