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Tissy new
      #150992 - 02/16/05 07:45 PM
Vicam

Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada

I'm so glad that you were able to stop taking it without any problems...I've been having such a hard time I wouldn't wish it on anyone

Interesting to hear that you also had nightsweats and nightmares, my doc seems to think that's unusual and doesn't happen to many people...so good to know I'm not the only one!

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Vicam new
      #150995 - 02/16/05 07:48 PM
Tissy

Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD

What problems are you having? Maybe I am having problems and don't know it. I still can't sleep and I am real cranky but that could be from lack of sleep.

Christie

--------------------
Christie
~Hoping and Praying for Sleep!~

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Valerian side effects... new
      #150996 - 02/16/05 07:50 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I'm the weird one! Of course...I had to have the very rare side effects of valerian. Made my heart race. Docs think it interacted with one of my meds *grrrr!* I WISH I could take valerian instead of all this other junk. G-d willing one day I will......

Just wanted to let ya know Christie *sigh* Us fibromites DO NOT have it easy!

--------------------
Formerly known as Ruchie

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Oh Thank you Beth! new
      #150998 - 02/16/05 07:52 PM
Tissy

Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD

I am so glad you have had a good experience with it. That gives me some hope. I am about to go to bed and I do feel a little drowsy so I hope it works. By the way is it just me or does valerian stink a bit. I mean I have a sensitive sniffer from the Fibro but really that stuff stinks. Thank goodness it is in pill form.

Thanks for the feedback,
Christie

--------------------
Christie
~Hoping and Praying for Sleep!~

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Thanks Ruchie new
      #150999 - 02/16/05 07:56 PM
Tissy

Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD

I am hoping it works b/c I need sleep so I can have a better day tomorrow. I feel better now the kids are in bed and hubby came home from his club meeting and now I am going to bed. Sorry I was ranting earlier but thank you for your continued support. Now I believe I am off to bed.

Sweet Dreams,
Chrsitie

--------------------
Christie
~Hoping and Praying for Sleep!~

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Problems new
      #151000 - 02/16/05 07:57 PM
Vicam

Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada

I'm having a lot of problems. Aside from still having the sweats and nightmares which means I don't sleep well, when I tried to decrease my dose I had a marked increase in anxiety and agitation, diarhea, nausea, weight loss, dizziness and a "zapping" feeling in my head (feels like your ears are being electrocuted). It was not fun. I toughed it out for two weeks but the symptoms didn't improve at all, so I finally gave up and increased my dose back up. Soon I'm going to try again to get off it...I'll just try and be more prepared this time.

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Christie...I am SO SORRY! *hugs* new
      #151002 - 02/16/05 08:05 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

You poor thing! I cannot BELIEVE everyhting you are going through right now!

I don't know if you still have my #...I'll have to e-mail it to you again.

Ok, where to start: (these are my suggestions...take what you like and leave the rest!)

Forget your dumbo doco! Take the vitmain C. Take astragalus (helps with pain) and take echinacea (builds immunity). I would also take vitamin B in high doses and a regular multivitamin. If you can afford all of this, go for it!Just ask to make sure it won't interact with anything else you take. Thakn G-d I have not gotten a REAL cold in MONTHS (sooo rare for me) because of the vitmains and supplements. My fam is NOT into the naturopathic way of life--but they swear by echinacea.

We're going to get you through this *hugs*

This is what I do when I'm sick or hubby comes home sick and I am trying not to get what he has: Drink as much as humanly possible. Tea, soup (chicken soup is great or whatever you have in the house), water...lots of good water, stay away from sugar (it's not goood for the immune system and depletes vitamin absorption...so I've read...I'm not a doc no way...just telling you what I've read). I also RELAX and meditate. Just close my eyes and picture beautiful scenery (picture things that make you happy! I like scenery..). Do gentle stretches. Take a long hot bath/shower. If your head hurts, use a damp cloth. When we are relaxed it helps our immune system cope better (not easy...I know!) *hugs* Personally, I limit my diet during these times as much as possible to soups, tea, water, a bit of fruit, and rice (I don't eat applesauce but if I did I would...same with bananas).

