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SO frustrated....
      #80709 - 06/18/04 07:53 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

I feel like I'm back to square one again. Just as I thought I was starting to feel better, bam, I'm right back where I started.

I guess I'm just feeling a little sorry for myself today. I'm just tired of this. I began taking Zelnorm a month and a half ago, and it looks like its completely stopped working. I've started an SFS, and since starting it, I've been completely C.

I've been eating right and drinking loads of liquids, but after 5 days of C I am in pain, bloated and just plain UNCOMFORTABLE. I just feel so limited and wish more than anything I could be *normal* for one stinking day. I'm tired of being 18 and not being able to do normal things with my friends like just going out and socializing. People encourage me to do them saying this will make me feel better, BUT I HAVE TRIED, I feel worse, and either bring others down with my unenthusiastic mood, or am forced to put on an act which to be honest, I just don't want to do.

I am frustrated that all my thoughts are focused almost 24/7 on my STOMACH. I hate that this is all I think about and feel so helpless for the majority of the time.

Most of the time I just want to be alone and by myself because I don't have any desire to socialize feeling as I am, but when I do so, my family says it is bad/unhealthy/annoying when I "hibernate" as they put it. Well, hello, I don't WANT to live in a little box...I hate it and the fact that I think about this almost every second I'm awake.

I'm really sorry for the vent but this is the only place I can express my frustration and wallow in my self pity without being judged too harshly for it. I'm trying sooooooo hard to fight the urge to just give up but I'm hanging onto a thread of hope that I might find SOMETHING that can help me. They say hindsight is 20/20 and I am starting to believe that whole heartedly. I didn't realize how lucky I was to have my great health before this all began...

Thanks to anyone whose reading this for listening to my vent. I truly appreciate your support.

--C

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Re: SO frustrated.... new
      #80720 - 06/18/04 08:20 AM
bttrfly08

Reged: 05/06/04
Posts: 163
Loc: Queens, NY

you sent me hugs and i'm sending them back! i will have some awesome days where i feel great and "normal" and then there are days like today where i feel like i never made any progress. just remember you are not alone and we are here for you!! feel better!!!

--------------------
Things happen for a reason...just believe

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Just throwing some *hugs* your way... new
      #80721 - 06/18/04 08:24 AM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

Poor thing. I know exactly how you feel. I was all excited almost a week ago - I felt ALMOST NORMAL. Now I'm back to being C again (3 days and counting...), even though I'm doing everything right, and the pain is almost nothing compared to the mental beating this is giving me. It really sucks that we can't stop thinking about our insides for ONE FREAKING DAY and just LIVE, isn't it?

I've been doing this for almost a month now (I started before I'd reg'd for the board), and a lot of days, the only reason I feel like I'm sticking to it is because my boyfriend keeps telling me that HE can see improvements in how I'm feeling. But thinking about it, I guess he's right. I haven't had D (my main problem) in... huh, I guess it's been almost 2 weeks, imagine that.

Anyway, enough about me. I figure that a lot of what we go through the first few months is our bodies adjusting to this new way of eating. It IS a pretty big adjustment, even if you go slowly. Patience isn't my strong point, either, especially on the bad days, but hang in there... I have a feeling the end results will be worth the hassle.

And if you figure out how to safely get things moving again, let me know. Hehe.

*hugs*

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IBS girl.... new
      #80738 - 06/18/04 08:53 AM
BL

Reged: 06/01/03
Posts: 3522


That's ok. Go ahead and vent. We've all been there! I know it is hard when your family and friends don't understand, and sometimes it's easy to want to hibernate and crawl in a hole, especially when your tummy is hurting so much.

But maybe if you told us which SF and how much you are taking, and what you are eating, etc, someone could figure out what it is that's causing you such pain. Sometimes it's the little things we do that cause problems and we don't realize it because we are too close to it.

Take for instance, the stupid thing I did this past week. I had family in town and bought some Special K cereal because that's what they like. I usually eat Rice Chex or oatmeal, but I ate the Special K every morning while they were here and have been doing so every since. And I have had horrible problems with C, bloating, gas, and tummy pain.

This morning, when I got up, opened the pantry and saw the box of Special K, it was like a lightbulb went off in my head! I realized my problems started and have continued since I have eaten this for breakfast. So I ate some oatmeal this morning instead, and soon afterward had a BM---and I have no pain or bloating anymore!!!!!!
I feel very stupid for not thinking of this sooner than I did.

