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Re: Gluten intolerance new
      #169877 - 04/14/05 10:25 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Ruchie! I'm so glad to hear you are feeling better!

Do you have any idea how accurate the blood tests they do for Celiac are? I was testing but it did come back negative. How long to you typically have to do GF diet to see if it helps?

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Taking it one day at a time.....

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Re: Gluten intolerance new
      #169918 - 04/14/05 12:17 PM
MikeE

Reged: 03/31/05
Posts: 60
Loc: Seattle, WA

Well for me I tested negative for Celiacs, but I am still Gluten intolerant. Unfortuneately there aren't any 100% conclusive tests for Gluten Intolerance that I know of. There are a couple of stool/gene tests, but they are somewhat controversial at this point as there's only one place that seems to test for it right now. I'm guessing that the gene test might pan out one day as it makes a lot of sense given the article that I posted just a few minutes ago.

There is an antibody test, but again you can be GI and still test negative in this test. As I did.

Finally, it wouldn't hurt to have these tests done, but just know it won't 100% rule out Gluten Intolerance. Though you might be able to rule it out by not eating it for a while, and then if you feel better either know that it was that or try eating gluten again and seeing how you feel.

HTH,
Mike

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I tested negative across the boards... new
      #169953 - 04/14/05 03:36 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

but if I eat gluten I get depressed, constipated, cranky, emotional, gassy, fibro-feeling....the list goes on.

People have had false negatives AND false positives with the blood tests. Last my allergist in NY told me he had a patient that was positively ILL. The guy had every test for celiac he could find...they were all negative. The allergist suggested going GF to his patient despite the tests....and the guy healed!!!! The allergist made the same suggestion to me...unfortubnately I was too immature and in love with my food to make a go of it.

Going GF has changed my life!

It's not right for everyone...but for folks still suffering after trying Heather's diet...they should def. consider it imho!

I hope we're helping Michele *hugs*

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Formerly known as Ruchie

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