Still struggling to stabilize D
#325653 - 02/27/08 02:36 PM
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Photofabix
Reged: 06/03/07
Posts: 49
Loc: N Florida
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Well since my First Post last week (that I'm surprised got only one reply) I switched to a bland diet, as opposed to not eating at all like I was doing. I started making my own bread again from a San Francisco starter that I started last year,
Upon waking up I am taking 1 1/2 teaspoons of Heather's tummy fiber, and taking a Jarrow Probiotic. I then about 15 or so minutes afterwards make 1 serving of Cream of Rice. I try to eat something every 2 hours, usually just plain toast from my loaf to which I keep in the freezer to prevent it from going stale.
For dinner I take another dose (1 1/2 teaspoons) Tummy fiber before eating. I'm making either Jasmine rice (not adding fat) or Basmatti Rice. I rinse the rice for several changes of water, and the Basmatti I soak for a half hour before cooking. Along with Poached chicken (again no fat, only thing added is a lil coarse salt)
So far my D has seemed to settle a bit, a few times this week I have been C. Today I woke up really loose almost D. I'm still getting some cramping as well.
I'm not sure if I should up my Fiber dose more or stay at 1 and 1/2 teaspoons twice a day.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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I am IBS-A – meaning I get both C and D. The first few weeks into the diet I was still getting almost liquid attacks of D. I got very discouraged and almost gave up, but I kept going. It wasn't until I'd been on the diet for well over a month – if not closer to two months – that my D started to gradually stabilize. During that time I was also gradually increasing my Acacia, and am now up to 11 grams per day – I am trying to work up to 12 grams, which would be an even 2 tbs per day. The C seems to have cleared up, and I think the D is almost done as well. Actually, I haven't had liquid D for a while now (knock on wood!), though one day last week I did have a very soft BM that almost felt like it was going to be D. give the diet some time, don't cheat, and start to increase your Acacia. You should start seeing some improvements.
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IBS-A since age 12, and fructose sensitive; with the exception of my pregnancy, have been following Heather's diet since Nov. 19, 2007.
Taking 12g of Acacia per day. Relatively stable since March 2008!
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Thanks for the reply, I'm trying to be patient  ..I just been suffering with this for about 2 years now and I just want to be able to feel confident enough to leave the house for once, I'm basically a recluse at this point, sad to say. I really want to get out and look for work, or somewhere else to move to that has work and just get back to a normal life..
I'm trying as well not to cheat, food wise that's easy I can go days with out eating, I've given food up quit a while ago. The hard part is the hot tea. I made a cup of decaf today and hasn't seemed to bother me, but I know from reading here it has to go. I decaf my English breakfast tea by steeping it for 40 seconds, discard, then brew normally which gets rid of almost all the caffeine. I know I need to find a herbal tea, but the few that are in the supermarket are far from appealing. Also having a mint allergy doesn't help that choice much... lol
It's just so hard, I've given up so much, I gave up coffee quit a while back, gave up all the foods I loved, gave up going out to eat, etc... but I know I'm not alone in this struggle and there allot people going through similar struggles.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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It takes some time to stabilize. I've only been on the diet since October and I wouldn't call myself completely stable yet. It sounds as if you're eating safely. What kind of things are you eating in between meals? Remember not to let your stomach get empty! How long have you been taking the 1 & 1/2 tsp of Acacia? When I started the Acacia I increased my dosage by 1/2 tsp every week. I now take 1 tbsp twice daily but it took awhile to work up to that amount. And remember, what works for someone else may not work for you....keep us posted.
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It takes some time to stabilize. I've only been on the diet since October and I wouldn't call myself completely stable yet. It sounds as if you're eating safely. What kind of things are you eating in between meals? Remember not to let your stomach get empty! How long have you been taking the 1 & 1/2 tsp of Acacia? When I started the Acacia I increased my dosage by 1/2 tsp every week. I now take 1 tbsp twice daily but it took awhile to work up to that amount. And remember, what works for someone else may not work for you....keep us posted.
I started the fiber about week and a half ago at the 1/2 teaspoon, and worked up to 1 1/2 teaspoons twice a day. I didn't increase because I started to get C one day, but today I have bad bad D, I tired to go to the market today, before I left I used the restroom didn't have D, soon as I was about to leave I had bad D. I still went out soon as I got to the market I had to go again 
As for snacking, the only thing I been eating really is my sourdough bread. Usually plain, but I have some Polanar all fruit grape spread (no added sugar just fruit) sometimes. I need to find more snacks, I got Heather's cook book, but there really isn't much in there I can eat, I know from personal experience over the last few years. I was going to pick up some Rice Chex, but they BHT (a very bad preservative) I really don't know what to get at this point. I did pick up some corn chips, Organic Guiltless Gourmet baked blue corn chips,that I plan to add to my bland diet.