For those who are curious, I looked at the boxof Special K and the ingredients are: "rice, wheat gluten, sugar, defatted wheat germ, salt, high fructose corn syrup, dried whey, malt flavoring and calcium caseinate."

I suspect it was the wheat gluten or the high fructose corn syrup that was bothering me. I am throwing the box in the trash right now!







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Re: SO frustrated.... new
      #80764 - 06/18/04 09:49 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Oh, sweetie, that's so not fair. Here's a {{{{{{{{{{{{{{{{BIG HUG}}}}}}}}}}}}}}}}}}}

And I was thinking this morning how cool it was that you've been doing such a great job answering questions and helping everyone on the board. I was going to post a special message to you today to tell you how impressed I am with you. You been around what a few months and you've already surpassed most of us in your knowledge and helpfulness. It's SO GREAT to have you on the board.

Remember, this too shall pass and go check out my sister's success story. Hers is about weight loss but she has IBS too. Martha's Story

You're only human, you're allowed to feel sorry for yourself and to vent. And guess what? You get to have the pity party hat for today!! How cool is that??



Feel better sweetie and don't give up 5 minutes before the miracle!! Okay??!!

--------------------
Laura
Keep it simple!

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Vent All You Want new
      #80774 - 06/18/04 10:08 AM
Bevvy

Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State

Dear C,

I'm sorry that you are going through this at such a young age. You're right -- it's VERY unfair! I didn't begin suffering until I was in my 40's; at least I had a normal young life. You SHOULD be able to go out with your friends and have fun and do stuff they do -- and eat stuff they eat. Unfortunately, life dealt you a lousy hand. Now you have to live with it.

However, "that which you survive only makes you stronger." This awful problem you have WILL make you stronger. The way you handle it will determine your character. It's not going to be easy, as you've already discovered, but you're young, you have twice the energy of us old farts, YOU CAN DO THIS!

After starting something new, like a SFS, your body is going to wonder, "what the hell has she put down me -- and what am I supposed to do with it?!" It's going to take awhile before you see any results. Obviously your body decided to hold onto all your poop. Oh great. "Just when we were getting used to the Zelnorm, she throws down this damn Benefiber!" Give your body a chance.

Also, lighten up on yourself. You can socialize as much as you want -- LATER. Tell your parents that your body needs a little time to adjust to the new supplements you're giving it, which means you need to just "chill out" awhile. They'll understand. Ask them, CALMLY, to please be a little understanding of your situation, and that you will come around once you get stable.

And you will get stable. It took me a long time too.

Meanwhile, have you introduced any insolubles into your diet yet? I've talked about this before, but blueberries really make me poop. I'm not a C -- I'm a D -- and I really love these things (blueberries I'm talkin' about here), but I have to limit my portion because they'll really do a number on me. How about trying a blueberry smoothie? Toss a banana in a blender, add some soy yogurt or soy milk (I prefer soy "ice cream"), and some fresh (or frozen) blueberries. Maybe even a little honey. YUMMMMMMM.

If that doesn't make you poop, then fix some vegetable soup. Buy a can of chicken stock, chop up your favorite veggies, and throw them in the stock. Simmer for about a half hour. Them's poopin' foods!

Hope you feel better soon -- and remember, go easy on yourself.

Bev

BTW, vent all you want, Girlfriend! We're here to listen.

--------------------
<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy


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Re: IBSgrl new
      #80777 - 06/18/04 10:27 AM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

Hey IBSgrl,

I know it sucks having the burden of IBS on you so young (I was seventeen when I started showing symptoms). It, among other problems, practically ripped apart my social life and I'm slowly trying to pick up the pieces, but it is hard. My goal is to make some new friends, or revive some old relationships, before my twenty-first birthday in October.
just remember, even though your family and friends are giving you a hard time, at least you know they are there and care about you and miss you when you are not around.
I have had some pretty hopeless times, but hope is the one thing that I have hung onto to get me through it.
I have been on the diet only a couple of months, too, and even though I've been an improvement, there ia a lot of stress still to keep things "normal". As upsetting as it is, every morning I go through a panic thinking that I won't be able to have a BM and may get a bout of D later in the day at work.
But, I just go about my routine and everything turns out fine. Just keep on trying, please don't give up! There is too much out there for someone as bright and young as you!
You'll get through this.
Oh, and listen to Bevrs advice about poop'n. It's helped me!

