Went to my gastro and surprise he told me to eat FIBER 40-45 grams per day
#228358 - 11/30/05 03:50 PM
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LisaRae
Reged: 07/18/05
Posts: 90
Loc: Atlanta Ga
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Saw my gastro and he told me to go off my SFS and just eat FIBER. He told me to eat 2 bowls of high fiber cereal daily and put me on the same meds I had trouble with, nortriplyn. He says diet has nothing to do with this disorder and I told him all the gastro doctors say that yet all the people with this have proven otherwise. He once again said eat whatever you want, whenever. I tried to discuss SF and IF and that if I eat an IF alone or on a empty stomach I will pay for it and he does not buy it. Mention Heathers book to any gastro and they roll there eyes. I plan to stay on the diet and just changed my SFS. I agree I need fiber but the right type and the right way. Is it wrong to wish your gastro doctor would suffer from this, not forever, lets say a month and I bet the conversation would go in a whole new direction!
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Re:Yep!
#228360 - 11/30/05 03:53 PM
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anlikerm
Reged: 09/16/05
Posts: 1320
Loc: NC
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Have you gotten my other posts??? Your doctor sounds just as bad as mine! Why???? Because they WORK TOGETHER!!! IDIOTS!!!!!! So funny that he put you on a med you don't agree with. That's what I was telling you about the Pamine. Dr. Woods will only put me on Pamine for spasms and I don't do well on that drug.
What is wrong with these docs???
I tried to email you, too, but it wouldn't send.
Michelle 
--------------------
IBS-D. Hiatal Hernia, GERD
Unstable
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There seem to be 2 schools of thought--one pro-mega-IF and the other SF (i.e. Heather's approach). You'll never be able to change your gastro's philosophy.
Kate, IBS-D.
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My doc doesn't believe diet has anything to do with IBS. He wonders why I don't eat dairy. I told him about this diet, and he said it was a diet that worked for Heather and that there is no proof that SF before IF helps. He says it's nonsense. Doctors won't change their views on this...so I guess we need to decide for ourselves what "guru" to follow.  I, for one, am totally confused because nothing seems to work for me.
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I wonder if there's a difference in opinion among specialists based on where they are in their careers. Or maybe they just misunderstand the purpose of the diet and SF? It sounds like some doctors think we're blaming diet for our IBS or expecting it to cure our IBS. This diet and way of eating isn't meant to be a cure but it's there to lessen the stress on our GI tract and manage the gastrocolic response. Most doctors recommend the BRAT diet when someone has a GI infection, so why can't they accept that this diet promotes foods that are easier to digest and that don't aggravate our IBS symptoms?
So...What does your doctor say DOES work?  Does he offer you an alternative? What meds or recommendations has he given you to try? I'd like to know what he believes will help.
Edited by SPASMTASTICAL! (12/01/05 10:59 AM)
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Re: Um?
#228405 - 11/30/05 10:27 PM
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lalala
Reged: 02/14/05
Posts: 2634
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Quote:
Saw my gastro and he told me to go off my SFS and just eat FIBER. He told me to eat 2 bowls of high fiber cereal daily and put me on the same meds I had trouble with, nortriplyn. He says diet has nothing to do with this disorder...
Wait, isn't that a contradiction? Didn't he just prescribe a specific, high fiber diet for you? So then, that means diet does have something to do with it, right? 
Edited by SPASMTASTICAL! (11/30/05 10:28 PM)
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Re:Yep!
#228421 - 12/01/05 05:29 AM
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LisaRae
Reged: 07/18/05
Posts: 90
Loc: Atlanta Ga
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Michele, It is a conspiracy between our doctors that our emails will never reach one another!!!!! To answer all of everyones questions my doctor is young and to say diet has nothing to do with this but eat a high fiber diet is a contradiction. Hope I spelled that right, sure wish I had spell check on this, lol.He is going to try and find a gastro that will give me Lotronex though. I will say he does care and is trying but his diet advice is never going to change. He put me back on Pamelor or also called Nortripylin because he thinks he had me start at to high of a dose so this time I am starting low and going up every two weeks. He also said I gave up to fast on it. I took it for three days and at night the pain was so bad so I told him it was easy for him to say hang in there when he is not the one suffering. I am also on Librax which I am to go off once my other drug kicks in, he says in about six weeks. I take Benefiber as of last night, used to be on Citrucel but it killed my stomach and the Benefiber I love, put in food or drinks. It did give me gas but I know that is normal on a new SFS.I do research and Lotronex if you can get it is a godsend for some and I do have a site where lots of folks use it. Also a company here in Atlanta tried to get Cilansetron approved after its trails but FDA denined it and they gave up. In Japan Ramosetron is close to being approved there so who knows. These are all 5-HT3 antagonist. I have not found anyone on this site who takes Lotronex but if I do get it I will post right away. Thanks to you all. Lisa
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I got pretty lucky, I think. I have this insane fear/hate of doctors (heh) so I didn't see mine until well after I was on Heather's diet. At that point I kinda just wanted confirmation that I didn't have stomach cancer or something more terrible and that it was just IBS. I never saw a GI, just my family doctor (that's pretty typical in Canada I think). Anyway, he told me that diet definitely, definitely plays a big role but that there aren't really many general rules that work for all IBS sufferers. High fiber and low fat, he said (he didn't specify what kind of fiber but I didn't press him). Try going off of dairy and wheat for a few weeks and see how you are with that. Keep a food journal to find out your own intollerances, and find something to help managae your stress.
Which, all in all, is pretty good advice I think. So it makes me so angry when I hear about people like this who have had to go through such $h!t like this with their doctors!! 
Please remember that your doctor does not have authority over your body. If you know that Heather's diet is working for you, DO NOT listen to his bowls of high fiber cereal advice. Don't go on any medication that YOU know isn't good for your body. You know your body better than your doctor ever, ever could. And most of all - don't let his bull$h!t stress you out!!! Argh. Stupid doctors. IBS is not life-threatening. He doesn't know everything. If you don't follow his advice, your IBS will not get worse or anything (it will probably get better!)
Phew, ok /end rant/ Didn't mean to offend or anything of course so I hope I haven't. I just have a 'thing' with doctors 
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Thanks for the support and I will do what is best for me. I think regardless of what you have it is up to you to do the research and educate yourself for what is best for you so I agree with you. Lisa
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I think dr's are afraid of losing a kick back from prescribed drugs for IBS sufferers! I've been using the acacia for several months now and it has really helped. I still have gas and bloating fairly severe at times and had made the mistake of asking my doc about the peppermint caps. He adamantly advised me to not put those in my gut as it was not "approved." I think whatever helps is worth at least a try. These doctors have no clue what H--- IBS is. My gastro doctor after I was diagnosed with IBS and a severe case of diverticulosis told me I could eat anything while taking the meds he had me taking. Boy was he wrong! My diet has completely changed in the last 9 months. I typically ate salads 2 or 3 times a week...not anymore unless I want to visit the ER. It's frustrating because it seems like all the doctors put little priority on treating IBS as a serious ailment. I have had a rough time adapting but an even rougher time dealing with the excruciating pain, but God has truly helped me endure! It's good being back on a posting..I haven't been able to do anything much besides my job requirements. And to put the icing on the cake, I got food poisoning recently while on vacation and got to spend an entire day in the ER in Sevierville, Tenn! I had to tell them to give me phenigrine..."doctors" dontcha love 'em!
Take care all...Lisa P.
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