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Special Request for IBSers -D/Awith pain
      #294320 - 12/21/06 03:20 PM
LtDanFan

Reged: 12/17/03
Posts: 588
Loc: Ohio

So it's not all over the message board, I was wondering if those of you who would care to share with me, that are IBS-A, but mostly D with extreme pain, to e-mail me privately and explain to me how you have become stable. Atomic Rose I noticeed you have been stable since july 05....I'm just trying to get some ideas, and hope for my stability. I have yet to be stable for longer than 27 days at the longest. I'd like to know meds, what you eat, what are your safe foods, fiber you take, etc. Please help if you can!! Thanks

Cheryl

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IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

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about being stable...response and question new
      #294332 - 12/21/06 05:51 PM
line415

Reged: 09/09/06
Posts: 976
Loc: New Jersey

I'm not stable but I would say 27 days of being stable is very good! What happened after those days...did you have an attack but then go back to being stable again? If you do a search on stabalizing, or "what does it mean to be stable?", you'll see that different people see it differently. I think some still have an occassional attack but it seems that most report their recovery time is shorter. Someone correct me if I'm wrong. And while we're discussing it, how many days/months should go by without an attack before calling yourself stable? Or do attacks matter b/c I haven't had too many attacks but I have had some rocky days which indicates to me that I am not yet stable.

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Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C

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Re: about being stable...response and question new
      #294334 - 12/21/06 05:57 PM
LtDanFan

Reged: 12/17/03
Posts: 588
Loc: Ohio

When I see someone post they have been stable for months or even years I get jealous!!! 27 days is a great start, but I have never made it past that mark, nor is it 27 days every month. So I do say I'm stable for 27 days, but that may happen every 4 months......then I'm having attacks daily. After being stable that long, I usually have massive cramping and D for days, then stablize for a week or so, then back to the cramping and D......I just never can figure it out. I guess I'd like to make it at least a few months IN A ROW with an attack and feel stable.

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IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

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Re: about being stable...response and question new
      #294336 - 12/21/06 06:14 PM
line415

Reged: 09/09/06
Posts: 976
Loc: New Jersey

That's an interesting pattern. Maybe someone else can comment. Do you think the fact that you've had an attack again causes you anxiety about the IBS again which causes your attacks to start up again? I know that would be me in a nutshell. Even now with a set-back, I start to get panicked/anxious again. I started hypno...have you done it? No changes yet, early on, but I'll keep you posted.

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Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C

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Re: Special Request for IBSers -D/Awith pain new
      #294341 - 12/21/06 06:52 PM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

I would like to send you an email but I can't find your email address! I'm IBS-D and stable, but can relate to the IBS-A tendency to D from taking Imodium, and definetly have some tips.

Anyways, just let me know your email, I think you can send me a private message if you don't wish to disclose the email address on here.

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Kat

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I'm going to reply here... new
      #294362 - 12/22/06 05:20 AM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

...because I'm too lazy to look for an email. LOL!

Two things got me stable:

1. Going on prescription medication for my anxiety problems. I've said it before on here, and I'll say it again: diet is extremely important, but food isn't the only issue for a lot of IBS'ers... if you have ongoing anxiety/stress/depression problems, and you don't treat that underlying issue, you're probably going to continue to be sick. Medication isn't always the answer, but for me, it was - in my case, I have problems that I've had since I was a child, and I will be on this medication for the rest of my life. Milder cases can be treated with a whole range of things, ranging from exercise and meditation to hypno and therapy.

2. I followed Heather's diet strictly, NO cheats... and when I say "strictly", I also mean that as soon as I started showing signs of improvement, I started adding insoluble foods back in. Weirdly enough, even though I'm mostly a D, I find that I'm most stable if I eat IF foods as the majority of my diet. Now, everyone's different, and that's something I worked up to very slowly, over the course of almost a year, but it's something to consider. You might not have found your "balance" of SF and IF yet. It does take time.

Other than that, I can't think of anything in particular that I've done. I did take a SF supplement (FiberChoice, 8g daily) for a long time, although I've since stopped because I can't afford it. I've never been on any prescriptions for my IBS symptoms. I occasionally took Imodium if the D was really bad, but that's about it. I *did* practically live on peppermint tea for a while, as it was the only thing I found that helped the spasms... I still keep it on hand for bad days.

Oh yeah, and although I consider myself stable, I DO still have bad days. In a lot of cases, they're period-related, and I consider those unavoidable. I used to be so sick that I couldn't even get out of bed, for weeks on end... I figure I can handle one bad day a month now.

