Update from GI....
#94182 - 07/29/04 09:52 AM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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Well, after being in emerg again yesterday I finally managed to get in to see my GI doctor, who was not nice as usual. I brought my Dad with me which helped a bit, he set the mean nurse straight right of the bat. It was unbelievable, this doctor has already consulted with me once and done a colonoscopy on me, yet when I went it she was like "So, you were referred from emerg?" "What tests have you already had?"
I replied, "You mean other than the colonoscopy you guys did?" And she exclaimed "Oh, you've already been seen by us!" I couldn't believe it...my dad just looked at her and said very sternly "is that not documented in her file that she's been a patient for crying out loud, we were not impressed."
Now the GI thinks there is a possibility that it's Crohn's, based on the rashes on my shins, and the location of the pain, so he's ordered a small bowel follow-thru. I'm totally bummed about that just because I don't want to have to another prep (I have to do the same one for the colonsocopy). But I guess you gotta do what you gotta do.
I even mentioned to him that I'm scared about the prep because my blood levels are all out of whack already and I'm barely eating, and I'm afraid it's going to be too hard on my body, and all he would say is, "If you can't do it, we won't help you." Nice guy eh?
Anyways, just wanted to update you guys and thank you for your support.
Kelly
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Sorry the dr was such a jerk!  I had the small bowel serious with follow through thing and didn't have to do any prep other than not eating/drinking the night before?!
Lets hope they get some answers for you soon!
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Taking it one day at a time.....
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-Sheri
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I feel actual violence towards that doctor...and I am a gentle person. How can they respond to you voicing your fears like that? where is the empathy???? I want to strangle him..
ahem...ok....sorry
Good luck kelly, I will be thinking of you a lot....you are so brave.
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Feel the fear and do it anyway!
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Kelly,
Good job bringing your dad with you! It sounds like it helped a bit, though I'm sorry these doctors are so terrible!
About the prep, if you're not eating much to begin with, and if you follow Jill Sklar's diet recommendations for the few days before, I'm sure you can get away with just one dose of the fleet stuff. I did two doses, and the second one had no purpose other than making me more miserable. I was already empty by then.
Good luck! At least you're moving toward some answers!
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Christine
Those who can do; those who want it done better teach.
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JUST DON'T DO THE PREP if you don't want to. I thought I would DIE when I had to do it for a colonoscopy. I agree with you that your condition is at risk and it would be too hard on you. But if I can have a small-bowel follow-through for Crohns with no fleet prep, then you can, too. Call the people who are doing it (not the turd GI, the radiologist dudes) and tell them you don't want to do the prep and why. All I had to do was drink a small (not too bad-tasting) barium shake the night before, don't eat or drink all night/morning, and drink some more barium shake in the morning and some more during the procedure. It wasn't bad at all (except I would have happily beat someone to death for a cup of coffee!!)
Seriously, Kel, get your dad in on this if necessary, but if I can have the SBFT without the prep then I don't see why you can't too.
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Thanks Guys!
#94284 - 07/29/04 02:31 PM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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THanks guys for all your responses, I really appreciate it. Yeah, he was a jerk, but at least he's a jerk who's doing the necessary tests.
And thanks for letting me know that some of you didn't need the prep, I'm going to call the radiologist tomorrow and see what he says about that.
Take care,
Kelly
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Just wanted to add my "good luck" wishes - I still want to backhand your GI, but yeah, at least the tests are getting done. Good luck!
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At least he's moving forward with the tests. I was thinking about you today. Yes, the tests are yucky but you're a brave girl. You'll get through it. At least it sounds like you're getting closer to a diagnosis.
Hugs, Han.
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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But Kelly -- ?
#94294 - 07/29/04 03:07 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Kelly, is the GI going to admit you to Emergency, then? When do you do the "bowel follow-thru"? Are you instead going to go to another GI? What happens next?
Bev
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Hey Bev...
#94296 - 07/29/04 03:17 PM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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No, he's a jerk, he's not willing to admit me. But I see my regular doctor tomorrow who may decide to do it anyways. I don't if I mentioned it in my previous post, but I was just informed I have a kidney infection, so that combined with my lack of foods, blood work being screwy and everything I don't think I'll be able to handle the prep at home. So, hopefully my doctor will be nicer and think about admitting me the night before so they can give me IV electrolytes while I do the prep, if not I don't know what I"m going to do. I assume the prep will further strain my kidneys, as will not being allowed to eat or drink for 12 hours beforehand. Grrr...this is so frustrating, and of course I'm getting scared 
I know I'll get through this, is just very bothersome right now. And to add to everything, I woke up this morning with my period, even though I take continuous cycle birth control pills and have not missed any, so I should not be having a period, so the doctor needs to see me for that now too...I'm falling apart at the seams.
The test is scheduled for Tuesday (at least he's doing things quickly) with a follow-up set for Thursday (with the GI this time).
I'll keep you guys posted,
Kelly
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Awww Kelly! I'm sorry to hear you are still hurting and got crappy treatment! Don't ya just want to be nice and be treated nice back? I know that's all I want! I totally felt like crying after my GI Dr was grumpy to me one time too, he was always nice before. I felt so terrible and was looking forward to him being helpful. I think he was just having a bad day though,becasue I know he's a nice person. So that's probably what happened to you too. And heck if he has to work with that nasty nurse, maybe that's why he was crabby  Missyb
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