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That she is!
Linz,
I THINK ibprofen and aleeve are diff. But I'm sure someone else will know better...
I guess if you can diagnose yourself, than I got the fibro frog! May sound strange,....but I'm kinda happy about it. I feel like I can DO something with my symptoms. But Linz, what did you do about getting drugs? Without a doc writing you a scrpit how'd you manage? I want to take somehting but there's so much out there, I don;'t know whwere to start...
Seriously...how do you guys go to work every day? What do you on days you can't get out of bed or even drive anywhere?
I think you ladies are AMAZING! I'm wondering how i can start a fam like this? (I'm hoping it's much better once you get some meds in ya?) Emotionally I'm feeling better just knowing I'm not alone and that it's not in my head and that it's prob fibro.
Whoa...major diff. focusing going on...be back later...
love, ruchie
-------------------- Formerly known as Ruchie
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Ruchie
#110021 - 10/03/04 02:23 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Yay, that's my girl! Keeping moving really does help - I now want to be a gardener (can you imagine a Fibro-gardener? ) partly because I'm so much better if I'm outside and always moving around.
You take those drugs, okay! Pain is not worth being funny with drugs about. The pain is worst for you than the drugs, and I now what I'd choose even if that wasn't the case! Having had migraines and Fibro for years, I am VERY pro-pain-relief.
You go get those candles! And see if you can handle essential oils. I can cope with those, but NOT many artificial scents in candles, etc. So lavender oil in the bath is great for relaxing. And there are other ones that are good for aching muscles, etc - I must look those up. Hot baths are my luxury atm, especially as the weather gets colder.
{{{HUGS}}}
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#110025 - 10/03/04 02:30 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Well having had migraines for so long, I know my painkillers! What I'd suggest is that you go to a good pharmacy and ask whoever dispenses the meds for help. They know there stuff and can whittle down to huge selection to something you want. Tell them you have Fibromylagia and that you want the strongest OTC pain relief they can give you. I'd also suggest mentioning paracetamol and codeine, or just codeine.
Once you get accustomed to having Fibro (and to the very IDEA of having Fibro), then you can learn to manage your symptoms. Knowing what pain meds to take and when. Taking whatever other drugs you get, SSRIs or something to help you sleep. Working out how to get the best sleep. Knwoing your limits so that you both don't over do it and also don't stop doing everything. It gets easier, okay.
Gotta go. I'm seriously frogged, typing is becoming VERY slow and I'm suddenly freezing! Bed and a hot water bottle for me! It IS ten-thirty pver here Past my bed-time!
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Oh! Fibro!
#110420 - 10/04/04 05:26 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Gee, I never thought of that. Fibro! Well, that would be horrible to have it, but great that you would finally have a diagnosis. Then you could treat it. And these super gals can help you.
Would the rhumatologist give you the diagnosis then?
{{{{{{Hugs}}}}}}
Bevvy
-------------------- <img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Ruchie, I know I'm just a single gal, but I tell ya.... this Spring I was in the same boat you're in. I was in so much pain and so miserable... I sometimes just hoped that I'd die (not that I'd do anything to harm myself, but I sort of wished it would all end. I've never felt so desperate!). Anyway, I decided then and there that I would never have kids because there would be no way I could handle it. It wouldn't be fair to them or my (future) husband (God willing!).
Then I met Ambien.
I WILL have kids. I will have a family. It isn't going to be easy, but it's not easy for any mommy. But honey, you'll get a little more of your life back with every hour of Stage 4 sleep you get, I bet. And then things start to look "doable" again. You're stubborn and fiesty like me and Linzy and LS. You're going to kick this fibro to the curb and when it comes back, you're going to do it again. We're not letting some obnoxious frog get us down, now are we!?
Sleep, sleep, sleep.... that's the ticket!
Don't worry. We'll do this together, ok?
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Want another tip, Ruchie!? This is my absolute favorite, but use it slowly 'til you know how you respond. Get a tennis ball and go to your bed or couch. Place it where you have tense muscles (your back, your hips, your shoulders), between you and the couch/bed. Let the weight of your body press the ball and keep it there for a few minutes 'til you feel the muscles relax. (If it's too ouchy, then move the ball a few inches if you can't tolerate it, but I usually wait it out if I can 'cause those are the most dramatic "fixes.") Sometimes this hurts a lot and I start to cry, but believe it or not, you can more often than not actually feel those muscles just losen right up....
When you've worked the same area for a while and you feel up to it, move to the floor (harder surface, more resistance).
Don't work too many areas at one time... Just pick one or two. Sometimes I've gotten a little too crazy and been really sore the next day.
I'm tellin' ya, Ruchie, I feel like a new woman after I've done this with my hips--- who knew!?
The tennis ball thing is especially good after a hot bath/shower and or time on the heating pad. YUM! get everything all loosey goosey first. EXCELLENT!
I'm doing not-so-hot right now, Ruchie. I really would love some sleep! It's so silly... probably no one who doesn't have fibro can understand, but I sleep all night sometimes, but I feel worse than when I went to bed 'cause it's not the right kind of sleep! I am going to throw some phone tantrums tomorrow morning, Ruchie, and hopefully get some Ambien before Friday. I'm really tired and achy. I've had to cancel plans for the last 3 days, and that really makes me mad. There's a cute boy I want to see this weekend and I REFUSE TO LET THE FIBRO STOP ME! (even if i haven't slept)
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i used to be anti-pain relief, too. boy, did i hate to take stuff (except for cramps--- now THOSE drove me to meds!).
anyway, now i am ALL ABOUT the medications. now, granted, they don't work a lot of the time, but even a little relief for a little while really can help. if i can buy myself 15 minutes of a little less pain, i'm going to do it!
as for the moving around, i am now totally convinced that stretching is important. and believe me, i'm lazy! but i make myself do a few different stretches every hour, just to prevent some of the achies. and i try to get up and walk every few hours, just around the house or out of the building at work. i'm telling you, being still may be all your energy level can handle, but your body needs to move just a little bit or the pain gets even worse. STUPID FROG!
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BEVRS!!!
Yp Rheumy gives the diagmosis...GP already thinks this is it (he asked me if it could be Luopus bu I greatfully told him I am negative for autoimmune disease, thank G-d!) Mom asked me if I've been tested for Hodgkins...yikes!
How ya doin Bev? Its so GREAT to have you back!
Yeha, finro is NOT my "ideal" diagnosis...but as long as I sleep at night and the pain is LESS than what it's been...I'll be SUPER DUPER HAPPY!!!! \
L9ove ya my #1
Ruchie
-------------------- Formerly known as Ruchie
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Jen,
I don't know if it's the lack of sleep or WHAT...but your post made me cry!
Of COURSE we;'ll do it together! *hugs* That gave me SUCH reassuarnce that you said that...thank you beyond words!
My doc said Ambien is addictive? have you heard that? that makes me kinda nervous...
WOW! We really ARE similair! Yesterday the pain wa SO BAD I couldn't hug hubby or let him hold my hand. I wanted ti to END (not suicidal, like you said, but it hurt both of us SO MUCH that I was in THAT kind of pain!) I'm STILL in tons of pain as I type...but I BLEIVE it will get better with rh e meds, sleep, and TIME
Jen, I wish you lived closer! We could go for walks, cook for each other when the other one couldn't cook, and lots of fun stuff. Plus, you could meet my cutie puppy!
Ok, off to read the rsts of your posts in this thread
Love, Ruchie
-------------------- Formerly known as Ruchie
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