Re: Boron
#364837 - 05/21/11 05:40 AM
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Syl
Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA
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Susie - a pseudodisease is the term used by a radiologist and lung-cancer specialist (William Black) to describe tumors that will never cause harm. A pseudodisease is nearly impossible to identify in an individual who is still living, because the medical community doesn't know enough about some cancers to predict how they will behave over time. There is an excellent discussion on it on this web page
It has nothing to do with IBS or FM 
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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Thanks, that is interesting. But not really sure how Boron diagnosed me with it (over the internet) and why he thinks I should have it.
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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Re: Boron
#364839 - 05/21/11 07:10 AM
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Thai
Reged: 10/04/09
Posts: 104
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susie....
your signature line states you have IBS (pseudo)D, so no doubt this is where he got it from...
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IBS-D
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gosh.. which obviously means pseudo-diarrhoea... as D on this forum always means diarrhoea
thought that was obvious but apparently not to him.
thanks anyway, I'll edit it right now. 
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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Re: All
#364841 - 05/21/11 07:26 AM
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Gerikat
Reged: 06/21/09
Posts: 1285
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Hey Boron you're funny. You qualify!! teehee. It's all good. By the way, I don't get the signature thing. He controls/runs the boards (or at least he thinks he does) with an iron fist, so you better follow his rules or you will be in big twouble. I was giving you a compliment, by the way, not questioning your right to be here. 
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I came on this forum to read experiences about effects of dietary fiber and foods in general on gastrointestinal symptoms, since I'm writing an article about nutrients and I'm trying to get an impression about what can be good or bad "for many" and what only for some.
@Susan. You have a "pseudo" word in your sig, what made me think you consider your condition complicated, so I did not planned to come with some specific advice. I'm not trying to devaluate any condition. White bread constipates me, it may be annoying and I even don't have IBS.
I believe, a doctor can give a diagnosis of IBS based on symptoms (abdominal discomfort for at least three months, at least three days in a month...), but only after exclusion of organic disorders, including fructose malabsorption (FM). Diarrhea is a typical symptom in FM and insoluble fiber may worsen diarrhea in FM, since it absorbs water and makes stool bulky and thus acts as a laxative. I don't know why additionally include IBS principle here, but I'm sure Syl has some reason to sig with IBS rather than FM.
These search results show that *some* (not all) people on this forum believe psyllium may worsen their symptoms, despite its SF>IF ratio. It might simply be an *amount* of IF in psyllium that is problematic.
Fructooligosaccharides (FOS), a soluble fiber, may worsen symptoms in IBS, at least in first weeks after introduction.
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I don't have IBS.
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there you go:
http://en.wikipedia.org/wiki/Pseudodiarrhea
D on this forum has never ever meant disease.
and thanks, 'beyond your knowledge', I never asked for your help/ knowledge in the first place. When I posted something specific, e.g. asparagus and apricots, I asked fellow sufferers. you asked us specific questions which I happily answered regarding me. but to be honest now I am unsure whether I would trust the opinion of someone like you, slightly self-righteous and a bit full of themselves (if I may), who will go and spread misinformation (either about onions or psyllium) on a board where sufferers may take his word at face value. FYI if I am interested in the science behind anything I usually email Syl privately, as don't mean to take up space when a lot of people on this board are not particularly interested in/may be irritated by the science behind this.
am quite annoyed as you can tell, but I feel v strongly about others propagating false information with such full conviction.
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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Susie,
it is this very forum, where some people have clearly said psyllium husk may cause them problems, so this is not misinformation from me. If you write in Google "psyllium IBS" you can see good and bad experiences with it.
I've already corrected myself about fructose/onions in one post above.
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I don't have IBS.
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ok, thanks.
I think by and large anything that has more SF than IF should work, but overall IF matters too. plus, this is where the FODMAP thing comes in that there are additional caution rules.
Btw if someone like Syl has FODMAP trouble, the most obvious way to test whether they have problems on top of that, ie have IBS (which is most often characterised by responding negatively to digestive stimulants such as alcohol, caffeine, IF and fat) - do you think that if Syl ate spinach and ate strawberries and raspberries, beansprouts or even oranges (as a fruit) that he'd be fine? These are all FODMAP safe yet you may still have trouble with them ie have IBS as well, these two conditions very often overlap..
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now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)
before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010
FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml
[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]
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