Need some support!
#54846 - 03/26/04 03:41 PM
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Hi Heather and everyone,
People from an IBS group referred me to your site/board.
I've always had IBS since I was in HS (35 yrs ago), and I now have fibro, which makes it so much worse. I've had all the tests from the gastro Dr. to rule out more serious disorders.
At least once a week, I have a bad attack of diarrhea (I take Immodium or Pepto to stop it), followed by 5-6 days of constipation. I'm totally exhausted and wiped the following day, after an attack, and it's really impeding my life.
I've been taking Bentyl for some time now (a small dose), but if I try to increase it, I'm totally drugged because I take a lot of other meds. Also, the Dr. wants me to try Pamine.
One more thing is that I've always been very thin and eating low-fat food (I eat a lot of chicken and rice) causes me to lose weight, then once the IBS calms down, I can put it back again.
Any help would be greatly appreciated.
Thanks, Carol
P.S. How do all of you get your system(s) back on track?
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Welcome, Carol!
#54849 - 03/26/04 03:58 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Hi Carol,
Welcome to the boards. You've come to the right place. There are several people here who have fibro; I'm sure they can help you a lot.
I am a D person, and struggling with my weight. Your comment interested me: "I've always been very thin and eating low-fat food (I eat a lot of chicken and rice) causes me to lose weight, then once the IBS calms down, I can put it back again." So your IBS does calm down? What makes it do that? And what would cause it to "put it back again"?
I got my system "back on track" when I came on the boards here and got PHENOMENAL help, went through the hypnotherapy program, and -- most importantly -- got real about my IBS. Many times I was doubled over with cramps while reading Heather's "The First Year" -- and drinking my morning coffee. DUH.
I assume you have Heather's book? If not, you'll need it. It really helps to read it (most of us have gone through it at least twice already) because when someone here talks about an issue of concern to you, suddenly a light will go off in your head and you'll realize, "oh yeah, I remember reading about that." You'll just learn so much faster.
What kind of soluble fiber supplement are you on? What is your dosage? Are you drinking all the water? You sure there's nothing in your diet that could be a trigger?
I look forward to talking to you some more, Carol. Again, welcome!
Bev
-------------------- <img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Hi Carol,
Welcom to the boards! I hope that you will find all the great info here helpful! I would suggest that you get Heathers two books.. go to the top of this page and click on shop for IBS. You will find them there! They are wonderful books! I find them very helpful.
Look around the site and ask lots of questions! I think once you get the books you will understand everything very well and you can go from there!! Your on your way to feeling better~!
Again welcome to the boards~
--------------------
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Hey Carol,
I'm IBS-C so I won't be much use for medical advice, but I wanted to say hi and that I'm sorry you feel so poorly. Heather's books are great though, so I would check them out.
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Hello and welcome to the boards! I'm sorry to hear that you're having so much trouble I know there's lots of people here who will be able to help you. I can totally understand how you're feeling, I have the same problem where I will have one bad day of D followed by 5-6 days with C, it's so frustrating! I'm just trying to really focus on Heather's diet and following it without cheating! I've gotten the impression that it does take awhile to get your body back on track...but it will happen! Do you take a fiber supplement? These are very helpful for alternating D and C because they stabilize the intestines and help keep you regular. I myself have only recently started taking Heather's Acacia (after trying Metamucil but finding it caused too much gas and bloating) and I'm really hoping it's going to help. If you don't currently take a fiber supplement, I would definately recommend trying one, and starting at a low dose so it doesn't give you bloating and gas. Hope you feel better soon! Kelly
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hi, i am also new to this forum. but it does feel good to know that i am not alone. i too have had ibs (unknown) to recently since i was about 18 now i am 41. it has gotten progressively worse through the years. i am just now learning how to mangage my frustrations, etc. i am looking for answers anywhere and every where. i have something very similiar to you. i have one day that i cant stop going with sever cramping, and then take immodium to stop it, then constipated for 4 days and so on. it takes so much out of you,i also get very tired from an episode. i do know the one thing that does help somewhat is citrucel for me. i am just now learning to take more and that should help my ibs. i also take librax and zantac. i found a lot of interesting information on this site. i am going to try the recipes as well as the teas, heat remedies etc. today was a bad day for me , so feeling depressed also. well anyway hope this message helps you alittle good luck
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Hi Bev,
I'm so glad to have found this site, and I thank you for your kind response.
As soon as my IBS (D) starts, it usually lasts a few mos. I lose weight because I eat less, as well as different foods (bland and lowfat), plus having the D.
