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Re: A physiatrist... new
      #151228 - 02/17/05 10:08 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I'd never heard that term! All the PT specialists I know are Kinesiologists. I have a friend in med school right now who is studying that. He did his undergrad in sports medicine.

~nelly~

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Michele!! new
      #151229 - 02/17/05 10:12 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

You are just the BEST! Thanks for the heads up and I'll look for it in the mail!!

{{{{{{{{{{{{HUGS!!}}}}}}}}}}}

~nelly~

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Linz! new
      #151233 - 02/17/05 10:17 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Try the one at the pain clinic you sent me!

Prof. Daniel Austen (fibro doc) 011-44-170-765-5151
Email: daniel.austen@ntlworld.com

He was so empathetic over the phone, I almost broke into tears when I hung up! He sent me a pack of info via email that had all his prices and info about his practice. It breaks me up that I won't be able to squeeze in a visit while I'm in the UK, but there's no reason why you can't!

~nelly~

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Ruchie! You're such a sweetheart!! new
      #151239 - 02/17/05 10:24 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

As usual you have something to say which is both uplifting and warms my heart!! {{{{{HUGS!!}}}} I am working on the site right now, but it won't be usable for about a month, probably. It's a fun project, just the thing I need to keep me off the streets and occupied til I win that big lottery jackpot!! My tummy's behaving today, which is good considering the fistful of meds I threw at it to keep it at bay! Now if I can just stay away from the evil oreos BF left lying out...!

Lots of love,

~nelly~

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Question! new
      #151269 - 02/17/05 11:10 AM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

What are some of your sympotoms with Fibro? Just wondering!!

I feel for you guys and hope things get better soon!!!
HUGS!!!!

--------------------
Heather7476


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My symptoms-- new
      #151285 - 02/17/05 11:43 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Here are some of my symptoms. Some are weird and obscure I think. I can't believe there actually is a catch-all for everything I've been feeling all my life!!:

Symptoms:

IBS
Constant lower back ache
Skin pain on hips, back, neck
Blinding headaches
Achy after exercise
—I actually feel worse afterwards and it lasts for days
Can't walk long before being so tired I must lie down
Can't think straight… It hits me in the middle of a sentence. I just can't finish my thought and just trail off… Happens ALL THE TIME! Don't think I've finished a sentence… since…
Restless Leg Syndrome—I can't keep my legs still. I constantly bob them up and down, and I kick violently in my sleep (think scoring a soccer goal) and wake myself up. My legs feel like my bones are going to jump out of my skin if I don't move them.
No energy, ever. I feel run down even after I've slept.
I always have to sit down if I stand for more than 5 minutes.
When I sit down for too long I have to lie down because my back feels like it is being compressed by a 5000 lb. weight
My throat hurts every day
Runny nose and eyes.
Sex-y, no?

My skin feels like it's being tickled when I wear clothes. I scratch the back of my neck constantly but nothing helps.
I'm oversensitive to smells
Loud noises
make me feel like there's sharp, cold ice puncturing my ears. I jump at loud noises and feel them in my chest even hours later.
I get headaches and stomach aches after I wake up from taking a nap
If I bump my hand it hurts for hours afterwards
I cringe when people hug me, because it hurts to be touched

If I think of more I'll let you know!!

~nelly~

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Nelly new
      #151298 - 02/17/05 12:11 PM
BL

Reged: 06/01/03
Posts: 3522


This doctor I saw Monday for my back problem is a physiatrist. This is not a physical therapist. They go to med school and then 4 more years. It's kind of complicated. They treat a wide variety of patients----those with arthritis, back problems, fibro, muscular dystrophy, celebral palsy, etc.

The one I saw is affiliated with a spine clinic. He examined me, ordered an MRI and reviewed the results with me, diagnosed the problem and then referred me for further care (which includes PT). He also does spinal injections, if needed.

I had never heard of this kind of doctor until a friend of mine, who's a nurse, recommended him. I liked him because he looked at the whole picture instead of just one aspect---and helped me with rehabilitation.

Check this website out. It explains what they do.

http://www.aapmr.org/condtreat/what.htm


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That's so cool! new
      #151308 - 02/17/05 12:25 PM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I didn't even know of this part of medicine before! I think we need more doctors like this!

~nelly~

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My symptoms new
      #151317 - 02/17/05 01:01 PM
Tissy

Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD

When it first started I was really tired and felt like I had the flu and then I would frequently get migraines and tension headaches. I would also complain to my hubby alot that I had pulled a muscle in between my shoulder blades, or in my knee, or thigh, etc. I would always get sinus headaches too but mostly I was just TIRED. And I could remember sleeping at night but thinking over my problems or analyzing my day or compiling a to do list, but I was asleep just not all the way evidentally. Oh and short term memory loss was another, cold all the time,clumsy (dropping stuff).

And now on good days my symptoms are just a slight ache in my joint areas that if I don't think on it I don't notice until hubby asks if I ache. On a bad day I am all of the above again. It sucks sometimes but there are good days when I almost forget I have it until I miss out on sleep or get a cold/virus and then it comes roaring back.

I know you have been having a hard time do you think you might have Fibro or were you just curious.

(((HUGS)))
Christie


--------------------
Christie
~Hoping and Praying for Sleep!~

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Nelly new
      #151320 - 02/17/05 01:21 PM
Tissy

Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD

Wow! You sound just like me!! I always find that amazing when I read another Fibromites symptoms or like when I looked up the symptoms for the first time I was like OMG I'm not crazy. And all these things that my hubby called weird quirks are not so weird anymore they have a name to them now, Fibro. I have always had what my mom terms as a weak back. I would get a spasm in my back and drop to the floor, still do sometimes. And I could never exercise it always made me achier.

I am so with you on the walking and standing to long and always low energy. My mom use to say you are just lazy. And I am forever asking my hubby midsentence "What was I just saying?" or I can't find the word to finish a sentence, brain farts I call them. I always have a mild sore throat and semi-stuffy nose. I am oversensitive to smell, I am always saying in disbelief "Can't anyone else smell that?". The noises aren't to bad unless I have a headache. I get the skin creepy crawlies. And if I bang a part of my body on something I swear I am severly injured b/c it hurts SO bad.

And the Leg thing I was told that I don't have restless leg syndrome unless I am kicking at night. As far as I know I don't b/c hubby never said anything and I haven't awakened myself. But during the day I can't keep my leg still, I am constantly swinging or somehow moving my leg and my hubby will reach over when we are in public and put his hand on my leg so I know I am doing it. It is like a habit now I don't realize I am doing it and he said it makes look nervous or jittery. i get leg cramps really bad at night I think b/c of all the activity my legs get during the day.

Have you found that you have had these symptoms since childhood? I used to get unbearable knee pain when I was a pre-teen and cry hysterically. My mom told me it was growing pains. I got headaches badly as a child and although I didn't have IBS as a child I always had difficulty going poo it never really came out easy. Now it comes out to easy most of the time.:p

Sorry to ramble but it is so cool when someone else has the same symptoms so I can then tell people it is not just me.

Christie

--------------------
Christie
~Hoping and Praying for Sleep!~

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