|
All GI doctors tell you not to eat GF until after the biopsy. If you eat GF for a month before the biopsy, it gives your body time to heal and the biopsy is useless. Please consult another GI about this! It is extremely important if you want a definite answer.
-------------------- IBS-C with pain and bloat
Print
Remind Me
Notify Moderator
|
|
If this gluten free works we won't be doing a biopsy. If it doesn't work we will be doing a biopsy and looking for something other than Celiac.
Print
Remind Me
Notify Moderator
|
|
The blood test for celiacs is not a conclusive test - only the biopsy is a conclusive test. If you read the test and diagnostics section on the Mayo Clinic website on celiac disease you see it says the following:
Quote:
A blood test can now detect high levels of these antibodies and is used to initially detect people who are most likely to have the disease and who may need further testing. To confirm the diagnosis, your doctor may need to microscopically examine a small portion of intestinal tissue to check for damage to the villi. To do this, your doctor inserts a thin, flexible tube (endoscope) through your mouth, esophagus and stomach into your small intestine and takes a sample of intestinal tissue.
A trial of a gluten-free diet also can confirm a diagnosis, but it's important that you not start such a diet before seeking a medical evaluation. Doing so may change the results of blood tests and biopsies so that they appear to be normal.
If you have celiac and you remove gluten from your diet you will have to re-introduce it before a biopsy can be done because you intestine may have partially healed removing evidence on intestinal damage done by gluten.
You might check back with your GI doctor and confirm that you don't need a biopsy before you start the gluten free diet. If the biopsy shows you don't have celiac disease because the blood test gave a false positive result then you may be wasting your time trying a gluten free diet.
-------------------- STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
Print
Remind Me
Notify Moderator
|
|
Just wanted to throw my 2 cents in here... Also, keep in mind you can still have IBS & Celiac... so, eating a gluten free diet might not help, but by the time you have the biopsy, your villi could be healed... so even if you think it's not helping, it could just be IBS and the celiac could have been healed from a GF diet. This is confusing, I understand... but wanted you to think about it from that angle. If you have a biopsy that is positive, you'll have SUCH peace knowing that you do in fact have celiac. With the bloodwork, you'll never really know...
Aly p.s. I put my email in the other post to me!
-------------------- IBS-A
Print
Remind Me
Notify Moderator
|
|
I agree. IMO it is worth seeing how you do not eating gluten. If your symptoms go away then why do you need an official diagnosis of celiacs? For me, if the symptoms returned off gluten I would go back to eating it and get the biopsy. If no symptoms I would say I was GI.
-------------------- IBS-A for 20 years with terrible bloating and gas. On the diet since April 2004. Remember this from Heather's information pages:
"You absolutely must eat insoluble fiber foods, and as much as safely possible, but within the IBS dietary guidelines. Treat insoluble fiber foods with suitable caution, and you'll be able to enjoy a wide variety of them, in very healthy quantities, without problem." Please eat IF foods!
Print
Remind Me
Notify Moderator
|
|
That is what I have decided to do. I am going to go ahead and eat gluten free and if it doesn't help we will go from there with the biopsy after I reintroduce gluten into my diet. Thank you for your opionion on this.
Print
Remind Me
Notify Moderator
|
|
Evidently, according to the other posts, I'm not very knowledgeable... sorry! I guess, I'm a chicken when it comes to invasive tests and know several with celiac sprue who got better just on the diet w/o any biopsies.... But, only you know best. I would never intentionally steer someone in the wrong direction. Blessings! Dorothy
-------------------- "I Will Survive! :-)... I shall live and not die and declare the works of The Lord..."
Print
Remind Me
Notify Moderator
|
|
I agree with you, I would rather try a diet first and possibly not have the biopsy. I am tired of all the different test and so is my wallet. Trying it through food first makes more sense to me but that is me, I also understand other people who would rather have both test showing there issue. But for now I am sticking with the diet and if in the future need the biopsy then I will deal with that when it comes.
Print
Remind Me
Notify Moderator
|
|
This is for anyone out there who is wheat intolerant. I too am wheat intolerant and eat a lot of gluten free foods as well. It has taken me a few years to figure out what exactly I can tolerate and I can't tolerate. Although it differs for every person.
But, please feel free to send me a message through this site. I am always willing to help anyone find foods and figure out what to buy!!
Print
Remind Me
Notify Moderator
|
|
Can you post what you usually eat in a day and what you can't eat. Is your only issue wheat intolerance or are you ibs to? If you eat wheat what are your symptoms?
Print
Remind Me
Notify Moderator
|