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Teenage IBS -- Help
      #29041 - 11/26/03 05:00 AM
corysmom

Reged: 11/25/03
Posts: 1


I have been visiting this site for about a week now. My son has had IBS for quite a few years (he is now almost 16), but just diagnosed last week. A doctor suggested that I go to this site and try the diet. I went to the local book store and bought both books and stocked the pantry with new food. He has been on the diet for about six days and his episodes of diarrhea have slowed down some, but he is having a lot of stomach pain and still does not feel well at all. So far this school year, he has missed approximately 30 days of school (and flunking all this nine weeks). This is the part that I am having a difficult time with. The teachers want him in school (so do I), but he obviously cannot go when he is in the bathroom more than he is anywhere else. Most of his teachers are not understanding and have the philosophy that he can wait -- well he can't (this has turned into a vicious cycle). He has been in therapy for about three months now (as recommended by one of his gastroenterologists), but so far I have not seen any real changes in behavior or symptoms. I am so tired of watching him not be able to enjoy life and do the other things that teenagers do. I would appreciate any helpful hints or suggestions that anyone has.

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You are wonderful! new
      #29042 - 11/26/03 05:32 AM
evie

Reged: 11/22/03
Posts: 99


What a touching situation. Pat yourself on the back for taking all those steps. Can you imagine how much worse it would be if you, of all people, didn't understand what your son was going through? Together, you will get teachers on your side (with minimal embarrassment for your son, I hope). As a teenager, your son has enough going on. Where most teenagers are trying to establish a personal identity, your son is dealing with obstacles. I can truly empathisize with your son. Think postitively! Hey - he's doing slightly better. Think of it as a milestone, and go from there! Most people on this site, I think will give better advice than I can, as I've also only recently begun actively dealing with IBS. But I think that if your son is encouraged positively, all will fall into place. I find that stress only makes my body less receptive to food I eat. Break the cycle. Your son should have fun! And school should be about learning, not worry. If he's to catch up in studies and continue learning, it is going to have to be a positive experience, otherwise, it won't be helpful to him. Sometimes, having IBS means having to be creative. Does your son get his assignments to take home when he's ill? You could probably make special arrangements with the teachers so that your son can keep up and enjoy it! And when he feels slightly better, by all means, he should celebrate. He should get outside and/or exercise! Does he have a favorite hobby he can turn to,or a favorite subject in school? The condition is only debilitating if you let it! Well, as I said, there's a lot more advice that can be given, but I just want to make sure you know what a wonderful mother you are. Don't stress! You need to remain healthy and happy through this, too! You'll get at least some needed support here. Good luck, and keep posting!

*evie

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Re: Teenage IBS -- Help new
      #29051 - 11/26/03 07:34 AM
Karin

Reged: 02/11/03
Posts: 483
Loc: Southern California

Corysmom: Welcome to the board. It will take a few months for him to fully feel the effects of Heather's diet. It took some time for me to lose all the symptoms, now I only have an episode when I eat something wrong. Even then it only lasts a day, I can get back on track easily. The hard part for a teenager will be not to stray. Even one meal can ruin what progress he's made if he's not stable yet. Also have him start taking Calcium Caltrate 600+D, it firms up the stools. I take 2 generic form pills a day.

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Advocate new
      #29052 - 11/26/03 07:52 AM
busymom

Reged: 06/30/03
Posts: 90
Loc: Michigan

Corysmom,
You are probably going to have to be the strong voice of advocacy for your son at this point in time. Your school should offer support for home study while he is dealing with this physical ailment. If he could study from home he could catch up quickly and stay on track for this school year, and then maybe rejoin his classmates next year when his physical symptoms are more under control. Being able to study from home eliminates all the obstacles that are presently making him be 9 weeks behind in his studies. Your school should provide this--this is a service available at all public schools. However, you may have to push for it. You may have to be in the principal's office, the vice principal's office, the school counselor's office, the school nurse's office, all the teacher's classrooms, talking, talking, talking to each one privately, bringing printed material, bringing material from his doctor, etc., etc., etc. until they get the point and accomodate your son. He needs you to do this for him at this point in time. It's really too embarrassing a situation for a teen to be able to work this all out himself. He needs an advocate. You can do this. You love him like no other person on earth.

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Re: Teenage IBS -- Help new
      #29056 - 11/26/03 08:04 AM
Shanna

Reged: 11/15/03
Posts: 471
Loc: Atlanta, GA, USA

Maybe he could go to school as he symptoms lessons, but be given special (medical) permission to go to the bathroom WHENEVER he needs to.

