is this just IBS? what else might it be?
#356432 - 03/07/10 03:34 PM
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renee21
Reged: 06/02/05
Posts: 486
Loc: Toronto, Ontario, Canada
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Hi there, I've been posting here for years as I've suffered for a long time and it just keeps getting worse and worse. I recently decided to see a gastroenterologist again so I am awaiting my appointment.
In the meantime, I decided to get a copy of my file from my old GI so I could present him with my history. So I just received a copy of my colonscopy report - which was performed in 2005. At the time, my GI told me it looked "funny in there" and that there were cracks in my mucosal lining but he didn't think it was related to my IBS.
However the way my doctor describes it in the report sounds a bit more concerning and irregular. I am now back to wondering if this is even IBS.
Here are some excerpts:
"The colonic mucosa was normal ecept that throuughout the colon there were cracks of a linear fashion in the mucosa with some spontenous bleeding. I have seen this once before but this is most peculiar. Initially, there was some blood present in the right colon and I had not been in the right colon wihen the bleeding occurred. On withdrawing the scope, it appreared that these cracks in the mucosa were present really throughout the entire colon and there was some spontaneous bleeding.... I am not sure what is the nature of this problem but it is certainly interesting. Whether it has anything to do whatsoever with her symptoms, I cannot answer at this time."
I later saw a colleague of this GI, who essentially concurred with his conclusion that this was not the cause of my IBS. However it is only now, almost 5 years to the day since I had that colonoscopy, that I am reading the actual report.
It's interesting, since a few months after that, I went to see a psychic who said he saw "rupturing" in the intestinal walls.
I have a GI appointment in a few months but I am in really bad shape now, and I feel I want to start getting some answers. What do you all think? What could this mean?
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IBS-C, lots of spasm and trapped gas.
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renee, I am no doctor, but surprized they didn't follow up.
Did you ask them?
maybe ucleration perhaps, but I am guessing really.
Do you take any kind of medication that might do that?
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My website on IBS is www.ibshealth.com
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Yeah, I am now chasing new doctors for new answers.
I took Accutane for a long time (far longer than the prescribed 3 months). And I was on Accutane when I first noticed IBS symptoms, in 1997. The drug has now been causatively linked to colitis and Crohn's. They've paid out millions in legal settlements already. So I am most definitely bringing that to my new doctor's attention.
Thanks for your feeback. This waiting to see a doctor is just difficult.
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IBS-C, lots of spasm and trapped gas.
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It could be possible renee, good luck at the doctors. Igf things get really bad let them know you need to see someone sooner.
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My website on IBS is www.ibshealth.com
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I know how you feel. I don't have what you have, but i am confused as to whether my problem is IBS or not. My gastroenterologist, says it sounds like ibs and just gave me pills. No discussion on diet or anything. I HAve done the slew of tests to rule out anything else but my symptoms don't quite match the criteria i don't think.
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Hi Sheila, I think we have to keep fighting for answers. I see you're from Canada, like me. I am travelling to the US next month to get a slew of tests from some specialists there. I've had symptoms for 13 years and they only get worse and worse.
I realize this is a highly controversial statement but I am starting to see the value of a health care system where you can pay for better care if you need it! I hope to get some answers in the US that I haven't gotten from Canadian docs.
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IBS-C, lots of spasm and trapped gas.
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