I'm still trying to figure what caused the D attack today, it can't be the sourdough (I don't think). I don't add any fat to the dough, it's just flour, water, salt. My starter, I started from an online vendor that sells dried San Fransisco flakes, so far as I know it wasn't started from a dairy culture.
Any other suggestions would be greatly appreciated
EDIT:
I think I might of figured out what caused my attack, I forgot I ate this till just now. After dinner last night, I wanted something sweet, so I had some organic Multi Grain waffles in the freezer. I made one of those and some real maple syrup. I'm guessing thats what it had to be
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
Edited by Photofabix (02/28/08 01:38 PM)
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You are doing very good. I too had bouts of very bad D for about a month and they almost always happened when I was trying to get ready to go somewhere. I took chewable imodium and an antispasmodic to help. I will say that the grape preserves or jelly may be the cuprit. I have found for some reason that I can only handle seedless strawberry all fruit (or somethine similar). Don't know if its fructose (I tend to have bad reactions to that) or something else. Keep going and don't give up. This is a slow process. I have now reached the one year anniversary of my diagnosis. I'm not quite to the one year anniversary of my starting this diet but I'm now more than six months into it and I am SOOOOOOOO much better. Now if I have D I know why almost immediately. I think one of the hard things is not being allowed to eat what you have always eaten. It is a true pain but oh so worth it. I have learned to eat new things and to really like them. My latest is to put a couple T of almond vanilla milk in my cream of rice with a few spinkles of cinnamon--tastes kinda like rice pudding. Keep us posted.
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IBS-D, Gas & Bloating
Barbara50
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Red grapes and ALL red grape products (jam, juice, etc.) are my SWORN enemies. I might as well be eating (or drinking) Ex-Lax. Red grapes and I do NOT get along.  If it's purple, I avoid it like the plague!
For some odd reason, though, I can handle green grapes. And raisins, in small quantities. Go figure!
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IBS-A since age 12, and fructose sensitive; with the exception of my pregnancy, have been following Heather's diet since Nov. 19, 2007.
Taking 12g of Acacia per day. Relatively stable since March 2008!
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Next time I'm at the store I will look for a different flavor fruit spread, I can't do Jelly's or Preserves either, there to sweet when they add all that sugar. I always look for just fruit and fruit juice, but your right I guess that juice could break down into a lot of fructose in the system..
Any D sufferers have suggestions for what you like on toast? Or do you prefer your toast plain?
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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I can do strawberry jam and marmelade. I buy the Smuckers Double Fruit - it has (duh) double the fruit and only half the sugar. They don't seem to give me trouble at all!
--------------------
IBS-A since age 12, and fructose sensitive; with the exception of my pregnancy, have been following Heather's diet since Nov. 19, 2007.
Taking 12g of Acacia per day. Relatively stable since March 2008!
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Red grapes and ALL red grape products (jam, juice, etc.) are my SWORN enemies. I might as well be eating (or drinking) Ex-Lax. Red grapes and I do NOT get along. If it's purple, I avoid it like the plague!
For some odd reason, though, I can handle green grapes. AND raisins, in small quantities. Go figure!
Well thats two votes against grapes lol, I'll scratch grape and anything the shade of purple off my list of safe food ideas
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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I can do strawberry jam and marmelade. I buy the Smuckers Double Fruit - it has (duh) double the fruit and only half the sugar. They don't seem to give me trouble at all!
Thanks
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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You're not alone when you say you are still trying to stabilize. How long have you been following the diet? I've been on it for close to 5 years!
I posted this a while back, you may find it encouraging.
http://www.helpforibs.com/messageboards/ubbthreads/showthreaded.php?Cat=&Board=diet&Number=324683&Forum=diet&Words=discouraged&Match=Entire%20Phrase&Searchpage=0&Limit=25&Old=allposts&Main=324683&Search=true#Post324683
Best of luck to you
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Cassandra
Live like there's no tomorrow. Love like you've never loved before.
IBS A 20+ years, Chronic Migraines, Chiari Malformation (decompressed June 22, 2010), Brachial Neuritis, and ??? the list just keeps growing, but I'm still shiny side up!
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You're not alone when you say you are still trying to stabilize. How long have you been following the diet? I've been on it for close to 5 years!
