|
|
hey I like your idea about the laxatives!! But I guess people just don't have a clue what it means to have to go to the bathroom every five minutes in the mornings, sit uncomfortable and in pain after every meal, but just ingore them, and you know thats it is NOT all in our heads!!
Lynnie
Print
Remind Me
Notify Moderator
|
|
|
Doesnt Kelsie Grammer's wife have IBS. Maybe if we all mailed her she and Kelsie could get us on Oprah
--------------------
Gretchen
Print
Remind Me
Notify Moderator
|
|
|
Jenny McCarthy has some bowel disorder, and she talked about it openly in a book that she wrote.
--------------------
~jules
Print
Remind Me
Notify Moderator
|
|
|
Getting people to understand what IBS is and is all about is one of the most difficult challenges of having this disorder. Trying to get co-workers and friends (and even family) to understand why you can't eat french fries or can't go on long trips without having a bathroom nearby can be very frustrating.
I'm glad to see more commercials on IBS medication on TV lately. Like you all said, if it's on TV, it must be real, but I think we have a long way to go.
I'm so grateful for Heather and this board--it's been a real life saver.
Hang in there.
Kristine
Print
Remind Me
Notify Moderator
|
|
|
If someone is curious I ask them if they every had a terrible, terrible stomach ache, from the flu or over-eating or food poisoning. (Almost everyone at sometime has had one of those.) Then I tell them that is what I get if I do something wrong, like eat the wrong (trigger) foods or drinks. That almost always gets a raised eyebrow and a moment of compassion, however brief. People have to be able to relate to something they themself have experienced to understand this condition.
But, MY favorite is the use of the graph in Heather's First Year book, page 16. I'm going to scan it, make it a tiny bit smaller and carry it with me in my purse. When someone questions me about my IBS and why I can't eat this or that, I'm going to show them the graph and what THEIR colon does to a meal, and then what MINE does. I can't think of a better way to explain it. That picture is worth a thousand words!!!
I'm not trying to sound like the devil's advocate here, BUT I have to add that this syndrome in NOT life threatening, even though most of us, with a bad attack feel like we are dying or wish we could. If it were killing folks, like heart disease, aids, or diabetes it would get the research bucks to find a cure.
--------------------
Print
Remind Me
Notify Moderator
|
|
|
Hmm, that's a very good idea, Kandee! I never thought of explaining it that way. And I wish I owned the First Year, because I want to know what graph you're talking about!! 
--------------------
"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield
Print
Remind Me
Notify Moderator
|
Heather's Graph
#42059 - 01/30/04 11:17 AM
|
|
|
|
Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
|
|
|
I'll e-mail it to you, Kree. Mags has me practicing my scanner and trying to teach me this #$*%!*&%$!! computer, so this will be good practice for me.
Good graph, by the way, Heather!
--------------------
<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
Print
Remind Me
Notify Moderator
|
|
|
With Heather's permission (and John Hopkins--the source) maybe it could be posted on this web site some where(?)....
Just an idea.
You are getting so smart lady............Proud of you!!!!
Who said we old doggies can't learn new tricks?
KK
--------------------
Print
Remind Me
Notify Moderator
|
|
|
I,m not going to say any thing about being old. 
--------------------
Neta G.Yale
Print
Remind Me
Notify Moderator
|
|
|
Wow! That graph does put it all in perspective! And people wonder why we're so miserable sometimes... 
Thanks again for sending it to me, Bev!
--------------------
"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield
Print
Remind Me
Notify Moderator
|
Posts
