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Re: My Endoscopy update and results! new
      #9338 - 05/18/03 08:39 PM
Laurie

Reged: 02/28/03
Posts: 158
Loc: Houston, TX

They found H.Pylori when they did my EGD almost a year ago. My doc said it looked like it had been there awhile too. It had already started eating away the lining in a couple of spots. They medicine gave me the absolute worse taste in my mouth. Do you have the little packs with AM & PM sets with about four pills each?

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Laurie

Nobody can make you feel inferior without your permission - Eleanor Roosevelt

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Re: Thanks Karin! -nt- new
      #9346 - 05/19/03 03:10 AM
ConcreteAngel

Reged: 02/12/03
Posts: 612
Loc: New Jersey,USA



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-Angela
Healed in Jesus' Name

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Re: Angela-Karin new
      #9350 - 05/19/03 05:20 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Angela,

She wouldn't necessarily have checked for Celiac. Also, you might have tested negative for Celiac then (when was the endoscopy) and you might test positive now. Endoscopies are considered the gold standard test for Celiac...but they're not 100% accurate. This is what's so frustrating for a lot of folks--and this is why many people simply go off gluten after negative test results, find they feel better, and are self-diagnosed.

If you decide to go off gluten and you feel better, you have your answer regardless of the tests.

Good luck, and keep us posted!

Ruchie

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Formerly known as Ruchie

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Re: My Endoscopy update and results! new
      #9367 - 05/19/03 09:32 AM
GEA

Reged: 04/06/03
Posts: 32
Loc: San Diego, CA

Hi Laurie,
So how are you doing now? Are you all better from it? The pharmacist told me there was a 90% chance of killing it. It's pretty hard to get rid of, so I have been reading. No, I didn't have any packets, but what I have been taking also leaves a gawd awful taste in my mouth too!

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~GEA~

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Re: My Endoscopy update and results! new
      #9370 - 05/19/03 10:48 AM
Laurie

Reged: 02/28/03
Posts: 158
Loc: Houston, TX

I can definitely give the men a run for their money if I belch, but I don't know if that has anything to do with the H.Pylori. My husband's aunt is a nurse and ran the endoscopy floor, she told me that more than likely the medicine would get rid of the H.Pylori. She never made it sound like it was to terribly difficult to get rid of. It's been about a year since it was found. It's almost a year since I went to the GI doc. I probably should go back and ask him if I need to be tested or have another EGD. That H.Pylori was doing a number on my stomach. I thought to myself afterwards, no wonder I had burning sensations on occaision. I've read that it's pretty easy to transmit. I'm wondering if I should get my husband tested for it. Are you taking anything besides the super antibiotic? They gave me in the little packet, previcid (sp). I had four pills I took in the morning and again at night. They were all horse pills too. I don't envy you and that horrible taste in your mouth.

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Laurie

Nobody can make you feel inferior without your permission - Eleanor Roosevelt

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Its my turn now.... new
      #12523 - 06/25/03 06:00 PM
Leanne01

Reged: 02/03/03
Posts: 73


My Endoscopy is scheduled for Monday. I'm kinda nervous. I have never been put under any kind of anesthesia (sp?) and I have never had any kind of procedure done. Is it hard to wake up after its over with? Is it that scary?? I know a few people thats had it done and they say its really not a big deal and it doesn't last long.

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Re: Its my turn now.... new
      #12542 - 06/26/03 08:02 AM
GEA

Reged: 04/06/03
Posts: 32
Loc: San Diego, CA

Hi Leanne!
I know just the anticipation is really scary! I have to say honestly that the colonoscopy was easier for me than the endoscope but everyone has a little different experience. I just had a harder time recovering after the proceedure. That was the only part that was hard for me. Maybe it was hard on me because of my age (58). The actual time when it was being done, I was fine and it was not scary. They give really good drugs and I actually felt happy from them! Before I got the drug, I was scared but determined to get it overwith to find what was going on with me.
I have had to take very high doses of antibiotics for the H. pylori. My blood tests had come back negative, by the way. The antibiotics left me with a very bad candida flare up that I have been having to fight lately.

Good luck, Sweetie! Please let us know how it goes and what the doctor finds out.

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~GEA~

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GERD new
      #12552 - 06/26/03 09:14 AM
Leanne01

Reged: 02/03/03
Posts: 73


Thank you! I will let you know how it went. My problem seems to be in my throat, it feels like I have something in my throat and sometimes my throat burns. I don't know if anybody else has had this problem with GERD.

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Endoscopy update (False negative H. Pylori blood tests.) new
      #12562 - 06/26/03 10:53 AM
Kandee

Reged: 05/22/03
Posts: 3206
Loc: USA, Southern California

I understand that if you are on anti-acids AT ALL prior to the H. Pylori blood test, it will come back a false negative. You need to be off all OTC and prescription anti-acids for weeks before taking the H. Pylori blood test to get correct results. (Can't remember now the exact number of weeks you need to wait after discontinuing them but it is a different waiting period for different classes of anti-acids.) Ask your gastro about this as this might have been what happened to you....or...do a web search on "false negative H. Pylori tests".
Glad you are starting to feel better............and now on the right track.
Kandee


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Re: My Endoscopy update and results! new
      #12595 - 06/26/03 02:13 PM
danie

Reged: 05/01/03
Posts: 51
Loc: NYC

Gea,
I can't believe that your doctor didn't have you taking acidophilous while on antibiotics!
You can take it everyday as a supplement.

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