Best of luck to you
Thanks for the link, it does give me some hope I know I've only been on this bland diet one week. But I have been at this for 2 years now, watching every single thing I eat, reading every single label of what little food I limited my self too. For the last year I would say I have starved my self (and lost over a 100 pounds) in shear frustration of not being able to eat anything. I tried to stabilize last year with the tummy fiber and gave up after several months with no results. I am determined this time to figure out a diet that will allow me to at a minimum let me leave the house.
The most frustrating thing is the GI I went too, the only one I can see because of the county. One office visit, one colonoscopy that's it. There wasn't even a follow up visit, when I woke up in recovery he said I'm fine, and again the following week on the telephone to tell me the sample they took concluded there is nothing wrong with me. So in theory I should be fine, according to the doctors, family and friends.
I've called the county several times to tell them I'm still the same if not worse and if I should go back to the gastro, and no one ever calls me back.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
Edited by Photofabix (02/28/08 03:39 PM)
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I put a small amount of peanut butter on my toast. Have you tried eating oatmeal in the morning?
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I put a small amount of peanut butter on my toast. Have you tried eating oatmeal in the morning?
I was trying to eat steel cut oats in the morning, but in response to my first post, I was advised it was insoluble fiber and try cream of rice. I'm not sure if rolled oats would be insoluble or not, but I do like the taste of oatmeal a lot better.
I would love to include peanut butter I have an almost full jar of Smuckers All Natural Organic (no added oil), siting in the refrigerator.
I'm still suffering from yesterday so I don't think I'll try any changes today 
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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Rolled oats have equal SF and IF and are pretty safe for most of us (some people still have trouble with it, though). I am fine with rolled oats and have it for breakfast all the time on the weekends, with brown sugar and cinnamon!
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IBS-A since age 12, and fructose sensitive; with the exception of my pregnancy, have been following Heather's diet since Nov. 19, 2007.
Taking 12g of Acacia per day. Relatively stable since March 2008!
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Rolled oats have equal SF and IF and are pretty safe for most of us (some people still have trouble with it, though). I am fine with rolled oats and have it for breakfast all the time on the weekends, with brown sugar and cinnamon!
I'll have to get some and give it a go
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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Oatmeal is about 50% IF and 50 SF. However, it also contains a considerable amount of resistant starch which acts like SF. Many IBS suffers find oatmeal to be okay. I have it every morning.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
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The Role of Food & Dietary Intervention in IBS
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Red grapes and ALL red grape products (jam, juice, etc.) are my SWORN enemies. I might as well be eating (or drinking) Ex-Lax. Red grapes and I do NOT get along. If it's purple, I avoid it like the plague!
For some odd reason, though, I can handle green grapes. And raisins, in small quantities. Go figure!
I just went to the store today to look for a new fruit spread, all I can find for seedless strawberry, was Smuckers All Fruit, but in the ingredients it lists red grape juice added for color doesn't look there is any escaping grape!
What's everyones favorite brands, flavors, fruit spread. I prefer the all fruits, as jams and jellies have way to much sugar and or hfcs.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
Edited by Photofabix (03/03/08 11:50 AM)
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Oh my goodness, I hope there is no grape juice in my strawberry jam! I had some on the weekend and I realized that it is actually E.D. Smith Triple Fruit, not Smuckers (my marmelade is Smuckers, though). I'll have to look at it when I get home. 
Actually I just looked it up online. The ingredients are:
FRUIT (STRAWBERRIES, RASPBERRIES, RED PLUMS), SUGAR, WATER, FRUIT PECTIN, LOCUST BEAN GUM, CITRIC ACID, SODIUM BENZOATE, COLOUR.
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IBS-A since age 12, and fructose sensitive; with the exception of my pregnancy, have been following Heather's diet since Nov. 19, 2007.
Taking 12g of Acacia per day. Relatively stable since March 2008!
Edited by Erilyn (03/03/08 12:24 PM)
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Oh my goodness, I hope there is no grape juice in my strawberry jam! I had some on the weekend and I realized that it is actually E.D. Smith Triple Fruit, not Smuckers (my marmelade is Smuckers, though). I'll have to look at it when I get home.
Actually I just looked it up online. The ingredients are:
FRUIT (STRAWBERRIES, RASPBERRIES, RED PLUMS), SUGAR, WATER, FRUIT PECTIN, LOCUST BEAN GUM, CITRIC ACID, SODIUM BENZOATE, COLOUR.
That looks good, I wonder if thats just a Canadian brand or if they have that here in the states, I've never seen it.
Also I wonder what they are using for there "Colour" it doesn't state if it's obtained naturally or artificially. I try to avoid artificial dyes. Amongst IBS I'm also chemically sensitive, fun fun lol.