--------------------
-Sheri

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Re: Beaglelover new
      #80779 - 06/18/04 10:32 AM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

Beaglelover,

Just wanted to let you know if you didn't realize, whey and calcium caseinate are "code words" for milk. Tarabara posted a list awhile back that had all the words that can be used to list milk and milk proteins in products, if you want to do a search for it.
I know any products that I eat that have those words on the label usually makes me sick!

--------------------
-Sheri

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Re: buttrfly new
      #80780 - 06/18/04 10:46 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Thanks for reminding me I am not alone in this. One thing that keeps me sane is knowing I have this great support and people who care and want to help. Thanks again

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atomic new
      #80781 - 06/18/04 10:49 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Thanks so much for the hugs - its amazing to have someone thats going through the same thing!! It is a big adjustment and I hope more than anything you are right - that it'll be worth all the "hassle" in the end.

Like you, patience isn't one of my best traits either so I guess I just get frustrated and upset from all this waiting....but thanks so much for your support.

p.s. - i am in the process of making that bread/loaf. I sneaked a taste from the bowl before I put it in and to me it tastes an awful lot like ADB's

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Re: beaglelover new
      #80783 - 06/18/04 10:52 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Thanks for letting me vent it all (and listening)!

You know, the thing that got me was that everything I have been eating, drinking and taking (with the exception of the SFS) has been exactly the same, almost to a T, as I had been eating when I wasn't C - which is why its so difficult to pinpoint.

As for the SFS, I started with metamucil...and I know it causes bloating, etc and haven't noticed more than usual, just awful C! I didn't think that was possible!!! ahhhhh, I'm going crazy I think!

Funny you mentioned Special K though...4 months ago I ate that every day for breakfast and it wasnt too great for my system I think. Needless to say I'll also be steering clear of it.

Thanks for all your support and concern

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Re: SO frustrated.... new
      #80784 - 06/18/04 10:56 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Aww Laura Sue, you're such a sweetheart! And yay! I get the pity party hat!

Thanks for the compliments - but I have only learned from the best...seriously! And I am ALWAYS amazed how well you and others cope having Fibro/Thyroid probs ON TOP of IBS! WOW. Thank you for all the support and encouragement, I don't think all of you know how much it means to me!!!

I will be sure to check out your sisters story, THANKS!

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Sheri new
      #80785 - 06/18/04 11:09 AM
BL

Reged: 06/01/03
Posts: 3522


Thank you! I did not know that! I tend to think that as long as I don't drink a glass of milk or pour it over my cereal (I use rice milk) that the milk products won't bother me. I guess I was wrong about that. I will have to pay more attention to this from now on.
Where is the list? I need to print it out and memorize it.


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Re: SO frustrated.... new
      #80786 - 06/18/04 11:09 AM
michele36

Reged: 06/10/04
Posts: 10
Loc: Maryland

Hang in there and don't give up. I read in one of your posts that the SFS (I'm new, and hopefully got that acronym correct) is Metamucil. I've read on the boards -- in multiple places -- that Metamucil is not the best SFS. I take Citrucel (even though it scares me b/c I'm normally a D) and it helps me a lot. It is the only SFS I've ever taken that doesn't cause a lot of gas and bloating. Look on the boards b/c I think that others recommend Heather's Acacia as well.

I know that it's hard to not "obsess" about your tummy always hurting. Believe me, I spend way too much time thinking about it and analyzing what I'm doing wrong. We're all here to help each other. To some degree, I'm sure that we all have the same moments that you do where we want to "hibernate" in our rooms. In fact, I just felt that way last week and it was miserable. But I came through and and have been working hard to get back on track again.

Hang in there. . .things will get better. On the positive side please remember that you CARE enough about yourself and the way you're feeling to make things better. How could anyone fault themselves for being proactive in managing their health?

Take care and feel better. There will be better days ahead!

-- M

--------------------
Be Happy!

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Bev new
      #80788 - 06/18/04 11:29 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Hi Bev,
Thank you for your kind words and great suggestions. I like the idea about the blueberry smoothie. And you're right about the meds and sfs's - my body just has to have time to get used to it all!

I will also take your suggestion about talking to my parents (again). Like many of everyone's family members and friends, sometimes they just don't understand things like why I can't or don't want to eat certain things, or do certain things....but it IS my life and I have to live it.

