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Dreading dr's appt tomorrow
      #237120 - 01/10/06 08:49 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

So, tomorrow I go back to see the perintologist (high risk obgyn) for a follow up to my surgery when I lost the twins. I imagine that they will probably have the autopsy results back on my little babies. I don't know if I should find out what sex they were. In a way I want to know and I'm afraid if I don't find out, I'll always wonder but just the thought of it is making me cry. I don't suspect that they will have found anything wrong with them as they know two of my other losses were healthy or chromosomally normal girls. The first one I lost wasn't tested because it was very early and they typically won't do that kind of testing on a first miscarriage. Just the thought of having to go sit in the office with all those pregnant women and knowing that I should be big as a house now and feeling my little ones moving around inside me has got me really upset. I guess I'm just having a really bad day today and I guess that still expected. I know what I should be thinking and I know how I should be dealing with the grief but sometimes I just get too tired to be positive and think my "acceptance" thoughts, sometimes I just want to scream "screw it all, I'm hurting, my babies are dead and I don't want to get over it. Life's not ok, I'm not ok and this REALLY sucks!" Wow, I guess I'm still a little angrier than I thought. I feel like I'm on a roller coaster. Sometimes, I play with Harley and feel that life is ok and things will be ok but than other times, I feel SO terrible, so sad and miserable and weak and lonely and angry at the world,at my body and the dr's. I try to stay "even" but I feel so up and down. I feel so overwhelmed with all the decisions and dr's appts and aches and pains.

I see my mom, how miserable she is and how bad she hurts after years of incurable Lymes disease, fibro and IBS along with a list of other things and I think to myself, is that what I'm going to be like in 10 years or 20 years? Is that what I have to look forward to?

Its all too much sometimes. It all seems too unfair sometimes. I try to be happy, I try to be a good person, I try to do the right things, see the right dr's, take care of myself. I get tired of trying so hard and never getting "rewarded" with feeling good or having a baby or being happy for more than a few hours at a time. Am I expecting too much out of life? Am I being selfish? Did I do something to deserve this misery.

Wow, I guess when I let it out, it all comes out, huh? I don't really expect any of you to have the answers but a few hugs might be nice! I don't really feel like I can vent like this to anyone else, except for my shrink and of course when I'm lying on the couch, I can't form the right words to express my feelings sometimes. For some reason, when I get typing here, it just comes out. I don't know what I'd do without all of you! Thanks, once again, for listening to my emotions. Sometimes, just typing in a furry like this and letting it all and then going back hours or days later and reading it, helps me to understand myself and understand the things I still need to work on and deal with. Not always sure HOW to work on things or deal with things but I guess knowing is half the battle, right?

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Taking it one day at a time.....

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((((((((((((((((hugs mich))))))))))))))) new
      #237124 - 01/10/06 09:01 AM
Lyndsey

Reged: 02/16/05
Posts: 581
Loc: Bay Area, CA

michelle

you have every right to still be upset there is no time frame on the grieving process. and we all have times when you are thinking to youself are you freaking serious? what more to i have to take? but if you are spiritual, follow your prayers and the prayers sent out.

i think about you alot hoping you are doing ok. so i really really hope you are finding a little peace, even if it's a glimps now and then, it will come stronger, i'm sure.

take care, i send you many warm thoughts though
love
lyndsey

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Re: Dreading dr's appt tomorrow new
      #237136 - 01/10/06 09:40 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

{{{hugs}}}

Sweetie, NO-ONE is expecting you to just get over your loss like that! You are being totally normal. Go hide under the duvet and scream and cry if you want to (hitting pillows sometimes helps too ). Totally normal. Can you call the docs and ask them to call your mobile if the doc is running behind-time so you don't have to be in the waiting room for any longer than you have to be? That has got to suck BIG-TIME.

