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Update, I'm sorta back
      #124602 - 11/22/04 10:24 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Hi everyone, Heather called and said everyone sent hugs and was worried, thanks, I appriciate it. I haven't had time to catch up on posts yet but I'll update everyone on what happened.

Friday am, tested and got a BFN (thats a negative pregnancy tests for those not up to date on the lingo!) Went to foot dr to have cast removed. Removing the cast was horrible, it hurt SO, SO much! My leg from the knee down was fire engine red, swellon and very painful. It hurt just to touch me skin. The dr came in and says, "well, gee, it shouldn't be hurting this bad still" He just lightly touched my skin and I grabbed his arm a screamed at him IT HURTS DON'T TOUCH IT!!!!!!!!! Well, that got his attention!

He had me see a different specialist who said I had developed Reflux Sympathetic Dystrophy. I was sent straight to the hospital. RSD is a problem with the sympathetic nerves. The sympathetic nervous system controls things like, perspiration and your eyes dilating with bright light. Normally, these nerves do not have pain receptors. For whatever reason, these nerves have gone haywire in my foot. The only way to re-set the nerves is by doing a series of "lumbar epidural injections." They take a big needle, stick it in your side until it reaches the spinal cord and injects it with an anastetic. NOT FUN!!!

If this isn't treated quickly and aggresively, it can cause permanet nerve damage and permanent pain. Besides the ankle pain from the sprian, I know also have all this pain form the RSD. My foot is red and feels like someone is pouring battery acid on it. The pain is burning and shots all the way up my leg. Its still black and blue from the sprain and I still can't put any weight on it.

I had one of these spinal procedures done on Friday. It hurt like hell!! Afterwards, my blood pressure dropped to 60/40, I throw up and almost passed out. After an hour my bp was up to around 90/75 so they let me go home. All the way home, I felt awful. I was so weak it was all I can do to make it from the car to the house. As soon as I stepped in the house, my bp dropped again. I throw up again and almost passed out. Hubby finally carried me to bed. All day Saturday, I was very weak and sick.

I was given instructions to call this pain clinic by my house Monday am to schedule these spinal block procedures 3 times a week for a month with physical therapy an hour after each procedure. When I had the procedure done on Friday at the hospital, the started an IV and gave me what the DR called happy juicein my iv. I wasn't asleep but was at least drugged up. They then take a small needle and give you a shot of numbz it stuff in your back before they put in the big needle. They do a series of x-rays and shot dye in so they can see where the needle needs to go. I was very uncomfortable but my foot did feel a little better afterwards.

So, I called this am to get this stuff scheduled and I've got nothing but the run around!! I'm just in tears!! My foot is hurting again really bad, I have to be at the office and I've been on the phone for hours and still don't have anything scheduled!! At first they were telling me that they won't sedate me at all the do this and I told them they were crazy if they thought they were going to stick a needle the size of a garden hose into my spine and go rooter rutting around without giving me some drugs first!!!

The lady finally called back and said she talked to the dr and they will give me SOME sedation but now they can't get me in to do the physical therapy right afterwards!! What happens is after they give you the spinal injection, my foot is supposed to feel a little better, at least from the RSD. They want me to do the physical therpay right after so it won't hurt so much. I'm getting SO frustarted!!

Oh, I told them I had been trying to get pregnant so they made me pee in a cup before the procedure. They said they say a hint of a second line so they ordered a blood test. An hour later the blood test came back negative so they went ahead with the procedure. I retesting at home Sunday and it was still negative but I expected AF today and she hasn't arrived. Just one more thing to worry about! Because of the dye they inject and the x-rays taken it is unsafe to do while pregnant. I was told to "take a break" this month from TTC!

I was mostly ok with this until I've had such a hard time on the phone this morning, now I just can't stop crying!! Patients at my office are mad because the office is going to have to be closed a lot. I have to take the whole day off when I have these procedures done! I'm feeling very depressed and overwhelmed, not to mention the pain I'm in! Sorry to be so whinney but how much must one person suffer in one year?? I think 2 miscarriages and a sprained ankle are enough, now they say I have this RSD and my have permanet nerve damage and pain!!!!! Somebody just shoot me please!!



--------------------
Taking it one day at a time.....

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Big hugs for you, Michelle! new
      #124608 - 11/22/04 10:32 AM
Jennifer Rose

Reged: 04/02/03
Posts: 3566
Loc: Fremont, CA

Aw, Michelle - I don't know what to say except I hope all this clears up soon! You've been through enough and your body needs to let you breathe!

I can't even imagine getting shots in my spine. I shivered just thinking about it! You are extremely brave to get these done.

Hope you start feeling better and that the doctor's office starts working with you!

--------------------
- Jennifer

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Re: Update, I'm sorta back new
      #124611 - 11/22/04 10:33 AM
Janey

Reged: 10/25/03
Posts: 1716
Loc: Maryland

Oh Michele,

You poor thing. I have not been on the boards for awhile and really didn't know what was going on with you. I am so sorry you are having such a horrible year and that you have to go through all of this on top of everything else you have experienced.