The ingredients on the Smuckers Simply Fruit:
FRUIT SYRUP, STRAWBERRIES, LEMON JUICE CONCENTRATE, FRUIT PECTIN, RED GRAPE JUICE CONCENTRATE ADDED FOR COLOR, NATURAL FLAVORS.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
Edited by Photofabix (03/03/08 12:55 PM)
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 I'm so used to wondering whether products manufactured in the US are available in Canada that I forget it can go the other way, too! I know you said you live in a small place, but I found this on their website:
Where can I buy your preserves, light preserves and spreads in the USA?
We manufacture our E.D.SMITH Triple Fruits spreads, light and regular preserves specifically for Sam's Club, Costco USA, Grocery Outlet and Big Lots on a rotational basis and, therefore, they may not be available in stores all the time. Both Costco and Sam's Club stores have asked that our customers place a written request with their Customer Service Desk if our products are not currently available.
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IBS-A since age 12, and fructose sensitive; with the exception of my pregnancy, have been following Heather's diet since Nov. 19, 2007.
Taking 12g of Acacia per day. Relatively stable since March 2008!
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I'm so used to wondering whether products manufactured in the US are available in Canada that I forget it can go the other way, too! I know you said you live in a small place, but I found this on their website:
Where can I buy your preserves, light preserves and spreads in the USA?
We manufacture our E.D.SMITH Triple Fruits spreads, light and regular preserves specifically for Sam's Club, Costco USA, Grocery Outlet and Big Lots on a rotational basis and, therefore, they may not be available in stores all the time. Both Costco and Sam's Club stores have asked that our customers place a written request with their Customer Service Desk if our products are not currently available.
Thanks for that I know in the next town there is a Big Lots, I'll have to look next time I'm over there.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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Quote:
Quote:
You're not alone when you say you are still trying to stabilize. How long have you been following the diet? I've been on it for close to 5 years!
Best of luck to you
Thanks for the link, it does give me some hope I know I've only been on this bland diet one week. But I have been at this for 2 years now, watching every single thing I eat, reading every single label of what little food I limited my self too. For the last year I would say I have starved my self (and lost over a 100 pounds) in shear frustration of not being able to eat anything. I tried to stabilize last year with the tummy fiber and gave up after several months with no results. I am determined this time to figure out a diet that will allow me to at a minimum let me leave the house.
The most frustrating thing is the GI I went too, the only one I can see because of the county. One office visit, one colonoscopy that's it. There wasn't even a follow up visit, when I woke up in recovery he said I'm fine, and again the following week on the telephone to tell me the sample they took concluded there is nothing wrong with me. So in theory I should be fine, according to the doctors, family and friends.
I've called the county several times to tell them I'm still the same if not worse and if I should go back to the gastro, and no one ever calls me back.
I've mentioned this in a few threads, but I recommend you try taking pancreatic enzymes with each meal, try to add some more food (you need some bulk in your stool) and the pancreatin will help digest protein, carbs and most importantly fat.
I also recommend silymarin caps to help the liver.
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Quote:
Quote:
Quote:
You're not alone when you say you are still trying to stabilize. How long have you been following the diet? I've been on it for close to 5 years!
Best of luck to you
Thanks for the link, it does give me some hope I know I've only been on this bland diet one week. But I have been at this for 2 years now, watching every single thing I eat, reading every single label of what little food I limited my self too. For the last year I would say I have starved my self (and lost over a 100 pounds) in shear frustration of not being able to eat anything. I tried to stabilize last year with the tummy fiber and gave up after several months with no results. I am determined this time to figure out a diet that will allow me to at a minimum let me leave the house.
The most frustrating thing is the GI I went too, the only one I can see because of the county. One office visit, one colonoscopy that's it. There wasn't even a follow up visit, when I woke up in recovery he said I'm fine, and again the following week on the telephone to tell me the sample they took concluded there is nothing wrong with me. So in theory I should be fine, according to the doctors, family and friends.
I've called the county several times to tell them I'm still the same if not worse and if I should go back to the gastro, and no one ever calls me back.
I've mentioned this in a few threads, but I recommend you try taking pancreatic enzymes with each meal, try to add some more food (you need some bulk in your stool) and the pancreatin will help digest protein, carbs and most importantly fat.
I also recommend silymarin caps to help the liver.
I've already tried two different brands of Digestive Enzymes for close to 9 months.
They where of no help, unfortunately.
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IBS-D, Lactose Intolerant, latex allergy, MCS, Sun allergies, depression/anxiety, 156 pounds weight loss now (still dropping), cramping, rarely leave the house.
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