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Re: SO frustrated.... new
      #80818 - 06/18/04 12:16 PM
Vicam

Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada

Hey Ibsgrl,

I just wanted to say that I hope that you feel better soon! I totally understand how you feel, I couldn't believe it reading your post, I felt like I was reading something I wrote myself! I'm an "A" but mostly have trouble with D, but everything else seemed exactly the same. My family gets on me too about "hibernating" and being a hermit, and I try to explain to them that if they felt the way I feel most of the time, they wouldn't go out either, but to no avail. It's so frustrating isn't it? Obviously we don't want to be stuck inside by ourselves all day! Where's the fun in that?

And also I totally feel like my mind is on my stomach all the time, which is also frustrating because I doubt that helps anything to feel better.

I just wanted to share with you, I'm sure things will get better soon, just keep plugging away! And vent all you want!

Take care,
Kelly

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I feel ya on the family thing!! new
      #80819 - 06/18/04 12:16 PM
peaches

Reged: 09/28/03
Posts: 1183
Loc: Fort Wayne, Indiana

My family is exactly like that! They're constantly telling me things like, "Oh, having one little piece of cheescake won't kill you!" And I just there and I say, "Uh, YEAH it will!"

I think it's just that the "normies" (normal people - I didn't know what to call them!) don't understand at all what it's like to eat something like a slice of cheesecake and sit on the pot all night! It makes me mad because they do that to me alllll the time! I'm pretty sure that here, everyone's family has been uner-supportive at times. I guess it's just one more thing for us to deal with due to our IBS.

But if they do offer you food at a party or something that you don't find safe, and you refuse and they ask you why, tell them specifically what's in it that you can't eat or bring your own dish and some yummy so that way you'll always have something to eat! My grandma began making specially adapted recipes for Thanksgiving that would be pretty safe for me to eat.

Have you tried sitting them down together and explaining exactly what all goes on with IBS and maybe give them the food list that's posted up here. Maybe that would help?

I hope everything gets better for you! Keep us posted!

--------------------
It comes down to the art of living on [color/red]

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Darn, you have a right to be frustrated!.... new
      #80828 - 06/18/04 01:00 PM
barbie

Reged: 04/22/04
Posts: 2435
Loc: Texas

I am so sorry that you are having to go through this ordeal at such a young age. It's bad enough on us "old timers".

You have a right to be frustrated and venting on this board is a good way to get it out.

Now, things will get better....you will just have to have faith in that. You mentioned that you had been feeling better so you know it is possible.

Something has upset your system. It takes a lot of detective work to figure out what's causing the problem. I would suggest keeping a food diary. Maybe there might be some different meds you could take. I'm a "D" so I can't give you much info on "C" but have you tried probiotics?

Believe me, I understand thinking about your stomach 24/7....it's no fun.

I went out to lunch today and ate way too much and now I feel like a beached whale. Took some Alka Seltzer and maybe that will help. I'm sure I will pay for this later.

Anyway, you are not alone and we are all here to help you through this. Don't give up. You will have good days again.

Barbie



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I feel for you....... new
      #80831 - 06/18/04 01:09 PM
pcgeek43505

Reged: 01/12/04
Posts: 89


i am 15, and have had IBS-D since for about 9 years now..... i know exactly how you feel not being able to go places with friends, just yesterday my friends invited me to go Bowling with them, i said sure ill go, and ends up i got real sick from a little bit of ice cream i ate (was a little experiment to see if it was Lactose that made me sick) and so i didnt get to go!!! im sorry that we all have to feel like this and wish SOMEONE would come up with a cure...... good luck

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"We just do what we do. This is the only way we know how to do it." -- David Draiman of DISTURBED

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Re: SO frustrated.... new
      #80832 - 06/18/04 01:10 PM
belinda

Reged: 10/09/03
Posts: 474
Loc: Toronto, Ontario, Canada

A lot of people on this message board think they're "eating right," but I am sorry to say they are not. It's a long journey it seems to understanding just how careful you have to be when you have IBS and what you need to do in order to feel well most of the time.

I've had IBS all of my life (46 years) and I have a severe case of it. I follow a very strict, careful diet that enables me to lead a relatively normal life. I have a demanding job and busy personal life and my IBS rarely, if ever, interferes with this.

I follow Heather's diet, but I omit some things that I can't seem to tolerate. Not everyone with IBS can tolerate everything on Heather's diet. YOU HAVE TO FIND OUT WHAT WORKS AND WHAT DOESN'T WORK FOR YOU.