Anyway, thanks so much again - I appreciate what you and everyone else has done for me

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Sheri new
      #80789 - 06/18/04 11:32 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Thank you for your encouragement - its nice to know that someone else is also going through this at a young age and understands what it can do to your social life, etc. My birthdays also in October hehe! When's yours?
I agree that this whole thing is very stressful, which is a vicious cycle because the worrying causes stress, which causes the ibs to get worse...lol, its crazy!
I also agree about family - it is good that they are here for me even though they dont always get it. Thanks so much!

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Yum! new
      #80793 - 06/18/04 11:39 AM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

I still haven't tried the ADB's. The bread doesn't come out chocolatey at all, but it's still really good. I ended up making a loaf and 7 muffins, and 3 of the muffins are gone already. Heh. Not bad for a girl who keeps complaining that she can't eat, huh?

I hope I'm right too! LOL! I just remember what it was like the last time I had to eat like this, for the gallstones... it took 4 or 5 months to feel better. And it sucked. But yes, it was worth it. So I continue to pep-talk and hope I'm right a second time!

Feel better!

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Re: Sheri new
      #80798 - 06/18/04 11:51 AM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

23rd - right before Halloween. I don't mean to sound ignorant, but do you celebrate that in Canada? How about you?

--------------------
-Sheri

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Re: Sheri new
      #80801 - 06/18/04 11:53 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Mine's the 13th! And yes, we do celebrate it in Canada -- well I don't trick or treat mind you! I just eat the candy

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Re: Sheri new
      #80810 - 06/18/04 12:05 PM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

Here's tarabara's previous post:

Quote:

Hey guys! I was looking online and couldn't tell whether or not a product had dairy in it so I emailed the company and they emailed me back with a list of what to look out for on most products that might indicate something contains dairy.
butter fat
malted milk
butter flavor
milk chocolate
butter solids
milk derivative
buttermilk
milk protein concentrate
butterscotch
milk solids
calcium lactate
modified butter flavor
casein
natural cheese flavor
caseinate
nonfat dry milk
cheese(all varieties)
reduced lactose whey
cream
rennet
cream cheese
skim milk
curds
sodium calcium caseinate
dairy flavor
sodium caseinate
delactosed whey
sour cream
demineralized whey
sour cream solids
dry milk solids
sour milk solids
Half and Half
whey protein
Lactalbumin
whey
Lactose
yogurt
enzyme modified cheese
Hope this helps when you go food shopping! Just wanted to share! Good luck!




I think I did that right, I am kinda new to this message board thing and not quite sure how to use this quote feature just yet.
(Just a note, I have heard other IBSers say that they can tolerate casein, although I stay away from it)

--------------------
-Sheri

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Re: SO frustrated.... new
      #80818 - 06/18/04 12:16 PM
Vicam

Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada

Hey Ibsgrl,

I just wanted to say that I hope that you feel better soon! I totally understand how you feel, I couldn't believe it reading your post, I felt like I was reading something I wrote myself! I'm an "A" but mostly have trouble with D, but everything else seemed exactly the same. My family gets on me too about "hibernating" and being a hermit, and I try to explain to them that if they felt the way I feel most of the time, they wouldn't go out either, but to no avail. It's so frustrating isn't it? Obviously we don't want to be stuck inside by ourselves all day! Where's the fun in that?

And also I totally feel like my mind is on my stomach all the time, which is also frustrating because I doubt that helps anything to feel better.

I just wanted to share with you, I'm sure things will get better soon, just keep plugging away! And vent all you want!

Take care,
Kelly

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I feel ya on the family thing!! new
      #80819 - 06/18/04 12:16 PM
peaches

Reged: 09/28/03
Posts: 1183
Loc: Fort Wayne, Indiana

My family is exactly like that! They're constantly telling me things like, "Oh, having one little piece of cheescake won't kill you!" And I just there and I say, "Uh, YEAH it will!"

I think it's just that the "normies" (normal people - I didn't know what to call them!) don't understand at all what it's like to eat something like a slice of cheesecake and sit on the pot all night! It makes me mad because they do that to me alllll the time! I'm pretty sure that here, everyone's family has been uner-supportive at times. I guess it's just one more thing for us to deal with due to our IBS.