If the IBS stops for awhile, I can gradually put some weight back (I'm only talking about a few lbs.) because I can eat a lot more, as well as more fattening foods.
I'm under a lot of stress mostly ongoing, so I really don't know why it goes into remission. I also noticed that if I have Dr's appts, that sometimes starts it up.
I'm going to order Heather's book. I really need to get on track and have people who understand.
Do you take any meds?
I'm not currently on a soluble fiber supplement (I guess I should be). I do drink a lot of water, though.
I look forward to talking to you again.
Take care, Carol
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Hi Carol! You've got tons of great advice already. Once you get Heather's books and read through the site you'll get lots of answers. You should start on a fiber supplement. If you can, try any one other than Metamucil - this one tends to cause the most problems.
If you're going through an attack now, you can try Breaking the Cycle of IBS Attacks & What to Eat When You Can't Eat Anything
Also, here's What about a diet for IBS and Fibromyalgia? until you get response from others with fibro.
Welcome to the boards!
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Carol:
I am new here too. I am finding that just finding this website and reading the material has been very helpful and supportive. I am still having some trouble, but I am learning to control it much better. It does get discouraging without support, and this website sure helps that.
I am up tonight with pain because I celebrated with a glass of wine. It just isn't worth it!
I hope that you will find some friends and support here. Have you tried some of the yummy receipes?
Kristina
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Welcome!
#54926 - 03/27/04 04:41 AM
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Kree
Reged: 10/08/03
Posts: 3748
Loc: Northern NY
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Hi Carol! You got some great advice, so I don't have anything else to add, but I just wanted to welcome you to the boards. I'm so glad you found them... they've helped SO many people. Please feel free to ask any questions you have... chances are someone here will have an answer for you! I agree that Heather's books are SO valuable... and the recipes are fantastic! I hope you start feeling better soon, and I'll see you around!
-------------------- "Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield
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Welcome Carol, First of all I encourage you to get Heather's book IBS the first year. I just got mine yesterday and it is worh every cent believe me. Second get on her diet to stabalize yourself. I am failry new to the board and newly diagnosed with IBS. I have discovered it is highly under studied and recognized by doctors. Start gettting some tea into you peppermint,fennel (for gas and bloating) and cammomile. I am still at the testing of which drug is good for me. Right now I take metamucil daily and I take prevacid and dicetel. The drugs are trial and error to find what works for you. Don't give up. Also check out the IBS recipes here and the yoga section. Trust me it will do you good to investigate. keep on the boards as you will get lot's of encouragement and understanding around here. Your not in this alone and we understand.
-------------------- if God brought you to it. He will bring you through it.
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CAROL WELCOME . WE ARE ALL HERE TO HELP YOU. JASPER
-------------------- ive had ibs for 8 years now. im learning alot on this web board. thanks again everyone
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Drugs For Carol
#54977 - 03/27/04 08:33 AM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Hi Carol,
I have several different drugs, all prescribed by my doctor: Lomotil, NuLev, Hyoscyamine, and Donnatal. The Lomotil is for diarrhea. (Does nothing for my cramps.) The NuLev is to put under my tongue when I feel an attack coming on. (It doesn't work.) The Hyoscyamine is for cramps. (It works when the cramps aren't severe.) The Donnatal is the heavy-duty stuff. It's is my emergency med. It's dangerous stuff, so I take it ONLY when I have a severe attack. I looked up the stuff in my "Funk-n-Wagnall's" and got quite a shock! It's a combination of Atropine, Hyoscyamine, Scopolamine, and PHENOBARBITAL. Not good, not good. Check out the warning I just discovered about it:
"Warning: special mental and physical adverse effects. Older adults are especially sensitive to the harmful anticholinergic effects of a family of drugs called belladonna alkaloids. Atropine, hyoscyamine and scopolamine are all in this family. Drugs in this family should not be used unless absolutely necessary. Mental effects: confusion, delirium, short-term memory problems, disorientation, and impaired attention. Physical effects: dry mouth, constipation, difficulty urinating (especially for a man with an enlarged prostate), blurred vision, decreased sweating with increased body temperature, sexual dysfunction, and worsening of glaucoma." (Unquote)
My suggestion is to try Heather's peppermint caps. They're very powerful. Heather used to take Donnatal, but she found that the peppermint caps worked BETTER as an anti-spasmodic than Donnatal! I tried them, and they did work well, but they gave me terrible indigestion. They're definitely worth a try, though!