This might sound strange...and like I said take it or leave it...but I'm just offering the best advice I can give for one of my best fibro pals! *hugs*

I am SO SORRY you're hurting like this! It practically made me cry to read yor post

Keep us updated PLEASE!!! We REALLY care about you Christie. And, YES I'm GLAD I asked!!! Silly!

Take care, ok? And if you need anything...write/call...whatever! Shout! LOL

Sending love, prayers, and good cheer your way!

Love,
Ruchie

--------------------
Formerly known as Ruchie

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LOL, no it's not just you! new
      #151008 - 02/16/05 08:12 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

When I first started taking valerian, I bought the capsule form with powder inside (Solaray brand) and I couldn't even keep the bottle opened because it smelled so bad! Seriously, I though I got a contaminated bottle!

Now I take a capsule with liquid form valerian in it and there is no smell. Plus, the liquid is "suppose" to be more effective as it is better absorbed.

I get it at whole foods or wild oats. It's by GAIA HERBS and it's called Liquid Phyto-Caps valerian root. It's suppose to be a more concentrated full spectum alcohol-free vegetarian capsule.

I think it is more potent than the powdered form as the bottle says it is equivalent to 2000mg crude herb.

The website is www.gaiaherbs.com in case you want to check it out. But you could always get it at whole foods or wild oats and probably would be cheaper.

I suggest you try the powdered first, but if you aren't happy with it, don't give up on valerian totally. The liquid form may be another option for you!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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I hope you're off to dreamland now.... new
      #151010 - 02/16/05 08:14 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I am HOPING the valerian does it for you. If it doesn't give you side effects SUPER DUPER!

Here are some other ideas for sleeping peacefully:

Begin to dim the lights an hour or so before bed. This will tell your brain/body to slwo down!

Drink some tea, put on relaxing music, read something enjoyable (but nothing exciting as that will keep you awake).

A little while before you get into bed, picture yourself sleeping peacefully. Breathe in and out slowly and picture things in slow motion. Allow your body to relax.

If I think of anything else I'll let you know! My goal, G-d willing, is to get off the fibro meds. Might sound crazy...but I'm determined (I say this as I'm in a flare myself right now!) I will need to do this in order to have children and it's important to me! And I believe I will do it. With meditation, eating right, relaxing, taking care of myself, praying (lots of that!), and vitamins/supplements. I have been slowly integrating the things I wrote above. The only reason I'm in a flare right now is because I overate the past couple of days and didn't get enough liquids (I didn't listen to my body!) and I pushed myself to the core (again...didn't listen to my bod!)

I hope that the things I'm doing thata re helping me so much will help you too *hugs* We ALL desevre health!!!!

Sending you love and prayers,
Ruchie

--------------------
Formerly known as Ruchie

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Can't believe I missed this! new
      #151037 - 02/17/05 02:18 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Fibro-friends, hello!

Before I forget, does anyone else take a Magnesium complex supplement? I read that Fibromites are usually low in Magnesium, Manganese and Malic Acid, all of which are used for muscles to get energy! I take a great supplement (which I';ve run out of, darn it ) that has all of them in and the lady at the HFS said other Fibromites had had success with it.

Ruchie - watch you don't OD on vitamin C! It is possible and you are taking ALOT! I only take 500mg a day!

I'm in a flare right now. Me thinks coming off my Celexa was a bad idea as I've been flaring ever since. Could be a coincidence as I had a chest infection and now another virus, but I'm back on the happy pills! At least I proved to myself that I can make it through the withdrawal.

Wish we could all meet up! That would be so cool. I must get organised for my meeting...hopefully people will turn up this time! I'm going to put notices in the doctors, HFS, hospital, etc and in the local paper.

I'm seeing my GP on Monday and am hoping to get a referral to a pain consultant or a rheumy. Si's discovered a couple of names with our insurance company so now I have a name to suggest. Really, my doc is hopeless. She could have referred me to SOMEONE. Surely it's no more difficult for her to find a specialist than it is for me?! Maybe I'll change docs. It was a nice change to find someone who knew something about Fibro, but she ain't great. Anyway, anyone had any luck finding a physiatrist?

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