Also, you can petition the school bored to let him retake tests (he said he failed last nine weeks) b/c he has a documented medical condition.

Also, go in each semester, explain his situation to his teachers, and give them some literature to read. I am sure that with a little knowlege, they will be more understanding.

I really feel for your son. He is lucky to have such a caring, concerned, GOOD mother! You guys will get through this... please keep us updated.

Is the fiber helping him?

It takes 2 wees for the GI tract to rebuild healthy tissue and cells. If your son stays away from triggers (fat, dairy, caffine, etc) for 2 wks and limits insoluble fibers (though not eliminating -- eating a small amount after eating soluble fibers), I think you will see good results.

As always, I recommend pro-biotics (Jaro-Dophilus EPS is less expenseive and works).

*Mazel!*

--------------------
"The most wasted of all days is one without laughter." -- e e cummings

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Re: Advocate new
      #29061 - 11/26/03 08:23 AM
tholley

Reged: 11/10/03
Posts: 15


I totally understand how you are feeling as my daughter has been dealing with this for over a year now. Ihave talked to all her teachers and they have been understanding but need to be reminded on an ongoing basis as to what she is dealing with. She dropped a couple of courses last year because of being absent and getting behinde. However this year finds these courses less challenging as she is repeating them also if she misses it is easier to keep up with material that is repeated. She finds it hard to do homework when she is not feeling well as she is in pain and very tired. Our goal is just to keep her healthy and going to school and if it takes her longer to complete her high school then she can always upgrade after she is done grade 12.She has been following the diet eating mostly just the breaking the cycle foods and slowly now adding chicken, fish,fruits and veggies slowly. Good luck and always believe in him,support him and encourage him.

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Re: Teenage IBS -- Help new
      #29069 - 11/26/03 08:47 AM
Kree

Reged: 10/08/03
Posts: 3748
Loc: Northern NY

Corysmom, I don't know what other advice to give you, since it looks like you've gotten some great suggestions already! I agree that you may need to wait a little bit longer, though. When our bodies get into that IBS funk it often takes a while to get back to normal, even when following Heather's diet. I just wanted you to know that I'll be thinking of you and your son, and I hope he's able to return to school soon! Keep a positive attidude, because that's probably the best thing you can do right now!

--------------------
"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield

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Re: Teenage IBS -- Help new
      #29179 - 11/26/03 01:22 PM
peaches

Reged: 09/28/03
Posts: 1183
Loc: Fort Wayne, Indiana

Hey and welcome to the boards! I am also 15 and I have IBS-D like your son. I have to take Imodium every morning in order to attend classes and become seemingly normal. I take a cooking class and I can't ever eat anything we cook so everyone in that class thinks that I'm just allergic to everything lol. Well, the Imodium basically freezes all of your excretory system so if he takes it, he shouldn't feel much (if any) pain and, if you use the pills and not the liquid, he can still go every night around 9. The liquid Imodium makes me not go at all for a day and a half! My doctor says that it's fine to take Imodium every morning as long as I don't take it on the weekends so that my system can function normally for a few days. Also, I am very proud of you for being so supposrtive! My mom tends to snap at me when I have to reject something because of the ingredients. She always says that a little won't hurt, when sometimes it does! So keep it up and I hope this advice helps!

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It comes down to the art of living on [color/red]

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Re: Advocate new
      #29332 - 11/28/03 04:23 PM
jules05

Reged: 11/03/03
Posts: 70
Loc: ON, Canada

I'm 18 years old and have graduated grade 12 but have decided to return this year to take 2 more courses that i wanted. I also have IBS-D and i know how it feels to be afraid to go to school. My symptoms aren't as serious because i've been on this diet for awhile but i still often have attacks. Usually if i have problems with my stomach (eg.diarrhea) it's usually in the morning unless i eat something wrong in the middle of the day. To still be able to make it to school i always get up 2 hours early which leaves time to sit in the bathroom for awhile if needed and if i have problems then gives a bit of time for the immodium to take effect. Also on days that i have tests or something that is stressful i'll take the immodium just to be safe. That's too bad that the teachers aren't being fully supportive, my advice is just to keep trying and talking to them. If it takes him an extra year to finish highschool then maybe thats what needs to happen. To reduce my stress levels in grade 12 i didn't take a full course load because if i was constantly having attacks from the stress then i wouldn't being getting much work done anyways. It was definitely worth coming back for one more year. Life shouldn't have to be rushed. Hopefully he starts to feel better soon and he's not alone!