But if they do offer you food at a party or something that you don't find safe, and you refuse and they ask you why, tell them specifically what's in it that you can't eat or bring your own dish and some yummy so that way you'll always have something to eat! My grandma began making specially adapted recipes for Thanksgiving that would be pretty safe for me to eat.

Have you tried sitting them down together and explaining exactly what all goes on with IBS and maybe give them the food list that's posted up here. Maybe that would help?

I hope everything gets better for you! Keep us posted!

--------------------
It comes down to the art of living on [color/red]

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Darn, you have a right to be frustrated!.... new
      #80828 - 06/18/04 01:00 PM
barbie

Reged: 04/22/04
Posts: 2435
Loc: Texas

I am so sorry that you are having to go through this ordeal at such a young age. It's bad enough on us "old timers".

You have a right to be frustrated and venting on this board is a good way to get it out.

Now, things will get better....you will just have to have faith in that. You mentioned that you had been feeling better so you know it is possible.

Something has upset your system. It takes a lot of detective work to figure out what's causing the problem. I would suggest keeping a food diary. Maybe there might be some different meds you could take. I'm a "D" so I can't give you much info on "C" but have you tried probiotics?

Believe me, I understand thinking about your stomach 24/7....it's no fun.

I went out to lunch today and ate way too much and now I feel like a beached whale. Took some Alka Seltzer and maybe that will help. I'm sure I will pay for this later.

Anyway, you are not alone and we are all here to help you through this. Don't give up. You will have good days again.

Barbie



--------------------


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I feel for you....... new
      #80831 - 06/18/04 01:09 PM
pcgeek43505

Reged: 01/12/04
Posts: 89


i am 15, and have had IBS-D since for about 9 years now..... i know exactly how you feel not being able to go places with friends, just yesterday my friends invited me to go Bowling with them, i said sure ill go, and ends up i got real sick from a little bit of ice cream i ate (was a little experiment to see if it was Lactose that made me sick) and so i didnt get to go!!! im sorry that we all have to feel like this and wish SOMEONE would come up with a cure...... good luck

--------------------
"We just do what we do. This is the only way we know how to do it." -- David Draiman of DISTURBED

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Re: SO frustrated.... new
      #80832 - 06/18/04 01:10 PM
belinda

Reged: 10/09/03
Posts: 474
Loc: Toronto, Ontario, Canada

A lot of people on this message board think they're "eating right," but I am sorry to say they are not. It's a long journey it seems to understanding just how careful you have to be when you have IBS and what you need to do in order to feel well most of the time.

I've had IBS all of my life (46 years) and I have a severe case of it. I follow a very strict, careful diet that enables me to lead a relatively normal life. I have a demanding job and busy personal life and my IBS rarely, if ever, interferes with this.

I follow Heather's diet, but I omit some things that I can't seem to tolerate. Not everyone with IBS can tolerate everything on Heather's diet. YOU HAVE TO FIND OUT WHAT WORKS AND WHAT DOESN'T WORK FOR YOU.

I eat ONLY ORGANIC POULTRY AND PRODUCE and I am diligent about READING EVERY SINGLE INGREDIENT on every single packaged item I buy. Additives and chemicals are added by North American food manufacturers to virtually everything so you have to be very diligent in reading ingredients. A good example is flour. So far I've only found one flour that only contains just 100 per cent wheat and nothing else --Bob's Red Mill unbleached organic white flour available in both the U.S. and Canada. All other flour that I've seen contains a myriad of other, potentially IBS-unsafe ingredients. Don't buy any flour that says "enriched" because it contains tons of junk!

If you are following Heather's diet, but are not eating organic or are not scrutinizing ingredients, it could account for why you get the pain and other symptoms.

If I let down my guard for one minute and eat the slightest thing off my diet, I get sick. I still battle IBS-D, but I rarely if ever have pain anymore.

This is in contrast to the first 40 some years of my life in which I suffered frequent painful IBS attacks. That's why I say it's a long journey to fully understanding just how careful you need to be to control your IBS. I've come to accept how careful I need to be and I am fine most of the time. I've never taken any medication for IBS, nor am I taking any medication now.

I hope you will reach the wellness point that I have reached much quicker than I did in my life. Please feel better very soon.

