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Re: Ruchie! You're such a sweetheart!! new
      #151331 - 02/17/05 01:46 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I'm SO PSYCHED! So you already have a fibro board in the works! AWESOME!

When you win the big lottery jackpot...you'll fly us all to your town so we can get together!!!! And of course but yourself a new purse

I'm SO GLAD your tummy is doing better. Naughty b/f...leaving oreos around. Tsk tsk!!!!

*hugs* Thanks for the response Nelly!



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Formerly known as Ruchie

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Re: Nelly new
      #151340 - 02/17/05 02:16 PM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

*tears* It feels so good to have somebody understand! I've felt to dumb all these years checking the yes boxes on those doctor forms, and my mother reading over my shoulder saying He's going to think you're a hypocondirac! (!!!)

I've had all these symptoms for as long as I can remember. We used to go for walks when I was in school and as far back as kindergarten I remember being the last person in the way back, in tears saying this hurts! I was always called lazy and unmotivated, though I just was in PAIN and TIRED all the time!

My knees hurt all the time too. I would rub at them while in class in high school and they are always so very cold. Cold and in pain. I can't seem to warm up! I had space heaters in my office too and people would come in and tell me it was like a sauna in there, and I was just getting comfortable!!

I am angry no one ever mentioned it to me growing up. I get angry just thinking about it, not being believed, being called names by my parents like "lazy girl" and "hypochondriac." Grrr. I can't think about it without raising my blood pressure!! *sigh!*

Fibro. Can you believe it? Finally.

It's so cool I can talk about this to you. It's just such a relief that suddenly I'm not crazy.

~nelly~ Sorry for the ramble...!

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Re: Amitryptaline new
      #151344 - 02/17/05 02:23 PM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

You are beautiful, caring, helpful, smart, friendly, empathetic, and a wonderful friend!!!! You are many things, but you are not crazy!!!!!

~nelly~

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Re: My symptoms-- new
      #151353 - 02/17/05 02:33 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

-Migraines/chronic headaches
-Sore throat
-Itchies (sometimes Ig et welts and can't figure out why! It's not an allergy prob--been tested 3 times! Doc says it's fibro)
-Sinus infection sympoms (from my migraines)
-I catch every virus that comes my way
-Ringing in ears
-Joint pain
-Bleed/bruise easily
-IBS (duh)
-Fatigue in a BIG way. I too can't walk/stand for long before I get VERY out of it and exhausted
-Problems staying asleep and achieving restful sleep
-Brain fog! I always thought it was ADD...but it's the frog! I lose my words mid sentence, just like you Nelly, can't recall what a word means sometimes...it's rough!
-Green mucous (it's NOT an infection...just something I have a LOT!)
-Post nasal drip
-Depression/anxiety (when I can't get out of bed cause I'm in too much pain/too tired...I get very depressed!)
-Pain that migrates from place to place
-Feeling like I have the flu when I'm "fine"
-These crawly feelings (don't know how else to describe it) up my legs
-Sensativity to smell, sound, and light (still miss my scented candles!)
-Sugar makes me sick (I have read this is a fibro thing...but I'm not sure where or how accurate it is)
-I'm always cold (sometimes I do get flashes of hot to cold and back again)
-Mouth sores

I could go on.....



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Formerly known as Ruchie

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Re: Nelly new
      #151357 - 02/17/05 02:38 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I was "LAZY" and hypoch. too! I have horrible self esteem! *sigh*

I can relate very much to what you are both saying...

It is NOT our faults! Finally we know that!

I remember being told by my PE teacher that I was so slow if a dog ever ran after me it would eat me (I was 6 years old or so). I was TERRIFIED! I felt like the biggest loser!

I have always been cold. I grew up in Miami and wore sweaters everywhere. How do you manage in MD Nelly? I give you a LOT of credit!

I'm starting to feel very sentoimental....that we should all meet....

Here's a symptom where I'm probably all on my own. I often eat to stay awake. Does anyone else do this?

Thank you soooo much for starting these posts! What a wonderful, uplifting thing--knowing we're no longer alone or crazy lazy idiots!

I love you guys! *hugs*

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Formerly known as Ruchie

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Re: Amitryptaline new
      #151361 - 02/17/05 02:44 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Nelly, you practically made me cry! I'm holding back my tears. The people on these boards have said kinder and more loving things than anyone else in my life (except for hubby). But it means SO MUCH coming from friends. Thakn you Nelly...this means more than you'll ever know! *hugs*

You're a fantastic friend! I'm glad you're mine

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Formerly known as Ruchie

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Re: Soma sounds like new
      #151367 - 02/17/05 02:56 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

The name of a scented candle, or perfume...it just sounds very exotic and calming!

--------------------
Formerly known as Ruchie

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O. M. G! new
      #151368 - 02/17/05 02:57 PM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I can't believe you just said that! I eat to stay awake too! I did it in college when I had to study and I was falling asleep and NOTHING else worked!!! Do you ever eat to stay warm? I do!

~nelly~

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Re: Amitryptaline new
      #151369 - 02/17/05 02:59 PM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I'm there for ya, chica!! Don't worry, we're all going to get through this together!!!!!!!

~nelly~

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NO WAY NELLY!!!!!!! new
      #151372 - 02/17/05 03:02 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Yes! I eat to stay warm too!

This came up because I was eating brown rice pasta with marinara sauce to stay awake as I have chicken in the oven and gefilte fish cooking on the stovetop and I can't fall asleep or else!

I have GOT to stop eating to stay awake...it's SO unhealthy. And I need to lose weight not gain!

Do you still do this Nelly? Any ideas on how to stay awake without eating?

I'm so glad you responded...you make me feel more normal with every post

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Formerly known as Ruchie

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