I hope that helps a little... if you have any specific questions, ask. I'll be around on and off today.

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Kat/K2 *DELETED* new
      #294371 - 12/22/06 07:02 AM
LtDanFan

Reged: 12/17/03
Posts: 588
Loc: Ohio

Post deleted by LtDanFan

--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

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Re: Kat/K2 new
      #294381 - 12/22/06 08:27 AM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

Sorry for that I was looking for how to set up to receive PMs and I'm still not sure. I think I will post here since others have requested (Double J).

I stabilized last year after New Years (finally a new years resolution that worked!). I stabilized on diet and Acacia alone. I only added in peppermint caps, Beano, Imodium and other stuff later on. The reason for this is I wanted to know what foods I could handle. So I started with the Break The Cycle diet of only safe SF foods (banana, rice, white bread, applesauce, carrots, white pasta). After a couple days I added in plain chicken breast. Then every couple days I would add in a new IF in the safest way possible, and tested out how I did with it. I will say this, I did start on Heather's diet well before New years, noticed slight improvement but not much. I still had the sporadic attacks that didn't seem related to which foods I ate. I credit the BTC diet and cutting ALL triggers for really getting me on track to being stable.

After a month I had a pretty basic, plain, but safe diet. I want to stress here the no cheating. If you eat trigger foods it can set your stomach off and then it is even harder to figure out what foods are really affecting you. During this month I did not have perfect BMs, no attacks or pain. However, I noticed a huge improvement both in intensity of attacks and length of duration.

I started travelling again about 2 months into it. I also started really trying to expand my diet and start eating more fat and IF. So during this time, I started expermenting with other products such as Imodium, Beano, peppermint caps, calcium, etc.

I now take 2tbsp Acacia per day, Imodium when needed (if I have an attack, or 2 or more BMs a day), Beano with gassy foods, and a probiotic. I'm starting the hypno tapes as well. I do take peppermint caps with dinners sometimes, but ran out recently and haven't remembered to order some more. I used to take a calcium supplement with magnesium, but recently switched to Caltrate. I have to say, even with all these products, the basis of my being stable is still absolutely Heather's diet.

I have a few suggestions for the IBS-A, being backed up a couple days and fearing for the next BM since it could be a D attack. It's important to eat really safely when you haven't gone in a few days. Incorporate more IF in small amounts at each meal, peeled, purreed, cooked soft. Drink lots and lots of water. Also, exercise will really help get things moving even if it's just doing some situps or going for a walk. The goal is to 'ease' out the next BM. Eating any triggers, too much IF without a good enough base of SF, or not drinking enough water could result in a more painful BM or attack. Also, stressing about it could have the same effect.

I agree with Casey, you must get other conditions that mght affect your IBS under control first. In my case, I had to deal with my periods. If I hadn't dealt with that, the anxiety I had and meds I used to deal with my periods would have continued to affect my IBS. If you have other medical problems, anxiety, OCD, depression, anything that may affect your IBS, try to find a good solution to that.

For me, being stable means that if I eat safely I will not have an attack related to food. I may have my bad days due to stress or lack of sleep, but I recover much quicker than before. I will have an attack from eating triggers, too much IF or fat, but once again I recover quicker. I probably do still have an attack about once a month, but to me that's pretty normal. I see normal people having upset stomachs that often, so I don't worry about it. Most days I don't have symptoms like cramping, gas or pain. I think being stable is once you get to a point where your IBS doesn't affect your everyday life.

--------------------
Kat

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Great information from all...anyone else, please add. It helped me too! n/t new
      #294384 - 12/22/06 09:25 AM
line415

Reged: 09/09/06
Posts: 976
Loc: New Jersey



--------------------
Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C

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Slightly off-topic... (private messages) new
      #294395 - 12/22/06 11:16 AM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

Heather's disabled that function on the boards - so don't worry, it's not you not being able to figure it out - nobody can send or receive private messages!

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I also feel better with a lot of IF mixed in- nt new
      #294400 - 12/22/06 01:52 PM
Little Minnie

Reged: 04/16/04
Posts: 4987
Loc: Minnesota



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IBS-A for 20 years with terrible bloating and gas. On the diet since April 2004. Remember this from Heather's information pages:
"You absolutely must eat insoluble fiber foods, and as much as safely possible, but within the IBS dietary guidelines. Treat insoluble fiber foods with suitable caution, and you'll be able to enjoy a wide variety of them, in very healthy quantities, without problem." Please eat IF foods!