If it's okay with you, I'll ask a wonderful woman called Cath from BYDLS to email you. She's in her fifties now and has Lupus and all sorts of CTD stuff. She was really ill when she had her 2 kids as she wasn't diagnosed till recently but she coped! She's an amazing woman. Us Spoonies (chronic debilitating illness sufferers) have ALOT to look forward to in life and all this cr*p can help us become even better people and make amazing friends. So do not despair sweetheart!

PS. Could you print out your "fury" posts and take them to your shrink? Or just make notes in between sessions of stuff you think of? If I don't make notes I never remember all the stuff I want to bring up.

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BIG Hugs new
      #237137 - 01/10/06 09:41 AM
epa_ginger

Reged: 02/23/05
Posts: 1158
Loc: Chicago, IL

I think if you want to know the sex, you should ask. They are your babies, after all. And so what if you cry? you have that right! And I don't think the doctor will be shocked by that. It's a very emotional thing and there is no need to suppress your emotions.
I REALLY hope he has some medical answers for you, it seems like that's what you need most of all.
I know you feel like life is not ok, and you're still angry---and rightly so. I just want you to know that in the midst of your sadness and anger, you have still managed to really help me out a lot with my conception/pregnancy questions, and I think that's wonderful. I'm sure it's hard for you to think about, and I really do appreciate all the advice you give.

Ginger

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Re: BIG Hugs new
      #237140 - 01/10/06 09:47 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Ginger! I'm glad I can help other people and I'm so happy (albiet a little jealous ) that you got pregnant so quickly! I'll have to expierence pregnancy through others right now, so please, keep posting and I'll expect to see belly pictures when you start showing!

It would be great to actually get some answers from the dr's but I guess I'm not really expecting any at this point. I'll let you know what they have to say tomorrow!

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Taking it one day at a time.....

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Re: Dreading dr's appt tomorrow new
      #237141 - 01/10/06 09:47 AM
LittleLamb

Reged: 07/22/04
Posts: 55
Loc: USA

Hi Michele -

Haven't been on the board for a while - we moved, husband started a new job and things have been really hectic.

I am so very upset about your situation. I was able to read the board here a few weeks ago very briefly, but I was on long enough to see that you were expecting - with twins, no less! My husband and I were elated and so very happy for you and Will.

I checked the board last night and I was devestated to see that you miscarried again. I am sad, angry and exasperated for you. My husband and I had been praying for you and when I told him he started to cry.

I am so very sorry that you are going through this. My husband and I had a miscarriage a few years ago and it is still very hard. Your sentiment of "screw it all, I'm hurting, my babies are dead and I don't want to get over it. Life's not ok, I'm not ok and this REALLY sucks!" mirrors how I still feel about it.

Sure, you get to the point where you keep on going, but I will be honest from my experience. I will always miss my baby. I think about her almost every day. I wonder what she looked like, what she would be doing now if she were here, what her little personality would be like....it is hard.

To be honest, I think that women are told too much to move on or get over it. We lost a child, for goodness sake. A little baby was inside of us and now it is gone. We had no control over what happened, but somehow we feel as if we are to blame.

This is just my perspective, but I feel that women need to feel that it is OK to miss their baby and not be labeled as "ineffective coping" or "prolonged grieving". As far as I can tell, I will miss my baby for the rest of my life. Will I go on? Yes. Will I experience joy in other areas of my life? Of course. Does life still hold promise and hope? Yes! But my husband and I are still so very sad about it. There is a hole in my heart that will never heal. And you know what? I think that is OK. I think the real danger is if we become emotionally numb and try to forget and shove those feelings deep down.

What we choose to do with our loss is what can make or break us. We can choose to let things 'make us bitter or better'. It sounds like you are doing a very good job at finding good outlets for your grief - counselor, Will, supportive friends, new puppy, etc.

My husband and I needed to keep on going, but we didn't want our baby to feel like we were forgetting her. So we did and continue to do some things to include her in our lives. For example, my husband and I are Catholic, so this impacts how we chose to deal with our loss. We buried our baby in the cemetery next to my great-great-grandparents. We remember each year the day she died and pray for her, and ask her to pray for us. We have hope that we will see her again in Heaven someday. When we can afford to do so, I plan on having a ring made with her what her birthstone would have been in it. Perhaps you and Will could agree on some way to find peace and meaning in your loss together?