Belinda





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Re: I feel ya on the family thing!! new
      #80833 - 06/18/04 01:12 PM
mandykay

Reged: 06/18/04
Posts: 6
Loc: Massachusetts

Hello,
This is my first posting but just wanted to comment that it is such a relief to hear comments from you all that sound so much like what I'm going through. I'm a "C" just starting to learn more about IBS, Heather's suggestions and starting to incorporate changes in my life to work around this. I agree on the "hermit" life and lack of desire to socialize. Seems when I finally make plans and head out the stress/anxiety that goes along with it only make me have a flare up of cramps, bloating and discomfort. It makes me feel 100x better knowing this website and message board exists. Hang in there everyone and I look forward to learning more from you all.


--------------------
Mandy

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A little more... new
      #80843 - 06/18/04 01:44 PM
belinda

Reged: 10/09/03
Posts: 474
Loc: Toronto, Ontario, Canada

I want to add a little more about just how careful some IBS people may need to be.

Conventional poultry not only poses a challenge because of the antibiotics and harmones it contains, but also because food manufacturers sometimes inject it with milk products to make it taste better. Butterball turkey is an obvious example of this. But there are other less obvious examples. I've discovered, for example, that most restaurants purchase poultry that has been injected by milk products before it is cooked.

I've totally given up on buying conventional poultry. The last time I tried, I boiled and boiled it and then ate a small piece and (like the times before) I got stomach cramps. I tried another piece the next day with the same result. I had purchased the poultry from one of the best and highest quality food stores in Toronto.

The next day I went to the health food store and bought organic chicken and I've never looked back since. I feel fine after eating organic chicken. Actually the chicken I purchase is not officially "organic." However, it contains no additives and has been raised without harmones and antibiotics. I believe an organic certification is difficult for poultry farmers here in Canada to obtain so some don't apply for it even though their poultry is "organic."

Belinda




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Re: SO frustrated.... new
      #80847 - 06/18/04 02:01 PM
littleone24

Reged: 05/30/04
Posts: 50
Loc: London, Ontario

Please email me at alesha_toucanflooring@hotmail.com or add me to msn. I am 24 years old. You and I feel identical by the way you described your feelings. I am alone in this too and hate having to put on an act , as you said when I'm around my friends. I want to die every other day at least! Anyway, I could use someone to talk to about this, and to be honest. I don't know if I believe everything I see on this website.

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Re: I feel ya on the family thing!! new
      #80862 - 06/18/04 02:28 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Welcome, MandyKay!

--------------------
Laura
Keep it simple!

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Re: SO frustrated.... new
      #80900 - 06/18/04 04:27 PM
Mitch

Reged: 02/06/04
Posts: 170
Loc: Tucson, AZ

Hi Ibsgrl,

Hang in there things will get better. I have been suffering with IBS for about 2 years now and I know what you feel like. There are just days that I feel so crappy and I have more D than C. I also hate feeling this way and it is hard to explain to your family what you are going through. There are times that I just wish they could go through this once just to see what we go thorugh (not that I wish this on anyone but.....)

Just know that there is a bright star at the end of this. It would be nice if you could just go out a few times a week and not have to worry about this. I too get tired of thinking about my stomach. I would love to go out and just eat like everyone else but alas I can't. I just have to remember that if I do then I end up on the toilet half the night so its just no worth it.

Yes give yourself some time to get used to the new medicine I know with me it took awhile but now I am doing pretty good. I haven't had an attack in over two weeks. That is pretty good for me. I also use the book that Heather wrote and it has helped alot. My trainer has also helped alot as he has studied IBS in college so he kind of knows what to look for.

Just follow the advice that everyone has given you and you will feel better soon. And yes you can vent here that is what this is for. I mean who else can we vent to??? Our family really doesn't understand what is going on but we do here.

Take care and I hope you feel better soon.
Michelle

--------------------
Michelle

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Re: SO frustrated.... new
      #80935 - 06/18/04 06:59 PM
Ana Maria

Reged: 03/24/04
Posts: 171


Oh ibsgrl - so sorry you're not feeling well! Just wanted to let you know that I know how you feel and I hope you feel better soon!!!

I think Bev mentioned blueberries to you as she mentioned them to me. I've found that if I don't have my smoothie in the morning with a banana and either blueberries or strawberries and then a bowl of oatmeal or oat bran, I don't "go" that day.

I know what you mean about thinking about your tummy all the time - I'm always counting the days, sometimes the hours since the last time I went to the bathroom.

Know though that it does get better and there is a light at the end of the tunnel - and it's NOT a train coming at you!

