reaching out for some help
#367208 - 04/10/12 04:41 PM
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Dizzy
Reged: 03/04/07
Posts: 206
Loc: university place washington
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hi everyone, so i have been on break the cycle now for a long time (months) pretty much eating crackers, white bread, bagles, rice, and cream of rice cereal, and instant potatoes, i am severly constipated, i know not a shock, i take align and i am able to have a small hard painful bowl movement everyday or every other day. I am pretty sure i am suffering from malutrition i have very little energy, sleeping problems, dry skin, brittle teeth nails and hair and a bmi of 17.5 which is under weight, i weight 96 pounds ( up from 90) and am fighting to put weight back on. unfortunatly every time i add food into my diet, well cooked carrots, or other veggies or fruits i end up with alot of pain and D, this has resulted in a food phobia/eatig disorder that i was getting hypno therapy for, but my doctor has broken her ankle and we are stalled from sessions for six weeks, I've completed michael mahoneys audio program for ibs twice, and i still can't let go of the fear and paranoia, i have not been stable in over two years, and everytime i eat anything with some nutritional value my stomach goes crazy and gets sick, part of that is of course the anxiety. I do't want to wait six weeks before i eat real food while i'm waiting for my therapists return, can anyone relate to the intense food phobia? and has anyone recovered from it? i am low in alot of vitemans and nutrients and am getting pretty scared, any help or ideas would be wonderful thanks so much to you all
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ibc a but c predominent doing hypnotherapy and taking it one day at a time
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Hi Dizzy.
I am sorry to hear of your constipation problems. I am ibs-d but eat many of the same foods as you. Specifically, I eat Cream of Rice every morning and sometimes rice or rice pasta with lunch. However, I have heard that rice is "binding" and not good for constipation. Have you tried oat meal?
Cheers.
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ibs-d (pseudo)with pain and bloating
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do you not eat protein and fat, just carbs?
And what is cream of rice? Has it got milk or dairy in it?
if you don't eat fruit and veggies (the adding of which means problems you said) are you OK then or even then you have C?
have you tried adding other foods one by one and then waiting 3 days before introducing anything else? I used to not wait and tried too many things at once and that always results in confusion. I also didn't eat nuts for more than a year because I erroneously associated it with problems. only to try them later and see no problems. that got rid of my food phobia.
well-cooked carrots should have the same proportion of IF and SF as bread! that's what science tells us! ie you should be able to tolerate it.
I used to be really really afraid of eating too much IF, then I saw this and saw how I can eat a lot of things:
http://huhs.harvard.edu/assets/File/OurServices/Service_Nutrition_Fiber.pdf
and just generally looked into the whole science thing and that helped me overcome my fears. knowledge is power.
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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Cream of Rice Cereal is finely ground white rice - nothing else.
Cheers
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ibs-d (pseudo)with pain and bloating
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my diet is totally unhealthy, i'm not eating anything but white foods, no fruit no veggies, no protien, no dairy, no soy or dairy substitutes. I have read heathers books, i know the diet, i used to follow it, i ate oatmeal, fruit veggies, chicken, tofu, smoothies, nut butters, i was never really stable though, and i followed efi very closely for a couple years, the i started getting paranoid, everytime i felt sick i'd cut something out of my diet, till now i'm down to eating practically nothing, i'm afraid of rice chex, i'm afraid to add pretzels, i will only eat one type of bread, i have heathers tummy fiber and am terrified to take it, as i said, i'm in therapy, but my doctor is currently unavailable, i'm really looking for ideas how people got over anxiety, i now how to eat, i know what is on efi, and what my personal triggers were in the past, and right now i have a blank slate of soluble fiber foundation, i just need to have the courage to eat, even if that means feelling worse for a while, i was hoping someone here had some insight on dealling with those high leval anxieties.
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ibc a but c predominent doing hypnotherapy and taking it one day at a time
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oh dear, doesn't sound v good. but I can imagine that not eating protein and fats but purely carbs maybe exacerbates these fears. maybe add in chicken breast? cook it in oil spray. protein from white has never caused anyone any digestive issues I think.
but wishing you the v best of luck. I think you know what's wrong and seem to be aware of the problems yet the solution isn't really easy. hypnosis and therapy seem the most promising perhaps? hope you'll feel better soon!
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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Almost the same poor diet here..
I eat white wheat (bread, breadsticks, pasta etc) and potatoes (but no rice!). I can eat carrots and courgettes (skinless) and for protein only eggwhites.. No sugar, but I can eat ricesyrup. Little bit of fat. That's it.