I will keep you in my prayers that everything they are doing right now will work and your foot will be back to normal again. I'm sending hugs and good thoughts your way.

--------------------
Janey

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Oh my gosh Michele.... new
      #124614 - 11/22/04 10:37 AM
Cara4503

Reged: 03/20/04
Posts: 1844


You poor thing. HUGE HUGS FOR YOU. I could not imagine going through all that!! I was cringing reading about the needles and your red leg and pain! My gosh you are a strong woman.
I'm praying for you! And you've been in my thoughts!!
I wish there was something I could do for you.

I keep saying 2004 has been the most awful year....maybe the new year will bring lots of good things for us.

Take care of yourself! Call me if you need to talk to someone please!!!
Love,
Cara


--------------------
~Cara~


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Re: Update, I'm sorta back new
      #124616 - 11/22/04 10:44 AM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

Honey do not even stress about work right now!!! YOU are the most important thing right now!!! I hope things get beter!!! Give me that dam cinlic number and I will tell them what's what!!! LOL Big hugs!!! If you need ANYTHING I want you to call me!! I am not that far at all!!!! Call me when you feel up to it!!! HUGS!!!

--------------------
Heather7476


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OH MY! *HUG* new
      #124617 - 11/22/04 10:46 AM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

have you tried calling your primary doctor back for a referral to another clinic? or to see if they can work witht eh clinic on getting this scheduled for you so you don't have to deal with it?

I wouldn't worry about AF- given the circumstances, I'm sure the delay is due to stress and maybe even a reaction to the stuff going on in your body and the meds and injections!


*HUG* again- let me know if there is anything I can do to help.. I am so sorry to hear you are going through all this, but you will get through it!

Amie

--------------------
Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Re: Update, I'm sorta back new
      #124619 - 11/22/04 10:48 AM
StephS

Reged: 09/11/03
Posts: 2123


Michele, I'm so sorry for all that you are going through. I can't even immagine all the pain you must be going through.

I'm hoping for some good luck and good Dr's to come your way! It will be a new year soon, and hopefully a new start for you! This hasn't been your year...at least the last half!


You desierve a much better year in 2005....LOTS of love and prayers coming your way!

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Re: Thanks girls, new
      #124629 - 11/22/04 10:59 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I appricaite all hte hugs and support, I really need it right now. The clinic finally called back and they did get everything booked ok. I will have to be there at 8:30 am this Wednesday, than for the next 2 weeks I'll have it done Mon Wed and Fri. They will do the spinal procedure first-ouch-than torment me in physical therpay for an hour afterwards! They are kind enough to give me about 30-40 to recover after the procedure before the physical therpay. I just hope my bp doesn't drop like last time, I really thought I was dying!

I talked to my boss and I found someone who can at least work on Fridays at the office. We will have to close the office on Mondats all toghether and the dr will work alone for a few hours Wednesday am and close in the afternoon. Luckily, December isn't a very busy month for us!

I just can't believe all this is happening. I guess the RSD is pretty rare, the hospital said they only see 6-8 cases a year!! Leave it to me to get the weird stuff!!

My hubby isn't real happy because he has to drive me and pick me up for these appts. I feel bad about him having to take care of me but if it was the other way around I would take care of him!!! He's been a bit grumpy about things lately and its really making me feel quilty! I know I shouldn't but with everything going on its just too much to deal with! I'm sure I'm hormoning as well, if AF doesn't show up by Wednesday am I'll test before getting the procedure done again!

--------------------
Taking it one day at a time.....

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Re: Update, I'm sorta back new
      #124642 - 11/22/04 11:39 AM

Unregistered




Aww Michele I don't even know what to say to make you feel better - I wish there was something I could do! You are such a strong person to go through all of this and you have every right to be upset. My friend with leukemia has to get those lumbar things done all the time in her spine and she says no matter what sort of sedation there is they hurt so unbelievably bad I feel so bad for you! I agree with Heather, your work can take a back seat because you are much more important right now and hopefully your hubby will take really good care of you! BIG BIG BIG BIG HUGS to you and I hope this nightmare is over asap and you can get back to trying for a baby!



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Re: Update, I'm sorta back new
      #124643 - 11/22/04 11:40 AM
Angela E.

Reged: 10/14/04
Posts: 2518
Loc: Michigan

Michele-
Wow you have been through hell and back lady! I am so sorry that you are going through all of this! When it rains it pours! You do really need to take care of yourself first. That is so hard for woman to do. We tend to put ourselves last and our jobs, family, and friends first. Even though your hubby is cranky it is only because he is worried about you. Husbands tend not to handle when we get sick very well. (sorry any men reading this but it is true.) Good luck with everything and let us know if we can help.

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