We are very private people, but as we feel led, we share our story with others who have miscarried. My husband and I didn't know anyone who had miscarried at the time, and we felt so very alone. It would have helped to know someone who had so we could have talked. It brings us a little comfort to know that our loss could perhaps in time help others.

Michele - please don't feel that you have to 'be brave' or 'get over it'. Cry those tears! Scream, yell, get mad! Ask WHY? All of these are very valid and reasonable things to do. You babies were very precious. You loved them. You still do. That is OK! Love doesn't have to die when people do. Love lives on forever. That is what makes it so powerful.

I hope that you and Will in your own time can find a way to commemorate, celebrate or remember your babies' lives in a way that is helpful and meaningful to you both. Please know that we are thinking of you and Will and praying for better days ahead soon.

Love,

Little Lamb

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Re: Dreading dr's appt tomorrow new
      #237142 - 01/10/06 09:53 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Linz, wonderful idea about printing out these kinds of posts, duh, why didn't I think of it! Its funny how I really like talking with my shrink and feel that I can tell her everything but sometimes, I guess I just get a mental block when I'm in her office!

Yes, please feel free to pass my email out to anyone who might be good to talk to!

I also wanted to ask again about the magnesium stuff you take. I looked in the pharmacy and didn't see anything that was called magnesium. Is there a web site or someplace I can order what you take!

Luckily, my appt is at 8:30 tomorrow and I believe there are only 2 appts before me, so hopefully I won't be waiting long. If there are a lot of pregnant women in the waiting room, I'll definitely ask to be taken back to a room. They seem very understanding there and were great the last time I went in for a follow up. It just sucks knowing that I should be there for an baby exam instead of a surgery follow-up.

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Taking it one day at a time.....

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Re: ((((((((((((((((hugs mich))))))))))))))) new
      #237143 - 01/10/06 09:53 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Lyndsey! I appriciate the support! Good luck on your u/s today!

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Taking it one day at a time.....

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Michele new
      #237146 - 01/10/06 09:57 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I can't believe how awkward they make it for you, having to sit in a waiting room with prego ladies. Have they no shame?? How unbelievably uncompassionate. Like your day isn't hard enough. That really pisses me off! I hope today isn't too unbearable for you. You have a lot of strength, and you should get a medal for not kicking over chairs and tearing your hair out. You're not insane for wanting to do so, by the way, cos that's what I would feel like doing.

BIG HUGS to you, and I'm sending you mental cyber courage to deflect that bad stuff and whip through today!

{{{{{EXTRA HUGS}}}}}}

~nelly~

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Re: Dreading dr's appt tomorrow new
      #237149 - 01/10/06 10:08 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I'm so sorry for the loss of your daughter. But, you are right, there is a hole in my heart that isn't ever going to fully heel. I know too, that I will move on but sometimes its just so hard and I just feel like there is no justice. Why has my body let 5 healthy little babies die? I know that I can't control it, but yes, I still feel like its my fault. Like I let my babies down. I know my babies wouldn't want me to suffer and would want me to find peace and happiness but some days its so hard. I hate to sound so weak but I'm tired of being strong. I know I will never forget any of my babies. I plan on making a memorial in my garden this summer and I'm going to buy 5 little garden fairies and maybe have a stone engraved.

I feel like my grief is a wound that just won't scab over. That some days it doesn't hurt as much as other but then there are days like today where I feel pain and grief to my soul. I know there will be better days ahead and probably some more days like today. Its hard because I'm at work and have to at least try to pretend that I'm ok when I'm just not.

Thank you for sharing you story with me. I know it can be painful to remember but I do appreciate it. Its awful that so many people have had to suffer losses like this.

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Taking it one day at a time.....

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