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Kat - Thank you. - nt - new
      #294426 - 12/22/06 07:01 PM
Double J

Reged: 03/09/06
Posts: 900
Loc: High Rocky Mountains ibs-d



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Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow”. Mary Anne Radmacher

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heres my 2 cents new
      #294431 - 12/22/06 08:21 PM
alexisb

Reged: 12/10/06
Posts: 13


if you look back about 2 weeks ago on the boards, i posted for my first time and was at the lowest point ive ever hit in my life.

i was on my period, the first month of birthcontrol changes my dr put me on, and was on about the 10th day of miserable anxiety, cramps, D. i had been diagnosed, but had no clue there were trigger foods, i stopped taking IF because it didnt help, and metamucil didnt help much either. i was also pretty much trying to keep it a secret, until i came here.

Everyone on this site was so helpful and made me want to do everything in my power to fight back! I bought the starter kit, am still on 1tsp/day of acacia, am reading my books, went through the break the cycle diet, exercising daily and am trying the hypnosis cd's.

I'm not sure if the hypnosis will help since i have fallen asleep all 6 times i have listened, but ive got nothing to lose.. the break the cycle diet helped a ton to get stabilized and i think the exercise has too. The acacia seems to be working wonders, doesnt give me gas or bloating like metamucil did. i just barely picked up some peppermint tea and i think it helps as well.

Although i think the diet definitly helped me, i am realizing a main part of my problem is anxiety. i had to come clean to my inlaws about my ibs-D since they are taking me and my mr. to hawaii in 3 months. my mother in law insisted i come over because my father in law could help. being that he is a pharmacist, i thought he would load me up on drugs and i would be good to go. they insisted that my husband come. to my surprise,they didnt have any drugs. they sat us down to talk about marriage and supporting eachother in a relationship.

i was blown away, i have never had any abnormal marriage problems, would never think my husband had anything to do with my anxiety, other than the fact that he didnt like to listen when i had ibs problems or worries. he thought it was "not a normal topic of conversation". well, he has since been sweeping me off my feet, cleaning the house without me asking, offering to do favors for me or take me out, giving me more compliments and just being an all around great husband. i dont know if this has lowered my anxiety of just lifting my spirits but i feel much better!
this week i was stuck in traffic, when anxiety started to rear its ugly head, i searched on the radio for a fun xmas song i could sing to. i made it to my destination and i was fine! it felt like a huge accomplishment to me.


unfortunately, i did have a setback with a really bad day at work, after reading the books, i understand a little better now how the body works and i knew exactly what was happening. unfortunately i had to take immodium, but i only had to run to the bathroom once,recovered very quickly stayed at work and made it through the day.


I think youre pretty dang lucky to make it 27 days without attacks! i'm sure you will get alot of great advice from this site and i am already a big supporter of acacia!
Good luck!

ps- my father in law did suggest some natural anti-anxiety remedies, i dont remember which ones but i will be trying some and will keep you all posted - sorry so long! im not good at making a long story short!

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to Alexisb new
      #294450 - 12/23/06 06:33 AM
line415

Reged: 09/09/06
Posts: 976
Loc: New Jersey

I just wanted to say that I am so glad things are working out better for you. Yes, I recall you were having a really tough time and I too did not have the FULL support of my husband at first. He tried to understand but I could tell he was angry often when we missed events or we were late, whatever. His support now (which is a world different) makes a HUGE difference in my anxiety. Because I know he is my support system when we go somewhere, and I explained to him the "rules" that I would like him to live by when making plans (no riding with other people, following another car, etc.), I feel much more relaxed. It's especially great that you shared your problem with your in-laws. I'm happy to hear they were supportive. Good luck with the continued success happy holidays!

--------------------
Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C

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Thanks line415! -nt- new
      #294469 - 12/23/06 10:59 AM
alexisb

Reged: 12/10/06
Posts: 13




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Re: heres my 2 cents new
      #294473 - 12/23/06 11:47 AM
hohoyumyum

Reged: 05/28/03
Posts: 2263
Loc: SacTown, CA

Quote:

I'm not sure if the hypnosis will help since i have fallen asleep all 6 times i have listened




It will still work. Hypnosis works on the subconscious, so falling asleep or daydreaming during sessions won't make it less effective. Lots of people never hear what is at the end of the CDs, but your subconscious hears it, so no worries.

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***********************
If you're not dead, you've still got time.



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