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Re: Teenage IBS -- Help new
      #29343 - 11/28/03 08:55 PM
Yoda (formerly Hans)

Reged: 01/22/03
Posts: 3682
Loc: Canada

Welcome, Mom. It's so difficult to imagine a teenager going through this. As a teacher, I can totally sympathize with the need to go to the bathroom and not be allowed to go. I simply stopped eating at one point. Here's a few suggestions to get the teachers on board.
If your school allows it and your teachers are comfortable with it, try to get in contact with all of Cory's teachers. We used to have "round table" meetings where every teacher, the parent, the student (optional) the VP, and anyone else applicable would sit down for a brief meeting. If you could get medical documentation from your Doc, you could present it and explain that your child needs to be allowed free and DISCREET access to the washroom and maybe even come up with a nonverbal signal (so that they don't have to ANNOUNCE going to the bathroom). Give them assurance that your child will not abuse this situation - that it is an embarassing but genuine problem.
Next, you need to get Cory stabilized. Make sure breakfast is VERY safe - almost all soluble fiber. This will help start off the day. I would also recommend peppermint tea for the stomach aches, and as well, Heather's peppermint caps for taking at school - again, more discreet than sitting down with a cup of tea.
Ginger tea is also helpful for nausea. It may help him feel better.
I would focus on the Christmas break ( because it's a good chunk of time) having Cory get used to what is safe and what isn't. Eventually, Cory will be able to feel better and know what not to eat to avoid attacks. Has HE visited this website? Does he know the dietary guidelines? It's crucial that he understands so he can make better choices.
I'm so sorry for your son's troubles - and for your pain too, as I know as a Mom, it's horrible when your kids are hurting.
Please post again and let us know how he's doing.
Hope this helps.

--------------------
Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.

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Re: Teenage IBS -- Help new
      #29355 - 11/29/03 08:24 AM
peaches

Reged: 09/28/03
Posts: 1183
Loc: Fort Wayne, Indiana

Yes, she's right. Since I was just diagnosed in September, there really hasn't been much opportunity for me to experiment with which foods I can and cannot eat, so that's what I'm going to use Christmas Break for. Two weeks of no school!! lol So I'm going to start eating a bunch of different foods and find the limit of the amount of greasy food I can eat, along with the amount of chocolate, frusctose, etc. It's much easier since I really don't have to go anywhere and I have the entire time to experiment. I hope you and Cory can do this as well!

--------------------
It comes down to the art of living on [color/red]

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Re: Advocate new
      #29360 - 11/29/03 08:59 AM
maryh

Reged: 10/02/03
Posts: 192
Loc: IL

You're a great mom!!! I can't add anything except for possible medication to help control it when he wants to do something. Socializing is so important to teens! Keep it up- with your support he'll learn his way of control it! Maryh

--------------------
Whatever doesn't kill me will make me stronger!

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Re: Advocate new
      #29371 - 11/29/03 11:21 AM
busymom

Reged: 06/30/03
Posts: 90
Loc: Michigan

Jules05, what a brave and mature young woman you are. Way to hang in there and make school work the way you needed to make it work. You really showed good coping skills that will help you be able to manage this at college or work.

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Re: Teenage IBS -- Help new
      #29373 - 11/29/03 11:42 AM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

A couple things.

Diet is very important, but so is stress reduction.

But here is a site for information on kids.

http://www.aboutkidsgi.org/

Also

Mind-Body Technique Eases Kids' Gut Pain

Kids Have Fewer Days of Abdominal Pain When Using Relaxation Technique

By Jeanie Lerche Davis
WebMD Medical News Reviewed By Brunilda Nazario, MD
on Tuesday, August 05, 2003


> Email to a friend > Printer-friendly version

Aug. 5, 2003 -- For kids with chronic abdominal pain, relaxation techniques can help them cope.


Some 20% of school-age children suffer from recurrent abdominal pain -- and for 10% of them, there is a real problem in the gut. But for the rest, the pain is often unexplained -- yet persists, sometimes into adulthood.


It's a big problem that upsets their quality of life. "Not only are these children in pain, they are missing school, making frequent doctor visits and may suffer from anxiety and depression," says lead researcher Thomas M. Ball, MD, MPH, professor of clinical pediatrics at the University of Arizona, in a news release.


His report is published in the July/August issue of Clinical Pediatrics.


In it, he describes using guided imagery therapy -- which combines relaxation, imagery, and hypnosis -- to help children gain control over their pain. Other studies have shown that the technique helps kids with other types of pain, says Ball.


