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This definitely wasn't boring! Very intriguing--it gets the "detective" in me all worked up. I just wish more studies were being done with a greater number of IBSers based on when their IBS first appeared (post-infectious vs post-partum vs post-operative etc).
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I like how you explained that the "body isn't isolated neatly into systems"--that's exactly it! It's like the brain-gut connection: IBS isn't psychological, but neurological, which would also explain some of those other symptoms.
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I can't even remember what it's like to not be tired all the time! And when the IBS is acting up, the exhaustion is unbearable. I've even taken time off work just because I'm so tired. I have experienced some of the other symptoms on the list, but not to the same extent as the exhaustion. One thing that helped was going on the pill, although I had to try a few out before I found one that helped.
Another problem I have is how I can't stay awake after I eat, even if it's not a big meal. I make a big effort to get lots of sleep at night, but sometimes I'm still so tired that I'll just sleep after work and eat supper afterwards, just so I don't fall asleep with a full tummy. Anyone have any hints on how to overcome this? I'm basically passing out before I even have a chance to get to the dishes, and then I get so groggy and weak I literally can't function. I'm too young to feel this old! 
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Re: Maria
#207644 - 08/22/05 08:46 PM
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Wind
Reged: 04/02/05
Posts: 3178
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I'm the one who is sorry! This is interesting, but it is so vague! I see that alot of IBS'ers complain of fatigue and other symptoms listed. I'm just not sure what the conclusion is, if indeed there is one. The parallels are fascinating.
Honestly--I'm always either wired or bagged. I don't sleep, but rather I nap. I have days where my jaw is so tight/stiff/sore that I cannot chew food, so into the food processor it goes. I have migraines and headaches at least 4 times a week. I freeze in the heat of summer and winter is unbearable. Excessive heat, also, bothers me.
It's beyond me. But the connections/co-incidences are very interesting. I'm just not sure what you're getting at. However, I'm probably just the village idiot.
Kate.
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I can't help, but I can relate. I take a nap after breakfast sometimes. I come in to get dressed and just have to lay down and close my eyes. Same with lunch. By 1 p.m. I am napping. It's not just laziness ... I HAVE to sleep. At least now I know there is a reason for it.
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Carol
nós somos o que nós somos e o descanso é merda
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Hi Ralph, Where does this ciguatoxin come from? I thought
maybe you got nailed by a platypus or something like that.
It doesn't sound as though that's the case. -Bob
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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I have 6 of the 26. I couldn't find the original newsletter itself - I think it would be really interesting to see what the methodology was. For example, were the people who listed the symptoms on medications? Were they severely restricting their diets because of their IBS? Were they largely inactive because of their diets? In other words, were the symptoms caused directly by whatever type of systemic malfunction caused their IBS or were their symptoms caused by responses to their IBS - taking meds, not eating enough, not eating a remotely balanced diet, not getting any physical activity?
I'm hoping it's the latter because although my IBS is now largely under control, I haven't really bounced back in terms of overall health. I'm hoping I feel bad because I haven't gotten my diet adequately balanced and my exercise underway, rather than as an unavoidable consequence of IBS.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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headache -- yes
dizziness -- no
heart palpitations -- yes
back pain -- yes
shortness of breath -- yes but I have asthma
muscle ache -- yes
frequent urinating -- no
difficulty in urinating -- no
sensitivity to heat and cold -- extreme
constant tiredness -- yes
Pain during intercourse -sex- -- no
trembling hands -- no
sleep difficuties -- just that I never want to get up!
bad breath-unpleasant taste in mouth -- no
grinding your teeth -- no
jaw pain -- no
flushing of face and neck -- no
dry mouth -- no
week or wobbly legs -- yes
scratchy throat -- no
tightness or pressure in chest -- yes, asthma
low sex drive -- no
poor appetite -- I wish
eye pain -- no
stiff muscles -- yes
eye twitching -- sometimes
I am getting my thyroid tested because of the constant fatigue and the extreme sensitivity to cold, and because my temp is always a little too low. I wonder if it's all related after all?
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Amanda
I live in the Big Apple, but I don't eat the skin
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Ha Ha, no Bob, not a platypus (as vicious a wee beastie they are), ciguatoxin is a neurotoxin that builds up in the food chain and accumulates in large reef fish, some species worse than others, Barred spanish mackeral was the culprit in my case. The toxin is produced by a dinoflagellate organism amongst the algae on coral reefs, little fish ingest it, get eaten by bigger fish, etc etc up the food chain until the big fish end up with quite a concentration of it.
It doesnt affect the fish, can't be detected by taste or odour, is unaffected by freezing or cooking, and up until recently there was no test for it. The test is still largely unknown and unused, and of course fishing industries don't want to know about it as it would cost them to test their catch. Of course it's one of those things people just don't give a damn about UNLESS of course they've had it as it is an extremely nasty thing and i am still suffering effects 35 years later!
What with all the omega-3 fish oils being added to breads and who knows what else these days, it is of some concern to those who have had it, even the tiniest bit of ciguatoxin can have a devastating effect!
Sorry for the long winded reply but i do like to eduate folks when i get the chance, and if i had been spiked by a stroppy platypus all those years ago instead i would've been a lucky guy!
cheers
Ralph
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My checklist- a lot of the ones I do have I can attribute to something else or have them since before I had IBS. The muscular and sleep ones could be fibro indicators (Linz/Nelly etc can you comment on this?)
headache - no
dizziness -no
heart palpitations -no
back pain -yes but not related
shortness of breath -asthma!
muscle ache -yes
frequent urinating- yes
difficulty in urinating-no
sensitivity to heat and cold- yes
constant tiredness -yes but think this is lifestyle based
Pain during intercourse -sex- no
trembling hands no
sleep difficuties no
bad breath-unpleasant taste in mouth -post nasal drip from sinusitis gives me this sometimes
grinding your teeth -no
jaw pain -no
flushing of face and neck -no
dry mouth -no
week or wobbly legs-no
scratchy throat -no
tightness or pressure in chest- asthma
low sex drive -no
poor appetite -no!!
eye pain -no
stiff muscles -yes but attributable to other things ie lack of exercise
eye twitching-no
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S.
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