Feel better soon!
Ana

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YOU GUYS ARE AMAZING!!!! new
      #80947 - 06/18/04 08:07 PM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Hi everyone
THANK YOU THANK YOU THANK YOU
I just got home from a long night of work on my feet and I am exhausted and feeling pretty iffy, BUT reading all your messages mean SO SO MUCH to me! You are all very special and kind people. To know that I have support, people who've been in my shoes to give me advice, and others who can completely understand how I feel as they are experiencing what I am at the moment, means the world. I am so glad I found these boards and people who are so compassionate. Tomorrow I will be sure to reread all your kind words and respond properly and carefully look at all the great advice and suggestions you've given me.

Thanks for letting me vent today (and a few more times in the future most likely! ) and caring about me, I can't thank you all enough.

Sweet dreams!!!

p.s - LittleOne I added you!

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Re: SO frustrated.... new
      #80949 - 06/18/04 08:16 PM
Kimmy

Reged: 06/02/04
Posts: 76
Loc: Upstate New York

Sorry for the very rough time you are going through right now. Please know that you are not alone. I to am a C with occasional D and I went through a time like this a few weeks ago.

After releasing my frustration and crying on my family & friends shoulders (I am sure they are all as tired of it as I am) I searched the board and found a post by Barbie to a C sufferer. She suggested adding more insoluble fiber to the diet. I did that, made it a point to exercise more and drank more herbal tea (peppermint & chamomille). While the C slowly got better, increasing the insoluble fiber gave me some pains & bloating. With some experimentation & time to let my body adjust, I began to feel better. A food diary helps also (I have a small list of insoluble fiber foods that I absolutely will not touch).

You're right, it is very tiring to thing about your diet & health as much as you have to now, but with perserverance and support (and there is loads of that here!) you will find a combination that works for you.

Here is another recipe I thought you might like, it contains both soluble and insoluble fiber and I actually think it helped me with the C.

Orange-Blueberry Loaf

1 cup Blueberries
2 tbsp & 1-3/4 c flour
1/4 cup cornmeal
1-1/2 tsp baking powder
1-1/2 tsp baking soda
1/2 tsp salt
1/2 cup sugar (I omit the sugar)
3 tbsp unsweetened applesauce
3 tbsp canola oil
1 egg white or 1/4 cup Egg Beaters
1/2 Cup orange juice
2 tsp vanilla

Preheat oven to 350 & coat 8-12" x 4-1/2" loaf pan with cooking spray

-In a small bowl mix blueberries and 2 tbsp of flour
-In a medium bowl mix remaining 1-3/4 cups flour, cornmeal, baking powder, baking soda and salt.
-Place sugar, applesauce, oil in a large bowl. Using an electric mixer on high speed beat 2-3 minutes, add egg and beat well, beat in orange juice
-Add flour mixture and beat on low speed until well blended (you may also have to add a litte water if batter is too stiff). Stir in Blueberries and pour into prepared breadpan.
-Bake 55 to 65 minutes, or until a wooden pick inserted in center comes out clean. Cool on rack 5 minutes and remove from pan

Hope this helps and hope you feel better soon!




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Thanks Kimmy! new
      #80955 - 06/18/04 08:51 PM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

That sounds delish...you're so kind for posting it and thank you so much for your caring words!!! I wonder if Heather would add this recipe, and the other one you have me (Heather's chocolate applesauce bread) to the recipe index?

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Re: SO frustrated.... new
      #80977 - 06/19/04 12:07 AM
Shell Marr

Reged: 08/04/03
Posts: 14959
Loc: Seattle, WA USA

Gosh, I don't know how I missed this post. I have not read the whole thread so I'm not sure of your current feelings. I sure hope you are feeling better and have gotten lots of support here from all the other wonderful people. Sorry I was not here for you sooner when you first vented.

I will check back over the weekend and see how you are doing......

{{HUGS}}

--------------------
www.facebook.com/shell.marr

www.myspace.com/shellmarr




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Thanks Shell... new
      #81002 - 06/19/04 07:40 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Still the same "situation" if you get what I mean, but you guys are amazing to me. And Shell, you're such a wonderful person, I hope you know that.
I always love reading your what is it posts, your yummy recipes, your great advice, how you're doing with the weight loss and admire the amazing relationship you seem to have w/your hubbie

Thanks again, I'm off to work yet again now () , but I'll check in later.

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