The technique affects the autonomic nervous system -- the nerves that are involved in involuntary functions in the body, such as digestion. In essence, it taps the body's own healing power, he says.


Each child was trained in relaxation and guided imagery during four weekly sessions. Each filled out a daily "pain diary" three times a day to track the effectiveness of the technique.


During the month of training, the children had 36% fewer days with pain.
In the second month, "pain days" decreased an additional 50%.
Total decrease in pain days was 67% less within two months of starting therapy.
Of the 10 children, seven showed improvement by the end of therapy and nine showed results one month later. Only one child showed no improvement.

The intensity of abdominal pain did not change during the period, but there were far fewer pain days, Ball reports.



--------------------------------------------------------------------------------


SOURCES: Clinical Pediatrics, July/August 2003. News release, Ascribe Newswire.

FYI

Defecation Anxiety Linked to Functional Constipation in Children


Charlene Laino


Oct. 15, 2003 (Baltimore) — Children with functional constipation have significantly more anxiety related to toileting behavior than healthy children — anxiety. This anxiety makes them more likely to continue to suffer from the problem, a prospective study suggests.

Moreover, some of these children develop generalized anxiety, reported researchers from the Cleveland Clinic Foundation.

"Constipated kids were not generally anxious overall, but among those with defecation anxiety we saw an increase in general anxiety," said Gerard Banez, PhD, a child psychologist at the Cleveland Clinic Foundation. "This does not prove cause-and-effect, but does suggest that those constipated children with greater defecation anxiety also exhibit increased general anxiety."

Painful bowel movements can make a child fearful of pain, Dr. Banez said. That fear can be generalized to sitting on the toilet.

The research was described here today at the American College of Gastroenterology 68th annual scientific meeting.

Up to 7.5% of children suffer from constipation, which accounts for about 3% of visits to pediatricians and up to 25% of visits to pediatric gastroenterologists, according to data cited in the study.

According to the researchers, constipation carries a host of physical and psychological consequences, and defecation anxiety is often implicated as a primary contributor to constipation.

Dr. Banez and colleagues studied 98 boys and girls aged 6 to 18 years who suffered from functional constipation. The youngsters completed the Defecation Anxiety Scale–Self-Report and Revised Children's Manifest Anxiety Scale, which measures generalized anxiety. The parents also rated their children's defecation anxiety on the Defecation Anxiety Scale–Parent Rating Scales.

By both self-report and parent report, children with functional constipation were found to have significantly more defecation anxiety than healthy children or children with asthma, the researchers said.

Overall, 70% of the children reported defecation anxiety compared with 58% of a control group of healthy children and 65% of children with asthma. The parents reported that 82% of their children suffered from defecation anxiety.

In addition, 30% of the children with constipation reported generalized anxiety. The greater the defecation anxiety, the greater the generalized anxiety, Dr. Banez said. Children with defecation anxiety have a higher chance of having generalized anxiety, although some children with no significant generalized anxiety still had defecation anxiety, he added.

Physicians who see children with constipation anxiety should rule out any medical cause, Dr. Banez said. Also, consider defecation anxiety in the differential diagnosis of any child whose parents report that their child seems to be withholding stool, is tearful at the urge to use the toilet, or shows vigorous resistance to using the toilet, he said.

Also, physicians should discuss strategies that promote relaxed toilet sitting as well as suggest dietary changes — possibly with a stool softener thrown in — to promote softer stools, Dr. Banez said.

William Whitehead, MD, professor of medicine at the University of North Carolina in Chapel Hill, said he has had some luck treating constipation anxiety with biofeedback, although he said that studies in Europe suggest that laxatives work just as well as the relaxation technique.

The question now, he said, is whether anxiety is the cause or the consequence of constipation. ?This study doesn?t really tell us, but it is still a major advance, the first trial I know of where they have linked defecation and anxiety directly using such a systematic approach.?

ACG 68th Annual Scientific Meeting: Abstract 723. Presented Oct. 15, 2003.

Reviewed by Gary D. Vogin, MD


Kids Take Sickness Cue From Parents
Excerpt By Nancy A. Melville, HealthScoutNews

(HealthScoutNews) -- The behavioral patterns of those with irritable bowel syndrome (IBS) can color their children's experiences of their own illnesses.

That's the conclusion of recent research that compared three years of school absences and found the children of IBS parents missed significantly more school days than other children -- 11.2 days per academic year versus 7.6 days.

The study is part of a larger body of ongoing research looking at how parents' reactions to IBS influence children's perceptions of sickness.