I mostly lack calcium. And I just hate eating the same every single day.
About six months ago I could eat chicken&all kind of fish, bell peppers and beets, rice and rice milk, bananas.. But all of a sudden, my symptoms got worse and I had to cut them all out to get rid of the symptoms again..
I actually don't think I have food phobia, it doesn't feel that way...
Before, with my previous diet, I was trying foods all the time, but I just kept getting very sick of almost anything I tried.. Every single time.
I don't feel scared to try them, I just don't want to feel sick and in terrible pain constantly. I try something every once in a while, but it gives me symptoms every single time.
So yes, I get a little scared of trying, but it doesn't feel like a phobia. It's just realistic in my opinion..??
I use medication (otherwise I'm in pain constantly) and I also use macrogol for my C. I'm going to try antidepressants soon probably.
Don't you use anything for your constipation?
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PI-IBS-C/A nausea & very bad gastric pain
meds: lansoprazol+macrogol
started EFI +FODMAPs 1/2011. 'Relapse' for 8 months. Now partly back on track again with the diet..
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hi thanks so much for responding, i hope we are both feeling better soon, my phobia started pretty simple i don't want to add things to my diet because i will feel sick, i let this thought really take hold of me, and it became a self fullfilling prophecy, every time i added i food the anxiety would make me sick, i think about food all the time, i crave things, like carrots or banana bread, but i can't seem to make myself eat them, i will not eat any food anyone else has made, i can't even drink water at restaurants, becasue i don't trust them to have cleaned everythig enough for me. i feel like a slave to my anxiety, i do have a nutritionist who is working with me and my therapist, and she wants to put me in a recovery (eating disorder program) but they would not follow efi, i think if i could just get to efi i'd feel more normal, but i'm scared to try, heck even the what to eat when you can't eat anything list is healthier then what i'm doing now,
to the previous poster, i've had food poisening from chicken a couple times, so i know that i never want to eat chicken again, i would like to be a petrtarian, ideally, as i did this years ago, in a version of the efi diet and felt awesome, chicken and turkey are not even interesting to me, i barely see them as food, i stopped eating red meat when i was twelve, pork at fifteen and ate chicken about once or twice a year till a couple years ago. i've never liked it or found it sits right, i don't mind chicken broth but actual boneless skinless cooked chicken is totally distasteful to me
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ibc a but c predominent doing hypnotherapy and taking it one day at a time
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I can definitely relate to where you are right now. I am IBS A, and my IBS has been in a flare for the past year after a viral infection. Sometimes it seems that my stomach feels upset no matter what I eat, and I too have cut far too many foods out. I also have mild post viral gastroparesis which makes me extremely full all the time, so I eat almost no protein (it makes it worse). My diet isn't quite as limited as yours, but I mostly subsist off my "safe" starches, veggies and fruits. I am definitely stuck in a rut and not getting enough fiber, fats or protein, but am afraid to try new things. If it's any consolation, my super sensitive stomach does tolerate carrots, pureed winter squash and sweet potatoes very well. Baby food is also a good way to get fruits, and I even add a little bit of the green baby veggies to my instant potatoes (they are a staple for me too lol). I too am afraid to eat in restaurants or have other people cook for me, because this all was triggered from a meal I ate at a restaurant. I wish I could offer more advice, but I can completely relate and sympathize with everything you're going through!
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IBS A (more D than C). Severe GERD & Hiatal Hernia as well.
"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
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thanks so much, it's nice to have someone understand, i am going to try carrots again, and i have lots of baby foods, so i can try and sneak them i the rice and potatoes, hopefully we will both feeling better soon
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ibc a but c predominent doing hypnotherapy and taking it one day at a time
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really sorry to hear all these problems.
I can relate to a bad experience of food poisoning and then not being able to eat it. I had this and then avoided that particular foodstuff for years too. then I tried a little and it was OK and that was the only thing that helped me get over my distaste.if you don't want to eat chicken, by all means don't eat it, that's not what I'm suggesting. but I think that you'd start feeling infinitely better if you added some protein and fat to your diet. any form. maybe try in v small doses?
I've had all sorts of problems over my life regarding OCD-s, phobias etc and there was a major improvement when first of all I made sure that I got all the vitamins and minerals. are you taking a vitamin supplement? but lack of protein and fat can also mess with your mind, which is why I really hope you'll be able to add some protein and fat to your diet.
all the very best.
