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What the heck is stable and where do you find it?
      #312938 - 08/09/07 02:07 PM
IBSHell

Reged: 05/09/07
Posts: 98
Loc: Connecticut

I've had IBS since I was a teenager (I've recently come to believe). Was diagnosed about 9 years ago when I was about 30. I went through all different kinds of medicine. Something would work for a while and then stop, so they'd try something else. I was IBS-D all those years. I could go weeks without having an attack. They were usually brought on by stress. I could eat most of the trigger foods without problem. I went vegetarian a few years after diagnosis, but when I got really stressed I would run to Wendy's and get a burger and not have a direct reaction.

I'm not trying to minimize my symptoms, because when they were bad, they were really bad. I'd miss days of work, not leave my bed and cry myself to sleep. But even since I had my gallbladder out last year, everything's changed. I've become IBS-A. I react to all the trigger foods and have cut them all out. I even cut out cheese for several weeks when I first found this site, but then broke down and had some without any reaction. So I allow myself a little cheese every day. But now I'm wondering if it is causing problems. I started out eating rice everyday. I got so sick of it that it's now maybe every other day. I don't know if that's not helping. I started using more soy and now have discovered that I react to larger quantities of soy. Not just gas and pressure but painful D as well. I'm already vegetarian, now practically vegan, and soy is causing me problems. I feel so frustrated.

I'll maybe have a good week and then three bad weeks. The bad weeks aren't as bad as they used to be, but going to the bathroom 10 or more times a day (not always productive and sometimes just gas) is getting really old. The only time I feel safe is when I don't eat. I've even reacted to bread and oatmeal.

I've been sick for so long, I don't even know what stable is for us IBS sufferers. I don't know if I'll return to the point before my surgery where I could actually go a while without thinking about it too much, unless there was a stressful event going on. Of course, it would still flare up out of nowhere.

I did acupuncture early last year and had great results, but i can't afford it now. I have ordered a yoga DVD and plan to try that. I already meditate to try to control stress. I basically eat pasta, rice, oatmeal, white bread, pasta sauce, soy bacon bits, bananas and carrots. I tried making the banana bread in Heather's book and I don't know why, but I seem to be reacting to it!

I know IBS-Cs can take longer to stabilize so maybe if you're A you fall in the middle. But I don't even remember what I can look forward to. It just seems like far too long since I've gone a week without problems. Even since going on the diet, I've been happy with an isolate one OK day here and there.

Any thoughts? You guys are so fantastic and I don't know what I would have done without this site. So many of the things my doctor told me to do are such bad things. Increase fiber (like most people that meant high fiber cereal and breads)eat more veggies (salads tried to kill me). At least at times I feel like I have more control. But tonight I'm going out and all I've allwed myself is oatmeal and cream of wheat and a plain dry bagel. I'm so hungry but couldn't risk having problems.

Thanks for reading my ramblings. I guess I'm having a rough day today.

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Re: What the heck is stable and where do you find it? new
      #312963 - 08/09/07 08:50 PM
yowwza

Reged: 06/27/07
Posts: 47


God you've got that right! I'm so sick of having my colon wrapped around my brain and my head up my miserable butt all the time, afraid of but craving food! IT'S SO GODDAM BORRRRRRRING!!!

I also have days long stretches where everything's a trigger, and I resolve to stick to my base diet-herb tea and hoodia!!!

*&%%#48!!!!!!!!!!

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Re: What the heck is stable and where do you find it? new
      #312964 - 08/09/07 09:20 PM
JodieKG

Reged: 06/14/07
Posts: 111


What you write is so true; I also forget what it must be like not to have to think about this stuff all the time, and I get so envious of people who scoff whatever they feel like. I get by with very very strict discipline, but that's not necessarily a good thing mentally, because there is a lot of guilt attached to it. And guilt about food can be very harmful and very difficult for others to understand.

But, personally, physically at least I certainly do feel a lot better and that's what makes it worth it. People say, you put up with the pain/bloating/cramps etc. etc. every day for so long so now why are you so afraid to eat out? or whatever.. and I think, yeah, but that SUCKED. But it's pretty depressing to think that for your insides to just operate a little normally, your diet for the rest of your life is laid out in white and orange.






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Re: What the heck is stable and where do you find it? new
      #312965 - 08/10/07 05:46 AM
meimei

Reged: 12/02/06
Posts: 173
Loc: Chicago

Hello,

You story mirrors my life so closely. Trying to find the elusive "stable" state is almost impossible. It sounds like the gall bladder removal really worsened your IBS, but it also seems like your emotions are playing a big part in how you feel. Have you ever tried anitdepressants or antianxiety meds? I have not tried them for IBS, but I am seriously considering them. I have heard lots of people say they have had good luck with them, and it may be just the thing you need to get your IBS stable.

I, too, am a vegetarian (almost vegan), but recently I have been eating chicken and turkey and cutting back on the carbs a little. I am D, but sometimes A. I have noticed an improvement in the bloating and my tummy feels a little better without so much carb. I still eat mostly white foods: rice, potatoes, pasta, bread, etc, and most veggies cause me troubles. I know what you mean about feeling very hungry. I have eliminated most soy products for the most part, but on occasion I will have a veggie burger (vegan). Too much soy causes me trouble too. Some additives in foods, even soy bacon bits and bread, can cause problems. Be sure to check what is in foods you are eating just in case there are hidden additives. I would avoid cheese too.

I wish I could be more help. I am sorry you are feeling so badly. Do you take Heather's SF? How about her peppermint tabs?

Take care~~

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Re: What the heck is stable and where do you find it? new
      #312967 - 08/10/07 06:54 AM
IBSHell

Reged: 05/09/07
Posts: 98
Loc: Connecticut

Thanks for all the support. Sometimes the most important thing is not feeling alone.

I do take anti-depressants and anti-anxiety medication. Started on it for different reasons but discovered that it helped the IBS. Unfortunately, the ones that are best for D, I can't take b/c they knock me out for hours and hours. I tried to go off my anti-anxiety medication and discovered to my horror that I had to go back on it due to the IBS getting worse and my TMJ becoming horrible! My jaw was actually misaligned for like 2 months and I was on muscle relaxants for about six months. Which of course reeked havic on my IBS.

I do take fiber supplements, as well as cook with the acadia powder. I did recently buy the peppermint capsules. I only took them once. Seemed to help. but I'm kinda scared to take them b/c of the bad responses some people have and I do have GERD.

I can't imagine going back to eating meat to get my protein. I became veggie mostly for animal rights reasons. Now that I have to limit my soy, I don't know where to get my protein from. I stll haven't been able to safely work beans back into my diet, but I am going to break down and try a veggie burger this weekend (vegan) and see if my stomach can tolerate it. I eat pasta that's high in protein and fiber too. I guess maybe I need to focus on eating more safe veggies, even though they're almost all the carb based.

It's just so hard when you keep eliminating things and then start reacting to things you didn't before! I went to hear a talk on meditation last night and I think I'm going to take a course, as well as, start going to weekly group sessions. I'm hoping that will help. I know I need to get my stress under control, but that's not all that's going on. IBS is just so frustrating. It can change day to day and it affects all of us differently.

I appreciate the support. Sometimes the best thing you can get when you're down is simply validation. And I always get that here.

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