"We're looking at how parents teach their children to respond to illness, and whether the children generally are sicker than children of parents without this problem," explains Rona Levy, a professor of social work at the University of Washington and the author of the study, which was presented recently at a meeting of the American College of Gastroenterology.

IBS causes chronic gastrointestinal problems ranging from constipation to diarrhea, as well as abdominal pain, gas and bloating. The condition is estimated to affect about 4.7 million people, most of them women.

The causes of the condition are not known, but experts believe there is a significant psychological factor at play, with reactions to stress or depression manifesting themselves in the gut more severely than normal.

Although Levy thinks there is probably a genetic factor that determines who gets IBS, she says behavioral responses that are "socially learned" may determine who suffers most from the condition.

">"We're building a case where heredity is a component of IBS," she says. "But what children learn from their parents is a much bigger risk factor for the extent people suffer from this disease, and many other chronic diseases."

Such "learned" behavior is fostered in children through the reactions - - and actions - - of their parents to various situations, says Levy.

"We've all seen a child fall down, and various responses among parents," she explains. "Some will brush the kid off, reassure them that they're fine and move on. Others will dwell more seriously on the event, asking the child where it hurts and perhaps making a much bigger deal out of the situation."

"That's a snapshot example of how parents differ in the ways they teach their children to respond to pain," she says.

Such reactions can show up later in life in the form of IBS, adds Levy, when something like a twinge in the gut that many might notice but ignore sends others to the doctor.

"I think a big factor in why some go in one direction and why some go in another is how we learn to respond to things when we're young," she says.

Dr. Douglas Drossman, an IBS expert and co-director of the University of North Carolina Center for Functional GI Disorders, says the role of family behavioral patterns is recognized as an important factor in IBS.

"The patients with the more severe symptoms seem to come from families where there was a focus on going to the doctor and getting medication when the child got sick, rather than addressing what might be the stressors that are playing a role," he says.

"It's not that the stress is believed to entirely cause the condition," he adds. "But the family may reinforce the severity of the symptoms."

Other contributing factors that are believed to play a role in IBS include hormonal fluctuations, dietary issues and infection in the bowel.

In addition, preliminary research on brain scans indicates certain brain functions that respond to pain may be altered in people with IBS.

"Pain signals are sent to the brain, but typically, the brain can naturally reduce those signals," explains Drossman. "But that ability to turn down such signals may be impaired in people with IBS, and that might be correlated with levels of psychological distress."

Treatment for IBS currently involves a combination of physical and mental therapies, says Drossman.

"In milder cases, sometimes just keeping a diary of daily events and diet, and looking at what the triggers are can help. It could be eating a large fatty meal, drinking lots of soda, stress factors," he says.

In more serious cases, medications treat intestinal symptoms and antidepressants are often prescribed.

The American College of Gastroenterology reports that people with IBS make an estimated 3.5 million physician visits, receive 2.2 million drug prescriptions, and undergo 35,000 hospitalizations in the United States each year.

FYI

J Spec Pediatr Nurs. 2003 Jul-Sep;8(3):81-9. Related Articles, Links


Recurrent abdominal pain in children: forerunner to adult irritable bowel syndrome?

Jarrett M, Heitkemper M, Czyzewski DI, Shulman R.

Department of Biobehavioral Nursing and Health Systems, University of Washington, Seattle, USA. jarrett@u.washington.edu

ISSUES AND PURPOSE: Review the etiology and pathophysiology of recurrent abdominal pain (RAP) and its potential role as a precursor to irritable bowel syndrome (IBS) in adults. CONCLUSIONS: Physiological mechanisms not easily identifiable as an organic cause may underlie symptoms in RAP patients. They may be triggered by psychosocial factors that result in greater functional disability, more clinic visits, and lower academic and social competence. Of these children, 25% will experience similar symptoms as adults; many will be diagnosed with IBS. PRACTICE IMPLICATIONS: Nurses can provide early and efficient management of these children's care if they view the issues of abdominal pain/discomfort from a broader focus that includes the context of the child's experiences.

PMID: 12942886 PubMed - in process

Recurrent Abdominal Pain in Children and Adolescents: Classification, Epidemiology, and Etiology/Conceptual Models

http://www.med.unc.edu/medicine/fgidc/pediatric.htm#rap

I have had this since I was ten and am now 43.

I am in remission using Gut directed Hypnotherapy which you can read about on the HT forum. It is one of the most effective treatments to date for IBS and kids generally do very well with it. I wish I would have known about it when I was a kid for sure.

Hope this all helps, I certainly can sympathize.













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My website on IBS is www.ibshealth.com


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