I eat ONLY ORGANIC POULTRY AND PRODUCE and I am diligent about READING EVERY SINGLE INGREDIENT on every single packaged item I buy. Additives and chemicals are added by North American food manufacturers to virtually everything so you have to be very diligent in reading ingredients. A good example is flour. So far I've only found one flour that only contains just 100 per cent wheat and nothing else --Bob's Red Mill unbleached organic white flour available in both the U.S. and Canada. All other flour that I've seen contains a myriad of other, potentially IBS-unsafe ingredients. Don't buy any flour that says "enriched" because it contains tons of junk!

If you are following Heather's diet, but are not eating organic or are not scrutinizing ingredients, it could account for why you get the pain and other symptoms.

If I let down my guard for one minute and eat the slightest thing off my diet, I get sick. I still battle IBS-D, but I rarely if ever have pain anymore.

This is in contrast to the first 40 some years of my life in which I suffered frequent painful IBS attacks. That's why I say it's a long journey to fully understanding just how careful you need to be to control your IBS. I've come to accept how careful I need to be and I am fine most of the time. I've never taken any medication for IBS, nor am I taking any medication now.

I hope you will reach the wellness point that I have reached much quicker than I did in my life. Please feel better very soon.

Belinda





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Re: I feel ya on the family thing!! new
      #80833 - 06/18/04 01:12 PM
mandykay

Reged: 06/18/04
Posts: 6
Loc: Massachusetts

Hello,
This is my first posting but just wanted to comment that it is such a relief to hear comments from you all that sound so much like what I'm going through. I'm a "C" just starting to learn more about IBS, Heather's suggestions and starting to incorporate changes in my life to work around this. I agree on the "hermit" life and lack of desire to socialize. Seems when I finally make plans and head out the stress/anxiety that goes along with it only make me have a flare up of cramps, bloating and discomfort. It makes me feel 100x better knowing this website and message board exists. Hang in there everyone and I look forward to learning more from you all.


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Mandy

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A little more... new
      #80843 - 06/18/04 01:44 PM
belinda

Reged: 10/09/03
Posts: 474
Loc: Toronto, Ontario, Canada

I want to add a little more about just how careful some IBS people may need to be.

Conventional poultry not only poses a challenge because of the antibiotics and harmones it contains, but also because food manufacturers sometimes inject it with milk products to make it taste better. Butterball turkey is an obvious example of this. But there are other less obvious examples. I've discovered, for example, that most restaurants purchase poultry that has been injected by milk products before it is cooked.

I've totally given up on buying conventional poultry. The last time I tried, I boiled and boiled it and then ate a small piece and (like the times before) I got stomach cramps. I tried another piece the next day with the same result. I had purchased the poultry from one of the best and highest quality food stores in Toronto.

The next day I went to the health food store and bought organic chicken and I've never looked back since. I feel fine after eating organic chicken. Actually the chicken I purchase is not officially "organic." However, it contains no additives and has been raised without harmones and antibiotics. I believe an organic certification is difficult for poultry farmers here in Canada to obtain so some don't apply for it even though their poultry is "organic."

Belinda




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Re: SO frustrated.... new
      #80847 - 06/18/04 02:01 PM
littleone24

Reged: 05/30/04
Posts: 50
Loc: London, Ontario

Please email me at alesha_toucanflooring@hotmail.com or add me to msn. I am 24 years old. You and I feel identical by the way you described your feelings. I am alone in this too and hate having to put on an act , as you said when I'm around my friends. I want to die every other day at least! Anyway, I could use someone to talk to about this, and to be honest. I don't know if I believe everything I see on this website.

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Re: I feel ya on the family thing!! new
      #80862 - 06/18/04 02:28 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Welcome, MandyKay!

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Laura
Keep it simple!

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Re: SO frustrated.... new
      #80900 - 06/18/04 04:27 PM
Mitch

Reged: 02/06/04
Posts: 170
Loc: Tucson, AZ

Hi Ibsgrl,

Hang in there things will get better. I have been suffering with IBS for about 2 years now and I know what you feel like. There are just days that I feel so crappy and I have more D than C. I also hate feeling this way and it is hard to explain to your family what you are going through. There are times that I just wish they could go through this once just to see what we go thorugh (not that I wish this on anyone but.....)

Just know that there is a bright star at the end of this. It would be nice if you could just go out a few times a week and not have to worry about this. I too get tired of thinking about my stomach. I would love to go out and just eat like everyone else but alas I can't. I just have to remember that if I do then I end up on the toilet half the night so its just no worth it.

Yes give yourself some time to get used to the new medicine I know with me it took awhile but now I am doing pretty good. I haven't had an attack in over two weeks. That is pretty good for me. I also use the book that Heather wrote and it has helped alot. My trainer has also helped alot as he has studied IBS in college so he kind of knows what to look for.

Just follow the advice that everyone has given you and you will feel better soon. And yes you can vent here that is what this is for. I mean who else can we vent to??? Our family really doesn't understand what is going on but we do here.

Take care and I hope you feel better soon.
Michelle

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Michelle

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