You really need the soluble fiber supplement, Girlfriend. I'm surprised your doctor didn't mention it. (Of course, if he was a GI, I understand -- but that a whole other issue! ) Check out Heather's info here about soluble fiber supplements: web page I take her acacia, as do a lot of us, which is fabulous stuff. Some people like Citrucel powder. I took Citrucel capsules but didn't care for them (I was on a too-low dosage) and switched to the acacia. You have to start out REAAAAAL slow! My recommendation is to e-mail Heather and get yourself a supply of the stuff; she'll tell you how much to start out with (probably a half teaspoon).
I also have my Equalactin. GREAT stuff! It's also a soluble fiber supplement, but you chew it. Heather talks about it in the link I just gave you, and we've talked about it in the board.
I like the Equalactin better than Fibercon or Citrucel (other soluble fiber supplements I've tried) because it just works better for some reason. At a restaurant or a friend's house or other social gathering I take an Equalactin before my meal, just to be safe.
Heather first introduced me to Equalactin when I placed my first order with her; she sent me a little purse-size supply of it, which, as a matter of fact, I still keep in my purse for emergencies. If you order the acacia, I'll bet she'll sneak in a little introductory supply of the Equalactin with your order. She's clever that way.
Only problem is it's hard to find in the drug stores. I had to ask my pharmacist to order it for me -- which he did. Now I keep a supply of the stuff in my purse, as I said, and also in the bathroom medicine cabinet.
Actually, you can order Heather's book from her if you order the acacia. She's working on a standing order for those of us who are on the stuff, so we'll get a regular supply of it periodically. I like that idea. I'm on my 4th bag already.
Hope some of this helps. Remember, regardless of what supplement you choose, START OUT SLOWLY! You can check in here for what others are taking and see what they say about theirs.
BTW, that stress is bad stuff. I hope you have a means of venting. Exercise is crucial. A lot of us do yoga, which is terrific for stress. A few of us do pilates, we have a runner, and I row. Even going for walks is terrific.
Talk to you soon!
Bev
-------------------- <img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Hi, Carol D., Welcome to the boards! Looks like the others have given you some good advice! I just wanted to introduce myself. Nice to have you here, Terri
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I have Fibro and IBS symptoms. Heather's diet and advice are excellent for both. Go to the Mayo Clinic web-site and find the formula for the "re-hydration" solution that is used when you have traveler's diarrhea. The formula is the one I was using when my attacks were severe many months ago. It is excellent and will keep you alert and with energy. Rice and rice noodles are my staples when something is wrong. They are safe and will keep you, at least, 24 hours after an attack. Keep positive because you are going to get better.
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Hi Kelly,
I have the same problem as you: one bad day of D, followed by 5-6 days of C. I did get Heather's book, BTW.
Any help would be greatly appreciated.
Take care, Carol
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Hi Carol,
I find the immodium really doesn't work well for me anymore. The one thing that seems to do the trick is slippery elm bark powder. One teaspoon in the glass of water followed by several more glasses of water usually stops the D. I am constipated the next day - thankfully, but feeling better after that. I think it works because it has a lot of pectin in it which is supposed to stop D. My nutritionist also recommends grated apple. The grating releases the pectin. Unfortunately this one doesn't work for me.
As well, I've just started the hyno tapes and am seeing success.
Welcome, Bevp
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Quote:
Hi Kelly,
I have the same problem as you: one bad day of D, followed by 5-6 days of C. I did get Heather's book, BTW.
Any help would be greatly appreciated.
Take care, Carol
Welcome, Carol. I, too, am fairly new here and I tune in every day to find out what amazing advice I can try. With regards to taking Imodium and then have 5 or 6 days of C, my doc says the reason is simply that once you have slowed your system down with the imodium, it backs up and leaves you C while the D is piling up behind it and ready to "pour out" (forgive the lang.) again as soon as the compacted stuff is gone.- so it's a nasty circle. My thoughts are two-fold; one take everyone's advice and try some sort of supplement to keep your system steady, like acacia, equalactin, etc. But if you really want to continue to use imodium, try taking smaller amounts. I take 1/2 pill sometimes in an emergency and it still binds me up, but someone here had a great idea and told me to buy the liquid kind. That way I can use as little or as much as I want. You're among friends here- just keep positive and read as much as you can here and in Heather's books and you too will be on the road to better stomach health! KAL
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Hi Kal,
Thank you for your advice, it certainly makes sense w/the Immodium. It's so heard to break the cycle!
What is Equalactin? Is it like Citracel?
I did get Heather's book. I'm so glad I found this group and will hope that we're all on the road to better stomach health!
Carol
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Equalactin is the same ingredients as Fibercon, except they're chewable tablets.
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