Please HELP!! I feel so alone ---
#356312 - 03/03/10 03:20 PM
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fancymom
Reged: 09/17/07
Posts: 506
Loc: SC
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I have been having the WORST attacks lately!! I just went to my DR today, and he ordered MORE tests. I feel like a d*mn lab rat. How many more tests does one person need?? I have had test, after test, after test for almost 9 years!!
Now he wants to do a gastric emptying study (I really do not believe I have gastroparesis), and about 6 different blood tests. I wanted him to do a celiac test, but he said we did one 3 years ago and it was negative. But I stopped eating all gluten for about 5 months and started feeling better, then just started eating it again about 3 weeks ago, and I have gone downhill FAST!! LOTS of gas, bloating, headaches, fatigue, heartburn and alternating constipation/diarrhea. I have heard of people having a negative celiac test and then years later having a positive one, right?? Am I freaking crazy, cuz I sure as heck feel like it!!??
I think I just want to cut my stomach out. They really need to start doing stomach transplants. I feel like all I do with my free time is sit in front of my computer and do research on all my crazy symptoms trying to figure out a simple explanation of why I feel so freakin bad! There just has to be something besides "Oh we can't find anything causing all your symptoms so you have an Irritable Bowel" What the heck is that about? ...and Heather's diet used to work for me, but now it doesn't. So WHY not? My body is so screwed up!! One day I can eat a something and the next day it makes me sick.
I have done EVERYTHING I possibly can to help myself over the past 9 years. I have given up caffeine, spicy foods, tomato sauces, alcohol, dairy, fried foods, egg yolks, red meat, onions, chocolate, sodas...the list goes on and on. So what do I do now?? Stop eating?? What the h*ll am I supposed to eat?? I have taken 40mg of Prilosec for almost 9 years now. It can't be good for someone to stay on a RX proton pump inhibitor for that long.
Sorry for the long post, but I am truly having a melt down. I have not been this frustrated and depressed for a very long time....
Thanks for reading, sorry - 
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FancyMom
IBS-A,Constipation predominant, GERD
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You are NOT alone, as many of us have been through being 'jerked around'. If I could recommend anything, it would be having a consultation with a second gastroentrologist, totally unrelated to the first one. When a doctor gives a referral to another doctor for second opionion, they 'sleep together'. I would seek my own second option independently and bring my test results along, so you will not have to repeat any recent testing.
Ny best to you and hang in there. There ARE answers, and you will find them. Keep posting for support.
Hugs to you...
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Senior female, IBS-D, presently stable thanks to Heather & Staff
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Thanks Windchimes. I appreciate your kind words.
This is my 3rd Gastro Doc in 9 years. I think I am done with them...
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FancyMom
IBS-A,Constipation predominant, GERD
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You sound like me Fancy mom. Your not alone here. I know it feels that way.I've been to one GI doc after another. I can't stand going to one more . They will not help at all and they are very rude . All this poking and prodding is awful. I can't seem to get any of my symtoms under control besides nausea. I'm constipation 99% of the time and that make my gas cramps ,heacahes, and bloating so much worse. I keep trying one thing after another too like you.
*Be glad you are not a lab rat since they are cruely tortured and go through pure hell.
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What is your stress level like right now?
Has something very stressful occurred in the last 6 months?
I myself have never been to a gastric doc.The EFI helped me get my symptoms under control but the real solution came to me one day. Its really emotional things that set off my IBS.When I let go of the fear and pain and moved past it...my IBS got much better.
I still can't eat some foods but everyone is like that.
I would still push for another celiac test.If you noticed a difference once you may notice it again.
Research what your doctor wants to do and then decide if you think it is what you should do.Don't let him push you around.And I agree with Windchimes find your own and maybe he will listen better.
Have you gone to a naturalist or homeopathic type person?
HTH
Chris
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IBS-D since 1999...mostly stable..i do cheat too.Bad me.
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Did you look in to the excess fructose issue that SYl always talks about. Maybe you don't have celiacs but if you have too much wheat, maybe the fructans bother you? Maybe search some of his posts about it. I have realized this and now I feel like I am finally able to control my symptoms with diet.
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Thank you everyone for all your posts. They are very helpful! I take everyone's advice to heart. I am definitely going to research the fructose thing. I think that may be a real issue for me. I am not sure about the celiac diagnosis. May or may not have it. I just went back to the lab today and had about 6 blood tests done 
But dragonfly is right. My stress level is through the roof! But then again, it always is!! I am SOOOO TYPE A! A die-hard perfectionist at heart. I hope it doesn't rub off on my kids. I am going to take a hot bath today and try to CALM DOWN.
Thanks again. I am so glad I have people here that understand! You guys are awesome...
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FancyMom
IBS-A,Constipation predominant, GERD
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you will never be alone we are all her for you and can help in any way we can
i suffer and i understand the feeling about being alone please hold on there is hope 
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ibs c with trapped gas
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Hi Fancymom,
Sorry you are struggling. It really stinks doesn't it? Mentally and physically.
Are you currently eating Gluten Free? If not, maybe you need to try it again? Keep in touch.
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