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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thanks susie!
I am trying to add smart balence light, in small amounts and see how that goes, i eat it on my bagel every morning (my bagel is fixed cinnomon toast style) and i was also thinking of trying egg whites snuck into rice porridges, i'd love to try fish or shell fish but am not sure, i know that even at my most stable salmon had too much fat and so did tuna, both triggered symptoms, but i used to do prawns and have good luck with them, or white fish (cod, halibut) i also used to eat peanut butter, and almond butter, i have some better then peanut butter here in the house so maybe i'll try that, i do agree that if my body was getting some of the things it needed than my mood and anxiety levals would be helped, as far as vitemens, even at my most stable the safest pre natul or multi vitemens caused cramping and d
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ibc a but c predominent doing hypnotherapy and taking it one day at a time
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Dizzy,
My hearts goes out to you and others experiencing similar health problems. I am all new to this and am just beginning on trying to find solutions to help ease the many discomforts. I think there have been alot of good suggestions for you...just wanted to offer support to you. All my prayers that you get the nutrients your body needs and you start healing.
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ibc a but c predominent doing hypnotherapy and taking it one day at a time
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Although I am not underweight, I do have a food phobia because of the fear of how it will make me feel and in turn I suffer from anxiety attacks when my stomach is out of line. I do manage to eat though. Mostly I will not eat until around lunch time as I seem to have a cycle. I get up and feel ok but not enough to eat. Then I start feeling like something is wrong and get a little anxious. I eventually realize my stomach is spasming and then I have D. Eventually after some time my tummy will go back to normal and I feel ok again. Then I can eat.
By then its usually lunch time. Obviously you are eating but suffering from the vitamin deficiency. I have issues taking vitamins as they seem to make my tummy upset but if you can take them that would be excellent. Maybe you can also try mixing some of the nutritional stuff into the other. You have to take baby steps to get back to the right way if you have been a long time without. One of the only things I can tolerate as far as a green vegetable is green beans cooked down really soft. Sometimes this has been a lifesaver. If you are eating potatoes, mashed, maybe you can cook your carrots down and mix a small portion into the potatoes. You may could do this with green beans too. I wonder if organic baby food would be an option at least to get some nutrition going. I also get myself out in the sunshine as much as possible and I try to keep moving throughout the day. I know my digestion is much better when I just move around the house or out in the garden. I especially move around after I eat.....not high intensity but just strolling about as it seems to help my digestion. I am so sorry you are feeling bad but hang in there. And YAY for the gaining of 6 lbs.
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egg whites, shrimp and white fish I wholeheartedly recommend, but seeing how fat can be a huge trigger, leave salmon aside for now. as for peanut butter or almond butter, even one tablespoonful contains a huge-huge amount of fat and I find that it's easy to overdose. so please make sure that you have just v little at first.
as for chicken, boiled chicken tastes godawful I agree, I can't eat it either without retching, but baking it in the oven - around 25mins on Bacofoil (non stick foil) I use zero oil and it tastes wonderfully moist. There is also the George Foreman option, again, tastes great, no oil needed.
not good about the vitamins, but there is one thing that really shouldn't cause problems unless you have acid reflux
-orange juice!! go for smooth, 100% fruit no sugar added, extremely delicious and v healthy.
boiled, cooled potato perhaps to supplement your diet too, again potatoes are v healthy and have many more nutrients than rice and boiled potato has soluble fibre, which should help with the C.
seeing how bread seems to be the mainstay of your diet, despite many people slamming bread whenever they can, bread is quite good on the vitamin front.
no vit b12 in your diet though from what I see, but if you start eating shrimp, that'll be OK. vit B12 is v important for energy. you really need protein and fat in general too. for fat, maybe tiny amount of peanut butter on bread or there's these oil sprays.
in conclusion, I suggest you incorporate orange juice and shrimp and white fish into your diet and some form of fat. If you did this I think you'd start feeling better v soon.
Really hoping it all gets sorted out for you, you know you can do it! Keep strong!
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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I can relate to your problems with protein. I dread eating it everyday. But I do force myself to eat it - turkey, chicken or canned salmon. I "wolf" it down with potatoes, rice or pasta. I give myself a time limit of 15 to 20 minutes to eat it and if any is left after 20 minutes, I throw it away and start fresh the next day. I have protein with my lunch only. I realize this is not a healthy way to eat but I think better than no protein with any meal. Of course I also get some protein from other foods.
Cheers
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ibs-d (pseudo)with pain and bloating
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